Kodi lilime la mwana wanu ndi lalikulu kuposa pakamwa pake? Tiyeni tikambirane za Macroglossia | Nirogi Lanka

Kodi munayamba mwaonapo, kapena mwina munamvapo za anthu—makamaka ana aang'ono—omwe malilime awo amaoneka aakulu kwambiri kuposa pakamwa pawo? Nthawi zina, lilime limatha kutuluka m'mano kapena milomo. Mu zamankhwala, vutoli limadziwika kuti Macroglossia . Ngakhale dzinalo lingamveke loopsa, chonde musadandaule. Lero, tiyeni tikambirane za izi mwachidule kuti mumvetse bwino tanthauzo lake.

Kodi Macroglossia kwenikweni ndi chiyani, ndipo imadziwika bwanji?

Mwachidule, macroglossia imatanthauza vuto limene lilime lanu limakhala lalikulu kwambiri poyerekeza ndi pakamwa panu. Ngakhale kuti nthawi zambiri limapezeka mwa ana aang'ono, lingakhudzenso akuluakulu. Nthawi zambiri, ndi vuto lobadwa nalo, zomwe zikutanthauza kuti limakhalapo kuyambira kubadwa, nthawi zambiri limagwirizanitsidwa ndi matenda a majini mongaMatenda a Beckwith-Wiedemann kapena Down syndrome . Komabe, macroglossia imathanso kukula m'tsogolo chifukwa cha mitundu ina ya khansa, matenda oopsa, kapena mavuto ena azachipatala.

Mwina mukudzifunsa kuti, “Lilime la mwana wanga likuoneka lalikulu pang'ono, kodi angakhale nalo?” Ngati ndi choncho, samalani kwambiri zizindikiro izi:

• Kutuluka kosalekeza kwa lilime: Ichi ndi chizindikiro chodziwika bwino komanso chooneka bwino. Nthawi zambiri zimawoneka ngati palibe malo okwanira pakamwa kuti lilime lipumule bwino.
• Mavuto opuma:
• Mungamve phokoso lamphamvu komanso lolira mokweza pamene mukupuma, lomwe limatchedwa stridor .
• Kapenanso, mungazindikire phokoso la kukokoloka kapena phokoso la phokoso pamene mukupuma, makamaka mukugona. Izi zimadziwika kuti stertor .
• Kuvuta kumeza (dysphagia): Chifukwa cha lilime lalikulu, mwana wanu angavutike kusunga chakudya mkamwa mwake, kutafuna, kapena kumeza bwino. Makanda angakhale ndi vuto loletsa kuyamwitsa kapena kumwa kuchokera m'botolo. Nthawi zina, pangakhale kumverera kotsamwitsa pamene akudya.
• Kutulutsa madzi m'kamwa: Popeza lilime limaletsa pakamwa kutseka bwino, kutulutsa madzi m'kamwa nthawi zonse n'kofala, komwe mungazindikire ndi mapilo kapena zovala zomwe zimakhala zonyowa nthawi zambiri.
• Kulephera kulankhula: Popeza lilime ndi lofunika kwambiri polankhula, lilime lokulirapo lingapangitse kuti zikhale zovuta kutchula mawu momveka bwino kapena kulankhula motsatizana, zomwe nthawi zambiri zimapangitsa kuti munthu alankhule mopanda nzeru.

Chofunika kwambiri ndichakuti ngakhale zizindikirozi zingasonyeze macroglossia , zithanso kukhala zizindikiro za matenda ena. Nthawi zonse funsani katswiri ku Nirogi Lanka kuti akuwunikireni bwino.

Mungadabwe ngati izi zimachitika kawirikawiri. Zoona zake n'zakuti, macroglossia ndi matenda osowa kwambiri. Kudziwa kufalikira kwake kwenikweni n'kovuta chifukwa nthawi zambiri kumawonekera ngati chizindikiro cha matenda ena osati ngati matenda oyamba okha.

Kodi n’chiyani chimayambitsa macroglossia?

Macroglossia imayambitsa zinthu zingapo. Nthawi zina, anthu amabadwa ndi lilime lalikulu popanda mavuto ena azaumoyo. Kawirikawiri, ndi chizindikiro cha matenda enaake. Izi zitha kukhala zobadwa nazo (majini) kapena kuzipeza mtsogolo chifukwa cha matenda, kuvulala, kapena chithandizo chamankhwala.

Tiyeni tifufuze zifukwa izi:

Matenda Obadwa Nawo (Majini)

Macroglossia imagwirizana ndi matenda angapo a majini, kuphatikizapo:

• Matenda a Beckwith-Wiedemann: Izi zimakhudza kukula kwa thupi. Ana omwe ali ndi vutoli akhoza kukhala ndi matupi akuluakulu komanso ziwalo zazikulu. Alinso pachiwopsezo chachikulu cha khansa zina za ana. Chofunika kwambiri n'chakuti, pafupifupi 90% ya ana omwe ali ndi matenda a Beckwith-Wiedemann ali ndi macroglossia.
• Matenda a Hurler/Hunter (Mucopolysaccharidosis): Awa ndi matenda a kagayidwe kachakudya omwe amakhudza momwe thupi limagayira mamolekyu a shuga, zomwe zingayambitse kukula kwa lilime.
• Matenda a Down: Anthu omwe ali ndi matenda a Down amabadwa ndi chromosome yowonjezera, yomwe imakhudza kukula kwa ubongo ndi thupi. Macroglossia ndi khalidwe lodziwika bwino lomwe limapezeka kawirikawiri mwa anthu omwe ali ndi matenda a Down.

Mikhalidwe Yopezedwa

Nthawi zina, macroglossia imayamba kukula kwambiri chifukwa cha kagayidwe kachakudya, matenda a endocrine, kapena matenda opatsirana.

• Amyloidosis:Ichi ndi matenda okhudzana ndi mapuloteni pomwe mapuloteni osazolowereka amaikidwa m'thupi ndi ziwalo, zomwe zimalepheretsa kugwira ntchito kwawo. Macroglossia ndi chizindikiro chodziwika bwino cha amyloidosis yomwe imakhudza mkamwa.
• Hypothyroidism: Vuto lofala kwambiri pamene chithokomiro chanu sichipanga mahomoni okwanira a chithokomiro, zomwe zimapangitsa kuti kagayidwe kanu kagayidwe kachakudya kachepe. Hypothyroidism ndi vuto lofala kwambiri lomwe limayambitsa macroglossia, makamaka kwa ana.
• Acromegaly: Matenda osowa omwe amadziwika ndi kupanga mahomoni okulirapo mopitirira muyeso, zomwe zimapangitsa kuti lilime, nsagwada, manja, ndi mapazi zikule modabwitsa.
• Diphtheria: Matenda opatsirana a bakiteriya omwe angayambitse kutupa kwambiri kwa lilime.

Zotupa ndi Macroglossia

Zomera zina zabwino kapena zoyipa zimatha kuonekera ngati macroglossia:

• Lymphangioma: Chotupa chosaopsa cha dongosolo la lymphatic lomwe lingayambitse ziphuphu zodzaza ndi madzi m'maselo a mucous, zomwe zimapangitsa kuti lilime likule.
• Hemangioma: Zomera zosavulaza zomwe zimapangidwa ndi mitsempha yamagazi.
• Lymphoma: Mtundu wa khansa womwe umakhudza dongosolo la lymphatic.

Kodi macroglossia imapezedwa bwanji?

Inu kapena mwana wanu mukaonana ndi dokotala, choyamba ndi kuyezetsa thupi . Dokotalayo adzayang'ana mosamala lilime, mutu, ndi khosi. Pambuyo pa izi, mayeso angapo ozindikira matenda angachitike kuti adziwe macroglossia ndi matenda ena aliwonse omwe angayambitse vutoli.

Zina mwa mayeso ozindikira matenda ndi awa:

• Kujambula kwa Pakompyuta (CT scan): Njirayi imagwiritsa ntchito X-ray ndi kompyuta kuti ipange zithunzi za 3D za pakamwa panu, mutu, ndi khosi la mwana wanu, zomwe zimapangitsa kuti pakhale mawonekedwe abwino a mkati mwa thupi.
• Kujambula Magnetic Resonance Imaging (MRI): Iyi ndi njira yopanda ululu yomwe imagwiritsa ntchito maginito amphamvu, mafunde a wailesi , ndi kompyuta kuti ipange zithunzi zolondola kwambiri za ziwalo za thupi lanu ndi kapangidwe kake ka mkati.

Madokotala adzadziwa chomwe chimayambitsa macroglossia ndi njira yoyenera yochizira kutengera zotsatira za mayesowa.

Ndi mankhwala ati omwe alipo a Macroglossia?

Chochititsa chidwi n'chakuti, ana ena omwe ali ndi macroglossia yocheperako amatha kuwona kusintha akamakula; pamene mafupa awo a nkhope akukula, nthawi zambiri pamakhala malo ambiri oti lilime lizikula, mofanana ndi thupi lomwe likukula lomwe limalowa mu chovala chachikulu.

Komabe, sizili choncho nthawi zonse. Akamachiza macroglossia, madokotala amayang'ana kaye pa kupeza ndi kuchiza vuto lomwe limayambitsa matendawa. Kuyang'anira zizindikiro za macroglossia yokha kumatsatira pambuyo pake.

Njira zothandizira macroglossia zingaphatikizepo:

• Mankhwala: Mankhwala monga corticosteroids angalembedwe kuti achepetse kutupa kwa lilime.
• Chithandizo cha orthodontic:Ngati lilime lokulirapo likukhudza kukhazikika kwa mano, kulowererapo kwa orthodontic kungathandize kukonza mavutowa.
• Opaleshoni: Nthawi zina—makamaka pamene pali mavuto aakulu monga kuvutika kupuma kapena kumeza—opaleshoni ingakhale yofunikira kuti muchepetse kukula kwa lilime. Komabe, pafupifupi 10% yokha ya anthu omwe ali ndi macroglossia amafunika opaleshoni.

Kodi ndingachepetse chiopsezo cha mwana wanga kukhala ndi macroglossia?

Popeza macroglossia nthawi zambiri imagwirizanitsidwa ndi matenda obadwa nawo kapena majini, nthawi zambiri singathe kupewedwa. Komabe, chifukwa nthawi zina imatha kuyambitsidwa ndi matenda opatsirana, mutha kuchepetsa chiopsezo mwa kukhala ndi katemera waposachedwa (monga katemera wotsutsana ndi diphtheria) kuti muteteze ku matenda omwe angayambitse matendawa.

Kodi ndiyenera kuyembekezera chiyani ngati mwana wanga ali ndi macroglossia?

Monga tafotokozera, macroglossia nthawi zambiri ndi chizindikiro cha vuto linalake, monga matenda a majini kapena obadwa nawo. Chifukwa chake, gawo lofunika kwambiri ndikuzindikira ndikuthana ndi chomwe chimayambitsa vutoli.

Mwana wanu akhoza kukhala akulandira kale chithandizo cha matenda ake enieni; kutsatira dongosolo la chithandizo chimenecho ndicho chinthu chofunika kwambiri kwa inu. Funsani dokotala wa ana kuti mukambirane zomwe mungayembekezere pankhani ya momwe matenda ake adzakhalire komanso nthawi yokumana ndi dokotala wina.

Ndi mafunso ati omwe ndiyenera kufunsa dokotala wanga?

Ndizachibadwa kukhala ndi mafunso ambiri mwana wanu akapezeka ndi macroglossia. Nazi mafunso ofunikira omwe mungafune kufunsa dokotala wanu:

• Kodi macroglossia kwenikweni ndi chiyani?
• Kodi izi zidzakhudza bwanji moyo wa mwana wanga watsiku ndi tsiku?
• Kodi chifukwa chachikulu cha macroglossia ya mwana wanga ndi chiyani?
• Kodi ndi mankhwala ati omwe mumalimbikitsa, ndipo chiŵerengero cha kupambana ndi chotani?
• Kodi chithandizocho chidzatenga nthawi yayitali bwanji, ndipo ndi zotsatirapo ziti zomwe ndiyenera kuyang'anitsitsa?
• Kodi pali njira zenizeni zomwe ndingasamalire mwana wanga kunyumba (monga njira zodyetsera kapena kuyika pogona)?

Musazengereze kufunsa mafunso awa. Kuthetsa nkhawa zanu ndikofunikira kwambiri kuti mupeze chithandizo chabwino kwambiri. Dokotala wanu adzasangalala kukufotokozerani izi.

Zinthu Zofunika Kwambiri (Nirogi Lanka)

Kupeza matenda a macroglossia kungakhale kovuta, koma nthawi zambiri ndi chizindikiro chimodzi chokha cha vuto linalake. Chofunika kwambiri ndikukhala chete ndikupempha thandizo la akatswiri azachipatala mwachangu.

• Ngati mukuona kuti lilime la mwana wanu likuoneka lalikulu kwambiri kapena ngati mukuona zizindikiro zomwe takambiranazi, chonde funsani dokotala wa ana kapena dokotala wa opaleshoni ya khutu, mphuno, ndi pakhosi (ENT).
• Mwa kuzindikira chomwe chimayambitsa matendawa ndikutsatira ndondomeko yochizira yomwe yaperekedwa, macroglossia amatha kuthandizidwa bwino.
• Kwa ana ena, vutoli likhoza kuchira mwachibadwa akamakula.
• Kutsatira malangizo a dokotala wanu mosamalitsa pamene mukupatsa mwana wanu chikondi ndi chithandizo nthawi zonse n'kofunika kwambiri.

Kumbukirani, simuli nokha. Pali makolo ena ambiri omwe akukumana ndi mavuto ofanana. Ndi malangizo oyenera azachipatala komanso kudzipereka kwanu, mutha kutsimikizira kuti mwana wanu akupeza zotsatira zabwino kwambiri.

Mawu Ofunika: Macroglossia, Lilime lokulirapo, Thanzi la lilime la ana, Kuvuta kupuma, Kuvutika kudya, Beckwith-Wiedemann syndrome, Down syndrome, Nirogi Lanka, Matenda a lilime