Kodi mukudziwa za PCD? (Primary Ciliary Dyskinesia) Tiyeni tikambirane za vuto losowa ili!

Kodi mudamvapo za vuto lotchedwa 'Primary Ciliary Dyskinesia' kapena `(Primary Ciliary Dyskinesia - PCD)`? Ngakhale dzinalo lingamveke lachilendo pang'ono, ili ndi vuto losowa, koma lofunika kwambiri lomwe limakhudza dongosolo lathu la kupuma komanso machitidwe ena a thupi. Nthawi zambiri ndi chinthu chomwe chimapezeka pobadwa. Chifukwa chake, lero tikambirana za PCD iyi m'njira yosavuta yomwe mungamvetse.

Kodi vuto lalikulu la ciliary dyskinesia (PCD) ndi chiyani?

Mwachidule, PCD ndi vuto lomwe limachitika pamene tinthu tating'onoting'ono tonga tsitsi m'thupi lathu lotchedwa cilia sitigwira ntchito bwino . Tinthu tating'onoting'ono timeneti ndi tating'ono kwambiri moti sitingathe kuona ndi maso athu. Tangoganizani kuti tinthu tating'onoting'ono timeneti timagwira ntchito ngati ma broom ang'onoang'ono m'njira yathu yopumira, kutanthauza kuti, m'malo monga mphuno, pakhosi, ndi mapapo.

Ndiye kodi cilia izi zimachita chiyani?

Kapangidwe kakang'ono konga tsitsi aka kotchedwa cilia sikapezeka m'thupi lathu lopuma lokha, komanso m'malo ena. Ntchito yawo yayikulu ndikuchotsa zinthu zosafunikira monga majeremusi ndi fumbi zomwe zimalowa m'thupi lathu, komanso mamina omwe amasonkhana m'thupi . Amachita izi poyenda ngati mafunde. Sikuti kokha, pamene mwana akukula m'mimba, ma cilia amenewa amathandizanso ziwalo za mwana kukhala pamalo oyenera.

Kotero, chomwe chimachitikira munthu amene ali ndi PCD ndi chakuti ma cilia amenewa sagwira ntchito bwino. Izi zikutanthauza kuti:

• Mwina kukula kwa cilia kumeneku ndi kolakwika .
• Kapangidwe kawo kangakhale kachilendo .
• Mwina cilia idzasowa .
• Kapena, amatha kuyendayenda ngati amisala, popanda kulumikizana kulikonse .
• Kapena sichingasunthe konse .

Kodi timadwala bwanji chifukwa cha cilia yomwe sigwira ntchito bwino?

Ngati ma cilia amenewa sagwira ntchito bwino, mavuto osiyanasiyana azaumoyo angabuke. Ena amayamba munthu akangobadwa, pomwe ena angaonekere atakula.

• Malo osazolowereka a chiwalo: Tangoganizirani, ziwalo monga mtima wathu, mapapo, ndulu, ndi zina zotero zimakhala mbali ina m'malo mwa kumanja. Nthawi zina, zomwe ziyenera kukhala mbali yakumanja zitha kukhala kumanzere. Timatcha izi kuti ``Situs Inversus`` . Nthawi zina, ziwalo zimatha kutembenuzidwa kotheratu mbali yolakwika. Izi zitha kuchitikanso ngati ma cilia amenewo sakugwira ntchito bwino.
• Matenda opuma osatha komanso oopsa: Ili ndiye vuto lalikulu la PCD. Pamene cilia ikulephera kutulutsa mamina, mamina amasonkhana m'mapapo ndi m'njira zopumira. Izi zimapangitsa kuti munthu ayambe kutsokomola pafupipafupi, kutsekeka pachifuwa, komanso matenda oopsa . Izi zitha kuwononganso mapapo.
• Mavuto a kusabereka: Amuna omwe ali ndi PCD nthawi zambiri amavutika kubereka ana, zomwe zikutanthauza kuti amatha kukhala osabereka . Azimayi amathanso kukhala ndi mavuto akuluakulu panthawi ya mimba, monga mimba yotuluka m'mimba (kumene dzira limalowa kunja kwa chiberekero).N'zotheka.

Kodi n’chiyani chimayambitsa PCD?

Imeneyi ndi matenda a majini . Izi zikutanthauza kuti, amayamba chifukwa cha kusintha kwina kapena kusintha kwa majini komwe kumaperekedwa kuchokera kwa kholo kupita kwa mwana. Pali mitundu ingapo ya kusintha kwa majini komwe kumayambitsa matendawa.

Kodi zizindikiro za dyskinesia ya ciliary yoyambirira ndi ziti?

Zizindikiro nthawi zambiri zimaonekera munthu akangobadwa, ndipo pang'onopang'ono zimatha kuwonjezeka pakapita nthawi.

Zizindikiro za PCD zomwe zingawonekere pobadwa:

• Kuvutika kupuma : Mwana akhoza kukhala ndi vuto lopuma nthawi yomweyo atangobadwa.
• Mphuno yotsekeka : Mphuno yanu ingamveke yotsekeka nthawi zonse.
• Chifuwa chonyowa chosalekeza : Chifuwa chomwe chimatulutsa mamina chingapitirire.
• Malo osazolowereka a ziwalo (heterotaxia) : Monga tanenera kale, ziwalo zitha kukhala pamalo olakwika, ziwalo zina zitha kusowa, kapena sizingakule bwino. Situs inversus ndi vuto lina lotere.
• Nthawi zina matenda a mtima obadwa nawo .
• Kutaya kwa mpweya m'mapapo (atelectasis) .
• Kukula kofanana ndi kwa cyst m'ziwalo monga impso ndi kapamba.
• Kusowa kwa ma antibodies (kusowa kwa ma antibodies), komwe kungayambitse chiopsezo chowonjezeka cha matenda a m'mapapo ndi m'mphuno.

Zizindikiro za PCD zosalekeza:

Pakapita nthawi, mukhoza kuona zizindikiro monga:

• Chifuwa chosatha : Chifuwa chosatha.
• Matenda a sinusitis osatha : Matenda obwerezabwereza a sinus.
• Matenda a m'makutu : Matenda a m'makutu obwerezabwereza, madzi akutuluka m'makutu.
• Mafinya ndi mafinya ochulukirapo .
• Kusabereka (makamaka kwa amuna).
• Ma polyps a m'mphuno .
• Kupezeka pafupipafupi kwa chibayo chachikulu .
• Matenda opatsirana pafupipafupi a m'mapapo .
• Nthawi zina pamakhala kudzikundikira kwa madzi muubongo (hydrocephalus).

Kodi matenda a primary ciliary dyskinesia (PCD) amawapeza bwanji?

Ndipotu, kuzindikira izi n'kovuta pang'ono. N'zosatheka kunena motsimikiza ndi mayeso amodzi okha kuti ndi PCD. Madokotala amafika pa mfundo imeneyi atachita mayeso osiyanasiyana.

• Kuyezetsa matenda ndi mbiri ya matenda: Choyamba, dokotala adzakufunsani za zizindikiro zanu komanso ngati pali wina aliyense m'banja mwanu amene wakhala ndi matenda ofanana ndi anu.
• Kujambula kwa cilia: Kachidutswa kakang'ono ka minofu kamatengedwa kuchokera m'mphuno kapena m'mapapo ndikuwunikidwa pogwiritsa ntchito maikulosikopu. Izi zimatithandiza kuwona mawonekedwe, kukula, ndi kuyenda kwa cilia.
• Kuyesa majini:Kuyesaku kumayang'ana kusintha kwa majini komwe kumakhudzana ndi PCD. Komabe, sizingatheke kupeza kusintha kwa majini kumeneku mwa aliyense amene ali ndi PCD.

Kuonjezera pa izi, mayeso ena angachitike ngati PCD ikukayikiridwa:

• Kuyeza mpweya wa nitric oxide m'mphuno: Chipangizo chapadera chimayesa kuchuluka kwa mpweya wotchedwa nitric oxide mumlengalenga womwe timatulutsa. Anthu omwe ali ndi PCD ali ndi mpweya wochepa kwambiri.
• Mayeso a ntchito ya m'mapapo: Mayeso awa amawunika momwe mapapu anu akugwirira ntchito komanso ngati mukuvutika kupuma.
• Kujambula pa maikulosikopu ya kanema: Chitsanzo cha cilia chimatengedwa ndikuwonedwa kudzera mu maikulosikopu yokhala ndi kamera ya kanema yamphamvu kwambiri. Izi zimathandiza kuti cilia iwoneke pang'onopang'ono, zomwe zimathandiza kuti munthu aphunzire bwino momwe amagwirira ntchito.

Kodi matenda a primary ciliary dyskinesia (PCD) amachiritsidwa bwanji?

Mwatsoka, palibe mankhwala a PCD pakadali pano . Komabe, pali njira zambiri zothandizira zomwe zingathandize kuwongolera matendawa, kuchepetsa zizindikiro, komanso kupangitsa moyo kukhala wosavuta.

Cholinga chachikulu ndikuchotsa mamina ndi madzi omwe amasonkhana m'mapapo . Izi zimachitika pochita zinthu monga:

• Kuchotsa mpweya: Makina apadera amathandiza kumasula ndi kuchotsa mamina. Palinso njira zapadera zokhosomolera zomwe zimathandiza kuchotsa mamina.
• Kuchiza chifuwa: Anthu ena amagwiritsa ntchito chipangizo chonga jekete chomwe chimakhudza chifuwacho pang'onopang'ono. Izi zimathandiza kumasula mamina ndikuthandiza kuti atuluke.
• Machubu a m'makutu: Ngati mumadwala matenda a m'makutu pafupipafupi, machubu ang'onoang'ono angaikidwe mu ntchafu ya m'makutu kuti atulutse madzi omwe amasonkhana pakati pa khutu.

Kuphatikiza apo, mankhwala ngati awa amaperekedwa kuti athetse matenda ndi kutupa:

• Mankhwala opha tizilombo toyambitsa matenda: Mankhwalawa amaperekedwa kuti achepetse matenda a bakiteriya m'thupi. Nthawi zina, maantibayotiki angafunike kuperekedwa kudzera m'mitsempha.
• Azithromycin: Iyi ndi mankhwala omwe amathandiza kuchepetsa kutupa m'mapapo, ndipo nthawi zina amatengedwa tsiku lililonse.
• Mankhwala ochepetsa mpweya m'mapapo: Mankhwala monga albuterol. Mankhwalawa amapangitsa kuti njira zopumira zikhale zazikulu pang'ono, zomwe zimapangitsa kuti kupuma kukhale kosavuta.
• Corticosteroids: Izi zimalamulira zochita za mankhwala m'thupi ndikuchepetsa kutupa.
• Mankhwala ochepetsa mafinya: Mankhwala opumira awa amathandiza kuchepetsa mafinya m'njira zopumira komanso kupangitsa kuti zikhale zosavuta kutulutsa.

Kodi ndikufunika chithandizo china cha PCD?

Nthawi zina, monga tafotokozera pamwambapa, ngati ziwalo zili pamalo olakwika, opaleshoni ingafunike kuti ikonzedwe.Maopaleshoni amenewa amachitika mwana akangobadwa kumene. Komanso, maopaleshoni ena angafunike mtsogolo kuti apewe kapena kuchiza mavuto omwe angabuke.

Kodi vuto la primary ciliary dyskinesia (PCD) lingapewedwe?

Popeza ichi ndi vuto la majini, palibe chomwe tingachite kuti tipewe vutoli . Komabe, ngati wachibale wanu wapafupi ali ndi PCD ndipo mukuganiza zoyambitsa banja, ndi bwino kuganizira zoyezetsa majini ndi uphungu wa majini . Ntchitozi zingakuthandizeni kudziwa momwe inu kapena mwana wanu mungayambire vutoli.

Kodi anthu omwe ali ndi PCD amakhala ndi moyo wautali bwanji?

Anthu ambiri amakhala ndi moyo wautali, nthawi zambiri mpaka atakalamba . Chofunika kwambiri ndikupeza chithandizo choyenera ndikudzisamalira.

Kodi chiyembekezo cha anthu omwe ali ndi PCD ndi chiyani?

Izi zimasiyana kwambiri malinga ndi munthu ndi munthu . Anthu ena amadwala kuyambira tsiku lomwe anabadwa ndipo angakhalebe choncho moyo wawo wonse. Ena akhoza kukhala ndi thanzi labwino panthawi yawo yopuma kenako n’kudwala kwambiri nthawi zina. Chifukwa chake, ndikofunikira kwambiri kulankhula ndi dokotala wanu za vuto lanu ndikutsatira malangizo awo.

Kodi mavuto omwe angakhalepo chifukwa cha PCD ndi ati?

Popeza matenda amapezeka kawirikawiri, amatha kuwononga minofu ya ziwalo, kuyambitsa zipsera, komanso kubweretsa mavuto osiyanasiyana. Mwachitsanzo:

• Kutaya kumva .
• Kutambasuka ndi kuwonongeka kwa njira zopumira (bronchiectasis) : Izi zingayambitse kuwonongeka kwina kwa mapapo.
• Kulephera kupuma : Vutoli limatha kuchitika pazochitika zoopsa kwambiri.

Kodi ndi zinthu ziti zofunika kuzidziwa mukakhala ndi PCD?

PCD ndi matenda osatha. Choncho, mukakhala ndi matendawa, mutha kupangitsa moyo wanu kukhala wosavuta ndikuchita zinthu izi kuti mukhale ndi thanzi labwino:

• Maseŵero Olimbitsa Thupi: Mukachita masewera olimbitsa thupi pang'ono, mumapuma kwambiri. Izi zimathandiza kumasula mamina m'mapapo mwanu komanso zimathandiza kupuma mosavuta. Zimawonjezeranso mphamvu zanu.
• Thandizo la maganizo: Kukhala ndi matenda osatha ngati awa nthawi zina kungakhale kovuta m'maganizo. Pakhoza kukhala zovuta. Chifukwa chake, kupeza thandizo kuchokera kwa katswiri wa zamaganizo, monga mlangizi, kungathandize kwambiri kuchepetsa nkhawa zomwe mumamva.
• Kuwunika nthawi zonse zachipatala: Muyenera kuonana ndi dokotala wanu nthawi zonse kuti muwone momwe chithandizo chanu chikugwirira ntchito, ngati zizindikiro zanu zikukulirakulira, kapena ngati mavuto atsopano akuyamba. Mungafunikenso kuyesedwa ntchito za m'mapapo nthawi zonse kapena X-ray pachifuwa.

Chofunika kwambiri si kuchita mantha mukangodziwa kuti muli ndi PCD, koma kutsatira malangizo a dokotala wanu bwino lomwe ndikudzisamalira nokha.

Uthenga Wopita Nawo Kunyumba

Matenda a Primary Ciliary Dyskinesia (PCD) ndi matenda osowa kwambiri, omwe amakhudza kwambiri ziwalo za thupi zomwe zimapuma komanso ziwalo za thupi. Zizindikiro zimatha kukulirakulira pakapita nthawi, ndipo mavuto monga kulephera kupuma amatha kuchitika.

Komabe, ngakhale kuti palibe mankhwala a izi, pali mankhwala omwe angathandize kuchepetsa zizindikiro ndikuchepetsa chiopsezo cha matenda . Zinthu monga njira yopumira mpweya ndi mankhwala zingapereke mpumulo waukulu. Ndikofunikiranso kufunafuna thandizo la maganizo kuti muchepetse nkhawa zomwe mumakhala nazo chifukwa chokhala ndi matenda osatha ngati awa. Simuli nokha, ndipo pali madokotala ndi ena omwe angakuthandizeni.

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