Kodi mumamva kutopa kwambiri tsiku lonse? Mumadzuka mukumva kutopa, ndipo ngakhale mutagona tulo tochuluka bwanji usiku, kutopako sikutha? Nthawi zina mungaganize kuti uku ndi kutopa chifukwa chogwira ntchito mopitirira muyeso. Koma n'kovuta kwambiri kuposa pamenepo, ndipo kungakhale vuto la thanzi lomwe tiyenera kuliganizira bwino. Lero tikambirana za kutopa kosalekeza kumeneku, komwe kumadziwika ndi madokotala kuti `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Nthawi zina kumatchedwa `Systemic Exertion Intolerance Disease (SEID)`.
Mwachidule, iyi ndi vuto lomwe batire ya thupi lanu silikuchajidwa bwino. Izi zimakupangitsani kutopa kwambiri kuti muchite ntchito zanu za tsiku ndi tsiku. Nthawi zina, ngakhale kuchita zinthu zosavuta monga kupita kusitolo, kugwira ntchito zapakhomo, kapena kulemba kalata kungapangitse kuti zizindikiro zanu zikhale zovuta kwambiri. Vutoli likhoza kukhalapo kwa miyezi 6, kapena zaka. Chofunika kwambiri ndichakuti kutopa kumeneku kusachepe, ngakhale mutapuma mokwanira komanso kugona bwino.
Dokotala angakuthandizeni kuzindikira vutoli ndikuwongolera zizindikiro zanu, koma choyamba ayenera kuzindikira ngati matenda.
Kodi zizindikiro zazikulu za vutoli ndi ziti?
Ngati muli ndi ME/CFS, muli ndi zizindikiro zitatu "zofunikira" izi. Tiyeni tiwone zomwe zili.
| Chizindikiro chachikulu | Kufotokoza mwachidule... |
|---|---|
| Kutopa kosatha | Kumva kutopa kwambiri kwa miyezi yoposa 6, zomwe zimapangitsa kuti zikhale zovuta kuchita ngakhale ntchito zosavuta za tsiku ndi tsiku. Izi ndi kusintha kwakukulu poyerekeza ndi zomwe munkachita m'moyo wanu wakale. |
| Kutopa Kwambiri Pambuyo pa Kuvutika Maganizo (PEM) | Ichi ndi chizindikiro chodziwika bwino cha matendawa. Ngakhale mutachita zinthu zochepa chabe zakuthupi kapena zamaganizo (monga kuyenda mtunda waufupi, kuwerenga buku), zizindikiro zake zimakhala zoopsa kwambiri kwa maola kapena masiku. |
| Kugona kosasangalatsa | Ngakhale mutagona tulo tabwino usiku, mumamvabe kuti mulibe moyo mukadzuka m'mawa. Mumamva kutopa, ngati kuti mwakhala mukudzuka usiku wonse. |
Kodi Post-Exertional Malaise (PEM) ndi chiyani?
Ndikofunikira kufotokoza izi pang'ono. Tangoganizirani kuchita ntchito yosavuta yomwe mumachita nthawi zambiri, monga kuyeretsa nyumba. Munthu wathanzi angamve kutopa pang'ono, koma zidzatha pakapita nthawi. Komabe, munthu amene ali ndi ME/CFS, atachita ntchito yosavutayo, mwina maola 12-48 pambuyo pake, angakumane ndi zizindikiro monga kupweteka kwambiri kwa thupi, mutu, kuvutika kuyang'ana, kupweteka pakhosi, komanso kutopa kwambiri . Matendawa amatha kwa masiku ambiri, ngakhale milungu ingapo.
Zinthu zina zofunika kuti munthu adziwe matenda
Kuwonjezera pa zizindikiro zitatu zazikulu zomwe zatchulidwa pamwambapa, kuti dokotala adziwe bwino matenda a ME/CFS, muyenera kukhala ndi chimodzi mwa zizindikiro ziwiri zomwe zili pansipa.
- Mavuto a Kuzindikira:
Anthu ambiri amatcha izi "ubongo wa chifunga." Zimatanthauza kuti mukuvutika kuyika maganizo pa chinthu, simungathe kuyika maganizo pa chinthu, mukuvutika kupeza mawu, simungakumbukire zinthu zatsopano, ndipo liwiro lanu loganiza limachepa. Zili ngati mutu wanu waphimbidwa ndi chifunga.
- Zizindikiro zimawonjezeka kwambiri mukakhala kapena kuyimirira (Orthostatic Intolerance):
Chomwe chimachitika pankhaniyi ndichakuti zizindikiro zimakula kwambiri mukayimirira kapena kukhala molunjika kwakanthawi. Mumamva chizungulire, maso anu amakhala akuda, mumamva kufooka, maso anu sakuwoneka bwino, ndipo mungamve ngati muli ndi zinthu zoyandama pamaso panu. Ichi ndichifukwa chake nthawi zambiri mumamva ngati mukomoka.
Kodi tiyenera kupita kwa dokotala liti?
Ngati muli ndi chizindikiro chimodzi kapena zingapo zomwe zatchulidwa m'nkhaniyi, makamaka ngati kutopa kwakhala kukuchitika kwa miyezi ingapo, chonde musaganize kuti ndi kutopa chabe. Ichi ndi chinthu chomwe muyenera kulankhula ndi dokotala wanu.
Nthawi zina zizindikirozi zimatha kuchitika chifukwa cha matenda ena, monga matenda a chithokomiro, kuchepa kwa magazi m'thupi, komanso kuvutika maganizo. Chifukwa chake, ndikofunikira kwambiri kudziwa chomwe chimayambitsa zizindikirozi. Dokotala yekha ndi amene angachite zimenezo.
Mukapita kukaonana ndi dokotala wanu, onetsetsani kuti mwafotokoza zonse zokhudza zizindikiro zanu, kuphatikizapo tsiku lomwe zinayamba, pamene zinakula kwambiri (PEM), ndi momwe mumagona. Ngati kuli kofunikira, lembani izi m'buku. Izi zithandiza dokotalayo kumvetsetsa vuto lanu.
Mungathe kufunsa dokotala wanu za zomwe adakumana nazo pochiza matenda a ME/CFS. Popeza vutoli ndi lovuta, mungafune kupempha kuti akutumizireni kwa dokotala wina yemwe ndi katswiri pankhaniyi. Musaope kukambirana za vutoli.
Uthenga Wopita Nawo Kunyumba
- Matenda Osatha Kutopa (ME/CFS) sikutanthauza kutopa kokha, koma ndi matenda aakulu komanso a nthawi yayitali omwe angakhudze kwambiri moyo wanu watsiku ndi tsiku.
- Zizindikiro zitatu zazikulu ndi kutopa kwambiri komwe kumatenga miyezi yoposa 6, kukulirakulira kwa zizindikiro pambuyo pochita zinthu zochepa (PEM), komanso kugona tulo tosasangalatsa.
- Kuphatikiza apo, kuvutika kukumbukira ndi kuganiza (chifunga cha ubongo) kapena zizindikiro zoyipirayipira mukayimirira (kusalolera kuyenda kwa orthostatic) ndizofala.
- Ngati muli ndi zizindikiro izi, musamazinyalanyaze. Onetsetsani kuti mwaonana ndi dokotala wanu kuti akupatseni chithandizo choyenera.
- Pali njira zosiyanasiyana zothanirana ndi vutoli. Choncho musataye mtima. Gawo loyamba komanso lofunika kwambiri ndikupempha upangiri kwa dokotala.
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