Tikudziwa momwe zimakhalira zovuta kulimbana ndi khansa. Ndizachibadwa kumva kutopa kwambiri madokotala akamanena mawu atsopano komanso ovuta monga "mankhwala a majini." Koma musadandaule. Lero tikambirana za chithandizo chimodzi chotere. Tangoganizirani kugwiritsa ntchito maselo a thupi lanu, kuwaphunzitsa, ndikutumiza kuti awononge maselo a khansa. Ndicho chimene chithandizo ichi chotchedwa Tisagenlecleucel chimachita. Tiyeni tikambirane za izi mosavuta komanso momveka bwino.
Kodi Tisagenlecleucel (KYMRIAH) ndi chiyani?
Mwachidule, iyi si piritsi yomwe mumamwa kapena mankhwala wamba omwe mumalowetsa mumtsempha. Tisagenlecleucel ndi mankhwala a majini . Zimaphatikizapo kutenga mtundu wa selo kuchokera ku chitetezo cha mthupi lanu, kulisintha mu labu, ndikuliphunzitsa kuzindikira ndikulimbana ndi maselo a khansa.
Kunena zoona, matupi athu ali ndi mtundu wa selo lomenyera nkhondo lotchedwa maselo a T. Maselo amenewa ndi omwe amalimbana ndi matenda. Pa chithandizochi, madokotala amatenga ena mwa maselo a T m'thupi lanu. Kenako, mu labu, amagwiritsa ntchito ukadaulo wa majini kuti aike "magalasi apadera" awiri pa maselo a T awa. Izi zikutanthauza kuti, amasintha maselowa kuti athe kuzindikira zizindikiro zinazake pamwamba pa maselo a khansa. Kenako, mamiliyoni a maselo a T "olimba kwambiri" awa amakula ndikulowetsedwanso m'thupi lanu kudzera mumtsempha. Tsopano maselo ophunzitsidwawa amapita mwachindunji ku maselo a khansa ndikuwawononga.
Mankhwalawa amagwiritsidwa ntchito makamaka pochiza mitundu yosiyanasiyana ya khansa, kuphatikizapo khansa ya m'magazi yoopsa (ALL) , mtundu wa khansa ya m'magazi, ndi khansa ya m'magazi yosakhala ya Hodgkin .
Zinthu zomwe muyenera kuuza dokotala wanu musanayambe kulandira chithandizo
Ngakhale kuti iyi ndi njira yochizira pogwiritsa ntchito maselo anu, ndikofunikira kukambirana momasuka ndi gulu lanu la chisamaliro musanayambe. Ayenera kudziwitsidwa izi:
- Matenda omwe alipo: Tiuzeni ngati muli ndi matenda enaake monga malungo, chifuwa, chimfine, kapena matenda a mkodzo.
- Matenda otupa: Uzani dokotala wanu za matenda aliwonse otupa m'thupi.
- Matenda a ziwengo: Onetsetsani kuti mwatiuza ngati muli ndi vuto lililonse la ziwengo, osati mankhwala awa okha, komanso mankhwala ena aliwonse, chakudya, kapena utoto.
- Mimba: Ngati muli ndi pakati, mukufuna kutenga mimba, kapena mukukayikira kuti muli ndi pakati, uzani dokotala wanu nthawi yomweyo. Izi ndizofunikira kwambiri.
- Kuyamwitsa: Ngati mukuyamwitsa mwana wanu, dziwitsaninso dokotala wanu.
Kodi mumapereka bwanji chithandizochi?
Chithandizochi chimaphatikizapo masitepe angapo ndipo chimachitika moyang'aniridwa bwino ndi gulu lachipatala m'chipatala kapena chipatala chapadera.
1. Kusonkhanitsa maselo: Patatha milungu 3-4 chithandizo chisanachitike, maselo a T amatengedwa m'thupi lanu. Izi zimachitika kudzera mu njira yotchedwa leukapheresis . Zili ngati kupereka magazi. Magazi amatengedwa kuchokera mumtsempha, n’kudutsa mu makina apadera, omwe amalekanitsa maselo oyera a magazi, kuphatikizapo maselo a T, kenako magazi otsalawo amabwezeretsedwanso m'thupi lanu.
2. Kuphunzitsa maselo: Maselo osonkhanitsidwawa amatumizidwa ku labu ndikuphunzitsidwa kulimbana ndi khansa.
3. Kulowetsedwa: Maselo akaphunzitsidwa ndikukula, amalowetsedwa m'thupi lanu kudzera mu mtsempha, monga momwe amachitira ndi madzi amchere. Zonsezi zimachitika kuchipatala.
Chofunika kwambiri ndichakuti chifukwa mankhwalawa amapangidwa kuchokera ku maselo anu, ndi mankhwala omwe amapangidwira inu . Chifukwa chake, mankhwalawa sangagawidwe ndi wina aliyense.
Zinthu zofunika kuziganizira mukamalandira chithandizo
Madokotala anu adzakuyang'anirani bwino kwambiri pa nthawi ya chithandizochi. Muyeneranso kudziwa zinthu izi.
- Kugona ndi kuyendetsa galimoto: Mungamve ngati mukugona komanso mukuzunguzika mutu . Choncho , musachite chilichonse chomwe chimafuna kukhala maso m'maganizo, monga kuyendetsa galimoto kapena kugwiritsa ntchito makina olemera, mpaka mutadziwa bwino momwe mankhwalawa amakukhudzirani.
- Kuopsa kwa matenda: Mankhwalawa angachepetse kwakanthawi mphamvu ya thupi lanu yolimbana ndi matenda. Choncho yesetsani kupewa anthu odwala. Ngati mukumva zizindikiro monga malungo, kupweteka kwa thupi, kapena kupweteka pakhosi , imbani dokotala nthawi yomweyo m'malo modzipatsa mankhwala.
- Kupereka magazi kapena ziwalo: Pewani kupereka magazi, ziwalo, minofu, umuna, kapena mazira (ma ovunda) pamene mukumwa mankhwalawa komanso kwa nthawi ina pambuyo pake.
- Mimba (Yofunika Kwambiri): Musatenge mimba pazifukwa zilizonse mukamamwa mankhwalawa. Komanso, ngati mukukonzekera kukhala ndi mwana kapena mukuganiza kuti muli ndi pakati, muyenera kuuza dokotala wanu nthawi yomweyo. Mankhwalawa akhoza kuvulaza kwambiri mwana wosabadwa.
- Mankhwala ena: Uzani dokotala wanu za mankhwala ena aliwonse omwe mukumwa (kuphatikizapo mavitamini ndi mankhwala azitsamba). Katemera wamoyo sapezeka makamaka panthawiyi.
- Zadzidzidzi:Izi zimaperekedwa kuchipatala, kotero simudzakhala mukumwa mankhwala ochulukirapo. Komabe, ngati pachitika ngozi, dziwitsani gulu lachipatala nthawi yomweyo. Ngati pakufunika kutero, adzakutumizani ku Emergency Treatment Unit (ETU) . Ngati mukukayikira kuti pali poizoni, mutha kuyimbira National Poisons Information Centre ku Colombo National Hospital .
Zotsatirapo zomwe zingakhalepo chifukwa cha mankhwalawa
Monga mankhwala ena onse, mankhwalawa akhoza kukhala ndi zotsatirapo zake. Zina mwa izi ziyenera kunenedwa nthawi yomweyo, pomwe zina sizili zoopsa kwenikweni. Onani tebulo ili m'munsimu.
| Kugawa zotsatira zoyipa | |
|---|---|
| Zinthu zoti muuze dokotala wanu kapena gulu lachipatala nthawi yomweyo | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo kapena lilime. |
| Kuvuta kupuma | Kuvuta kupuma. |
| Kusintha kwa maganizo | Kusokonezeka, kuvutika kulankhula kapena kumvetsetsa. |
| Zizindikiro za kuchepa kwa maselo m'magazi | Zizindikiro za matenda: malungo, kuzizira, pakhosi. Zizindikiro za kutuluka magazi: mabala, mawanga ofiira pakhungu, ndowe zakuda, magazi mu mkodzo. Kuchuluka kwa maselo ofiira m'magazi: kutopa kwambiri, kukomoka, kufiira. |
| Zizindikiro zina zazikulu | Kutsegula m'mimba, kulephera kukhazikika bwino, kupweteka kwa minofu kapena mafupa, nseru, kusanza, khunyu, zizindikiro za kuthamanga kwa magazi (chizungulire, kukomoka). |
| Ngati zikupitirira kapena zikukuvutitsani, uzani dokotala wanu. | |
| Zotsatira zoyipa zofala | Kudzimbidwa, kusowa chilakolako cha chakudya, mutu, kupweteka m'mimba, kutupa kwa miyendo ndi mapazi. |
Mndandandawu sukuphatikizapo zotsatirapo zonse zomwe zingachitike. Ngati mukukumana ndi vuto lililonse lachilendo, lankhulani ndi dokotala wanu za vutoli.
Uthenga Wopita Nawo Kunyumba
- Tisagenlecleucel ndi mankhwala opangidwa ndi majini omwe amagwiritsa ntchito maselo anu oteteza thupi ku khansa.
- Uwu ndi mankhwala apadera omwe amaperekedwa kuchipatala, omwe amagwiritsidwa ntchito pa matenda oopsa a leukemia ndi lymphoma.
- Ndikofunikira kuti muuze dokotala wanu zonse zokhudza thanzi lanu (matenda, ziwengo, mimba) musanayambe kulandira chithandizo.
- Mukamalandira chithandizo, dziwani bwino zizindikiro za matenda (malungo, chifuwa). Ngati zizindikiro zotere zachitika, funsani upangiri wa dokotala nthawi yomweyo.
- Popeza mungamve ngati mukugona, pewani kuyendetsa galimoto ndi kuchita ntchito zomwe zimafuna chisamaliro mpaka mutachira mokwanira.
- Pewani kutenga mimba konse panthawi ya chithandizo. Izi ndizofunikira kwambiri.
- Musaope kulankhula ndi gulu lanu lachipatala za nkhawa kapena kukayikira kulikonse komwe mungakhale nako. Iwo alipo kuti akuthandizeni.
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