Ese wigeze wumva usinziriye cyane mu gihe wari ku kazi ku manywa cyangwa uganira n'inshuti? Ushobora gutekereza uti "Oh... sinasinziriye bihagije nijoro." Ariko si ikibazo cy'umunaniro gusa. Uyu munsi tugiye kuvuga ku kibazo gitandukanye gato n'ibindi. Iyo ni indwara yitwa Narcolepsy . Nubwo idakunze kugaragara cyane, ni ikintu abantu benshi bumvise bitewe n'ibimenyetso biyitera . Irashobora kuvurwa, ariko ishobora kugira ingaruka zikomeye ku buzima bwawe, ku kazi no mu mibanire yawe n'abandi .

Narcolepsy ni iki?

Muri make, Narcolepsy ni indwara y’imitsi itera gusinzira bitunguranye kandi bitagenzurwa ku manywa. By’umwihariko, ubwonko bwawe ntibushobora kugenzura neza ibitotsi no gukanguka. Ibi bishobora gutuma wumva usinziriye cyane ku manywa, uko ibitotsi byawe byaba bingana kose nijoro.

Ni ibihe bimenyetso by'ingenzi bya Narcolepsy?

Hariho ibimenyetso bine by'ingenzi bya Narcolepsy. Ariko abantu benshi ntibagira byose uko ari bine icyarimwe. Hari abantu bashobora kugira kimwe cyangwa bibiri. Reka turebe ibyo bimenyetso.

• Gusinzira cyane ku manywa : Iki ni ikimenyetso gisanzwe cya Narcolepsy. Ni nk'aho umuntu agira "igitero cyo gusinzira" aho ahita asinzira. Uko waba ukora kose, wumva ushaka guhagarara ugasinzira.
• Cataplexy: Ibi ni ugutakaza ubushobozi bwo kugenzura imitsi mu buryo butunguranye . Hari igihe bishobora kuba byoroshye, nk'imitsi yo ku ruhande rumwe rw'isura cyangwa ijosi ihindagurika. Iyo bikomeye, ushobora kugwa hasi mu buryo butunguranye. Reka tubiganireho birambuye.
• Ibitekerezo bifitanye isano n'ibitotsi : Ibi ni ibitekerezo bibaho iyo usinziriye cyangwa ugiye gukanguka, kandi bishobora gutera ubwoba cyane.
• Gusinzira : Ushobora kuba warumvise ibi nk' "gutinya mu nzozi kandi ntushobore kugenda" cyangwa nk'uko bamwe babivuga, "kumva nk'aho dayimoni yazamutse." Iki ni cyo gihe udashobora kugenda umubiri wawe nubwo waba ukangutse, cyangwa wenda utarabyuka neza. Reka turebere hamwe gato.

Birenzeho gato kuri (Cataplexy)

Twavuze mbere ko cataplexy ari intege nke z'imitsi zitunguranye. Narcolepsy igabanyijemo ubwoko bubiri bw'ingenzi bitewe n'uko iki kimenyetso cya cataplexy gihari cyangwa kitahari:

• (Ubwoko bwa Narcolepsy Ubwoko bwa 1) : Ubu bwoko bufite ikimenyetso cya (Cataplexy) . Abagera kuri 20% by'abarwayi (Narcolepsy) bakomoka muri ubwo bwoko.
• (Narcolepsy Type 2) : Ubu bwoko ntabwo bufite ikimenyetso cya (Cataplexy) . Abenshi, ni ukuvuga hafi 80%, bagwa muri ubwo bwoko.

Ubusanzwe, iyo dusinziriye, ubwonko bwacu buhagarara cyane mu kugenzura imitsi yacu kugira ngo tudashyira mu bikorwa inzozi zacu. Abantu bafite ikibazo cyo kubura imitsi mu buryo butunguranye, nk'uko bibaho mu gihe cyo gusinzira kwa REM, ndetse no mu gihe baba bari maso.

Mu bihe byoroheje, cataplexy ishobora kugira ingaruka ku mitsi yo mu maso no mu ijosi gusa - urugero, urwasaya rushobora kunama. Cyangwa rushobora kugira ingaruka ku ruhande rumwe rw'umubiri gusa. Mu bihe bikomeye, cataplexy ishobora gutera kugwa butunguranye, bishobora no kwica. Ibi bihe akenshi bimara iminota mike, ariko ushobora kudashobora kuvuga cyangwa kwimuka muri icyo gihe.

Ikindi kintu cyihariye kuri cataplexy ni uko ishobora guterwa n'amarangamutima amwe na amwe. Ishobora kubaho cyane cyane iyo wishimye, useka, cyangwa useka. Ishobora no kubaho iyo utunguwe, ufite ubwoba, cyangwa urakaye, ariko ntibikunze kubaho kenshi.

Cataplexy ishobora kugaragara mu buryo butandukanye gato ku bana no ku bafite amezi atandatu iyo ibimenyetso bigaragaye bwa mbere. Bashobora gushinyagura mu buryo butunguranye, bakavuga ururimi rwabo, cyangwa bakagira intege nke z'imitsi zitajyanye n'amarangamutima.

Birenzeho gato ku bijyanye n'ubumuga bwo gusinzira

Iyo dusinziriye, ubwonko buhagarara kugenzura imitsi yacu kugira ngo idakora ku byo tubona mu nzozi zacu. Ariko iyo tukangutse, iyi gahunda igomba kongera gukora neza. Ariko niba ufite ikibazo cyo gusinzira, umubiri wawe ntubona iyo mitsi yo kugenzura. Ushobora guhumeka no kwimura amaso yawe, ariko ntushobora kuvuga cyangwa kwimura ibindi bice by'umubiri wawe.

Kubona ibintu mu buryo butunguranye (delucinations) bikunze kugaragara cyane mu gihe umuntu arwaye indwara yo mu bitotsi. Bishobora kuba bitangaje cyane, rimwe na rimwe bigatera ubwoba budasanzwe. Ku bw'amahirwe, indwara yo mu bitotsi ikunze kumara iminota mike (nubwo umuntu uyirwaye yumva ari nk'igihe kirekire).

Ese hari ibindi bimenyetso?

Uretse ibimenyetso bine by'ingenzi, abantu barwaye indwara ya narcolepsy bashobora kugira ibindi bimenyetso n'imyitwarire. Bimwe muri byo birimo:

• Ingendo zikora mu buryo bwikora : Abantu bafite indwara ya narcolepsy bashobora rimwe na rimwe gukomeza kwimura ibice by'umubiri, nk'amaboko yabo, ndetse no mu gihe basinziriye.
• Kwibagirwa cyangwa kwibagirwa : Ni ibisanzwe ko aba bantu bibagirwa ibyo bakoze mbere yo kuryama.
• Guturika/kuvuga bitunguranye mu gihe cy'ibitotsi : Umuntu urwaye indwara yo kubura ibitotsi ashobora kuvuga ikintu gitunguranye (akenshi kidafite ishingiro cyangwa kidafite akamaro muri icyo gihe). Iyo ibi bibaye, ashobora kongera gukanguka burundu. Ariko akenshi ntabyibuka.

Ni nde urwara indwara ya narcolepsy? Ni ku rugero rungana iki?

Ubusanzwe abaganga bapima indwara ya narcolepsy ku bantu bari hagati y'imyaka 5 na 50. Ariko, ikunze kugaragara mu rubyiruko , hagati y'imyaka 18 na 25. Abagabo ni bo bafite amahirwe menshi yo kurwara iyi ndwara.

Indwara yo kubura ibiryo (narcolepsy) si indwara ikunze kugaragara cyane.Ubushakashatsi bwerekana ko abantu bari hagati ya 25 na 50 ku bantu 100.000 ku isi yose barwaye iyi ndwara. Ariko, kubera ko bifata imyaka myinshi kugira ngo umuntu amenye iyi ndwara, biragoye kumenya neza umubare w’abantu bayirwaye.

Ni gute indwara ya Narcolepsy igira ingaruka ku mubiri wanjye?

Kugira ngo usobanukirwe indwara ya narcolepsy, biragufasha kumenya bike ku mikorere y'ibitotsi byacu. Hari ibyiciro byinshi by'ingenzi by'ibitotsi byacu:

• Icyiciro cya 1: Gusinzira byoroheje . Iki ni icyiciro gito. Gitangira ukimara gusinzira. Kigize hafi 5% by'ibitotsi byawe byose.
• Icyiciro cya 2: Gusinzira cyane . Ibi ni byinshi kurushaho. Bigize hafi 45%-50% by'ibitotsi byose (iyi ngano iriyongera uko tugenda dusaza).
• Icyiciro cya 3: Gusinzira mu gihe cy'umuraba ugenda buhoro . Hafi 25% by'ibitotsi byose (ibi bigabanuka uko umuntu agenda akura). Biragoye cyane gukangura umuntu uri muri iki cyiciro. Iyo umukanguye mu buryo butunguranye, azajya mu gihe cy'igihu cyo mu mutwe cyitwa "sleep inertia". Gusinzira no kuvuga mu gihe cy'umuraba nabyo bibaho muri iki cyiciro.
• (REM) Gusinzira : (REM) bisobanura (Rapid Eye Movement) , bivuze ko amaso agenda vuba. Muri iki cyiciro niho turota. Iyo umuntu ari mu bitotsi (REM), urashobora kubona amaso agenda munsi y'amaso.

Niba udafite indwara ya narcolepsy, iyo ugiye gusinzira, utangira mu cyiciro cya 1, hanyuma ukajya mu cyiciro cya 2 n'icya 3. Ugenda hagati y'ibi byiciro, hanyuma ukagera mu bitotsi bya REM, aho utangira kurota. Nyuma y'izunguruka rya mbere rya REM, utangira izunguruka rishya hanyuma ugasubira mu cyiciro cya 1 cyangwa icya 2. Izunguruka rimwe risanzwe rimara iminota 90. Abantu benshi banyura mu zunguruka enye kugeza kuri eshanu mu ijoro (niba basinziriye amasaha 8).

Ariko niba ufite indwara ya narcolepsy, ukwezi kwawe kw'ibitotsi ntabwo bibaho gutyo. Ahubwo, ujya mu bitotsi bya REM ukimara gusinzira . Mu ijoro ryose, uryama mu buryo butunguranye, akenshi utarangije ukwezi kwawe gusanzwe.

Mu ndwara ya narcolepsy, uko waba usinzira neza nijoro kose, wumva usinziriye cyane ku manywa. Biragoye cyane kureka gusinzira. Ariko ibi bitotsi biza ku manywa nabyo ni bigufi (nk'iminota 15-30). Iyo ukangutse, wumva uruhutse kandi witeguye kongera gukora ibyo wakoraga mbere. Ariko, ni ukubera ko ibi bibaho inshuro nyinshi ku munsi, narcolepsy ibangamira ubuzima bwawe cyane.

Ni izihe mpamvu zitera indwara yo kubura ibiryo (narcolepsy)?

Impamvu zitera indwara yo kubura ibitotsi ziratandukanye bitewe n'ubwoko bwa narcolepsy ufite, ariko zose zirimo agace kihariye k'ubwonko bwawe kitwa hypothalamus , gagenzura ibitotsi n'ubukanguke.

Impamvu zitera (ubwoko bwa mbere bwa Narcolepsy)

Mu 1998, abashakashatsi bavumbuye ikintu cyitwa orexins (rimwe na rimwe kitwa hypocretins) . Ibi bikoreshwa na neuron zimwe na zimwe (uturemangingo tw'ubwonko) mu kohereza ubutumwa. Uturemangingo dukoresha orexins tuba mu gice cy'ubwonko cyitwa hypothalamus. Utu turemangingo ni two ahanini tudufasha kuguma turi maso.

Urugero rwa Orexin ubusanzwe ruboneka mu mazi yo mu bwonko (CSF) - urwego rworoshye rw'amazi akikije ubwonko n'umugongo. Ariko, ku bantu bafite ikibazo cyo kubura amaraso, urugero rwa orexin muri CSF ni ruto cyane cyangwa ntirushobora kugaragara. Ibi bivuze ko uturemangingo dukora orexin twahagaze gukora cyangwa twangijwe n'ikintu runaka.

Ubundi bushakashatsi bwerekana ko impamvu izi neuron zidakora ari ikibazo cy’ubwiyongere bw’umubiri . Ibi bivuze ko ubudahangarwa bw’umubiri wawe bwibasira uturemangingo dukora kandi tugakoresha orexin, cyangwa orexin ubwayo, cyangwa byombi.

Abantu bagera kuri 90%-95% barwaye indwara ya Narcolepsy yo mu bwoko bwa 1 bafite ihinduka ry’uturemangingo (gene mutation) rigira ingaruka ku budahangarwa bw’umubiri wabo (rizwi nka HLA-DQB1*06:02 ). Nyamara, hafi 25% by’abaturage muri rusange nabo bafite iyi ndwara ariko ntibarwaye Narcolepsy. Kubwibyo, abahanga ntibapima iyi ndwara, kandi ntibazi neza uruhare igira. Hari kandi ibimenyetso bimwe na bimwe bigaragaza ko iyi ndwara ishobora kugaragara mu miryango. Niba umuvandimwe wo mu rwego rwa mbere (umubyeyi, umuvandimwe, umwana) afite Narcolepsy, nawe uri mu kaga ko kuyirwara.

Ariko, indwara ya Narcolepsy yo mu bwoko bwa 1 ishobora no kugaragara nyuma y’indwara zimwe na zimwe za virusi na bagiteri, cyane cyane virusi za grippe nka grippe H1N1 na bagiteri zitera strep throat. Impuguke zizera ko ibi bishobora guterwa n’uko ubwandu rimwe na rimwe bushobora gutera impinduka no kudakora neza mu bwirinzi bw’umubiri.

Impamvu zitera (Ubwoko bwa 2 bwa Narcolepsy)

Nubwo hari byinshi bizwi ku mpamvu zitera indwara ya Narcolepsy yo mu bwoko bwa 1, ntabwo bizwi cyane ku ndwara ya Narcolepsy yo mu bwoko bwa 2. Impuguke ntizisobanukiwe neza impamvu indwara ya Narcolepsy yo mu bwoko bwa 2 itera. Ariko batekereza ko ishobora kuba ifite impamvu zisa. Urugero, ishobora guterwa no kwangirika guke ku mitsi ikoresha orexin, cyangwa ikibazo ku buryo orexin igenda mu bwonko.

Indwara ya kabiri ya Narcolepsy

Mu bihe bidasanzwe, indwara ya narcolepsy ishobora guterwa no kwangirika kwa hypothalamus yawe. Uku kwangirika gushobora guterwa n'ibintu nk'ibikomere byo mu mutwe (gukomereka mu mutwe), ibikomere byo mu bwonko (ibikomere byo mu bwonko), indwara zo gucika imitsi, n'ibibyimba byo mu bwonko.

Narcolepsy ishobora kandi kuba ikimenyetso cy'izindi ndwara zitajyanye n'ibyo ushobora kuba warazwe. Ingero:

• (Autosomal Dominant Cerebellar Ataxia, Narcolepsy and deficiency (ADCADN))
• (Autosomal Dominant Narcolepsy, Diyabete yo mu bwoko bwa 2 n'umubyibuho ukabije)

Ese indwara ya Narcolepsy yandura?

Oya, indwara ya Narcolepsy si indwara yandura. Ntushobora kuyirwara iturutse ku wundi muntu, cyangwa ngo umuntu ayigufate.

Ni gute wamenya indwara ya narcolepsy?

Ibimenyetso byawe bishobora gutuma muganga akeka ko ufite indwara ya narcolepsy. Ariko, ibimenyetso bya narcolepsy bisa n'iby'izindi ndwara nyinshi zo mu bwonko n'iz'ibitotsi. Kubwibyo, ni ngombwa kumenya niba ufite narcolepsy.Isuzuma ry’indwara rishobora gukorwa gusa binyuze mu bipimo byihariye byo gusuzuma indwara.

Mbere yo gukora ibizamini byinshi by'ingenzi bya narcolepsy, umuganga azabanza arebe niba uryamye bihagije. Ibi bikorwa hakoreshejwe uburyo bworoshye bukurikirana imiterere y'ibitotsi byawe n'ibikangura. Urugero ni actigraphy . Ibi bikubiyemo gukoresha igikoresho, nk'isaha yo ku kuboko, kugira ngo ukurikirane imiterere y'ingendo zawe (nk'igihe usinziriye n'igihe ukangutse kandi ugendagenda).

Ni ibihe bipimo bikoreshwa mu gusuzuma indwara ya narcolepsy?

Hari ibizamini byinshi bishobora gukorwa kugira ngo hamenyekane indwara ya narcolepsy:

• Inyigo y'Ibitotsi (Polysomnogram) : Iki kizamini gikoresha ibikoresho bitandukanye byo kugenzura uko usinziriye. Igice cy'ingenzi cy'inyigo yuzuye yo gusinzira, yitwa polysomnogram , ni ugukoresha electroencephalogram (EEG) . Ibi bikoresho bigenzura imiraba y'ubwonko bwawe. Ibi bituma abaganga bareba icyiciro cy'ibitotsi byawe umunota ku munota. Abantu bafite indwara ya narcolepsy binjira mu bitotsi bya REM vuba kurusha uko bisanzwe, bityo iki kizamini gishobora kubimenya. Kinandika igihe bakangukiye mu bitotsi. Indi mpamvu iki kizamini ari ingenzi ni uko gusinzira cyane ku manywa nabyo bishobora kuba ikimenyetso cy'indwara yitwa sleep apnea . Inyigo y'ibitotsi ishobora kwemeza ko udafite sleep apnea.
• Ikizamini cyo gusinzira mu buryo bwinshi (MSLT) : Iki kizamini gipima uburyo usinzirira byoroshye ku manywa. Gikubiyemo gusinzira inshuro nyinshi mu gihe runaka. Gishobora kugaragaza niba ufite ibitotsi byinshi ku manywa. Iki ni ikimenyetso gisanzwe cya narcolepsy. Akenshi gikorwa umunsi umwe nyuma yo kwiga ibitotsi nijoro.
• Ikizamini cyo Kubungabunga Ubwirinzi bw'Ubwenge : Iki kizamini gipima uburyo ushobora kuguma uri maso ku manywa, ndetse no mu gihe usinziriye byoroshye. Ntabwo gikunze gukoreshwa mu gusuzuma indwara ya narcolepsy, ariko gishobora gufasha gukuraho ibindi bibazo. Ni ingirakamaro kandi kureba niba imiti itera imbaraga ikora.
• Gufata umugongo (Lumbar Puncture) : Iki kizamini gishobora kugaragaza urugero ruto rwa orexin mu mazi yo mu bwonko (CSF). Ubu ni uburyo bw'ingenzi bwo gusuzuma indwara ya Narcolepsy yo mu bwoko bwa 1. Urugero ruto rwa orexin rushobora kuba ikimenyetso cy'uko umuntu urwaye Narcolepsy atarahura n'ikibazo cya cataplexy, ariko gishobora kuba ikimenyetso cy'uko ashobora kuzahura n'ikibazo cya cataplexy mu gihe kizaza. Ariko, kubera ko urugero rwa orexin rudahinduka ku bantu bafite indwara ya Narcolepsy yo mu bwoko bwa 2, iki si cyo kizamini cyo gusuzuma buri gihe.

Ibindi bizamini

Abantu bafite indwara ya narcolepsy bashobora kuba bafite ibindi bipimo byinshi. Urugero, niba ufite cataplexy, ishobora kuba isa n'ibimenyetso by'izindi ndwara zo mu bwonko ziterwa no kugenda, nko gucika intege. Kubwibyo, abaganga bashobora kubanza gupima indwara zikomeye, nka igicuri. Kubwibyo, bishobora gufata igihe kugira ngo bamenye indwara ya narcolepsy. Muganga wawe niwe muntu mwiza wo gusobanura ibizamini ukeneye gukora n'impamvu birimo gukorwa.

Indwara ya narcolepsy ivurwa ite? Ese ishobora kuvurwa?

Indwara ya Narcolepsy irashobora kuvurwa, ariko ntishobora gukira . Ubusanzwe kuvurwa bitangirana n'imiti. Ariko guhindura gahunda zawe za buri munsi n'imibereho yawe nabyo bishobora gufasha. Indwara ya Narcolepsy ikunze kwakira neza ubuvuzi. Ibi bishobora gufasha kugabanya ibibazo biterwa n'ibimenyetso.

Wibuke ko indwara ya narcolepsy ari indwara ibaho ubuzima bwose, ariko ntiyongera uko igihe kigenda gihita.

Ni iyihe miti ivura indwara ya narcolepsy?

Imiti ni yo nzira y'ingenzi yo kuvura indwara yo kubura ibitotsi. Imiti myinshi yibanda ku gusinzira cyane ku manywa. Ariko, hari imiti imwe n'imwe igira ingaruka ku bindi bimenyetso. Dore ubwoko bumwe bw'imiti ishobora gutangwa kuri iyi ndwara:

• Imiti yo Kubyuka : Ubusanzwe ni bwo buryo bwa mbere bwo kuvura. Urugero, harimo Modafinil na Armodafinil . Iyi miti itera imbaraga uturemangingo tw'imitsi. Ibi bishobora kugabanya ubukana n'inshuro zo gusinzira ku manywa.
• Amphetamine n'ibitera imbaraga nk'ibya Amphetamine : Ibiyobyabwenge nka methylphenidate (izwi ku mazina y'ikirango cya Ritalin®, Concerta®, Qullivant®) n'ibivanze bya amphetamine/dextroamphetamine (izwi ku izina rya Adderall®).
• Imiti igabanya ububabare : Iyi ishobora kuba ikubiyemo Serotonin-Norepinephrine Reuptake Inhibitors (SNRIs) (urugero: Venlafaxine - izwi nka Effexor®), Selective Serotonin Reuptake Inhibitors (SSRIs) (urugero: Fluoxetine - izwi nka Prozac®), cyangwa Tricyclic Antidepressants (urugero: Clomipramine cyangwa Protriptyline - ubu ntabwo ikoreshwa cyane).
• (Sodium Oxybate) : Uyu muti ugufasha gusinzira neza kandi ukagabanya inshuro (Cataplexy). Bitewe n'ingaruka z'uyu muti, ugenzurwa cyane mu bihugu byinshi. Ariko, ukunze gukoreshwa mu kuvura (Type 1 Narcolepsy).
• Imiti igira ingaruka kuri histamine : Urugero rw'umuti nk'uwo ni Pitolisant.Iyi ni umuti urwanya histamine receptor. Imiti irwanya receptor ni imiti ibuza imiti imwe n'imwe mu mubiri wawe gufatana n'uturemangingo. Ibi bigabanya cyangwa bikabuza uturemangingo gukora ibintu bimwe na bimwe.

Nubwo hari uburyo bwinshi bwo kuvura abantu bakuru (narcolepsy), uburyo bwo kuvura abana ni buke cyane. Umuganga w'abana w'umwana wawe cyangwa inzobere ni bo bashobora kukubwira uburyo bwo kuvura buhari n'ibyo bagusaba.

Ingaruka mbi/ingaruka mbi zo kuvurwa

Imiti myinshi ikoreshwa mu kuvura indwara ya narcolepsy n'ibimenyetso byayo bifite amahirwe menshi yo gukorana n'indi miti. Umuvuduko ukabije w'amaraso n'imitsi idakora neza ni bimwe mu bibazo bishobora kubaho mu bwoko ubwo aribwo bwose bw'imiti itera imbaraga. Sodium Oxybate, cyane cyane, ni mbi cyane iyo ihujwe n'indi miti igabanya uturemangingo tw'imitsi. Nanone, ntugakoreshe uyu muti hamwe n'inzoga .

Muri rusange, umuganga wawe ni we muntu mwiza wo kukubwira ingaruka mbi, ingorane, n'imiti ugomba kumenya. Ashobora kuguha amakuru ajyanye n'uburwayi bwawe, amateka y'ubuzima bwawe, n'imimerere yawe bwite.

Ni gute nakwitaho no kwihanganira ibimenyetso byanjye?

Ntugomba kugerageza kwisuzuma cyangwa ngo wivure indwara ya narcolepsy . Ibi biterwa nuko ibimenyetso by'iyi ndwara bikunze kugaragara no mu zindi ndwara zikomeye, nko guhumeka mu gihe umuntu asinziriye ndetse n'igicuri. Nanone, iyi ndwara ishobora gutuma ibikorwa bimwe na bimwe, nko gutwara imodoka no koga, biteza akaga. Kubwibyo, buri gihe jya kwa muganga kugira ngo agusuzume kandi aguhe umuti .

Nzumva meze neza nyuma y'igihe kingana iki?

Igihe ubuvuzi bumara kugira ngo butangire gukora, cyangwa ingaruka z'ubuvuzi zigaragara, biterwa n'ibintu byinshi. Muganga wawe ni we muntu mwiza wo kukubwira icyo ukwiye kwitega bitewe n'uburwayi bwawe, igihe bizamara kugira ngo imiti ikore, n'igihe bizatwara kugira ngo ibimenyetso byawe bihinduke.

Ese iterambere rya narcolepsy rishobora kugabanuka cyangwa kwirindwa?

Kenshi na kenshi, indwara yo kubura ibitotsi itera mu buryo butunguranye. Kubwibyo, ntabwo bishoboka kugabanya ibyago byo kuyirwara cyangwa kuyibuza kuyirwara.

Ni iki nkwiye kwitega mu gihe mfite indwara ya Narcolepsy?

Ubusanzwe indwara ya Narcolepsy ntabwo ari ikibazo gikomeye. Ariko gusinzira mu buryo butunguranye kandi budasubirwaho bishobora kubangamira ubuzima. Abantu bafite iyi ndwara bashobora kudashobora gutwara imodoka (byaba iby'igihe gito cyangwa burundu - biterwa n'ibimenyetso n'imiterere yabo).

Nubwo indwara ya narcolepsy ubusanzwe idateye akaga, muri narcolepsy yo mu bwoko bwa 1, hari ibyago byinshi byo gukomereka bitewe no kugwa mu bihe bya cataplexy. Narcolepsy ishobora kandi guteza akaga mu gihe utwaye imodoka, ukoresha ibikoresho by'amashanyarazi cyangwa imashini ziremereye, cyangwa woga.

Iyo abana barwaye indwara yo kubura ibitotsi

Abana barwaye indwara ya narcolepsy bakunze guhura n’ingaruka z’iyi ndwara. Gusinzira ku manywa bishobora gutuma bigorana kwibanda ku mirimo y’ishuri, gukomeza imibanire myiza n’abandi, no kwitabira imirimo y’ishuri n’iy’inyuma y’amasomo.

Ariko, indwara ya Narcolepsy ni indwara iterwa n'uburwayi. Bityo, abana bafite indwara ya Narcolepsy bafite uburenganzira bwo gukingirwa n'amategeko. Amashuri nayo asabwa n'amategeko gushyiraho uburyo bwo kubakira. Urugero, guhindura gahunda z'amasomo, gushyiraho umwanya wo gusinzira cyangwa kuruhuka, no korohereza abana gufata imiti yabo ku ishuri. Muganga w'abana w'umwana wawe cyangwa abandi bahanga bashobora kugufasha kubona ibisubizo bizafasha umwana wawe.

Ku bantu bakuru bakora akazi (Narcolepsy)

Nk’uko abana barinzwe n’amategeko mu mashuri, abantu bakuru bafite ikibazo cyo kubura ibiryo na byo barakingirwa n’amategeko. Ivangura rikorerwa umuntu rishingiye ku ndwara, harimo n’indwara yo kubura ibiryo na byo, rirabujijwe (urugero, muri Leta Zunze Ubumwe za Amerika, hakurikijwe Itegeko ry’Abanyamerika bafite ubumuga).

Kubera ubwo burinzi bwemewe n'amategeko, abantu bafite ikibazo cyo kubura ibitotsi bashobora kuvugana n'abakoresha babo aho bakorera no kubona aho kuba kugira ngo bakomeze gukora mu gihe bakira indwara zabo.

Nkwiye kwiyitaho nte? (Inama z'ingirakamaro)

Niba ufite indwara ya narcolepsy, hari ibintu byinshi ushobora gukora kugira ngo wicunge neza kandi ubyaze umusaruro mu buvuzi bwawe. Ibyinshi muri ibyo bintu birimo kugira ingeso nziza zo gusinzira (Isuku yo Gusinzira) no guhindura gahunda yawe n'ibikorwa byawe.

• Komeza gahunda yo gusinzira buri gihe : Kugira akamenyero ko kuryama no kubyuka icyarimwe bishobora kongera ireme ry'ibitotsi byawe.
• Shyiraho igihe cyo kuryama : Shyiraho igihe cyo kuryama kigufasha gusinzira neza hakurikijwe imyaka yawe. Nanone, shyira ku ruhande umwanya wo kuruhuka no gutuza mu mutwe mbere yo kuryama.
• Gabanya urumuri rwinshi n'ibikoresho by'ikoranabuhanga : Urumuri ruturuka kuri ibi bikoresho hafi y'igihe cyo kuryama rushobora guhungabanya imikorere y'umubiri wawe yo gusinzira no kubyuka.
• Irinde kunywa inzoga, kafeyine, kunywa itabi, no kurya hafi yo kuryama.: Niba wumva ushonje mbere yo kuryama, ifunguro ryoroheje ni ryo ryiza. Niba ufata imiti imwe n'imwe, ugomba kureka burundu kunywa inzoga (muganga wawe azakubwira niba warahawe iyo miti). Impuguke kandi zigusaba cyane kureka burundu itabi (harimo itabi, itabi rya elegitoroniki ((vaping)), n'itabi ridafite umwotsi ((itabi ridafite umwotsi))).
• Gira imyitozo ngororamubiri : Nubwo byaba ari nko kugenda n'amaguru gusa, gukomeza gukora siporo bishobora gufasha mu gusinzira neza.
• Fata ikiruhuko gito : Abantu barwaye indwara ya narcolepsy bakunze kumva bameze neza nyuma yo gusinzira. Bishobora gufasha kumenya amasaha y'umunsi wumva usinzirira cyane no guteganya igihe cyo gusinzira muri ayo masaha.

Irinde ibikorwa biteje akaga, cyangwa fata ingamba zo kwirinda.

Indwara yo kubura ibitotsi ishobora gutera impanuka zikomeye, ndetse zikanahitana ubuzima bw'umuntu. Kugira ngo wirinde kandi urinde n'abagukikije, ntuzigere utwara imodoka keretse muganga abigutegetse .

Niba ubonye ibimenyetso bya narcolepsy mugihe utwaye imodoka, hagarika gutwara imodoka ako kanya kandi uhamagare muganga wawe. Nubwo ibi bishobora kuba bitoroshye, ni ngombwa kwirinda ko impanuka yica cyangwa igahindura ubuzima iterwa no gusinzira uri ku modoka.

Ahandi hantu indwara ya narcolepsy ishobora guteza akaga cyane ni mu mazi . Niba ufite indwara ya narcolepsy, ni ngombwa cyane kwambara ikoti ry'ubutabazi neza iyo uri koga cyangwa uri mu bwato cyangwa mu bwato busaba ubufasha bwo kurokora ubuzima. Iyo udafite uburyo bwo kurokora ubuzima, gusinzira mu mazi bishobora kugira ingaruka mbi.

Ni ryari ngomba kujya kwa muganga?

Iyo usinziriye mu buryo butunguranye, ni ikimenyetso cy'uko ugomba kujya kwa muganga. Ibi si indwara yo kubura ibitotsi gusa, ahubwo bishobora no kugaragaza indwara zitandukanye. Zimwe muri zo ziba zikomeye. Kenshi na kenshi, uko utinda gusuzuma no kuvurwa, ni ko ibyago byo kugira ingorane birushaho kwiyongera cyangwa ubuvuzi buke.

Ni ryari nkwiye kujya mu ishami rishinzwe ubuvuzi bwihutirwa (ETU) ?

Iyo uguye mu kantu cyangwa ugatakaza ubwenge, hita ugana kwa muganga mu bitaro cyangwa mu cyumba cy’ubutabazi bw’ibanze. Iki ni ikimenyetso gikomeye cy’indwara nyinshi, harimo indwara z’umutima, indwara zo gucika kw’imitsi, n’imivuduko y’umutima idakora neza. Izi ndwara ni iz’ubutabazi bw’ibanze kandi zisaba kuvurwa vuba.

Ibikomere biterwa no kugwa ni ibikomere bibaho iyo uguye utunguranye, nko gukururwa cyangwa guta ubwenge.Hari ibyago byo gukomereka. Buri gihe shaka inama za muganga niba ubona ko wakomeretse ku mutwe, ijosi, cyangwa igice icyo ari cyo cyose cy'umugongo wawe. Gucika intege no gukomereka ku ruti rw'umugongo bishobora kwangiza burundu, gucika intege, ndetse no gupfa.

Niba uguye, kandi urimo gufata imiti iyo ari yo yose igabanya amaraso , cyane cyane iyo ukubise umutwe, ugomba kwihutira gushaka abaganga. Kugwa no gukomereka bishobora gutera kuva amaraso imbere mu mubiri. Ukeneye ubufasha bwa muganga kugira ngo umenye neza ko nta bikomere ufite bishobora guteza ingorane zishobora kuguhitana.

Ibintu by'ingenzi ugomba kwibuka (Ubutumwa bwo kujyana mu rugo)

Rero, ndizera ko washoboye kwibuka bimwe mu bintu by'ingenzi cyane mu byo twavuzeho (Narcolepsy).

• Narcolepsy si ugusinzira gusa guterwa n'umunaniro, ahubwo ni ikibazo cy'ubushobozi bw'ubwonko bwo kugenzura ibitotsi n'uburyo bwo gukanguka.
• Menya ibimenyetso by'ingenzi byo gusinzira cyane ku manywa, gucika intege mu mitsi mu buryo butunguranye, kubona ibintu mu buryo butunguranye bitewe n'ibitotsi, no guhagarara mu bitotsi . Ibi bimenyetso byose si ko biba kuri buri wese.
• Impamvu y'iyi ndwara akenshi ni ukugabanuka kwa orexin mu bwonko, cyangwa ibibazo by'ubwiyongere bw'umubiri.
• Indwara yo kubura igitsina isaba ibizamini byihariye by'ubuvuzi kugira ngo imenyekane. Ntugahite ufata umwanzuro wenyine.
• Nubwo ibi bidashobora gukira burundu, ni indwara ishobora kugenzurwa ahanini hakoreshejwe imiti no guhindura imibereho .
• Tekereza witonze ku mutekano. Witondere cyane cyane iyo utwaye imodoka, woga, cyangwa ukorera ahantu hirengeye. Kurikiza inama za muganga.
• Niba ufite ibi bimenyetso, ntutinye kujya kwa muganga. Ntabwo uri wenyine. Ubufasha burahari.

Ndizera ko aya makuru azagufasha. Niba wowe cyangwa undi muntu uzi ufite ikibazo nk'iki, ni byiza gushaka inama kwa muganga vuba bishoboka.

Kurwara indwara zo mu mutwe, gusinzira cyane ku manywa, gusinzira nabi, guhumeka nabi mu gihe cyo gusinzira, kubona ibintu mu buryo butunguranye, orexin, indwara zo mu bwonko