Reka twige ku rukingo rwihariye rutangwa ku ndwara ya hemophilia A (Iterambere ry’amaraso, Ingano y’ingurube, Recombinant)

Ese muganga wawe yaba yaraguteye urushinge rwihariye rwo kugenzura kuva amaraso mu buryo butunguranye kuri wowe cyangwa uwo mu muryango wawe? Ushobora kuba warayobewe gato izina ry'uwo muti. Ariko ntugire ikibazo. Uyu munsi turimo kuvuga kuri uwo muti. Ubusanzwe ukoreshwa mu kugenzura kuva amaraso mu ndwara idasanzwe yitwa Acquired Hemophilia A. Reka tubiganireho mu buryo bworoshye kandi busobanutse.

Hemofiliya A imaze kwangirika ni iki?

Muri make, iki ni ikibazo mu mikorere y'amaraso mu mubiri wacu. Ubusanzwe, iyo twakomeretse, amaraso yacu arafungana kandi akava amaraso agahagarara. Ibi bifashwa na poroteyine zidasanzwe mu maraso yacu, nka Factor VIII .

Ariko, muri Acquired Hemophilia A, ubudahangarwa bwacu bw'umubiri butangira kwibasira iyi poroteyine yitwa Factor VIII. Izi antibodies nazo tuzita. Ibi bigabanya ubushobozi bw'amaraso bwo kuziba, rimwe na rimwe biganisha ku kuva amaraso menshi nta mpamvu cyangwa ndetse no ku gukomereka gato. Ibi ntabwo bimeze nk'indwara ya hemophilia ivukanwa, ahubwo ni indwara ishobora kubaho igihe icyo ari cyo cyose mu buzima.

None se uru rukingo (OBIZUR) rukora rute?

Noneho urasobanukiwe ko ikibazo ari uko abasirikare bacu bwite bigarurira Factor VIII yacu. Bityo abaganga batanga uru rukingo rwihariye nk'igisubizo kuri ibi.

Nubwo izina ry'uyu muti ari rirerure, icyo uvuga ni ingenzi cyane:

• Ikintu kirwanya hemophilia: Ibi bivuze ikintu kirwanya indwara ya hemophilia, cyangwa kigatera amaraso kuzura.
• Urukurikirane rw'ingurube: Iki ni ikintu cyihariye. "Ingurube" bivuze ikintu kijyanye n'ingurube. Uru rukingo rukorwa mu buryo busa n'urukurikirane rw'ibice by'amaraso by'ingurube. Kuki bikorwa muri ubwo buryo? Kubera ko, nubwo ubudahangarwa bw'umubiri wacu bumenya kandi bugatera Factor VIII y'umuntu, ntibumenya imiterere isa n'iyi factor y'ingurube. Kubwibyo, bushobora gufasha mu kuvura amaraso hatabayeho kuyatera.
• Umuti uva mu matungo: Ibi bivuze ko umuti utaboneka mu matungo, ahubwo ukorerwa muri laboratwari hakoreshejwe ikoranabuhanga rya biotechnology (ikoranabuhanga rya ADN riva mu matungo) mu buryo busukuye kandi bwizewe.

Ibintu ugomba kubwira muganga wawe mbere yo gufata uyu muti

Kubera ko uyu ari umuti wihariye, ni ngombwa cyane kumenyesha muganga wawe amateka yose y’ubuzima bwawe mbere yo gutangira kuvurwa.

Ukoresha uyu muti ute?

Uyu si umuti unywa nk'ikinini gisanzwe. Uyu ni umuti uterwa mu mitsi . Ubu buryo busanzwe butangwa mu bitaro cyangwa ku ivuriro n'umuganga cyangwa umuforomo wabyigiye. Ibi biterwa nuko ugomba gukurikiranirwa hafi mu gihe uhabwa umuti.

Ni gake cyane, abarwayi bamwe bategekwa guhabwa uru rukingo mu rugo. Niba ari uko bimeze, uzabwirwa uburyo bwo kurutegura no kurutera neza. Ntukigere ufata ibirenze ibyo muganga yategetse cyangwa ngo ufate umuti mbere y'igihe cyagenwe.

Ni iki cyakorwa niba ingano y'imiti yiyongereye?

Niba ubona ko wafashe ibirenze urugero rwatanzwe, hamagara ako kanya Ikigo cy’Igihugu gishinzwe gutanga amakuru ku burozi mu bitaro by’igihugu bya Colombo cyangwa ujye mu Kigo cyita ku Buvuzi bw’Ingoboka (ETU) cy’ibitaro biri hafi yawe.

Bite se nintakaza dose?

Ni ingenzi cyane gufata dose ku gihe muri ubu buryo bwo kuvurwa. Niba utiriwe ufata gahunda ku bitaro, hamagara muganga wawe vuba kugira ngo akugire inama. Niba ufata imiti mu rugo, fata dose wayibuze ukimara kubyibuka. Ariko, niba igihe cyo kuyifata gigeze, rekeraho dose wayibuze hanyuma ufate dose ikurikira ku gihe cyagenwe. Ntugafate dose ebyiri ku mpamvu iyo ari yo yose.

Ibintu byo kuzirikana mu gihe cyo kuvurwa

• Gupima Amaraso: Mu gihe ufata uyu muti, muganga wawe azagutegeka ko amaraso apimwa buri gihe kugira ngo arebe niba bikora neza, uburyo amaraso yawe arimo kuvura, ndetse niba umubiri wawe urimo gukora ubudahangarwa bushya bw’imiti. Ni ngombwa cyane kudasimbuka ibi bizamini.
• Gukurikirana abaganga: Mu gihe uri mu bitaro, abakozi b'abaganga bazagukurikirana cyane. Bazakomeza kuba maso kugira ngo barebe ibimenyetso by'amaraso n'ingaruka z'ubwivumbure.
• Indangamuntu yo kwa muganga: Niba ufite hemophilia, ni ngombwa cyane guhora witwaje ikarita y'indangamuntu yo kwa muganga cyangwa umukufi/umunyururu ugaragaza indwara yawe, imiti ufata, ingano, n'igihe. Bishobora kugufasha kurokora ubuzima bwawe mu gihe cy'impanuka.

Ni izihe ngaruka mbi zishobora kubaho?

Kimwe n'indi miti iyo ari yo yose, uyu muti ushobora gutera ingaruka mbi, nubwo atari buri wese uzibona. Niba ubonye kimwe muri ibi bimenyetso bikurikira, bwira muganga wawe cyangwa umuforomo wawe ako kanya.

Niba ubonye ibindi bimenyetso bidasanzwe bitavuzwe kuri uru rutonde, vugana na muganga wawe ku byerekeye ibyo bimenyetso.

Uburyo bwo kuvura n'indi miti

Indi miti ufata ishobora kugira ingaruka ku rukingo, cyane cyane Factor VIIa.Ugomba kwitonda cyane mu gihe ukoresha ibi hamwe n'indi miti igabanya amaraso, nka:

Kubwibyo rero, ha muganga wawe urutonde rwuzuye rw'imiti yose ufata (imiti yanditswe na muganga, vitamine, imiti y'ibimera, n'inyongeramusaruro). Nanone, bwira muganga wawe niba unywa itabi cyangwa unywa inzoga.