Ese uduheri tw'uruhu rwawe n'imitsi yawe birakomeye? Reka tuvuge kuri dermatomyositis!

Ese rimwe na rimwe ujya ugira uduheri ku ruhu tudasanzwe? Ese wumva ufite intege nke mu mitsi yawe? Wenda ukeneye kumenya indwara yitwa dermatomyositis. Ni indwara idakunze kugaragara, ariko ni ngombwa kuyimenya.

Dermatomyositis ni iki?

Muri make, dermatomyositis ni indwara idakunze kugaragara ituma imitsi yawe icika intege igatera uduheri dusa n'izuba . Ni indwara iri mu itsinda rinini ry'indwara zitwa myopathy. Ibi bivuze ko igira ingaruka ku mitsi. Rimwe na rimwe, iyo ibaye ikomeye , ishobora no kugira ingaruka ku guhumeka no kumira. Tekereza nawe, imitsi yacu niyo ituma tugenda, bityo biragoye iyo yangiritse.

Dermatomyositis ni ubwoko bw'indi ndwara y'imitsi yitwa polymyositis. Ariko, muri iki gihe, uretse imitsi, uruhu narwo ruragira ingaruka. Niyo mpamvu ijambo 'derma' (rirebana n'uruhu) ryongeweho ku izina.

Niba ufite kimwe muri ibi bimenyetso, ni ngombwa guhita ubonana na muganga. Hari igihe ibi bimenyetso bishobora gufata amezi menshi kugira ngo bigaragare. Ariko rimwe na rimwe bishobora kugaragara vuba cyane. Iyo ubuvuzi butangiye hakiri kare, ingorane zikomeye zishobora kwirindwa cyane.

Nubwo bidakunze kubaho cyane, iyi ndwara yitwa dermatomyositis , ishobora gushyira ubuzima mu kaga, cyane cyane mu mwaka wa mbere nyuma y’uko ibimenyetso bitangiye. Byagaragaye kandi ko yongera ibyago byo kurwara ubwoko bumwe na bumwe bwa kanseri.

Ni irihe tandukaniro riri hagati ya Dermatomyositis na Lupus?

Dermatomyositis ni indwara isa na lupus n'izindi ndwara zifata ubudahangarwa bw'umubiri. Nyamara, abahanga ntibaramenya neza icyatera dermatomyositis. Niyo mpamvu idashyirwa mu cyiciro cy'indwara zifata ubudahangarwa bw'umubiri.

Noneho, niba urwaye lupus, ushobora kugira ububabare mu ngingo, kumva uruhu rumeze nk'ururenda ndetse n'indwara y'uruhu, ndetse n'ibibazo mu ngingo zawe z'imbere (cyane cyane ubwonko bwawe, ibihaha, impyiko n'umutima). Ibimenyetso byawe bishobora kwiyongera hanyuma bigashira, hanyuma bikagaruka mu buryo butunguranye - ibyo tubyita ubwinshi bw'indwara.

Ariko, dermatomyositis irangwa no kugira intege nke z'imitsi no gupfa kw'imitsi , hamwe no kugira uduheri ku ruhu. Ipimwa binyuze mu gupima amaraso, gusuzuma indwara, no gupima amashusho atandukanye.

Byaba ari indwara ya dermatomyositi cyangwa lupus, ni ngombwa kuyisuzuma no kuyivura vuba bishoboka. Niba ubonye ibimenyetso bishya, jya kwa muganga byihutirwa.

Ni nde ufite amahirwe menshi yo kurwara iyi ndwara? Ni ku rugero rungana iki?

Dermatomyositis ishobora kwibasira umuntu uwo ari we wese, ariko hari amatsinda amwe ashobora kuyirwara cyane. Muri yo harimo:

• Abana bato bari hagati y'imyaka 5 na 15.
• Abantu bakuru bari hagati y'imyaka 40 na 60.
• Abagore.

Ikindi kandi, ni ngombwa kumenya ko iyi ndwara idakunze kugaragara . Ugereranyije, umuntu umwe gusa mu bantu 100.000 ni we uyirwara buri mwaka. Bityo rero urabona ukuntu iyi ndwara idakunze kugaragara.

Iyi ndwara igira ingaruka zite ku mubiri wawe? Ni izihe ngorane zo kurwara kanseri?

Indwara yitwa dermatomyositis ishobora kugira ingaruka ku mubiri wawe ubuzima bwawe bwose.

Tekereza, niba ibi byangiza imitsi yawe cyane, ushobora kudashobora gukoresha cyangwa kwimura igice cy'umubiri wawe neza. Ibi akenshi bifata imyaka myinshi kugira ngo bikure. Ariko hari abantu bashobora kugira intege nke zikomeye z'imitsi vuba kurusha abandi.

Ikindi kintu ni uko indwara ya dermatomyositis nayo yagaragaye ko yongera ibyago byo kurwara ubwoko bumwe na bumwe bwa kanseri .

Dermatomyositis na kanseri

Abantu bagera kuri 15% barwaye dermatomyositis barwara kanseri mu gihe cy'imyaka myinshi. Ubwoko bwa kanseri bukunze kugaragara ku bantu bafite dermatomyositis ni:

• Kanseri y'intanga ngore
• Kanseri y'ibihaha
• Lymphoma
• Kanseri y'ibere
• Kanseri y'umura munini

Kubwibyo, ni ngombwa cyane kuganira na muganga wawe ku byerekeye ibyago byo kurwara kanseri hamwe n'ibizamini ushobora gukenera.

Ni ibihe bimenyetso by'iyi ndwara?

Ibimenyetso bibiri by'ingenzi kandi bikunze kugaragara bya dermatomyositis ni intege nke z'imitsi n'uduheri tw'uruhu.

Hari abantu bashobora kugira intege nke z'imitsi ndetse n'uduheri tw'uruhu icyarimwe. Ariko, hari igihe ikimenyetso kimwe gishobora kubaho mu byumweru, amezi, cyangwa se imyaka myinshi kitaragaragara.

Intege nke z'imitsi

Intege nke z'imitsi zishobora gutuma bigorana gukora ibintu bimwe na bimwe bya buri munsi. Urugero:

• Kwicara ugororotse.
• Guhaguruka uvuye mu mwanya wicaye (nk'aho uri ku ntebe cyangwa kuri sofa).
• Kuzamuka ingazi.
• Kuva aho aryamye ku buriri.
• Koza umusatsi wawe.

Tekereza ukuntu wakwiheba uramutse udashobora gukora ibintu byoroshye nk'ibi.

Eczema

Dermatomyositis ishobora gutera uduheri ku ruhu rwawe (cyane cyane ahantu hagaragara izuba ). Uruhu rushobora guhindura ibara no kubyimba. Ahantu hakunze kugaragara ubu buheri ni:

• Ingofero no hafi y'amaso.
• Igice cy'imbere cy'igituza n'amatugu (rimwe na rimwe cyitwa 'ibara ry'urukozasoni rw'ibimenyetso bya V').
• Inyuma y'ijosi n'amatugu (byitwa kandi 'shawl sign rash').
• Agahanga.

Ibindi bimenyetso

Byongeye kandi, dermatomyositis ishobora no gutera ibimenyetso nk'ibi:

• Guhinduka kw'ibara ry'uruhu n'utubyimba ku biganza, cyane cyane hafi y'amaboko (rimwe na rimwe byitwa Gottron papules).
• Kalisiyumu yiyongera munsi y'uruhu, mu mitsi, cyangwa mu ngingo zihuza umubiri.
• Utubyimba mu mavi cyangwa mu nkokora.
• Uruhu rusadutse ku nzara n'imitsi igaragara ku mpande z'inzara.
• Kubabara ingingo.

Hari abantu bamwe (cyane cyane abana bato) barwara dermatomyositis, bakayikura bakuze, ntibasubire kugira ibimenyetso ukundi. Ariko, mu bantu bagera kuri 80%, iba indwara idakira - bivuze ko igaruka inshuro nyinshi - kandi igatera ibimenyetso mu buzima bwabo bwose.

Ni iki gitera ibi?

Impuguke ntiziramenya neza impamvu itera dermatomyositis, ariko hari ibintu byinshi bivugwa ko bishobora kuyitera:

• Ibintu bitera imiterere y’umubiri: Ubushakashatsi bumwe bugaragaza ko dermatomyositis ishobora kuba indwara iterwa n’imiterere y’umubiri, bivuze ko ishobora guhererekanywa mu bisekuruza.
• Ibibazo by’ubudahangarwa bw’umubiri: Nkuko byavuzwe mbere, dermatomyositis ni indwara isa n’izindi ndwara nyinshi ziterwa n’ubudahangarwa bw’umubiri aho ubudahangarwa bw’umubiri bwibasira ingingo nzima.
• Kwandura virusi: Hari ibimenyetso bimwe na bimwe bigaragaza ko hari abantu bashobora kwandura virusi, nubwo byakemutse, bishobora gutera indwara yitwa dermatomyositis.
• Ibintu bifitanye isano n’ibidukikije: Hari ubushakashatsi bwagaragaje ko abantu batuye mu turere dufite umwanda mwinshi cyangwa umwuka mubi bafite amahirwe menshi yo kurwara dermatomyositis.

Iyi ndwara ipimwa ite?

Ubusanzwe indwara y'uruhu iterwa n'ibipimo by'amaraso n'ibipimo bito byakuwe mu ruhu rwawe no mu mitsi (biopsy) .

Muganga wawe azapima amaraso yawe kugira ngo arebe:

• Niba hari ingano y’imisemburo y’imitsi igaragaza ko imitsi yangiritse.
• Utunyangingo tw’umubiri ni uturemangingo twerekana ko ubudahangarwa bw’umubiri burimo kwitwara ku kintu bubona ko ari kibi.

Ushobora kandi gukenera gupimwa uruhu rwawe uhereye ku ruhu. Muganga wawe ashobora kandi gushaka gupimwa imitsi kugira ngo arebe niba hari ibibyimba biri mu mitsi yawe.

Ushobora kandi gukora kimwe mu bizamini byinshi byo gupima. Ibi bizamini byemerera muganga wawe gusuzuma imitsi yawe, imitsi, ibihaha, n'izindi ngingo. Ibi bizamini bishobora gufasha kumenya niba ibimenyetso byawe biterwa na dermatomyositis cyangwa ikindi kibazo. Ibizamini bikunze gukoreshwa mu gupima dermatomyositis ni ibi bikurikira:

• Ishusho ya Magnetic Resonance (MRI)
• X-ray yo mu gituza.

Mu bihe bimwe na bimwe, muganga wawe ashobora no gutegeka ikizamini cyitwa electromyography (EMG). Iki kizamini gipima imikorere y'amashanyarazi iba iyo imitsi cyangwa imitsi ishyushye.

Ivurwa ite?

Dore bumwe mu buryo bwo kuvura dermatomyositis:

• Corticosteroids: Ubwo bwoko bw'imiti bugabanya kubyimba mu mitsi yawe.
• Ubuvuzi bw'umubiri: Ubuvuzi bw'umubiri (n'imyitozo ngororamubiri muri rusange) bushobora gufasha kongera kubaka ibyangiritse imitsi yawe yangije. Uko imitsi yawe ikomera, niko izabasha kwihanganira ibyangiritse biterwa na dermatomyositis.
• Imiti igabanya ubudahangarwa bw'umubiri: Iyi miti ibuza ubudahangarwa bw'umubiri wawe kwibasira uturemangingo n'ingingo z'umubiri. Ishobora kugabanya ingaruka ubudahangarwa bw'umubiri wawe bugira ku mitsi yawe.
• Indwara ya immunoglobulin iterwa mu mitsi (IVIg): IVIg ni inyongera ku maraso yawe, ikaba ari igice cya immunoglobulin iboneka mu maraso yawe. Ubuvuzi bwa IVIg bushobora gutangwa hamwe n'imiti igabanya ubudahangarwa bw'umubiri, cyangwa nk'ubundi buryo bwo kuvura.
• Ubuvuzi bw'imitsi: Niba ufite intege nke mu mitsi iri mu muhogo wawe cyangwa hafi yawo, ubuvuzi bw'imitsi bushobora gukomeza imitsi yo mu muhogo wawe igufasha kumira ibiryo.

Ubwoko bw'ubuvuzi ukeneye buzaterwa n'aho ibimenyetso byawe biri n'uburemere bwabyo. Vugana na muganga wawe ku byo witeze n'igihe imiti imwe n'imwe ishobora gukenerwa.

Ni gute wakwitwara mu gihe ibimenyetso bihari?

Gukemura ibimenyetso bya dermatomyositis bishobora kuba inzira y'igihe kirekire - wenda ubuzima bwawe bwose.

• Niba muganga wawe, umuvuzi w’umubiri, cyangwa umuvuzi w’imivugire aguhaye imyitozo ngororamubiri, kora neza uko bagutegetse, uko bakubwira inshuro bakubwira. Ibi bizagufasha gukomeza imitsi yawe uko bishoboka kose.
• Fata umuti neza neza nk'uko muganga yabigutegetse, mu gihe cyose.
• Irinde kwibasirwa n'imirasire ya UV. Gabanya igihe cyawe ku zuba, irinde gukoresha ibitanda byo mu nzu bisukura, kandi guma mu nzu cyangwa mu gicucu iyo uri hanze.
• Igihe cyose uzi ko ugiye gusohokaKoresha amavuta akingira izuba. Menya neza ko amavuta akingira izuba afite nibura SPF 50, hanyuma wongere uyashyire buri masaha abiri.

Niba ufite dermatomyositis, ni ngombwa kujya kwa muganga wawe buri gihe. Ashobora gukurikirana ibimenyetso byawe no kugenzura impinduka iyo ari yo yose mu mitsi cyangwa uruhu rwawe.

Ni iki wakwitega mu gihe ubana n'iyi ndwara?

Nta muti urambye w’indwara y’uruhu ihari, bityo ushobora kwitega ko izagufasha kwihanganira ibimenyetso by’indwara mu buzima bwawe bwose.

Nubwo wavurwa, abantu bagera kuri 80% barwaye dermatomyositis idakira (rimwe na rimwe yitwa polycyclic dermatomyositis). Ibi bivuze ko ibimenyetso byawe bishobora kuza bigakomeza ubuzima bwawe bwose. Jya kwa muganga ukimara kubona ibimenyetso byerekana ko ibimenyetso bikomeza kwiyongera.

Abantu bagera kuri bibiri bya gatatu bafite dermatomyositis bagira ubumuga bw'umubiri bitewe no kwangirika kw'imitsi.

Dermatomyositis yica abantu bagera kuri 5% basanzwe bayirwaye. Iyi ngaruka iba nyinshi cyane mu mwaka wa mbere w’isuzuma. Ariko, abantu bagera kuri 20% barwaye dermatomyositis bahita bakira igihe kirekire. Ibi bivuze ko bashobora kubaho igihe kirekire badafite ibimenyetso.

Ibimenyetso bimwe na bimwe n'ibindi bintu bishobora kongera ibyago byo gupfa. Ingero zirimo:

• Iyo ubuvuzi butinzeho amezi arenga atandatu.
• Niba ufite imyaka irenga 60.
• Niba ugaragaje ibimenyetso bikomeye.
• Niba ufite ibimenyetso mu muhogo, mu bihaha, cyangwa mu mutima.
• Niba urwaye kanseri cyangwa niba itangiye kugaragara ari nshya.

Ni ryari ukwiye kujya kwa muganga?

Niba ubonye intege nke nshya mu mitsi yawe, cyane cyane niba ufite ibisebe ku ruhu, hita ugana muganga. Uko dermatomyositi igaragaye vuba, niko ushobora gutangira kuvurwa vuba. Ibi bishobora kugabanya ibyago byo kugira ibimenyetso bikomeye n'izindi ngorane.

Baza kandi inshuro ugomba kubonana na muganga wawe kugira ngo akurikirane ibimenyetso byawe n'impinduka mu mitsi cyangwa uruhu rwawe.

Ni ibihe bibazo ugomba kubaza muganga wawe?

Ni ibisanzwe kugira ibibazo iyo umenye indwara nk'iyi. Ushobora kubaza muganga wawe ibibazo nk'ibi:

• Ese mfite dermatomyositis cyangwa indi ndwara?
• Ni ubuhe bwoko bw'ibizamini ngomba gukora?
• Ni ubuhe bwoko bw'ubuvuzi nkeneye, kandi bizamara igihe kingana iki?
• Ese nkeneye gupimwa kanseri?

Ni ibisanzwe kumva ufite ubwoba bwinshi iyo umenye ko ufite indwara nka dermatomyositis.Biratangaje kumenya indwara ishobora guhitana ubuzima bwawe bwose. Ariko fata intambwe imwe ku yindi. Uko ubimenye vuba, ni ko utangira kuvurwa vuba.

Vugana na muganga wawe ku bijyanye no gutegura uburyo bwo kuvura no guhangana n'ibimenyetso. Azagusobanurira icyo ugomba kwitega nyuma yaho n'impinduka ugomba gukora kugira ngo witegure niba ibimenyetso byawe by'uburwayi bw'uruhu bikomeje kwiyongera.

Ibintu byo kwibuka muri make

Dermatomyositis ni indwara idakunze kugaragara itera intege nke z'imitsi n'uduheri ku ruhu.

• Ibi bishobora kugaragara ku muntu uwo ari we wese, ariko bikunze kugaragara ku bana bari hagati y’imyaka 5 na 15, abantu bakuru bari hagati y’imyaka 40 na 60, ndetse n’abagore.
• Ni ngombwa cyane gushaka inama kwa muganga ukimara kubona ibimenyetso. Gukira vuba bishobora kugabanya ingorane.
• Nubwo nta muti urambye uhari, ibimenyetso bishobora kugenzurwa hakoreshejwe uburyo bwo kuvura no gucunga.
• Vugana na muganga wawe ku byerekeye ibyago byawe byo kurwara kanseri.
• Witinya, ntabwo uri wenyine. Ubifashijwemo n'abaganga n'abakunzi bawe, ushobora guhangana n'iki kibazo.

Dermatomyositis , intege nke z'imitsi, indwara z'uruhu, uduheri, indwara z'ubwiyongere bw'umubiri, ibyago byo kurwara kanseri, ubuvuzi bw'umubiri