Ese umwana wawe atangiye kugira ibibara by'umuhengeri ku mubiri we? Bishobora kuba ari Henoch-Schönlein Purpura (HSP)! Ese twavuga kuri ibi?

Ni ibisanzwe kugira impungenge nke iyo umwana wawe abonye utudomo duto tw'umuhengeri ku mubiri we, cyane cyane ku maguru no ku matako, nyuma yo gukina yishimye. Hari igihe utu duto dushobora guherekezwa no kubabara mu nda no kubabara ingingo. Iyo tubonye ikintu nk'iki, dutekereza ku kintu kimwe nyuma y'ikindi. Uyu munsi rero tugiye kuvuga ku ndwara ishobora gutera ibi bimenyetso, ariko akenshi ntabwo ari ikintu cyo guhangayikisha, ariko ni ngombwa cyane kubimenya. Iyo ni Henoch-Schonlein Purpura, cyangwa HSP mu magambo ahinnye.

Henoch-Schönlein Purpura (HSP) ni iki?

Mu magambo make, Henoch-Schonlein Purpura (HSP) ni indwara aho imitsi mito y'amaraso mu mibiri yacu ibyimba cyangwa ikabyimba. Abaganga bayita " vasculitis ." Tekereza nk'imitsi mito y'amaraso mu mibiri yacu irakara ikabyimba. Uku kubyimba ni byo biteza ibi bibazo byose.

Iyo imiyoboro y'amaraso ibyimbye muri ubu buryo, uturemangingo duto tw'amaraso dutangira kuva. Nk'uko umuyoboro w'amazi uvamo amazi. Utwo turemangingo tw'amaraso dushobora kuvamo mu ruhu, mu ruhu (nk'uturemangingo dutose mu kanwa no mu mazuru), cyangwa mu ngingo z'imbere. Iyo duvamo mu ruhu, dutera utwo tudomo tw'umuhengeri, tumeze nk'ibisebe. Utwo tudomo tutwita `(purpura)`.

Akenshi, iyi ndwara ya HSP igira ingaruka ku mitsi y'amaraso mu ruhu, mu ngingo, mu mara (amara), no mu mpyiko. Ariko inkuru nziza ni uko abana benshi barwaye HSP bakira burundu mu byumweru bike nta kibazo cy'igihe kirekire . Rero ni ngombwa kumenya ukuri mbere yo kugira ubwoba.

Ni izihe mpamvu zitera HSP?

Abaganga ntibarabasha kuvuga neza icyateye HSP. Ariko batekereza ko bishoboka cyane ko itangira nyuma yo kwandura . Ishobora kuba indwara ya bagiteri, virusi, cyangwa parasitiki. Urugero, bamwe mu bana bashobora kurwara iyo ndwara nyuma yo kubabara mu muhogo.

Uretse ibyo, bikekwa ko bishobora guterwa n'imiti imwe n'imwe ndetse n'ibiribwa bitera ubwivumbure . Hari abantu bashobora kuba bafite imiterere y'uturemangingo. Abashakashatsi baracyashakisha impamvu nyayo ya HSP.

HSP ibaho iyo ubudahangarwa bw'umubiri bwacu budakora neza. Dufite ubwoko bwihariye bwa poroteyine yitwa `(Immunoglobulin A - IgA)` mu mubiri wacu. Inshingano yayo nyamukuru ni ukurwanya indwara no kuturinda indwara. Ariko ikiba mu mubiri w'umuntu urwaye HSP ni uko iyi poroteyine ya `(IgA)` yinjizwa muri iyo mitsi mito y'amaraso. Icyo gihe ni bwo iyo ndwara ya `(vasculitis)` ibaho, bigatuma imitsi y'amaraso ibyimba.

HSP ni yo ndwara ikunze kugaragara cyane mu bana . Nubwo ishobora kugaragara mu myaka iyo ari yo yose, ikunze kugaragara cyane mu bana bari hagati y'imyaka 2 na 6. Ikunze kugaragara inshuro ebyiri mu bahungu kurusha abakobwa. Ikunda kandi kugaragara kenshi mu gihe cy'impeshyi no mu gihe cy'itumba (ni ukuvuga mu mpera z'umwaka).

Ni ibihe bimenyetso bya HSP?

Noneho reka turebe ibimenyetso umwana ashobora kugaragaza aramutse afite HSP.

Uduheri tw'uruhu `(Purpura)`

Iki ni cyo kimenyetso cy'ingenzi kandi kigaragara cyane cya HSP . Uduheri duto tw'umuhengeri tugaragara nk'ibisebe ku ruhu. Utwo duheri ntabwo duhinduka ibara iyo urebye (uduheri tudahinduka ibara).

• Utu duce dukunze kugaragara ku maguru yo hasi no ku matako .
• Hari igihe ibi bitonyanga bishobora kugaragara no ku biganza, mu maso no hagati mu bice by'umubiri, nko mu gituza no mu nda.
• Utu duce dushobora kugaragara mu buryo butunguranye, cyangwa tukagenda twiyongera buhoro buhoro.

Kubabara ingingo no kubyimba

Ku bana benshi, kubabara ingingo no kubyimba bishobora kubaho mu cyumweru kimwe cyangwa bibiri mbere yuko hagaragara uduheri ku ruhu .

• Akenshi bigira ingaruka ku ngingo z'amavi n'utuguru .
• Hari igihe ingingo nk'inkokora n'ukuboko nabyo bishobora kwangirika.
• Ubu bubabare bushobora gutuma umwana atabasha kugenda neza.

Kubabara mu nda

Gukomereka mu nda bikunze kubaho nyuma yo kugaragaraho uduheri ku ruhu.

• Ushobora kugira kuribwa mu nda.
• Isesemi no kuruka .
• Hari abana bashobora kandi kugira amaraso mu myanya yabo y'imboro (amaraso mu myanya y'imboro/imboro). Iki ni ikimenyetso cyo guhangayikishwa.

Ingaruka ku mpyiko

Hari ubwo HSP ishobora no kugira ingaruka ku mpyiko .

• Amaraso make cyangwa poroteyine bishobora kwanduzwa n'inkari .
• Hari igihe inkari zishobora kugaragara nk'umutuku mu ibara (hematuria).
• Nubwo ibi atari bikomeye mu bihe byinshi, ni ngombwa cyane kubonana na muganga kugira ngo arebe niba hari ingaruka ku mpyiko.

Ibimenyetso bya HSP bikunze kumara ukwezi kumwe , nyuma abana benshi bakira bonyine.

Ni gute abaganga basuzuma neza indwara ya HSP?

Iyo ujyanye umwana wawe kwa muganga, ikintu cya mbere bakora ni ukumusuzuma neza. Kubera ko utwo tubara twa purpura tuba ku barwayi hafi ya bose ba HSP, ni ingirakamaro cyane ku baganga mu gusuzuma indwara.

Byongeye kandi, muganga ashobora kandi gukora ibizamini nka:

• Ibipimo by'amaraso: Ibi bishobora gukoreshwa mu gusuzuma imikorere y'impyiko, gusuzuma ubwandu, no gusuzuma ibibazo byo kuvura amaraso.
• Isuzuma ry'inkari: Suzuma amaraso cyangwa poroteyine mu nkari. Ibi bishobora gutanga igitekerezo cy'uko impyiko zagize ingaruka.
• Isuzuma ry'imyanya: Suzuma amaraso mu mwanya.
• Gupima icyuma gipima umwijima mu nda: Niba umwana wawe afite ububabare bukabije mu nda, ibi bishobora gufasha gukuraho ibindi bibazo biri mu nda, cyane cyane indwara yitwa intussusception.

Nyuma yo gukora ibi bizamini byose, muganga agena niba ufite HSP n'uburemere bwayo.

Ni ubuhe buryo bwo kuvura HSP?

Akenshi, HSP irakira ubwayo nta buvuzi bwihariye . Iyo ni inkuru nziza. Ariko, niba HSP yaragize ingaruka ku mpyiko zawe, ubuvuzi bushobora kuba ngombwa.

Kugira ngo umwana wawe agire ibyiyumvo byiza kandi agenzure ibimenyetso, muganga wawe ashobora kukugira inama yo gukoresha imiti nk'iyi:

• Antibiyotike: Izi zitangwa gusa iyo bigaragaye ko HSP iterwa n'ubwandu bwa bagiteri.
• Imiti igabanya ububabare: Urugero, acetaminophen (nka parasetamol) ishobora gufasha kugabanya ububabare bw'ingingo n'umubiri.
• Imiti igabanya ububabare: Urugero, imiti nka ibuprofen ishobora gufasha kugabanya ububabare no kubyimba mu ngingo.
• Corticosteroids: Urugero, imiti nka prednisone. Iyi itangwa gusa iyo umwana ababara cyane mu gifu cyangwa afite indwara y'impyiko. Iyi igomba gukoreshwa gusa ayobowe na muganga.

Ibintu ushobora gukora uri mu rugo

Uretse imiti, hari ibintu ushobora gukora mu rugo kugira ngo umwana wawe agire ubuzima bwiza:

• Reka umwana wawe aruhuke neza: Gabanya igihe cyo kwiruka no gukina hirya no hino, kandi umushishikarize kuguma mu buriri no gusoma igitabo.
• Tanga ibinyobwa byinshi byo kunywa:Gutanga ibintu nk'amazi n'umutobe w'imbuto bishobora gufasha mu kwirinda umwuma.
• Niba ingingo zawe zabyimbye kandi zibabaza: Ushobora kuzikomeza hejuru, ndetse wenda no kuzishyiraho agapaki k'urubura niba muganga wawe abigusabye.

Icy'ingenzi ni ukujyana umwana wawe kwa muganga vuba iyo yanze kurya cyangwa kunywa, iyo afite ububabare bukabije mu gifu, cyangwa iyo agaragaje ibimenyetso by'ibibazo by'impyiko (urugero: kugabanuka kw'inkari, kubyimba). Ashobora gukenera kujya mu bitaro kugira ngo avurwe.

Ese hari izindi ngorane zishobora guterwa na HSP?

Hafi kimwe cya kabiri cy'abana barwaye HSP bashobora kugira ingaruka ku mpyiko zabo. Kenshi na kenshi, iyi ngaruka ni ntoya kandi ikemuka nta buvuzi bwihariye. Ariko, ni gake cyane, bamwe mu bana bashobora kugira indwara zikomeye nko kunanirwa kw'impyiko. Abo bana bashobora gukenera kubonana n'inzobere mu by'impyiko (nephrologist) kugira ngo bakore isuzuma ryinshi.

Indi ndwara idakunze kugaragara ariko ikomeye cyane ni ukwinjira mu mara. Ibi bibaho iyo igice kimwe cy'amara gikoresheje telesikope mu kindi gice . Ibi bishobora guhagarika amaraso ajya muri icyo gice bigatuma habaho kuziba. Iki ni ikibazo cyihutirwa kigomba kuvurwa vuba. Niba umwana wawe agize ububabare bukabije mu nda, aruka, cyangwa afite amaraso asa n'umusemburo mu gituba cye, ugomba gukeka ibi.

Ibindi bintu by'ingenzi tugomba kumenya

• Ikintu cyiza ni uko abana benshi barwaye HSP bakira burundu mu kwezi kumwe kandi ntibagire ikibazo cy’igihe kirekire.
• Hari abana bashobora kongera kurwara HSP. Ibi bikunze kubaho amezi make nyuma y'igice cya mbere. Ariko, iyo bigarutse, akenshi biba bike ugereranyije n'icya mbere .

None se, ni ubuhe butumwa bwo kujyana mu rugo buturuka kuri ibi byose?

Noneho rero, dukurikije ibyo twavuze, ibi ni byo by'ingenzi cyane ugomba kuzirikana:

• HSP ni indwara ishobora kwibasira abana bato, igatera kubyimba imiyoboro y'amaraso. Ikimenyetso nyamukuru ni utudomo tw'umuhengeri.
• Akenshi, ibi bizakira ubwabyo.
• Kubabara ingingo, kubabara mu gifu, no kwangirika kw'impyiko bishobora kubaho.
• Niba ubonye utudomo tudasanzwe ku mubiri w'umwana wawe, niba yinubira ububabare bw'igifu, cyangwa ingingo ze zibabara, mujyane kwa muganga. Ntugatinye, ahubwo shaka ubufasha bwihuse.
• Kurikiza amabwiriza ya muganga witonze. Ha umwana wawe ikiruhuko gihagije n'amazi menshi.
• Abana benshi barakira burundu. Menya neza ingorane zidasanzwe.

Wibuke ko utari wenyine. Abaganga barahari kugira ngo bagufashe wowe n'umwana wawe. Kumenya amakuru nk'aya bizaguha imbaraga nyinshi zo gufata ingamba ku gihe.

Rero, ndizera ko aya makuru azagufasha. Ndifuza ko umwana wawe akira vuba!

Henoch -Schonlein purpura, HSP, indwara z'abana, ibizinga by'uruhu, vasculitis, vasculitis ya IgA, indwara z'abana