Ese umwana wawe afite umubiri ukomeye kandi udasanzwe? Ese byaba ari indwara ya Spastic Cerebral Palsy? Reka tubiganireho!

Ese wigeze ubona ko umubiri w'umwana wawe ukomeretse gato, cyangwa ko amaguru ye yumva akomeye ku buryo budasanzwe? Ese wigeze ubona ko iyo atangiye kugenda, amaguru ye arunama imbere maze akagenda nk'umukasi? Cyangwa asa n'aho ari inyuma gato y'abandi bana uko agenda akura? Ibi bishobora kuba ibimenyetso by'indwara yitwa Spastic Cerebral Palsy. Ntugahangayike, tuzabiganiraho birambuye.

Indwara yo mu bwonko ya Spastic Cerebral Palsy ni iki?

Mu magambo make, indwara yo mu bwonko ni itsinda ry’indwara z’imitsi zigira ingaruka ku bwonko no ku mikorere y’ubwonko. Ibi bituma bigorana kugenzura imikorere y’umubiri n’uko uhagaze. Indwara yo mu bwonko yo mu bwonko yo mu bwoko bwa Spastic Cerebral Palsy ni yo ndwara ikunze kugaragara cyane mu bwonko. Muri iki kibazo, imitsi y’umwana irakomera (ibi ni byo twita "Spasticity") kandi igatakaza ubushobozi bwo kwiyoroshya. Hari igihe, iyo ubu bubabare bukomeye, bushobora kubabaza. Nanone, umwana ashobora kugira imitsi itunguranye, idakora neza, cyangwa imitsi ikagira imitsi ihindagurika.

Tekereza, iyo umwana wawe arambuye ukuboko kwe kugira ngo afate igikinisho, ukuboko kwe kurahindagurika maze ntakibone neza. Cyangwa iyo agenda, ntashyire ibirenge bye hasi neza, ahubwo agerageza kugenda ku mano. Hari igihe, iyo arambuye ukuboko kwe kugira ngo afate ikintu kimeze nk'umupira, ashobora kumva ububabare. Ibintu nk'ibi bishobora kugaragara muri ubu burwayi.

Ni ubuhe bwoko bw'ingenzi bwa Spastic Cerebral Palsy?

Hari ubwoko butatu bw'ingenzi bwa Spastic Cerebral Palsy. Reka turebe ibyo ari byo.

Diplejiya/diparesis yo mu bwoko bwa Spastic

Ibi bigira ingaruka cyane cyane ku maguru y'umwana. Imitsi yo mu kibuno no ku maguru irakomera, bigatuma bigoye kugenda. Ushobora kuba warabonye abana bamwe bagenda amaguru yabo akururwa imbere n'amavi yabo akorakora (nk'imikasi). Ibyo ni byo bibaho muri iki gihe. Ibi kandi tubyita 'ingendo yo gukasira' .

Hemiplejiya yo mu bwoko bwa Spastic/hemiparesis

Muri iki gihe, ibimenyetso bigira ingaruka ku ruhande rumwe rw'umubiri w'umwana gusa . Ni ukuvuga ku ruhande rw'iburyo cyangwa ibumoso. Ukuboko, ukuguru, cyangwa amaboko n'amaguru byombi kuri urwo ruhande bishobora kugira ingaruka.

Indwara ya quadriplegia/quadriparesis yo mu bwoko bwa Spastic

Iyi ni yo ndwara ikomeye cyane . Ifata amaboko yombi, amaguru yombi, no mu maso . Hari abana bashobora no kugira ibindi bimenyetso, nko kutamenya kwiga (gutinda gutekereza) no gucika intege.

Ni ibihe bimenyetso by'indwara yo mu bwonko ifata ubwonko mu buryo bwa Spastic Cerebral Palsy?

Noneho reka turebe ibimenyetso umwana ashobora kugaragaza muri iki gihe.

• Imitsi ikomeye
• Imitsi ikomeye, kugabanuka kw'ubworoherane
• Kubabara imitsi
• Imitsi ikora nabi cyangwa ihungabana ry'imitsi

Ibi bimenyetso bituma amaguru n'amaboko byafashwe bigenda buhoro buhoro kandi nta buryohe. Ibi bimenyetso bishobora kuba byoroheje ku bana bamwe, ariko bishobora kuba bikomeye ku bandi.

Ni ibihe bimenyetso bya mbere bya Spastic Cerebral Palsy?

Hari igihe ibimenyetso bishobora kugaragara akiri muto. Muganga wawe azabyitondera cyane mu gihe asuzuma umwana wawe.

• Ubwinshi bw'ijwi mu maguru ( ibi bishobora kugaragara mu gihe cyo gusuzuma kwa muganga)
• Kugorwa no kwagura ingingo neza
• Gutinda kurangiza intambwe z'iterambere (urugero, gukurura, kugenda, gufata ikintu)
• Ingorane zo guhuza ibintu
• Kugorwa no kugenda cyangwa kugenda mu buryo budasanzwe (urugero, gukubita amavi yawe hamwe igihe ugenda)
• Kugenda ku mano gusa

Kuki habaho indwara yo mu bwonko yitwa Spastic Cerebral Palsy?

Iyi ndwara mu by’ukuri iterwa no kwangirika kw’inzira z’ubwonko zigenga imitsi n’ingendo. Uku kwangirika gushobora guterwa no kubura umwuka wa ogisijeni mu bwonko, gukomereka k’ubwonko, cyangwa , gake cyane, impinduka mu ngirabuzimafatizo (impinduka muri ADN).

Hari ibihe byinshi bishobora kwangirika k'ubwonko cyangwa kubura umwuka wa ogisijeni mu gihe cyo gutwita, kubyara, cyangwa nyuma gato yo kubyara:

• Amaraso atembera nabi mu bwonko (urugero: indwara yitwa "ischemic stroke")
• Kuva amaraso mu bwonko (urugero: indwara yitwa hemorrhagic stroke)
• Kwangirika k'ubwonko guterwa n'ubwandu
• Ihungabana ry'ubwonko (TBI)

Byongeye kandi, umwana aba afite amahirwe make yo kurwara indwara ya Spastic Cerebral Palsy iyo:

• Kubyara igihe kitaragera
• Kubyara umwana ufite ibiro bike
• Umuhogo ukabije w'umuhondo utavuwe neza
• Ubwandu bwibasira umubyeyi, umwana uri mu nda, cyangwa nyababyeyi mu gihe cyo gutwita
• Kubyara abana benshi mu nda, nk'impanga cyangwa impanga eshatu (Impanga nyinshi)
• Ingorane mu gihe cyo gutwita (urugero, indwara zikomeye nko gucika kw'inyababyeyi cyangwa gucika kw'umura)
• Guhura n'ibintu bihumanya bishobora kwangiza ubwonko (urugero, kuba wahura n'ibintu bihumanya ikirere mu mazi igihe kirekire)

Ni izihe ngorane zindi zishobora guterwa n'indwara ya Spastic Cerebral Palsy?

Iyi ndwara ntigira ingaruka ku mitsi y'umwana gusa. Izindi ngorane zishobora kubaho. Zirimo:

• Kugorwa no kuvuga no kuvugana
• Ibibazo bijyanye n'ubushobozi bwo kwiga (ubumuga bwo mu mutwe)
• Indwara zo mu mutwe
• Gutakaza ubushobozi bwo kureba
• Gutakaza ubushishozi

Indwara yo mu bwonko iterwa n'iki?

Iyi ndwara ikunze gupimwa mu bwana cyangwa mu bwana. Intambwe ya mbere yo gusuzuma ni uko muganga wawe cyangwa umubyaza wawe asuzuma umwana wawe mu buryo bw'umubiri.

Muganga azasuzuma imbaraga z'imitsi y'umwana wawe, uko agenda, ubushobozi bwo gukora imitsi ye, n'uburyo ikorana neza. Azakubaza kandi niba umwana wawe arimo gukura neza hakurikijwe imyaka ye (urugero: arimo kunyara cyangwa agenda).

Ni ubuhe bwoko bw'ibizamini byemeza iyi ndwara?

Niba isuzuma ry’umubiri rigaragaje ko indwara ya spastic cerebral palsy ishobora kuba intandaro, muganga wawe ashobora gutegeka ko hakorwa ibizamini byo gupima kugira ngo arebe aho ubwonko bwangiritse. Bashobora kandi gutegeka ko hakorwa ibizamini kugira ngo harebwe izindi ndwara zishobora gutera ibimenyetso nk’ibyo.

• Ikizamini cya MRI (Magnetic Resonance Imaging)
• Isuzuma rya CT (`(Isuzuma rya CT - Isuzuma rya Computed Tomography)`)
• Gupima amaraso
• Gupima imiterere y'uturemangingo

Indwara yo mu bwonko ya Spastic Cerebral Palsy ivurwa ite?

Intego nyamukuru yo kuvura iyi ndwara ni ukunoza ubushobozi bw'umwana bwo kugenda. Nubwo idashobora gukira burundu, ibimenyetso birashobora gukumirwa kandi umwana agafashwa kubaho neza.

Uburyo bukurikira bukoreshwa nk'uburyo bwo kuvura:

• Imyitozo ngororamubiri ya buri munsi ikorerwa mu rugo kugira ngo hirindwe ko imitsi ikomeza kwiyongera uko igihe kigenda gihita
• Ubuvuzi bw'umubiri, ubuvuzi bw'akazi, cyangwa ubuvuzi bwo kuvuga
• Gukoresha imitsi yihariye, ibyuma, cyangwa udupira kugira ngo bifashe kunagura imitsi ufashe amaboko cyangwa amaguru mu mwanya umwe
• Gukoresha ibikoresho bifasha umuntu nko kugenda n'abamugaye cyangwa amagare y'abamugaye
• Imiti igabanya gukomera kw'imitsi no kubabara (nka `(Baclofen)`, `(Diazepam)`, `(Clonazepam)`, `(Dantrolene)` na `(Tizanidine)`)
• Inshinge z'uburozi bwa Botulinum (zizwi kandi nka Botox®) zifasha kuruhuka imitsi.
• Uburyo bwo kuvura hakoreshejwe baclofen mu ruti rw'umugongo ni uburyo bwo gutanga imiti mu buryo butaziguye.
• Uburyo bwo kubaga imitsi igoramye mu gice cy'inyuma cy'umugongo (selective dorsal rhizotomy), uburyo bwo kubaga bugabanya gukomera kw'imitsi

Itsinda ry'abaganga niryo rizagena gahunda y'ubuvuzi ibereye umwana wawe. Ibi bishobora gutandukana bitewe n'umwana.

Imyaka yo kubaho k'umwana urwaye indwara ya Spastic Cerebral Palsy ni iyihe?

Kenshi na kenshi, indwara ya Spastic Cerebral Palsy ntigira ingaruka ku buzima bw'umwana. Ariko, iyo ibimenyetso bikomeye kandi bitavuwe neza , ingorane zivuka rimwe na rimwe zishobora kugira ingaruka ku buzima bw'umwana. Wibuke ko nubwo nta muti w'iyi ndwara uhari, iyo uyivuwe, umwana ashobora kubaho ubuzima bwiza.

Ese iyi ndwara irushaho kuba mbi uko igihe kigenda gihita? (Ese igenda irushaho kwiyongera?)

Indwara yo mu bwonko itera indwara ya Spastic Cerebral Palsy si indwara ikomeza kwiyongera. Ibi bivuze ko imitsi imwe yagizweho ingaruka mu bwana ikomeza kugira ingaruka mu myaka yashize. Ntigira ingaruka ku mitsi mishya. Ariko, iyo itavuwe, gukomera kw'imitsi yagizweho ingaruka gushobora kwiyongera uko igihe kigenda gihita.

Kuvura ni ingenzi cyane kuko kugabanya imitsi igoramye bishobora gufasha cyane imikorere y'umwana (nk'ukugenda, guhindura imyenda, no gufata ibintu). Bishobora kandi kugabanya ububabare. Umwana azakenera inkunga y'itsinda ry'abaganga mu buzima bwe bwose kugira ngo abashe kubaho n'iyi ndwara.

Ni ryari ngomba kujya kwa muganga?

Niba ubonye ibimenyetso by'uko umwana wawe ashobora kuba afite indwara ya Spastic Cerebral Palsy, jya kwa muganga vuba. Gira impungenge cyane cyane niba ubonye impinduka cyangwa gutinda mu migendere no mu mikurire y'umwana wawe.

Ni ibihe bibazo ngomba kubaza muganga wanjye?

Ushobora kuba ufite ibibazo byinshi iyo umenye uko umwana wawe amerewe. Dore bimwe mu bibazo ushobora kubaza muganga wawe:

• "Ese ushobora kumfasha gusobanukirwa indwara umwana wanjye afite?"
• "Ni ubuhe bwoko bw'ubuvuzi usaba?"
• "Intego zo kuvura ni izihe?"
• "Ese hari ingaruka mbi z'ubuvuzi?"
• "Ngomba gukora physiotherapy cyangwa occupational therapy igihe kingana iki?"
• "Ese kubagwa bizagabanya ibimenyetso by'umwana wanjye?"

Ibintu by'ingenzi ugomba kwibuka (Ubutumwa bwo kujyana mu rugo)

Indwara yo mu bwonko itera indwara ya Spastic Cerebral Palsy ishobora kuba ikibazo gikomeye ku mwana n'umuryango we kuko ubwonko n'imitsi by'umwana ntibivugana neza. Ibi bimenyetso bishobora kugira ingaruka ku bushobozi bw'umwana bwo kugenda mu mutekano no mu bwigunge.

Ariko, nubwo idashobora gukira, ku bw'amahirwe, hari uburyo butandukanye bwo kuvura bushobora gucungwa. Ubuvuzi bw'umubiri, ubuvuzi bw'akazi, ubuvuzi bwo kuvuga, n'imiti bishobora kuzamura ubuzima bw'umwana. Uzakenera gukomeza kuvugana n'itsinda ry'abaganga b'umwana wawe. Niba wowe cyangwa umuryango wawe mufite ikibazo kuri ibi, ntimutinye kubaza muganga.

` Indwara yo kubabara ubwonko mu bwonko, Indwara yo kubabara ubwonko mu bwonko, Indwara yo kubabara imitsi, Guhagarara, Indwara zo mu bwonko mu bana, Indwara zo kugenda, Imikurire y'umwana