Indwara yo mu bwonko ni iki? Reka twigishe umwana wawe.

Nk'umubyeyi cyangwa se, wishima cyane iyo ubonye umwana wawe akura buhoro buhoro, iyo umubonye agenda atsinda intambwe imwe, si byo se? Ariko rimwe na rimwe, iyo umwana wawe atinze mu bintu nko kuzunguruka, kwicara no guhaguruka, wumva ufite ubwoba gato. Nubwo akenshi ibi ari ibintu bisanzwe, rimwe na rimwe hashobora kuba hari indwara inyuma y'ibi nka " Cerbral Palsy". Ntugahangayike, tuzaganira kuri byose mu magambo yoroheje uyu munsi.

Mu magambo make, indwara yo mu bwonko yitwa cerebral palsy (CP) ni iki?

Indwara yo mu bwonko yitwa CP mu magambo ahinnye, ni itsinda ry'indwara zigira ingaruka ku mikorere y'umwana, kuringaniza imitsi ye , n'imikorere y'imitsi. "Indwara yo mu bwonko" bivuga ikintu gifitanye isano n'ubwonko. "Indwara yo mu bwonko" bivuga intege nke cyangwa ikibazo cy'imitsi.

Iyi ndwara ibaho iyo igice cy'ubwonko kigenzura imigendere y'umubiri wacu kidakura neza, cyangwa iyo hari icyangiritse kuri icyo gice mu gihe cyo kuvuka cyangwa mu bwana. Akenshi, umwana avukana iyi ndwara. Tuyita "congenital CP." Ariko gake cyane, iyi ndwara ishobora no guterwa no kwangirika k'ubwonko nyuma yo kuvuka.

CP ishobora kuva ku yoroshye kugeza ku ikomeye. Hari abana bashobora kugira ingorane zo kugenda no kuvuga. Abana benshi nta kibazo bafite mu bwenge bwabo. Ariko, hari abana bashobora kugira ubumuga bwo mu mutwe.

Ni ubuhe bwoko bw'ingenzi bwa CP?

CP ishobora kugabanywamo ubwoko bune bw'ingenzi bitewe n'uburyo umwana agenda.

Birenzeho gato kuri Spastic CP

Ubu ni bwo bwoko bukunze kugaragara cyane. Bugabanyijemo ibice bitatu:

• Indwara yo kubabara mu maguru: Iyi ni indwara aho imitsi yo mu maguru iba ikomeye cyane. Imitsi yo mu kibuno no mu maguru iba ikomeye, bigatuma amavi ahindukirira imbere n'amaguru akanyurana nk'imikasi iyo ugerageza kugenda. Ibi kandi byitwa "scissoring."
• Spastic Hemiplegia: Ibi bigira ingaruka ku ruhande rumwe rw'umubiri gusa (iburyo cyangwa ibumoso). Ukuboko n'ukuguru kuri urwo ruhande bishobora kuba bigufi gato kandi bito ugereranije n'urundi ruhande. Ibi bituma abana bamwe bagerageza kugenda ku mano yabo . Bamwe bashobora no kugira uruti rw'umugongo rugoramye (scoliosis).
• Spastic Quadriplegia: Iyi ni yo ndwara ikomeye cyane ya spastic CP. Ifata amaguru n'amaboko ane, umubiri no mu maso. Hari n'indwara zo mu mutwe no kunanirwa kuvuga.

Kuki iki kibazo kibaho?

Akenshi biragoye kumenya impamvu nyayo ya CP. Ariko, ishobora guterwa n'ikintu icyo ari cyo cyose cyahungabanya imikurire isanzwe y'ubwonko. Ibi bintu bishobora kubaho mbere, mu gihe, cyangwa nyuma yuko umwana avuka.

Impamvu z'ingenzi zishoboka ni izi:

• Indwara ku mubyeyi utwite: Indwara nka measles yo mu bwoko bwa German measles (Rubella), inzoka zo mu nda (Chickenpox).
• Kubyara igihe kitageze: Abana bavutse mbere y'ibyumweru 37 baba bari mu kaga gakomeye.
• Ingorane mu gihe cyo kuvuka: Kugorwa no kubyara bishobora gutuma ubwonko bw'umwana bubura umwuka wa ogisijeni (asphyxia). Ariko, iyi si impamvu ikunze kugaragara nk'uko byatekerezwaga mbere.
• Ubwandu bw'ubwonko mu bwana: Ubwandu bw'ubwonko nka meningite iterwa na bagiteri.
• Genetike: Impinduka zimwe na zimwe mu ngirabuzimafatizo zishobora kugira ingaruka ku mikurire y'ubwonko.
• Jaundice ikomeye: Iyo urugero rwa bilirubin rubaye rwinshi cyane nyuma yo kuvuka kandi ntiruvurwe, rushobora kwangiza ubwonko.

Ni ibihe bimenyetso by'ibi? Ubimenya ute?

Ibimenyetso bya CP biratandukanye bitewe n'umwana, bityo rero icy'ingenzi ni uko intambwe z'iterambere ry'umwana wawe zitinda. Ariko wibuke ko gutinda kose atari CP. Niba ufite impungenge, ni byiza kuvugana na muganga wawe.

Ni gute indwara ya CP ipimwa?

Umuganga w’abana w’umwana wawe azakurikirana imikurire y’umwana wawe kuri buri isuzuma rya muganga. Azareba witonze imigendere y’umwana wawe, imitsi ye, n’uko ahagaze.

Niba ufite impungenge, muganga wawe ashobora kohereza umwana wawe kwa muganga w’indwara z’imitsi y’abana. Ibipimo bikurikira bishobora no gukenerwa kugira ngo hemezwe ko arwaye indwara:

• Gupima ubwonko: Gupima imiterere y'ubwonko hakoreshejwe MRI (Magnetic Resonance Imaging) cyangwa CT (Computed Tomography) bishobora gukorwa kugira ngo harebwe imiterere y'ubwonko. MRI ishobora gutanga amashusho asobanutse neza.
• EEG (Electroencephalogram): Bamwe mu bana bafite CP bashobora kugira ibisebe (igicuri). Iki kizamini gipima imikorere y'amashanyarazi y'ubwonko.
• Gupima amaraso: Gupima amaraso bikorwa kugira ngo harebwe izindi ndwara z’uturemangingo cyangwa imikorere y’umubiri zigaragaza ibimenyetso bisa na CP.

Ni ubuhe buryo bwo kuvura?

Indwara ya CP ntishobora gukira burundu. Ariko, iyo umwana avuwe neza kandi agafatwa neza, ashobora gufashwa kubaho ubuzima bwiza bushoboka. Uko ubuvuzi butangira vuba, ni ko umusaruro uba mwiza. Ibi bikubiyemo itsinda ry'abantu benshi, barimo abaganga, abaganga b'imitsi, abaganga b'inzobere mu by'ubuzima, abaganga b'imitsi, n'abandi.

Uburyo bw'ingenzi bwo kuvura:

• Ubuvuzi bw'umubiri : Ibi ni ingenzi cyane. Imyitozo ngororamubiri ikorwa kugira ngo ikomeze imitsi, yongere ubushobozi bwo koroherwa no kunoza uburinganire.
• Ubuvuzi bw'akazi: Bufasha umwana gukora imirimo ya buri munsi (urugero: kwambara, kurya, kwandika) ku giti cye.
• Ubuvuzi bwo kuvuga: Bugufasha kuvuga, kumira no kuvugana neza.
• Imiti: Imiti itangwa kugira ngo igabanye imitsi igoramye (imitsi iruhura), igabanye ububabare, kandi igabanye igicuri. Hari igihe guterwa Botox mu mitsi bishobora kugabanya by'agateganyo gukomera.
• Kubagwa: Hari ubwo kubagwa amagufwa bishobora kuba ngombwa kugira ngo imitsi ikomere cyane cyangwa ngo hakosorwe aho amagufwa aherereye.
• Imfashanyigisho zo kugenda: Ibyuma byo kugenda n'amaguru, imbago, amagare y'abamugaye, n'ibindi bikoresho bitandukanye byo gukingira amaguru/imigozi bishobora gufasha muri ibi.

Ese iki kibazo gishobora kwirindwa?

Nubwo indwara ya CP idashobora kwirindwa 100% by'igihe, hari ibintu byinshi dushobora gukora kugira ngo tugabanye ibyago.

• Gukomeza kugira ubuzima bwiza mu gihe utwite: Fata inkingo zikenewe (cyane cyane Rubella) mbere yo gutwita. Fata indyo yuzuye mu gihe utwite, kandi wirinde burundu kunywa itabi n'inzoga.
• Kwita ku buzima busanzwe mbere yo kubyara: Ni ngombwa cyane kujya kwa muganga kuva umunsi umenye ko utwite.
• Kwirinda kwandura: Irinde kwandura indwara mu gihe utwite na nyuma yo kuvuka k'umwana.
• Kwita ku mutekano w'umwana wawe: Irinde ko umwana wawe ashobora gukomereka mu mutwe (nk'aho yagwa).

Indwara zo mu bwonko, indwara zo mu mutwe, indwara z'abana, indwara z'ubwonko, gutinda mu mikurire, ubuvuzi bw'umubiri, spasticity