Une ma cysts muitsvo dzako here? Ngatikurukurei nezveADPKD (Autosomal Dominant Polycystic Kidney Disease)

Pamwe mumwe munhu mumhuri mako ane chirwere cheitsvo. Kana kuti pamwe wakamboonekwa uine BP yakakwira uri mumakore ako ekuma30 kana 40 uye uri kutsvaga chikonzero. Nhasi tiri kutaura nezvechirwere chakasiyana zvishoma, asi chinowanzoitika, chinogara nhaka chinokanganisa itsvo. Ichi chinonzi Autosomal Dominant Polycystic Kidney Disease. Sezvo icho chakarebesa kwatiri, tichachidaidza kuti ADPKD muchidimbu.

Zvichitaurwa zviri nyore, chii chinonzi ADPKD?

Zvichitaurwa zviri nyore, chirwere ichi chinokonzera huwandu hwakawanda hwema cysts azere nemvura muitsvo dzako. Funga nezveitsvo semafirita mumiviri yedu. Sezvo ma cysts aya achikura, itsvo hadzichagoni kushanda zvakanaka. Izvi zvinogona kukonzera matambudziko ehutano akadai seBP, hutachiona hwemunzira yeweti, uye matombo eitsvo. Kunyangwe vasiri vese vanowana chirwere ichi, vamwe vanhu vanogona kutosvika pakutadza kushanda kweitsvo.

Chimwe chezvinhu zvinoshamisa zvechirwere ichi ndechekuti unogona kusave nezviratidzo kwemakore kunyangwe uine zviratidzo zvacho. Zviratidzo zvinowanzotanga kuoneka pakati pemakore makumi matatu nemakumi mana. Ndosaka zvichinziwo "adult PKD."

Ndezvipi zviratidzo zveADPKD?

Havasi vese vane ADPKD vanozowana zviratidzo. Kune vamwe, zvinogona kutora makore kuti zviratidzo zvionekwe. Ngatitarisei zvimwe zvezviratidzo zvinowanzobatanidzwa nechirwere ichi. Ndichaparadzanisa izvi muzvikamu zviviri kuti munzwisise.

Sei ADPKD ichiitika? Inyaya yekuzvarwa nayo here?

Ehe, ichi chirwere chinogara nhaka . Chinonyanya kukonzera izvi idambudziko riri mumajini maviri ari muDNA yedu, anoti `PKD1` ne`PKD2`. Majini aya ndiwo anopa masero eitsvo chiratidzo chekuti "nguva yekukura". Kana paine dambudziko mune rimwe remajini aya, masero eitsvo anokura zvisingadzoreki uye anoumba ma cysts atakambotaura.

Funga nezvazvo, zvirwere zvakawanda zvinogara nhaka zvinoda jini risina kunaka kubva kuvabereki vese. Asi muADPKD, jini risina kunaka rinongoda kubva kumubereki mumwe chete . Ndosaka richinzi "autosomal dominant."

Izvi zvinoreva kuti kana mumwe wevabereki vako aine chirwere ichi, une mukana we50% wekuchibata . Zvisinei, kashoma, chirwere ichi chinogonawo kuitika nekuda kwekuchinja kwemajini emunhu, pasina vabereki vese vane chirwere ichi.

Ungaziva sei kana uine chirwere ichi?

Kana chiremba wako achifungidzira kuti une dambudziko reitsvo zvichienderana nezviratidzo zvako, anogona kukutumira kuna chiremba weitsvo (nephrologist). Chiremba achakubvunza mibvunzo yakaita seiyi:

• Zviratidzo zvako ndezvipi uye zvakatanga riini?
• Unoziva here BP yako?
• Pane kurwadziwa here? Kana zvakadaro, kupi?
• Wakambova nematombo eitsvo here?
• Pane mumwe munhu mumhuri ane chirwere cheitsvo here?

Zvadaro chiremba acharaira bvunzo dzinoverengeka kuti aongorore itsvo dzako.

• Ultrasound Scan: Izvi zvinoshandisa mafungu eruzha kutora mifananidzo yemukati memuviri. Iyi ndiyo bvunzo yekutanga inotorwa kazhinji.
• MRI scan: Kuongororwa kwakasimba kunoshandisa magineti nemasaisai eredhiyo kuona bundu diki kwazvo kuti risaonekwe ne ultrasound.
• CT Scan: Imwe nzira ine simba yekuskena inoshandisa X-rays kuwana mifananidzo yakadzama yemuviri.

Pamusoro pezvo, DNA yako inogona kuongororwa kuti ionekwe kana uine jini rakakanganisika `PKD1` kana `PKD2`. Zvisinei, kunyangwe bvunzo iyi yemajini ichigona kuratidza kana uine jini rakakanganisika, haigone kufanotaura kuti chirwere ichi chichatanga riini kana kuti chichava chakakomba sei .

Kurapwa nezvinhu zvaunogona kuita kumba

Hapana mushonga weADPKD parizvino. Asi pane zvakawanda zvatinogona kuita kugadzirisa matambudziko ehutano anokonzerwa nechirwere ichi uye kudzivirira kutadza kushanda kweitsvo.

Kurapwa

• Mishonga inononoka kutadza kushanda kweitsvo: Kune vakuru vari panjodzi yekukurumidza kukura kwechirwere ichi, mishonga yakaita se'Tolvaptan (Jynarque)' inopihwa kuderedza kudzikira kwebasa reitsvo.
• Mishonga inodzora BP.
• Mishonga inorwisa utachiona yezvirwere zvemudumbu.
• Mishonga inouraya marwadzo.

Kana itsvo dzako dzikatadza kushanda, ungangoda kurapwa kunonzi dialysis . Izvi zvinosanganisira kushandisa muchina wekusefa ropa rako, kubvisa tsvina, munyu, nemvura yakawandisa mumuviri wako. Imwe nzira ndeyekuisirwa itsvo. Taura nachiremba wako nezveizvi kuti udzidze zvakawanda.

Zvinhu zvaunogona kuita kumba

Kuti udzivirire itsvo dzako uye kuti dzirambe dzichishanda zvakanaka kwenguva yakareba sezvinobvira, zvakakosha kuti ugare uine hutano hwakanaka.

• Kudya kwakakodzera: Idya chikafu chine munyu mushoma. Munyu unogona kuwedzera BP.
• Ramba uchiita maekisesaizi: Kurovedza muviri kunogona kubatsira kudzora huremu neBP, asi dzivisa mitambo yekubata muviri, iyo inogona kukuvadza itsvo dzako.
• Dzivisa kusvuta: Kusvuta kunokuvadza mitsipa yeropa iri muitsvo uye kunogonawo kuwedzera njodzi yekuumbwa kwema cysts.
• Inwa mvura yakawanda: Kushaya mvura mumuviri kunogonawo kukonzera kuti ma cysts arambe achiumbwa.

Mamwe matambudziko anogona kuitika nekuda kweADPKD

ADPKD inogonawo kuwedzera njodzi yemamwe matambudziko ehutano, uye zvakakosha kuziva izvi zvakare.

Kukura kwechirwere ichi kunoenderana nekuti une dambudziko here mujini rekuti `PKD1` kana `PKD2`. Kazhinji, vanhu vane dambudziko mujini rekuti `PKD1` vari panjodzi yekukundikana kweitsvo nekukurumidza kupfuura avo vane dambudziko rekuti `PKD2`. Saka zvakanaka kutaura nachiremba wako kuti uzive kuti chirwere chako chii chaizvo.