Chikamu cheuropi hwemwana wako chiri kubuda mumusoro make here? Izvi zvinonzi encephalocele!

Ungave wakaona, kana kunzwa, kuti vamwe vacheche vanozvarwa vaine buri diki mudehenya ravo, nechikamu cheuropi hwavo chichibuda. Zvakajairika kuti chero mubereki atye paanoona izvi. Nhasi tichataura nezvechirwere ichi chinonzi encephalocele. Usazvidya mwoyo, tichataura nezvazvo zvakadzama uye zviri nyore.

Chii chinonzi Encephalocele?

Zvichitaurwa zviri nyore, encephalocele chirwere chekuzvarwa nacho apo mapfupa edehenya remwana haavharike zvakanaka, zvichiita kuti tsinga dzeuropi dzibude nepaari. Izvi zvinogona kutaridzika sebharumu diki rinobuda mudehenya.

Dambudziko iri rinokonzerwa nekusashanda zvakanaka kwetsinga dzeropa . Zvino ungangove uchishamisika kuti tsinga iyi yeropa chii. Zviri nyore kwazvo. Mushure mekunge mwana abatwa mudumbu, mukati memavhiki mashoma ekutanga, uropi hwemwana nemusana zvinotanga kukura muchimiro chakaita sechubhu. Izvi ndizvo zvatinodaidza kuti tsinga dzeropa. Kana pamusoro petsinga iyi yeropa pakasavhara zvakanaka, chirwere ichi chinonzi encephalocele chinoitika. Izvi zvinogona dzimwe nguva kuva chirwere chidiki, kana kuti chinogona kuva chakakomba zvekuti chinogona kuisa hupenyu panjodzi.

Ndezvipi zvirwere zve encephalocele?

MaEncephaloceles anorongwa zvichienderana nekuti anoumbwa kupi mudehenya. Anonyanya kuwanikwa munzvimbo dzinotevera:

• Occipital: Kumashure kwemusoro wemwana, pedyo nemutsipa. Iyi ndiyo mhando inonyanya kuwanikwa.
• Parietal: Pamusoro pemusoro, zvichienda kumashure.
• Frontoethmoidal (inonziwo Sincipital): Huma yemwana yakatwasuka.
• Sphenoidal: Iri mukati memusoro, kumashure kwemaziso uye pamberi kwenzeve. Izvi zvingasaonekwa nekunze.

Uyezve, vanachiremba vanopatsanura izvi mumhando mbiri, zvichienderana nekuti zviri pamberi here kana kuti kumashure kwemusoro:

• Kumberi: Kumberi kwedehenya remwana.
• Kumashure: Kumashure kwedehenya remwana.

Dambudziko iri rakajairika zvakadii?

Chirwere cheEncephalocele chirwere chisingawanzoitiki. Kana ukatarisa nhamba dziri munyika yakaita seAmerica, chirwere ichi chinoitika mumwana mumwe chete pavana 10,500 vanoberekwa. Izvi zvinoreva kuti vana vanosvika 375 pagore. Kunyangwe zvakaoma kuwana nhamba chaiyo muSri Lanka, ichi chinoonekwa sechirwere chisingawanzoitiki kwese kwese.

Mwana ane chirwere chepfungwa chinonzi encephalocele anotaridzika sei?

Kana mwana achangoberekwa aine chirwere chepfungwa chinonzi encephalocele, unogona kuona buri riri mudehenya rake risati ravharika zvachose. Nekuda kweizvozvo, uropi huri kubuda nepaburi riri mudehenya sebhegi rakafukidzwa neganda . Rinoita sebharumu riri kubuda mumusoro. Zvichienderana nekuti buri riri kupi, panogona kunge paine zvinhu zvakaita sebvudzi pabhegi.

Buri iri riri mudehenya rinogona kuitika chero kupi zvako pamusoro. Zvisinei, rinowanzoonekwa pahuma kana kumashure kwemusoro, pedyo nemutsipa.

Ndezvipi zviratidzo zve encephalocele?

Zviratidzo zvechirwere ichi zvinogona kusiyana kubva pamunhu kusvika pamunhu. Zvinoenderana nehukuru hweburi riri mudehenya, nzvimbo yaro, uye kuti uropi hwakabuda zvakadii. Zvimwe zviratidzo zvakajairika zvinosanganisira:

• Musoro (kunyanya kuvana vakuru kana kana ukaonekwa gare gare)
• Matambudziko ekuona
• Kushaya simba kwetsandanyama mumakumbo nemakumbo
• Musoro mudiki pane zvaitarisirwa pakuzvarwa
• Ataxia (kusagadzikana kwemuviri pakufamba kana kufamba)
• Kuremara kwechiso (kunyanya pedyo nehuma)
• Mhino dzakazadzwa (kana paine encephalocele mumhino)
• Mvura yemusana inobuda mumhino kana munzeve

Dzimwe nguva, zviratidzo zvinogonawo kukonzerwa nekuunganidzwa kwemvura yakaita semvura muuropi (izvi zvinonzi hydrocephalus ).

Ndezvipi zvinetso zvinogona kuitika nekuda kwe encephalocele?

Mamwe madiki eencephaloceles anogona kupera pasina matambudziko makuru. Zvisinei, mune dzimwe nguva, matambudziko akareba anogona kuitika. Izvi zvinosanganisira:

• Kunonoka kukura (semuenzaniso, kunonoka kutaura, kufamba)
• Kuremara kwepfungwa
• Matambudziko ekuona
• Kunonoka kukura kwemuviri
• Kubatwa nepfari

Ndezvipi zvikonzero zve encephalocele?

Kazhinji, encephalocele chirwere chekuzvarwa nacho . Kureva kuti, chinhu chinoitika mwana achiri mudumbu. Zvisinei, kashoma, chinogonawo kuitika gare gare nekuda kwekukuvara kwemusoro, bundu reuropi, kana zvimwe zvirwere zvisingawanzoitiki zvakaita se idiopathic intracranial hypertension .

Kurwara kwemwana mudumbu kunoitika kana chikamu chepamusoro che neural tube, chambotaurwa, chikasavhara zvakanaka. Iyi neural tube chikamu chenyama apo uropi hwemwana nemusana zvinotanga kuumbwa. Muvhiki yechitatu kana yechina yekuzvitakura, inoshanduka kuita chimiro chakaita sechubhu uye inofanira kuvharwa zvakanaka. Kana chikamu ichi chisina kuvharwa zvakanaka, dehenya harizove rakakwana. Ndosaka chikamu cheuropi hwemwana chichibuda muburi iri.

Chikonzero chaicho chinoita kuti tsinga yeropa isavhare zvakanaka hachisati chazivikanwa, asi tsvakurudzo inoratidza kuti zvinhu zvinotevera zvinogona kunge zvichikonzera izvi:

• Kuchinja kwemajini (chimwe chinhu chinoitika panguva yekubata pamuviri)
• Zvimwe zvirwere zvinotapukira zvinobatwa naamai panguva yekuzvitakura (semuenzaniso Toxoplasmosis , Rubella , Cytomegalovirus), Herpes Simplex Virus (Herpes Simplex Virus )
• Zvimwe zvirwere zvetsinga (semuenzaniso Type 3 Chiari Malformation)

Encephalocele inogonawo kukonzerwa nezvimwe zvirwere. Semuenzaniso:

• Chirwere cheWalker-Warburg
• Chirwere cheKnobloch
• Roberts Syndrome
• Chirwere cheAmniotic Band

Ndezvipi zvinhu zvinokonzera njodzi ye encephalocele?

Kana mumwe munhu mumhuri mako akambova ne neural tube defect (NTD), une mukana wekuva nayo. Uyewo, kana usingawani folic acid (vitamini B9) yakakwana usati wava nepamuviri uye panguva yekuzvitakura, njodzi yekuva nemwana ane neural tube defect yakanyanya.

Chirwere cheEncephalocele chinoonekwa sei?

Kazhinji, chiremba wako anogona kuona dambudziko iri panguva yekuongororwa kweultrasound panguva yekuzvitakura kwako. Kana paine kusava nechokwadi, chiremba wako anogonawo kukurudzira kuti uitwe prenatal MRI scan. Izvi zvinogona kukupa rumwe ruzivo nezvedambudziko racho.

Dambudziko iri rinogona kusimbiswa kana mwana aongororwa mushure mekuzvarwa. Pamusoro pezvo, kuongororwa kweropa nekuongororwa kwezvimwe zvinhu kunoitwa kuti kuonekwe kuti chii chiri kukonzera izvi uye kuti zvakakanganisa sei mwana. Kurapwa kunorongwa zvinoenderana nazvo.

Ko chirwere cheEncephalocele chingasaonekwa here?

Ehe, dzimwe nguva zvinogona kuitika. Kunyanya ma "encephaloceles" madiki, ayo ari pamhino kana pahuma yemwana, dzimwe nguva anogona kusaonekwa. Madiki aya haawanzo kukonzera zviratidzo zvikuru kumwana achangoberekwa, uye haakonzere matambudziko paanokura.

Ndezvipi zvirongwa zvekurapa encephalocele?

Kurapa kukuru kwechirwere ichi kuvhiyiwa kunogadzirisa dehenya nekubvisa tsinga dzeuropi dziri kubuda. Kazhinji, chikamu cheuropi chiri kubuda mudehenya hachishande uye chinogona kubviswa. Dzimwe nguva, kana buri riri diki, uropi hunodzoserwa mukati medehenya, uye chiremba anozogadzirisa dehenya.

Kuvhiyiwa uku kunowanzoitwa mukati memazuva mashoma ekuzvarwa, mukati memwedzi mishoma yekutanga, kana mukati megore. Zvinoenderana nehukuru hwe encephalocele, nzvimbo yayo, uye kuti yakakanganisa sei mwana.

Chinhu chakakosha ndechekuti vacheche vakadai vanowanzo kuvhiyiwa kanopfuura kamwe chete. Kana vaine matambudziko echiso, vanofanira kuvhiyiwa, uye kana vaine hydrocephalus, vanofanira kuvhiyiwa.

Mwana wako paanokura, angangoda rubatsiro rwakawedzerwa. Semuenzaniso:

• Zvirongwa zvedzidzo yakakosha kuchikoro
• Kana uine pfari, tora mushonga wayo.
• Magirazi ezvinetso zvekuona

Pane migumisiro yakaipa here yekurapwa kwacho?

Sekunge kune chero kuvhiyiwa kupi zvako, pane zvimwe zvinogona kukonzera migumisiro yakaipa. Asi musazvidya mwoyo, timu yevanachiremba yemwana wenyu yakadzidziswa zvikuru. Vachaita zvese zvavanogona kuderedza njodzi idzi.

Dzimwe dzenjodzi ndedzinotevera:

• Utachiona
• Kubuda kwemvura yemusana
• Kubuda ropa

Kana buri riri mudehenya rakakura uye chikamu chikuru cheuropi chikabatanidzwa, pane njodzi yakakura yezvinetso zvetsinga. Usati watanga kurapwa, taura nachiremba wemwana wako nezvemigumisiro iyi.

Mwana ane chirwere chepfungwa (encephalocele) anogona kurarama here?

Ehe, vacheche vane encephalocele vanogona kurarama. Kuvhiyiwa kunogadzirisa dehenya kunogona kuvabatsira kurarama. Zvisinei, vacheche vane maburi makuru edehenya vanogona kuva nezviratidzo nematambudziko akawanda kupfuura vacheche vane maburi madiki. Nokudaro, vane mukana wekuva nehupenyu hunogona kutyisidzira kana kupfupisa nguva yekurarama.

Ongororo yakawana kuti vacheche vane maburi pamberi pedehenya ravo vane mhedzisiro iri nani pane vacheche vane maburi kumashure.

Huwandu hwevanhu vanofa hwakaita sei?

Zvichienderana nedata kubva kumasangano akaita seU.S. Centers for Disease Control and Prevention (CDC), huwandu hwerufu rwevana vane encephaloceles yakakura hunosvika 45%. Izvi zvinoreva kuti mukana wekurarama i55%. Njodzi iyi inowedzera zvichienderana nehukuru hweburi riri mudehenya, nzvimbo yaro, uye hutano hwemwana pakuzvarwa.

Ko encephalocele inogona kudzivirirwa here?

Hapana nzira chaiyo yekudzivirira chirwere chepfungwa. Zvisinei, unogona kuderedza njodzi yekuva nemwana ane dambudziko retsinga dzemuuropi. Chinhu chakakosha kuita ndechekuwana folic acid yakakwana.

Kana uchironga kubata pamuviri, enda kuna chiremba wako kuti akupe mazano usati wabata pamuviri. Chiremba wako anogona kukuudza kuti utore 400 mcg (micrograms) ye folic acid pazuva, kunyangwe kana usiri kuronga kubata pamuviri panguva iyoyo. Izvi zvinokonzerwa nekuti neural tube defects (NTDs) inoitika mu trimester yekutanga yekuzvitakura. Izvi zvinoreva kuti kazhinji hautombozivi kuti une pamuviri. Ndosaka zvichikosha kutora folic acid usati watanga.

Pamusoro pezvo, kana paine mumwe munhu mumhuri yako akambova ne neural tube defects (NTDs), kana kuti wakambova nemwana naye kare, udza chiremba wako. Chiremba wako anogona kukubatsira kudzivirira neural tube defects (NTDs) mune ramangwana.

Unofanira kuona chiremba rini?

Kana uchironga kubata pamuviri, mazano ekubatsira usati wabata pamuviriTaura nachiremba nezvenyaya iyi. Vanogona kukubatsira kuchengetedza hutano hwakanaka kuderedza njodzi yekubereka mwana ane hurema hwekuzvarwa nahwo.

Mibvunzo ipi yaunofanira kubvunza chiremba wako?

Kana ukaona kuti mwana wako ane chirwere chepfungwa chinonzi encephalocele, zvakajairika kuva nemibvunzo yakawanda. Usatya kubvunza mibvunzo yakaita seiyi:

• Ko buri riri mumusoro memwana wangu riri kupi?
• Mwana wangu anofanira kuvhiyiwa here?
• Ndezvipi migumisiro yekuvhiyiwa uku?
• Ndinofanira kutarisira sei mwana wangu mushure mekuvhiyiwa?
• Ndezvipi zvinetso zvandinofanira kungwarira?
• Ndingaitei kana mwana wangu asina matanho ekukura akakodzera zera rake?

Kuva nemwana ane encephalocele rwendo runonetsa zvikuru. Unganzwa kushushikana kwakanyanya uye kushaya simba, kunyanya panguva yekurapwa kwemwana wako. Mwana wako achafanira kugara muchipatara iye achipora kubva pakuvhiyiwa. Munguva iyi, ungana nemhuri neshamwari dzinogona kukupa rutsigiro chero nguva yaunoda.

Vanhu vazhinji vanowana nyaradzo huru pakutaura nenyanzvi yezveutano hwepfungwa , kunyanya mushure mekurasikirwa nemwana asingatarisirwi. Matambudziko anokonzerwa ne encephalocele anogona kukanganisa mwana sezvaanokura. Saka, gara uchiona chiremba wemwana wako uye ramba uchimutarisa pakukura kwake nekupora kwake.

Mharidzo yakakosha kwauri (Mharidzo yekuenda nayo kumba)

Kunyange zvazvo encephalocele iri chirwere chinotyisa, kana chikaonekwa nekukurumidza uye kurapwa kwakakodzera, vacheche vazhinji vanogona kurarama zvinobudirira. Chinhu chakakosha kunwa folic acid usati wabata pamuviri uye kutevedzera zano rachiremba wako. Kana uine mibvunzo nezveizvi, usatya kutaura nachiremba. Yeuka, hausi wega.

` Encephalocele, zvirema zvekuzvarwa nazvo, zvirema zvetsinga dzeuropi, zvirwere zveuropi, hutano hwemwana, hutano hwepamuviri, folic acid