Uri kuzvimba, kuomarara, uye kurwadziwa pasi peganda rako here? Ngatitaurei nezveEosinophilic Fasciitis!

Wakambonzwa kamwe kamwe bundu, kuzvimba, kana kurwadziwa pasi peganda reruoko rwako kana gumbo? Pamwe zvakaitika mushure mekurovedza muviri zvakanaka. Wakambosangana nechimwe chinhu chakadai here? Saka, hechino chirwere chisingazivikanwe chingave chakakosha kwauri.

Chii chinonzi Eosinophilic Fasciitis?

Zvichitaurwa zviri nyore, Eosinophilic Fasciitis chirwere apo nyama inofukidza tsandanyama dzedu nenyama pasi peganda redu - zvatinoti fascia mukurapa - inongoerekana yazvimba, yakakora, uye yakabatana. Funga nezvayo se mesh inobatanidza ganda redu netsandanyama pamwe chete uye inozvibatsira kufamba-famba, kungofanana ne mesh yatinoisa mubhuti remotokari yedu patinoenda kunotenga.

Izvi zvinoiswa muchikamu che "autoimmune disease" . Izvi zvinoreva kuti dziviriro yemuviri wedu, iyo immune system, inotanga kurwisa nhengo dzemuviri wedu dzine hutano. Zvakafanana nekurwisa nhengo dzemhuri yedu kana dzichifunga kuti dzabiwa.

Kana zvikasaonekwa uye zvikarapwa nekukurumidza, zvinogona kukonzera shanduko dzeganda dzisingaperi uye kurasikirwa nekufamba kwemajoini . Saka, zvakakosha kutsvaga rubatsiro rwechiremba nekukurumidza kana zviratidzo zvaonekwa.

Mamiriro ezvinhu aya anonyanya kukanganisa sei? Anokanganisa ani?

Eosinophilic Fasciitis inogona kukanganisa fascia chero kupi zvako mumuviri, asi inonyanya kukanganisa maoko netsoka . Kune vanhu vazhinji, zviratidzo, zvakaita sekurwadziwa kana kuzvimba, zvinogona kutanga kuoneka mushure mekurovedza muviri kwakaoma kana basa rinoda kumira zuva rese.

Zviratidzo izvi, zvakaita sekurwadziwa kwetsandanyama nekuzvimba, zvinogona kufanana nezvimwe zvirwere zvakajairika, saka zvakakosha kuona chiremba nekukasika kana ukaona shanduko itsva kana kurwadziwa paganda rako, tsandanyama, kana majoini. Ungangodawo kuona chiremba wemapfupa, chiremba ane hunyanzvi mumapfupa nezvimwe zvirwere zvinozvimba.

Parizvino hapana mushonga wechirwere ichi. Zvisinei, mashoko akanaka ndeekuti kune vanhu vazhinji, zviratidzo zvinopera mukati memakore mashoma, zvichireva kuti chirwere chinopera kana kuti chinotanga kurara. Zvisinei, vamwe vanhu vanogona kudzoka kwezviratidzo zvakare.

Kusiyana Pakati peEosinophilic Fasciitis neScleroderma

Pakutaura nezvezvirwere zviviri izvi, vamwe vanhu vanogona kuzvisanganisa nechimwe chirwere chinonzi `Scleroderma`. `Eosinophilic Fasciitis` ne`Scleroderma` zvese zvirwere zvisingawanzoitiki zve`autoimmune`. Zvakare, muzvirwere izvi zvese, nhengo dzemuviri dzinova dzakakora uye dzakaoma.

Saka musiyano uri papi? Musiyano uripo mumhando dzenyama dzakakanganiswa.

• MuEosinophilic Fasciitis, sezvatakambokurukura, fascia, nyama yakatetepa, inonamira iri pasi peganda, inokanganiswa. Nekufamba kwenguva, fascia iyi inokura uye inokura, zvichiita kuti zviome kufambisa chikamu chemuviri chakabatwa.
• Asi mu 'Scleroderma', masoja emuviri anokurudzira mamwe masero kuti agadzire puroteni inonzi 'collagen' (chimwe chinhu chinopa simba kuganda redu nenyama). Iyi collagen yakawandisa inoiswa muganda nenhengo dzemukati, zvichiita kuti dzive dzakakora uye dzakaoma, sevanga rekare. Asi pachinzvimbo chekuporesa ronda, iyi collagen yakawandisa inogonawo kukuvadza nyama ine hutano.

Eosinophilic Fasciitis neCOVID-19

Vanhu vane zvirwere zve autoimmune zvakaita seEosinophilic Fasciitis vanoonekwa sevane njodzi yakakura yekubatwa neCOVID-19 kupfuura vanhuwo zvavo.

Nyanzvi dzichiri kusaziva kana vanhu vane chirwere ichi vane mukana wekuva nezviratidzo zvakakomba zveCOVID-19. Saka, zvakanaka kutevedzera zvinokurudzirwa nevakuru vezvehutano, vakaita seCenters for Disease Control and Prevention (CDC), kuti uzvidzivirire kubva kuhutachiona.

Ndiani ane mukana mukuru wekuwana chirwere ichi?

Eosinophilic Fasciitis inogona kubata chero munhu, asi inonyanya kubata vanhu vane makore ari pakati pe30 ne60.

Pamusoro pezvo, vanhu vane mamwe matambudziko ehutano husingaperi vane mukana mukuru wekuwana chirwere ichi. Mamwe ematambudziko aya anosanganisira:

• Aplastic anemia (aplastic anemia - anemia umo kugadzirwa kwemasero eropa kunoderera)
• Hemolytic anemia (anemia umo masero matsvuku eropa anoputsika nekukurumidza)
• Lymphoma (kenza ye lymphatic system)
• Leukemia (kenza yemasero eropa)
• Mamwe marudzi e 'chirwere chethyroid'

Izvi zvakajairika zvakadii?

Eosinophilic Fasciitis chirwere chisingawanzoitiki . Kusvika pari zvino, nhamba diki chete yezviitiko, zvinosvika mazana matatu, ndizvo zvakashumwa mumapepanhau esainzi pasi rose. Zvisinei, zvichida nekuda kwekusaongororwa zvakakwana kana kusashuma zvakakwana, nhamba yezviitiko inogona kunge yakakwira zvakanyanya.

Eosinophilic Fasciitis inokanganisa sei muviri wangu?

Sezvatakambokurukura, chirwere ichi chinokonzerwa nekuzvimba kwefascia, nyama yakatetepa uye inochinjika iri pasi peganda. Rutivi urwu rwefascia runofukidza nekudzivirira tsandanyama dzedu nedzimwe nhengo dzemukati. Runochengetedzawo ganda netsandanyama panzvimbo yazvo uye runodzitsigira padzinofamba.

Funga nezvazvo, fascia iyi inobatsira kuti makumbo edu arambe achichinjika, kwete kungorembera pasi chete. Asi kune munhu ane `Eosinophilic Fasciitis`, fascia membrane iyi inozvimba, inokora zvishoma nezvishoma, uye inooma. Pakupedzisira, kuzvimba uku kunoita kuti zviome kufambisa ganda netsandanyama dzakaipoteredza. Kana ikasarapwa, fascia iyi inogona kunamira panzvimbo imwe chete yooma. Izvi dzimwe nguva zvinonzi `contracture`. Kureva kuti, mamiriro ezvinhu apo jointi haigoni kutambanudza kana kukotama.

Panzvimbo pekusasimba kwefascia, nhengo dzemuviri dzakakanganiswa dzinorwadza kana kuti dzinonetsa kufamba.

Nhengo dzemuviri dzinowanzo kanganiswa ndedzinotevera:

• Maoko (kunyanya chanza, ndiko kuti, mukati meruoko)
• Makumbo (kunyanya kumberi, papfupa rehudyu chaipo)
• Majoini kana nzvimbo dzakapoteredza

Kunyangwe zvisingawanzoitiki, chirwere ichi chinogonawo kukanganisa ganda rechiso, chipfuva, nedumbu.

Vamwe varwere vane Eosinophilic Fasciitis vanogonawo kuzvimba kwemajoini zvakafanana neRheumatoid Arthritis. Kana kuzvimba uku kwemajoini kukasadzorwa, shwashwa iri mumajoini inogona kukuvara, zvichikonzera arthritis kwenguva refu.

Uyewo, kana chirwere ichi chikakanganisa fascia iri muruoko rwako kana muruoko, kuzvimba kunogona kukonzera kuti tsinga yepakati, imwe yetsinga huru dziri muruoko, iome, zvichikonzera chirwere chinonzi Carpal Tunnel Syndrome (kushaya simba, kurwadziwa, uye kushaya simba muruoko).

Chinhu chakakosha ndechekuti Eosinophilic Fasciitis chirwere chinogona kuchinja nekukasira. Unogona kutanga kuona mhedzisiro inooneka mukati menguva pfupi, senge mavhiki mashoma. Saka, kana ukaona chero zviratidzo kana shanduko mumuviri wako, enda kuna chiremba nekukasika.

Ndezvipi zviratidzo zveEosinophilic Fasciitis?

Saka, unofanira kufungidzira sei chirwere ichi? Heano mamwe ezviratidzo zvikuru:

• Kurwadziwa kwetsandanyama .
• Ganda rakapfava.
• Kuzvimba kana kuzvimba .
• Zviratidzo zve `Carpal Tunnel Syndrome` (zvakadai sekunzwa kusanzwa, kurwadziwa, kushaya simba muruoko).
• Arthritis (arthritis - kuzvimba kwemajoini, kurwadziwa, kuomarara kwemangwanani).
• Ganda rinoita serakakora uye rakamanikana kupfuura zvakajairika.
• Mune dzimwe nzvimbo, ganda rinoita serakakora uye rakakora, seganda reorenji (ganda rakakora kana kuti "peau d'orange").

Chikonzero cheizvi chii?

Kutaura chokwadi, nyanzvi hadzisati dzaziva chikonzero chaicho cheEosinophilic Fasciitis. Kufanana nezvirwere zvakawanda zve autoimmune, inogona kungoerekana yaitika, dzimwe nguva pasina chikonzero chakajeka.

Zvisinei, zvimwe zvidzidzo zvakawana kuti zvirwere izvi zve autoimmune zvinogona "kukonzerwa" nezvimwe zvinhu. Kureva kuti, chirwere ichi chinogona kukura nekuda kwechimwe chinhu. Semuenzaniso:

• Mamwe marudzi ezvirwere .
• Zvimwe zvinokonzera allergy .
• Kushandisa mimwe mishonga .
• Kushandisa mimwe mishonga .

Vamwe vanhu vane Eosinophilic Fasciitis vanoti zviratidzo zvavo zvekutanga zvakaitika mushure mekuita mabasa akaomarara emuviri , akadai sekumhanya, kusimudza zvinorema, kana kurovedza muviri, kana vachiita basa rinoda kushanda nesimba pamaoko kana makumbo avo.

Zvakanaka kutaura nachiremba wako nezvezvinhu zvinogona kukonzera chirwere che autoimmune chakadai.

Vanachiremba vanoongorora sei chirwere ichi? (Kuongororwa)

Kana uine zviratidzo izvi, chiremba anogona kuita bvunzo dzinoverengeka kuti aone kana uine Eosinophilic Fasciitis:

1. Kuongororwa kweFascia Biopsy: Kuongororwa kwebiopsy kunoitika kana chiremba wako achitora sampuli diki yenyama yako oitumira kurabhoritari kuti iitarise pasi pemaikorosikopu. Izvi zvinosanganisira kutora chidimbu chidiki cheganda rakakanganiswa nefascia iri pasi payo woiongorora. Kazhinji, iyi ndiyo nzira yakavimbika yekuongorora chirwere chacho.

2. Kuongororwa kweropa: Kana uine Eosinophilic Fasciitis, unogona kunge uine huwandu hwakawanda hwemasero machena eropa anonzi Eosinophils muropa rako (ndipo panotumidzwa zita rechirwere). Zvisinei, kuongororwa kweropa chete hakugone kusimbisa chirwere chacho. Kazhinji, biopsy inodiwa.

3. Miedzo yekufungidzira: Miedzo yakaita seMRI (Magnetic Resonance Imaging) inogona kubatsira kuona kuzvimba mumuviri, kunyanya mufascia nenyama dzakapoteredza. Zvisinei, kufanana nekuongororwa kweropa, haina kunyatsojeka se biopsy yekuongorora chirwere.

Kurapa kweEosinophilic Fasciitis

Kashoma, zviratidzo zvinogona kupera zvega pasina kurapwa. Asi kazhinji, vanachiremba vanorapa Eosinophilic Fasciitis nemushonga unonzi corticosteroids . Aya ndiwo mhando ye steroid.

Corticosteroids inoshanda nekuderedza kuzvimba mumuviri uye kudzvinyirira masoja emuviri anomhanya zvakanyanya. Prednisone ndiyo corticosteroid inonyanya kunyorerwa.

Kuwedzera kune corticosteroids, chiremba wako anogonawo kukuraira mamwe marapirwo, akadai se:

• `NSAIDs`: Mishonga isingashandisi masteroidal anti-inflammatory (NSAIDs) inowanikwa mu pharmacy - semuenzaniso, ibuprofen nediclofenac - inogona kuderedza zviratidzo zvakaita sekurwadziwa nekuzvimba. Zvisinei, kana watove kutora `corticosteroids`, taura nachiremba wako usati watora `NSAIDs`. Usatore `NSAIDs` kwemazuva anopfuura gumi panguva imwe chete usina mvumo yachiremba wako.
• Mishonga inodzvinyirira masoja emuviri: Zvichienderana nekuoma kwechirwere chako, chiremba wako anogona kukupa mimwe mishonga (semuenzaniso, Methotrexate) inodzvinyirira masoja emuviri anoshanda zvakanyanya anokonzera Eosinophilic Fasciitis.
• Kurapa kwemuviri: Kurapa kwemuviri kunogona kubatsira kutambanudza nekusunungura fascia yako kana yakabatana, uye kubatsira kuchengetedza kufamba kwemajoini. Chiremba wako kana murapi wemuviri achakudzidzisa maekisesaizi uye kutambanudza muviri zvinoenderana nezviratidzo zvako.
• Kurapa mamwe matambudziko: Unogona kunzwa wakasununguka nekurapa zviratidzo zvemamwe matambudziko, akadai secarpal tunnel syndrome kana arthritis.
• Kuvhiyiwa: Kana Eosinophilic Fasciitis yako yakanyanya zvekukonzera marwadzo ekugwamba, ungangoda kuvhiyiwa kuti ubvise kana kubvisa chikamu chefascia yako (fascial release). Iyi inowanzova nzira yekupedzisira.

Nzira yekubata nayo zviratidzo?

• Zvakakosha zvikuru kutora mushonga wacho sezvataurwa nachiremba, kwenguva yakatarwa.
• Kana chiremba wako kana chiremba wezvekurovedza muviri akakupa maekisesaizi ekutambanudza makumbo kana mamwe maekisesaizi, zviite kakawanda sezvavanokuudza kuti ubatsire kutambanudza fascia yakakanganisika. Kunyangwe izvi zvingave zvakaoma, zvinogona kubatsira kana ukaramba uchizviita.
• Kana uine Carpal Tunnel Syndrome, ungangoda kupfeka brace kuti ruoko rwako rurambe rwakamira zvakanaka paunenge wakarara. Shandisa sezvakataurwa nachiremba wako.

Ndichakurumidza sei kunzwa zviri nani mushure mekurapwa?

Kuzvimba kunokonzerwa neEosinophilic Fasciitis kunofanira kutanga kudzikira mukati memaawa mashoma mushure mekutora mushonga wekutanga we corticosteroids. Rubatsiro urwu runogona kuva rwenguva pfupi, uye zviratidzo zvinogona kudzoka kana mushonga wacho wapera. Saka, zvakakosha kutora mushonga kwenguva yakazara yawakarairwa nachiremba wako.

Eosinophilic Fasciitis inogona kudzivirirwa here?

Zvinosuwisa kuti hapana nzira chaiyo yekudzivirira chirwere ichi. Nyanzvi hadzizivi kuti chii chinokonzera zvirwere zve autoimmune kana kuti zvinokonzerwa sei, saka hadzigoni kutaura kuti uchaita chimwe chacho riini kana kuti nei.

Chii chinofanira kutarisirwa nemunhu ane chirwere ichi?

Kana ukaonekwa uine Eosinophilic Fasciitis, unofanira kutarisira kugadzirisa zviratidzo zvako kwenguva yakati. Kana ukaona shanduko muzviratidzo zvako, kunyanya kana zvikawedzera kuipa, taura nachiremba wako nekukasika.

Sezvatakambotaura, hapana mushonga weizvi. Vanhu vazhinji vanorarama nazvo kwemakore mashoma, zviratidzo zvinopera (zvinoenda ku 'remission'). Vamwe vanhu havazombozviwani zvakare, asi vamwe vanogona kunge vaine zviratidzo zvinodzoka gare gare (`recur`).

Uchatadza kuenda kubasa kana kuchikoro here?

Kana uchikwanisa kuita basa rako kana basa rechikoro usinganyanyi kuomesa fascia yako yakakuvara, unofanira kukwanisa kudzokera kubasa kana kuchikoro kusvika wapora kubva kuEosinophilic Fasciitis. Zvisinei, chiremba wako achakuudza mabasa aunofanira kudzivisa kusvika wapora. Zvakakosha kutevedzera mirairo iyi.

Iva nechokwadi chekutaura nachiremba wako uye uwane mvumo usati watangazve kuita mabasa emuviri anorema akadai sekumhanya, kusimudza zvinorema, kana kurovedza muviri.

Unofanira kuona chiremba rini?

• Kana ukaona zviratidzo zvitsva mumaoko ako, tsoka, kana majoini – kunyanya kana uine kurwadziwa kana kuzvimba kusingapere mushure memazuva mashoma ekuzorora – enda kuna chiremba nekukasika.
• Kana wakatoonekwa uine Eosinophilic Fasciitis, taurira chiremba wako nekukasika kana zviratidzo zvako zvikawedzera, kana kana ukaona chero chikamu chemuviri wako chakaoma kana kuti chisina simba.

Unofanira kuenda kuEmergency Treatment Unit (ETU) riini?

Kana ukangoerekana usingachakwanisi kufamba kana kushandisa chikamu chemuviri wako, kana kuti ukanzwa kurwadziwa kusingatsungiririki, enda kuchipatara chiri pedyo nekukurumidza .

Mibvunzo ipi yaunofanira kubvunza chiremba?

Paunoenda kunoona chiremba, unogona kubvunza mibvunzo yakaita seiyi:

• Ndine Eosinophilic Fasciitis here, kana kuti chimwe chinhu?
• Zviratidzo zvangu zvinogona kuwedzera nekukurumidza sei?
• Ndinoda kurapwa kwerudzii? Ndichada kurapwa kwenguva yakareba sei?
• Ndichada kuvhiyiwa here?
• Ndingatangazve rini kuita zvemuviri?
• Mamiriro ezvinhu aya anokanganisa sei hupenyu hwangu hwezuva nezuva?

Zvimwe zvezvinhu zvakakosha zvatinofanira kurangarira kubva munyaya iyi ndeizvi:

Eosinophilic fasciitis chirwere chisingawanzoitiki asi chakakomba chinogona kukukanganisa nekukurumidza. Kana ukaona kurwadziwa kutsva, kuzvimba, kana kuomarara mumaoko ako kana tsoka, kunyanya kana zvikasapera mukati memazuva mashoma, usanonoka kuenda kuna chiremba. Sezvo chirwere ichi chichigona kukura nekukurumidza , kana ukaongorora zviratidzo zvako nekukurumidza, chiremba wako anogona kukurumidza kuwana chikonzero uye kutanga kurapwa kwakakodzera.

Chiremba wako achawedzera mishonga ye corticosteroid nemimwe mishonga kana zvichidikanwa kuti zvikubatsire kudzora zviratidzo zvako. Usavhunduke, asi ziva zviratidzo zvako uye tevera mirairo yachiremba wako nokungwarira. Tinokushuvira kuti upore nekukurumidza!

` Eosinophilic Fasciitis, Eosinophilic Fasciitis, Zvirwere zveGanda, Fascia, Marwadzo eMajoini, Marwadzo eTsvasva, Zvirwere zveAutoimmune