Uri kuwana mapundu asingazivikanwe munzvimbo dzakasiyana pamuviri wako here? Pamwe une mazino akawanda kupfuura aunofanira kuva nawo paunenge uchibereka mazino? Kunyangwe izvi zvingaita sezvinhu zvakajairika, dzimwe nguva panogona kunge paine nyaya yakakomba shure kwazvo. Nhasi tiri kutaura nezvechirwere chisingawanzoitiki, asi chakakosha kwazvo icho munhu wese anofanira kuziva. Ndiyo Gardner Syndrome.
Chii chinonzi Gardner Syndrome, muchidimbu?
Zvichitaurwa zviri nyore, ichi chirwere chisingawanzoitiki chatinogona kuwana kubva kuvabereki vedu kuburikidza nemajini. Chirwere chinogara nhaka. Munhu ane chirwere ichi anotanga kuita bundu risingawanzoitiki muzvikamu zvakasiyana zvemuviri wake.
Chinoitika ndechekuti mazana ematumbu madiki anokura mukati meura. Matumbu aya anonzi ma polyps . Chinhu chine njodzi ndechekuti kana akasarapwa, ma polyps ese aya ane njodzi yakakura yekukura kuita kenza yeura .
Pamusoro peura, mapundu asiri ekenza anogonawo kukura mumapfupa, muura, paganda, uye mune dzimwe nyama dzakapfava. Vanhu vane chirwere ichi vari panjodzi yekubatwa nemamwe marudzi ekenza.
Chirwere ichi chakajairika zvakadii? Ndiani anochibata?
Ichi chirwere chisingawanzoitiki. Semuenzaniso, munyika yakaita seAmerica, munhu mumwe chete pavanhu miriyoni ndiye anoonekwa aine chirwere ichi.
Nekuti chirwere chinogara nhaka, vanhu vazhinji vane chirwere cheGardner vane mukana wakakura wekuva naamai kana baba vane chirwere ichi. Izvi zvinoreva kuti chinopfuudzwa kuburikidza nemajini kubva kuchizvarwa kuenda kune chimwe.
Ndezvipi zviratidzo zveizvi?
Zviratidzo zveGardner syndrome zvinochinja nekufamba kwenguva. Zvimwe zviratidzo zvinogona kuonekwa muhudiki.
| Nguva yekutanga kwezviratidzo | Zvinhu zvinoonekwa |
|---|---|
| Munguva yehudiki |
|
| Muhudiki | Kune mazana ema polyps emudumbu. Zvisinei, aya angasaratidza zviratidzo pakutanga. Panozoonekwa zviratidzo, chirwere chinogona kunge chatokura zvakanyanya. |
Chinhu chakakosha ndechekuti panozoonekwa zviratidzo zvema polyps mudumbu, chirwere chacho chinogona kunge chatokura zvakanyanya. Saka, kana mumwe munhu mumhuri yako aine chirwere ichi, zvakakosha kuti uongororwe nekukurumidza.
Ndezvipi zvimwe zvirwere zvinobatanidzwa neGardner syndrome?
Munhu ane Gardner syndrome ari panjodzi yakakura yekuwana zvirwere zvinotevera:
- Mazino ekuwedzera
- Mabundu emapfupa (Osteomas)
- Matumbu eDesmoid - Kunyange zvazvo aya asiri ekenza, anogona kukura nekukurumidza uye kukuvadza nyama dzakapoteredza.
- Matumbu ane mafuta (Lipomas)
- Mafibroma
- Adenomas - Matumbu asiri ekenza anoumbwa mumatumbu.
- Zvipembenene zveEpithelial
- Chirwere chinokanganisa retina yeziso (CHRPE - congenital hypertrophy ye retinal pigment epithelium)
- Kenza yemudumbu
- Kenza yechiropa
- Kenza yemudumbu
Sei izvi zvichiitika? Chikonzero chacho ndechei?
Chikonzero cheizvi idambudziko riri mune rimwe remajini edu. Kutaura chokwadi, kune jini rinonzi APC gene . Basa rayo guru nderekudzora masero mumuviri wedu kuti asapatsanuke uye asawande nekukurumidza. Kungofanana nemabhureki emotokari. Majini akadai anonzi majini ekudzivirira tumor , zvinoreva kuti anodzivirira tumor kuti isaumbe.
Munhu ane chirwere cheGardner syndrome ane gene reAPC risina kunaka. Izvi zvinoreva kuti bhureki rinodzora kupatsanurwa kwemasero harishande. Nekuda kweizvozvo, masero anopatsanuka zvisingadzoreki otanga kuumba bundu nemapolyps.
Chiremba anoongorora sei chirwere ichi?
Nekuti chirwere ichi chine zviratidzo zvakasiyana-siyana, chiremba anoshandisa bvunzo dzinoverengeka kuti achione.
- Kuongororwa kwemajini: Kuongororwa uku kunoitwa kuti uone kana uine dambudziko mujini rako reAPC. Chiremba wako anogona kukukurudzira, kunyanya kana mumwe munhu mumhuri yako aine chirwere ichi.
- Kuongororwa kwekamera: Izvi zvinosanganisira kuisa kamera diki mumuviri kuti iongorore mukati meura.
- Sigmoidoscopy
- Endoscopy
- Colonoscopy - Izvi ndizvo zvinonyatsoona ma polyps muura.
Ndezvipi zvinorapwa izvi?
Kurapwa kunoenderana nezviratidzo zvako.
Fungidzira uine mazino akawandisa. Izvozvo zvinogona kuva chiratidzo chekutanga chechirwere ichi. Wobva waita kuti chiremba wemazino abvise mazino iwayo ogadzirisa mamwe mazino ako. Kana uine bundu re desmoid, unogona kurapwa senge chemotherapy kuti riite kuti atetepe.
Zvisinei, dambudziko guru uye rine njodzi zvikuru nechirwere ichi mapolyps anoumbwa muura. Kuvhiyiwa kunodiwa kudzivirira kuti asazove kenza.
| Zita rekuvhiyiwa | Chii chiri kuitwa |
|---|---|
| Kuvhiyiwa kweColonectomy | Kubviswa kwechikamu cheura kana ura hwese. Kuvhiyiwa uku kunowanzo kurudzirwa kana paine ma polyps angangoita 20-30. |
| Kuvhiyiwa kweProctocolectomy | Kubviswa kwechikamu chikuru cheura nerectum. |
Yeukai, kuvhiyiwa uku ndiyo chete nzira yekumisa ma polyps kuti asaumbe muura hwemudumbu oshanduka kuita kenza.
Chirwere ichi chinogona kurapwa zvachose here?
Zvinosuwisa kuti Gardner syndrome haigone kurapwa zvachose.
Zvisinei, izvi zvinogona kugadziriswa zvakanaka. Nekurapwa kwakakodzera uye kuongororwa nguva dzose, zvirwere zvakakomba zvakaita sekenza zvinogona kuonekwa uye kurapwa nekukurumidza. Saka hapana chikonzero chekutya.
Zvinokwanisika here kurarama hupenyu hwakajairika nechirwere ichi?
Ehe, unogona. Zvisinei, panogona kunge paine shanduko mumararamiro ako mushure mekuvhiyiwa. Semuenzaniso, kubviswa kweura hwako kuchachinja nzira yaunogaya chikafu uye nzira yaunobuda nayo tsvina. Ungangodawo kuva nenzira yakasiyana uye bhegi re ostomy rakaiswa mudumbu mako kuti tsvina ipfuure nepairi. Chiremba wako achakutsanangurira izvi zvakadzama.
Kuvhiyiwa kwekudzivirira kenza yemuura mukuru kubva kuchirwere ichi kunogona kuwedzera makore ekurarama. Imwe ongororo yakaratidza kuti 100% yevanhu vakavhiyiwa proctocolectomy vachiri vapenyu mushure memakore mashanu.
Unozvitarisira sei?
Kurarama nechirwere cheGardner zvinoreva kurarama nenjodzi yekubatwa nekenza uchiri mudiki. Hazvisi nyore. Kutarisana nekusava nechokwadi ikoko kunogona kuoma mupfungwa.
Saka, zvakakosha kuti munhu aongorore kenza panguva yakakodzera. Izvi zvinoreva kuti kana kenza ikatanga, inogona kuonekwa uye kurapwa ichiripo.
Kana uchinzwa kushushikana nekuda kweizvi, taura nachiremba wako nezvazvo. Kana zvichidikanwa, tsvaga rubatsiro rwekupa mazano.
Ndinofanira kuona chiremba rini?
Kana ukaona shanduko itsva mumuviri wako, semuenzaniso, bundu idzva, kana shanduko mukufamba kwetsvina yako, kunyanya kana ukaona ropa mutsvina yako , enda kuna chiremba nekukasika.
Mibvunzo ipi yaunofanira kubvunza chiremba wako?
Kana waona chiremba wako, usakanganwa kubvunza mibvunzo iyi.
- Ndeapi marapirwo ari kuitwa pari zvino ekurapa zviratidzo zvangu?
- Ndichada kuvhiyiwa here?
- Ndedzipi bvunzo dzandinofanira kuita? Ndinofanira kuzviita kangani?
- Ndedzipi shanduko dziri mumuviri wangu dzandinofanira kunyatsotarisa?
- Zvakanaka here kuti mhuri yangu yese iongororwe majini?
Gardner syndrome haisi chinhu chekutya, asi chirwere chinofanira kutariswa nekungwarira uye kurapwa kwakakodzera. Nekurapwa kwakakodzera uye kuongororwa, unogona kurarama hupenyu hune hutano uye hwakareba.
Mharidzo Yekuenda Nayo Kumba
- Gardner syndrome chirwere chisingawanzoitiki chinopfuudzwa kubva kuvabereki.
- Dambudziko guru pano nderekuti ma polyps ese anoumbwa muura anoshanduka kuita kenza.
- Zviratidzo zvekutanga zveizvi zvinogona kusanganisira mazino akawanda anoonekwa panguva yehudiki kana bundu risiri rekenza rinokura mumuviri.
- Kunyange zvazvo izvi zvisingarapike zvachose, zvinogona kurapwa zvakanaka nekuongororwa nachiremba nguva dzose uye kuvhiyiwa.
- Kana iwe kana mumwe munhu wemumhuri mako aine zviratidzo izvi, zvakakosha kutsvaga rubatsiro rwechiremba nekukasika. Taura pachena nachiremba wako nezveutano hwako hwemuviri nehwepfungwa.
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