Mwana wenyu mudiki ane dambudziko remwoyo here? Ngatikurukurei nezveHypoplastic Aortic Arch!

Mwana wako mudiki anomboomerwa nekuyamwisa here? Anonzwa kuneta kupfuura zvakajairika paanenge achifema here? Kana kuti anoita seakachenuruka uye adikitira here? Zvakajairika kuti iwe semubereki unzwe kunetseka zvikuru kana zvinhu izvi zvikaitika kumwana wako mudiki. Dzimwe nguva chikonzero cheizvi chinogona kunge chiri chirwere chemwoyo chaakaberekwa nacho. Nhasi, tichataura nezvechirwere chinoitika mumoyo mevacheche, asi chinogona kurapwa kana chikaonekwa nekukurumidza uye chikarapwa nemazvo.

Chii chinonzi Hypoplastic Aortic Arch?

Zvichitaurwa zviri nyore, Hypoplastic Aortic Arch , dzimwe nguva inonzi Aortic Arch Hypoplasia (AAH) , chirwere chekuzvarwa nacho chinoitika muchikamu chemwoyo wemwana wako , aorta . Funga nezvazvo nenzira iyi, aorta yakafanana netsinga huru inotakura ropa mumuviri wedu wese. Inotangira pamoyo uye inotakura ropa rine oxygen mumuviri wese. Yakaita setsvimbo, yakakombama zvishoma. Kukombama kuri pamusoro petsvimbo kunonzi aortic arch , zvinoreva kuti 'arch yeaorta.'

Izwi rekuti 'hypoplastic' rinoreva 'kusakura zvakanaka', 'diki'. Saka, mwana ane hypoplastic aortic arch ane aortic arch isina kukura zvakanaka. Kureva kuti, muromo, kana dhayamita, mukati mechikamu ichocho wakamanikana kupfuura zvaunofanira kuva. Sezvo pombi yemvura ichivharika, aortic arch painotetepa, zvinova zvakaoma kuti ropa riyerere kubva pamoyo kuenda kuzvikamu zvepasi zvemuviri, kuburikidza neaorta inoburuka . Izvi zvinogona kuderedza huwandu hweropa rinosvika mumuviri wese.

Ndiani anonyanya kubatwa nechirwere ichi? Pane hukama here nezvimwe zvirwere zvemwoyo?

Aortic arch hypoplasia (AAH) inogona kuitika yoga. Zvisinei, inowanzoonekwa neimwe chirwere chemwoyo chekuzvarwa nacho , chinonzi coarctation of the aorta . Ichi chirwere apo chimwe chikamu cheaorta, chinowanzova pedyo neductus arteriosus, tsinga yeropa chaiyo inowanzovapo mudumbu, chinova chakatetepa.

Saka chiremba wemwana wako angati, "Mwana wako ane coagulopathy ye aorta ine aortic arch hypoplasia." Izvi zvinoreva kuti pane kutetepa kwe aorta, kwete panzvimbo imwe chete, asi nechikamu chakareba.

Pamusoro pezvo, vacheche vane AAH vanogona kunge vaine mamwe matambudziko emwoyo. Semuenzaniso:

• Atrial Septal Defect (ASD) : Buri riri pamadziro pakati pemakamuri maviri epamusoro emoyo.
• Chikanganiso cheAtrioventricular Septal : Chikanganiso chakaoma mumadziro ari pakati pemakamuri emwoyo.
• Bicuspid Aortic Valve uye Aortic Valve Stenosis : Zvikanganiso uye kutetepa kweaortic valve.
• Hypoplastic Left Heart Syndrome (HLHS) : Rutivi rweruboshwe rwemoyo harukure zvakanaka.
• Patent Ductus Arteriosus (PDA) : Mutsinga weropa unonzi ductus arteriosus unofanira kuvharwa mushure mekusununguka unoramba wakavhurika.
• Chirwere cheShone : Musanganiswa wezvikanganiso zvakawanda zvinokanganisa kufamba kweropa kuruboshwe rwemoyo.
• Chirema cheVentricular Septal (VSD) : Buri riri pamadziro pakati pemakamuri maviri epasi emwoyo.

Kuva nezvirwere zvemwoyo zvinopfuura chimwe chete zvakadai kwakakosha zvikuru pakuronga kurapwa. Nekuti chirongwa chekuvhiya kana kurapwa chakagadzirirwa mamiriro akaomarara uye chaiwo ari mumoyo wemwana chinodiwa.

Ndezvipi zviratidzo kana mwana aine chirwere ichi?

Vacheche vane aorta yakavharika uye aortic arch hypoplasia vanowanzotanga kuratidza zviratidzo nguva pfupi mushure mekuzvarwa . Fungidzira mwana wako achangoberekwa, aneta mushure mekunwa zvinwiwa zvishoma, anoita seari kunetseka kufema. Dzimwe nguva vanodikitira vochinja ruvara rwebhuruu-ruchena. Zvinotyisa sei amai kuona chinhu chakadai, handiti?

Zviratidzo zvikuru zvinogona kuonekwa ndezvi:

• Kurova kwemwoyo nekukurumidza : Kurova kwemwoyo kwakanyanya kukurumidza.
• Kuneta : Mwana anonzwa kuneta nekukurumidza, kunyanya paanoyamwisa.
• Ganda regrey kana kuti rakachenuruka : Dzimwe nguva ganda rinogonawo kuchinja kuita bhuruu.
• Kudikitira zvakanyanya .
• Kugara uchichema, kushatirwa .
• Kufema nekukurumidza kana kuti kwakaoma .
• Dambudziko nekupa mwana mukaka: Anoramba kunwa mukaka, kana kurega kunwa zvishoma.
• Kurova kwemoyo kusina simba muzvikamu zvepazasi zvemuviri : Kunyanya mumakumbo, kurova kwemoyo mutsinga yefemoral kunoshaya simba kana kuchibatwa nemusoro.

Kana mwana wako aine chimwe chezviratidzo izvi kana kupfuura, zvakakosha kuti utsvage rubatsiro rwechiremba nekukasika .

Sei izvi zvichiitika? Ndezvipi zvikonzero?

AAH chirwere chemwoyo chinoberekwa nacho . Chinhu chinoitika mwana achiri mudumbu. Vaongorori vachiri kuedza kutsvaga chikonzero chaicho chechirwere chemwoyo ichi.

Asi chinozivikanwa ndechekuti chirwere ichi chinogona kuitika kana aorta yemwana isingakure zvakanaka mumavhiki ekutanga epamuviri .

Unoona sei izvi? Ndezvipi zviedzo?

Vanachiremba vanoshandisa izvi kuongorora chirwere chacho.Kuongororwa kwemifananidzo kwakagadzirwa neunyanzvi. Kuongororwa uku kunowanzoitwa mwana achangoberekwa.

Miedzo mikuru inoshandiswa kuongorora AAH ndeiyi:

• Cardiac Computed Tomography (CT scan)
• Magnetic Resonance Angiogram (MRA)
• Transthoracic Echocardiogram (TTE) : Izvi zvakafanana neultrasound scan yemoyo.
• Kugadziriswa kwemoyo : Dzimwe nguva bvunzo iyi inofanirawo kuitwa.

Kuongororwa uku kunogona kutarisa chimiro chemwoyo wemwana, ndiko kuti, marongerwo akaitwa zvikamu zvemukati, zvakadzama. Vanogonawo kuona kana mwana aine zvimwe zvikanganiso zvemoyo. Vanachiremba vanoronga kurapwa kwakakodzera mwana nekuunganidza ruzivo urwu rwese.

Kuti vaone kana AAH iripo, vanachiremba vanoongorora saizi yeaorta yemwana. Kunyanya, vanoyera dhayamita yayo, inova upamhi hweburi riri mukati. Kuyera uku kunoenzaniswa nedhayamita yezvimwe zvikamu zveaorta yemwana (semuenzaniso, ascending aorta kana descending aorta). Aya mavalues ​​​​anoshandiswa kuona kana dhayamita yeaorta yakamanikana zvakanyanya.

Ngatidzidzei zvishoma nezvezvikamu zvakasiyana zveaotic arch.

Kana chiremba wemwana wako achitaura nezvechirwere ichi, anogona kutaura nezvezvikamu zvakasiyana zveaortic arch. Ungave uchishamisika kuti, "Aortic arch inopatsanuka kuita zvimwe zvikamu here? Icho hachisi chikamu cheaorta yakakura here?" Ehe, ichokwadi. Aortic arch chikamu chidiki, "chakafanana netsvimbo" cheaorta. Asi, sezvikamu zvese zveaorta, aortic arch ine mitsipa yeropa (tsinga) dzinofamba munzira dzakasiyana. Kungofanana nemugwagwa mukuru une migwagwa yedivi. Vanachiremba vanoshandisa mitsipa yeropa iyi yakasiyana semiganhu, vachiratidza panotangira nepanopera chikamu cheaortic arch. "Mepu" iyi inobatsira zvikuru pakuongorora AAH uye kuronga kurapwa.

Heano mamwe emativi e aural arch ayo chiremba wemwana wako angataura nezvawo:

• Proximal Transverse Arch : Iyi iri pakati peBrachiocephalic Artery yemwana (dzimwe nguva inonzi Innominate Artery) neLeft Common Carotid Artery . Iyi ndiyo nzvimbo iri pedyo nemoyo.
• Distal Transverse Arch : Iyi iri pakati pe common carotid artery yekuruboshwe ne left subclavian artery .
• Aortic Isthmus : Iyi iri pakati petsinga yeruboshwe ye subclavian netsinga yeropa yambotaurwa inonzi Ductus Arteriosus .

Chiremba wemwana wako ndiye achaona kuti kutetepa kuri papi muaural arch yemwana wako, pamwe chete nehukuru hwekutetepa kwacho. Ruzivo urwu ruchatungamira hurongwa hwekurapa.

Ndezvipi zvinorapwa izvi?

Vacheche vane hypoplastic aortic arch vachada kuvhiyiwa kwemoyo kuti vagadzirise dambudziko racho. Chiremba wemwoyo wemwana wenyu achakutsanangurirai kuti rudzii rwekuvhiyiwa kwaanofanira kuitwa nemwana wenyu. Kuvhiyiwa kwacho kunogona kusiyana zvichienderana nezvimwe zvikanganiso uye chimiro chemwoyo wemwana wenyu. Mungada kuvhiyiwa thoracotomy , inova kucheka kudiki kunoitwa kuruboshwe rwechipfuva chemwana wenyu, kana sternotomy, inova kucheka kunoitwa pakati pechipfuva.

Kuvhiya kunowanzoitwa kunonzi resection ne extended end-to-end anastomosis . Kuvhiya uku kunobatsira zvikuru kuvana vane coarctation ye aorta uye aortic arch hypoplasia. Mukuita uku, chiremba anobvisa chikamu chakamanikana che aorta, otora chikamu chezasi che aorta (downclining aorta), ochibatanidza ne incision yakareba zvishoma mu aortic arch.

Tariro yekuvhiyiwa uku ndeyekuvandudza kufamba kweropa mutsinga yemwana, zvichiita kuti nhengo dzemuviri nenyama yemwana zviwane ropa rakakwana rine oxygen.

Tariro yemwana wangu yekupora ndeyei?

Mhinduro yakanakisisa kumubvunzo uyu ndeye chiremba wemwana wako. Nekuti kugara zvakanaka kwemwana kunoenderana nezvinhu zvakawanda. Kunyanya, kana paine zvimwe zvirwere zvemwoyo zvekuzvarwa nazvo zvine chekuita nepfungwa iyi.

Kazhinji, vacheche vakamborapwa chirwere chinonzi aotic arch hypoplasia vane mukana wakakura wekuwana matambudziko anotevera gare gare muhupenyu hwavo:

• Kudzokororwa kweaorta yavo .
• Kukwira kweropa (BP) .
• Kuoma kwekudya kana kumedza : Izvi zvinogona kuitika kana tsinga ikakuvara panguva yekuvhiyiwa (izvi hazviwanzoitiki).

Taura nachiremba wemwana wako nezvenjodzi idzi uye kuti ungadzigadzirisa sei.

Mamiriro ezvinhu aya anogona kudzivirirwa here?

Zvirwere zvemwoyo zvekuzvarwa nazvo zvakaita se hypoplastic aortic arch zvingasagone kudzivirirwa zvachose . Zvisinei, kutevedzera zano rachiremba wako kuti uve nepamuviri pakanaka kunogona kubatsira kuderedza njodzi yako yekubatwa nechirwere ichi kana zvimwe zvirwere.

Kazhinji, zvinhu izvi zvinofanira kudziviswa panguva yekuzvitakura:

• Doro .
• Dzivisa kusvuta, kuputa fodya nefodya . Dzivisawo kusvuta fodya kubva kune vamwe vanhu .
• Zvinodhaka zvisiri pamutemo, kunyanya cocaine .

Uye zvakare, yako.Zvakakoshawo kuenda kunoongororwa pamuviri nguva dzose. Kana uine zvimwe zvirwere, tsvaga rubatsiro rwechiremba kuti ugadzirise matambudziko iwayo usati wava nepamuviri uye panguva yese yawava nepamuviri.

Nzira yekutarisira mwana mushure mekuvhiyiwa?

Zvinodiwa nemwana wese zvinogona kusiyana mushure mekuvhiyiwa, saka zvakanaka kubvunza timu yevanachiremba vemwana wako kuti ungachengeta sei mwana wako munguva pfupi uye kwenguva refu.

Heano mimwe mibvunzo yaunogona kubvunza chiremba wako:

• Ndinofanira kutarisira sei mwana wangu pandinoenda kumba?
• Mushonga upi wandinofanira kupa mwana wangu? Ndinofanira kumupa kwenguva yakareba sei?
• Pane mishonga inodiwa here kuti mwana ashande zvakanaka mumuviri kana mupfungwa?
• Pane zvirambidzo here pamabasa emwana?
• Ndirini pazvinenge zvakachengeteka kutumira mwana wangu kunzvimbo yekuchengetedza vana? Ndeipi mirairo yakakosha yandinofanira kumupa?
• Mwana wangu achada kumwe kurapwa here kana kuvhiyiwa?

Kuva mubereki kunogara kwakaoma. Asi kugara nemwana ane chirwere chemwoyo chakadai se hypoplastic aortic arch (AAH) kunogona kuunza matambudziko matsva zuva nezuva. Mamwe emashoko anotaurwa navanachiremba uye zvirongwa zvekurapa zvingaita sezvakaoma kunzwisisa. Izvozvo zvakajairika, uye hausi wega. Bvunza chiremba wemwana wako nezvezviwanikwa nemapoka ekutsigira anogona kukubatsira. Kuvaka nharaunda yekutsigira iwe nemhuri yako kunogona kubatsira kuderedza kushushikana uye kukupa simba rekufambira mberi nezvinodiwa nemwana wako.

Ngatingorangarirai zvatakataura nezvazvo (Mharidzo Yekuenda Kumba)

• Hypoplastic Aortic Arch (AAH) chirwere apo arch ye aorta, tsinga huru yeropa iri mumoyo wemwana, haikure zvakanaka, zvichikonzera kuti arch itete.
• Izvi zvinoita kuti zviomere ropa kuti riyerere kubva pamoyo kuenda kune dzimwe nhengo dzemuviri.
• Dambudziko iri rinowanzoonekwa pamwe chete nechimwe chirwere chemwoyo chinonzi Coarctation of the Aorta .
• Zviratidzo zvakaita sekuneta, kufema zvakaoma, uye ganda rakachenuruka zvinogona kuonekwa pakutanga kwehupenyu hwemwana.
• Dambudziko iri rinogona kuongororwa nekuongororwa kwakakosha.
• Kurapa kwacho kunoitwa nekuvhiyiwa kwemoyo .
• Kutevera mirairo yekurapa nemazvo uye kutevera kuteverwa kwenguva refu mushure mekuvhiyiwa kwakakosha zvikuru.
• Kutevedzera tsika dzakanaka panguva yekuzvitakura kunogona kuderedza njodzi yekuva nezvimwe zvirema pakuzvarwa.
• Hausi wega. Tsvaga rubatsiro kubva kuna vanachiremba nemapoka ekutsigira.

Tinovimba kuti ruzivo urwu ruchakubatsira. Tinoshuvira mwana wako kuti apore nekukurumidza!

` Hypoplastic Aortic Arch, Aortic Arch Hypoplasia, chirwere chemwoyo chekuzvarwa nacho, kuvhiyiwa kwemoyo wemwana, kubatana kweaorta, zvirwere zvemwoyo zvemwana, kuvhiyiwa kwemoyo