Kana chiremba wako akakunyorera mushonga unonzi Ravulizumab (unowanikwa zvakanyanya pasi pezita rekuti ULTOMIRIS), zvakajairika kuva nemibvunzo yakawanda. Uyu mushonga unokosha zvikuru, asi une simba guru. Uyu hausi mushonga wedzihwa kana furuu. Saka ndichataura nezvazvo nenzira iri nyore yaunogona kunzwisisa.
Kutaura chokwadi, mushonga werudzii unonzi Ravulizumab?
Muchidimbu, Ravulizumab mushonga unodzora maitiro asina kujairika anoitika mumasoja emuviri wedu. Dzimwe nguva masoja edu emuviri anotanga kushanda zvakanyanya otanga kurwisa masero edu ane hutano. Panguva dzakadaro, mushonga uyu unobatsira kudzora mashandiro iwayo asingadiwe.
Iyi imhando yemishonga inonzi monoclonal antibodies . Kureva kuti, ipuroteni inogadzirwa murabhoritari uchishandisa tekinoroji yakakosha. Kufanana nehoming missile, inoenda kunzvimbo chaiyo yedambudziko mumuviri uye inoridzora.
Vanachiremba vanoshandisa mushonga uyu kurapa zvirwere zvikuru zvakasiyana-siyana:
- Atypical Hemolytic Uremic Syndrome (aHUS): Ichi chirwere apo masero matsvuku eropa anoputsika uye ropa rinogwamba mutsinga diki dzeropa , zvichikonzera zvirwere zvakaita seanemia .
- Paroxysmal Nocturnal Hemoglobinuria (PNH): Ichi chirwere chinosanganisirawo kuparadzwa kwemasero matsvuku eropa.
- Myasthenia Gravis : Ichi chirwere chetsinga netsandanyama. Chinokonzera kuti tsandanyama dzishaye simba nekukurumidza uye chinokonzera kuneta.
- Neuromyelitis Optica Spectrum Disorder (NMOSD): Muchirwere ichi, tsinga dziri mumaziso nemumusana dzinozvimba.
Zvinhu zvaunofanira kuudza chiremba wako usati watora mushonga uyu
Zvakanaka, chiremba asati akupe mushonga uyu, achakubvunza mibvunzo mishoma. Asi pane zvinhu zvishoma zvaunofanira kutaurawo. Nekuti kuchengetedzeka kwako ndicho chinhu chinonyanya kukosha.
- Une hutachiona here parizvino? Udza chiremba wako nezvehutachiona hupi zvahwo, hwakadai sefivha, kukosora, kana dzihwa .
- Une allergies here?Kana muine allergies yemushonga uyu weRavulizumab kana chero mimwe mishonga, chikafu, kana dhayi, iva nechokwadi chekutiudza.
- Une pamuviri here? Kana kuti uri kutarisira mwana here? Taura nachiremba wako nezvazvo pachena.
- Muri amai vanoyamwisa here? Zvakakosha zvikuru kuzivisa chiremba nezveizvi zvakare.
Usavanza ruzivo urwu. Chiremba ndiye achasarudza mushonga wakakodzera uye wakachengeteka kwauri zvichibva paruzivo rwakarurama rwaunopa.
Mushonga uyu unopihwa sei mumuviri?
Iri harisi piritsi kana sirapu yaunogona kutora kumba. Iri ijekiseni raunopinza mutsinga. Saka uchagamuchira kurapwa uku muchipatara kana kiriniki. Chiremba kana nesi akadzidziswa achakupa.
- Kapepa keMedGuide: Usati watanga kurapwa, uchapihwa kapepa kakakosha (kanonzi `MedGuide`) kane ruzivo nezvemushonga uyu. Verenga nokungwarira uye usatya kubvunza chero mibvunzo yaungave nayo.
- Kushandiswa kwemushonga uyu kuvana: Ungave uchishamisika kana uchigona kupiwa kuvana vadiki. Ehe, unogona kushandiswa kuvana vacheche vane mwedzi mumwe chete kune mamwe mamiriro ehutano akasarudzwa. Asi unofanira kungwarira zvikuru uye uchitarisirwa nenyanzvi.
- Kana ukashandisa mushonga uyu zvakanyanya: Kana uchifunga kuti wakapihwa mushonga uyu wakawandisa, unofanira kuenda kuEmergency Treatment Unit (ETU) yechipatara nekukasika . Kana kufonera National Poisons Information Centre kuColombo National Hospital kuti uwane mazano.
- Usagovane: Mushonga uyu wakanyorerwa iwe chete. Usambogovane nevamwe.
Zvinhu zvekungwarira paunenge uchitora mushonga
Unofanira kungwarira zvishoma paunenge uchitora mushonga uyu.
- Ona chiremba wako nguva dzose: Chiremba wako achakutarisa nguva dzose kuti aone kana zviratidzo zvako zviri kuvandudzika kana kuti zvichiwedzera kuipa. Iva nechokwadi chekuenda pamazuva iwayo.
- Chenjerera nezvehutachiona: Ichi ndicho chinhu chakakosha. Njodzi yako yekuwana hutachiona inogona kuwedzera zvishoma paunenge uchitora mushonga uyu. Saka kana uine zviratidzo zvakaita sefivha, dzihwa, kurwadziwa kwemuviri, pahuro, kana kupora kweronda zvishoma nezvishoma, usaende kunotora mushonga wega . Fonera chiremba wako nekukasika wowana mazano. Zvakare, deredza kuenda kunzvimbo dzine vanhu vanorwara.
- Majekiseni: Kuti uderedze njodzi yekutapukirwa, chiremba wako anogona kukukurudzira kuti uwane mamwe majekiseni usati watanga kurapwa uku.
- Kadhi reWallet yeMurwere:Uchapihwa kadhi rakakosha (`Patient Wallet Card`). Rigare newe nguva dzese . Riratidze kunyangwe ukaenda kunoona mumwe chiremba. Rine ruzivo nezvemigumisiro yakakomba inogona kuitika nemushonga uyu.
Ndezvipi zvingakonzera migumisiro yakaipa?
Kufanana nemushonga upi zvawo, Ravulizumab inogona kukonzera migumisiro yakaipa kune vamwe vanhu, asi havasi vese vanoiwana. Chinhu chakakosha ndechekuudza chiremba wako kana ukaona chimwe chinhu chisingawanzoitika.
| Rudzi rwemhedzisiro yakaipa | Tsananguro |
|---|---|
| Migumisiro inofanira kuziviswa kuna chiremba wako nekukasika | |
| Kusawirirana kwemuviri | Mapundu paganda, kuvaviwa, kuzvimba kwechiso, miromo, rurimi kana pahuro. |
| Zviratidzo zveMeningitis | Fivha, kurwadziwa kwemutsipa kana kuomarara, kuoma kuona chiedza, musoro wakakomba, kuda kurutsa, kurutsa, kuvhiringidzika. |
| Utachiona | Fivha, dzihwa, kukosora, pahuro panorwadza, maronda asingapore, kurwadziwa pakuita weti, uye kusagadzikana kwemuviri. |
| Maitiro ekupinza | Kurwadziwa pachipfuva, kuoma kufema, kupera simba. |
| Kuderera kweropa | Dzungu, kupera simba, kuona zvisipo. |
| Migumisiro inofanira kutaurwa kuna chiremba kana ikaramba iripo | |
| Migumisiro yakajairika | Manyoka, fivha, musoro, kuda kurutsa, kurutsa. |
Mushonga uyu ungashanda pamwe chete nemimwe mishonga here?
Ehe, mimwe mishonga inogona kukanganisa izvi. Semuenzaniso, mishonga yakaita se `Efgartigimod` uye `Imune globulin (IVIG)`.
Saka, udza chiremba wako nezvemishonga yese yaunotora - ingava yemamwe matambudziko, mavhitamini, mishonga yechivanhu, kana mishonga yekuwedzera. Zvakare, udza chiremba wako kana uchisvuta kana kunwa doro.
Mharidzo Yekuenda Nayo Kumba
- Ravulizumab mushonga unoshandiswa kurapa zvirwere zvakawanda zvakakomba.
- Usati watanga kurapwa, udza chiremba wako nezvezvirwere zvako zvese, allergies, uye mimwe mishonga yese yauri kutora.
- Ngwarirai zvikuru zviratidzo zvehutachiona (zvakaita sefivha, pahuro) pamunenge muchitora mushonga uyu. Kana izvi zvikaitika, tsvagai rubatsiro rwechiremba nekukasika.
- Gara uine `Patient Wallet Card` yawakapihwa.
- Musapotsa nguva yekurapwa yakarongwa. Kana musingakwanise kuuya, ndapota zivisai chiremba kana kiriniki pachine nguva.
- Kana muine mibvunzo, zvinokunetsai, kana zvinokunetsai nezvemushonga uyu, musatya kukurukura nezvawo nachiremba wenyu.
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