Mwana wako ane chirwere che "Short Bowel Syndrome" (SBS) here? Ngatitaurei nezvazvo zviri nyore.

Mwana wako mudiki anoramba achirwara here? Anoderedza huremu asingatombozvizivi, kunyangwe mushure mekunwa mukaka kana kudya here? Haawedzere huremu zvachose here? Semubereki, zvakajairika kunzwa kutya uye kunetseka zvakanyanya paunoona zvinhu zvakaita seizvi. Dzimwe nguva, panogona kunge paine chirwere chiri shure kwezviratidzo izvi chatisati tanzwa zvakawanda nezvazvo. Nhasi tichataura nezvechimwe chirwere chakadai, "Short Bowel Syndrome".

Chii chinonzi Short Bowel Syndrome (SBS)?

Zvichitaurwa zviri nyore, Short Bowel Syndrome (SBS) chirwere umo muviri wemwana wako usingakwanise kupinza zvinovaka muviri zvakakwana nemvura. Izvi zvinokonzerwa nekuti chikamu cheura hudiki hwemwana hachina kana kuti hachishande zvakanaka. Zvakanyanya kunaka, ura hahuna kureba zvakakwana. Chirwere ichi chinogona kuvapo pakuzvarwa, kana kuti chinogonawo kuitika mushure mekunge chikamu chikuru cheura hudiki chabviswa nekuvhiyiwa nekuda kwechimwe chirwere.

Kuti tinzwisise izvi, ngatitangei tatarisa zvinoitika muura hwedu hudiki.

Basa reura hwedu hudiki

Funga nezveura hudiki se "mutsetse murefu wekugadzirisa" uri mufekitori. Chikafu chatinodya chinogayiwa zvishoma mudumbu chopinda muura hudiki. Zvadaro, sezvachinofamba nemuura hurefu uhwu, zvese zvakakosha mumuviri zviri muchikafu ichocho - kureva mapuroteni, makabhohaidhiretsi (starch neshuga), mafuta, mavhitamini, maminerari akadai sesimbi, calcium - zvinopinda mumuviri. Tsvina yasara inoburitswa kuburikidza neura hukuru setsvina.

Kune zvikamu zvikuru zvitatu zveura hwedu hudiki:

• Duodenum: Chikamu chipfupi kupfuura dumbu.
• Jejunum: Chikamu chepakati.
• Ileum: Chikamu chakareba kwazvo cheura hukuru.

Panyaya yeSBS, 'mutsetse wekugadzirisa' uyu hauna kureba zvakakwana. Fungidzira, chii chingaitika kana mugwagwa wemakiromita marefu ukashandiswa kunwisa zvinovaka muviri, uye mugwagwa iwoyo ukangoerekana wapfupika? Mota inonzi chikafu yaizomhanya mumugwagwa mupfupi iyoyo uye isina nguva yekuburitsa zvinhu zvese (zvinovaka muviri) zvirimo. Izvi zvinoitikawo muSBS. Nekuti ura hupfupi, chikafu chinobuda mumuviri chisati chagayiwa zvakanaka uye zvinovaka muviri zvinotorwa nemuviri. Ichi chirwere chakakomba chinogona kutokanganisa hupenyu hwemwana kana chikasarapwa.

Unoziva sei kana mwana ane SBS? Ndezvipi zviratidzo?

Mwana ane SBS anogona kusangana nechimwe chezviratidzo izvi kana kupfuura. Chiratidzo chinowanzoitika, kunyanya muvacheche nevana vadiki, manyoka ane mvura.

Sei mwana achiwana chirwere che "Short Bowel Syndrome"?

Kune zvikonzero zviviri zvikuru zveizvi.

1. Zvikonzero zvekuzvarwa nazvo: Vamwe vana vanogona kuzvarwa vaine ura hupfupi. Kana kuti vanogona kunge vasina chikamu cheura, kana kuti ura hunogona kunge husina kukura zvakakwana panguva yekukura mudumbu raamai. Dambudziko iri rinonzi `(Intestinal Atresia)`.

2. Semhedzisiro yekuvhiyiwa: Vamwe vana vanofanirwa kubviswa chikamu cheura hwavo hudiki nekuda kwezvimwe zvirwere. Zvimwe zvezvikonzero zvinowanzoitwa nekuvhiyiwa kwerudzi urwu ndeizvi:

• Kubata kweropa: Utachiona hwakakomba, kunyanya muvana vacheche vasati vasvika nguva, umo zvikamu zveura zvinofa nekuda kwekudzikira kweropa.
• Gastroschisis: Chirwere chekuti ura hunobuda kunze kwemuviri mwana achiri kukura mudumbu.
• Volvulus: Chirwere chekuti ura hunomonereka pamwe chete uye ropa rinobuda.
• Chirwere cheCrohn:Kuzvimba kwenguva refu kwegadziriro yekugaya chikafu.
• Kupinda mukati medumbu: Chirwere chekuti chikamu cheura chinobatwa mune chimwe chikamu.

Ndezvipi zvinetso zvinogona kuitika nekuda kweSBS?

SBS haisi nyaya iri nyore. Kana ikasatarisirwa zvakanaka, mwana anogona kuva nematambudziko akasiyana-siyana.

• Kushaya mvura mumuviri: Muviri unogona kugara uchichengeta mvura nekuti haugone kunwisa mvura inodiwa mumuviri.
• Kushaya chikafu chinovaka muviri: Kudzikira kwehuremu uye kukura zvishoma nezvishoma nekuda kwekushaya chikafu chinodiwa.
• Kushaikwa kwemavhitamini nemaminerari: Kushaikwa kwemavhitamini akakosha (A, D, E, K, B12) nemaminerari (calcium, magnesium, zinc) mumuviri.
• Mapundu akanyanya emumachira: Kubuda kwetsvina kakawanda uye ine acidic kunogona kukonzera kuti ganda riri munzvimbo yemachira ritsvuke zvakanyanya uye rirwadze.
• Chirwere chechiropa: Chiropa chinogona kukanganiswa, kunyanya kana ukawana chikafu chekudya cheparenteral (TPN) kwenguva yakareba.
• Matombo eitsvo: Nekuda kwekusaenzana mukupinza zvinhu zvakaita secalcium mumuviri.
• Kukura kwebhakitiriya muura hudiki: Kusashanda zvakanaka kweura kunogona kukonzera kukura kwebhakitiriya ine njodzi.

Saka, kana mwana wako aine zviratidzo zveSBS, kunyanya mushure mekuvhiyiwa kwemudumbu, zvakakosha zvikuru kuona chiremba wako nekukasika .

Ndezvipi zvirongwa zvekurapa SBS?

Kurapa mwana ane SBS ibasa rekubatana. Vanhu vazhinji, kusanganisira vanachiremba vevana, vanachiremba vekuvhiya, uye nyanzvi dzezvekudya, vanoshanda pamwe chete kugadzira hurongwa hwakanakisa hwekurapa mwana wenyu. Chinangwa chikuru chekurapa ndechekudzora zviratidzo ukuwo vachipa mwana chikafu chinodiwa.

1. Kuchinja Kwezvekudya

Ichi ndicho chikamu chakakosha chekurapa.

• Kudya Kwese Kwevabereki (TPN): Mushure mekuvhiyiwa kwemudumbu kana kuti kana ura husingakwanise kupinza zvinovaka muviri zvachose, zvinovaka muviri zvese zvinodiwa nemwana (mapuroteni, mafuta, makabhohaidhiretsi, mavhitamini, nemaminerari) zvinopihwa mwana kuburikidza nemvura yakakosha, senge saline, kuburikidza netsinga. Izvi zvinodzivisa kugaya chikafu zvachose uye zvinowedzera kudya zvakananga muropa. Uku kurapa kunoponesa hupenyu hwemwana.
• Kudya Kwemuviri / Kudyisa Tubhu:Kana ura hwemwana huchishanda zvakanaka, chikafu chemvura chakakosha chinopihwa kuburikidza nechubhu inoiswa nemhino mudumbu kana kuburikidza nechubhu yakabatana zvakananga nedumbu. Izvi zvinogona kupa mwana chikafu chekuwedzera pamusoro pechikafu chaanodya nemuromo.
• Kuchinja kwekudya: Mwana paanotanga kudya zvishoma nezvishoma nemuromo, chiremba nenyanzvi yezvekudya vanozopa chirongwa chekudya chakakosha. Mariri,
• Zvishoma nezvishoma, vachakukumbira kuti uvape chikafu kakawanda pazuva.
• Inoti kuderedza chikafu chine mafuta akawanda, shuga, uye faibha.
• Inoti kupa chikafu chakapfuma muprotein nemacarbohydrate.
• Zvinokurudzirwa kupa mavitamini nemaminerari anodiwa sekuwedzera.

2. Mishonga

Mishonga yakasiyana-siyana inoshandiswa kudzora zviratidzo uye kuvandudza kunwa kwekudya kunovaka muviri.

• Mishonga inoderedza acid yemudumbu (`Proton pump inhibitors`).
• Mishonga inorwisa mabhakitiriya inodzora kukura kwemabhakitiriya mudumbu.
• Mishonga inoderedza manyoka uye inoderedza kufamba kwechikafu nemumatumbu.
• Mhando dzemahormone anovandudza kunyudzwa kwezvinovaka muviri.

3. Kuvhiyiwa

Mune zvimwe zviitiko zvakakomba, kuvhiyiwa kumwe kungadiwa kuti ura hwemwana hushande zvakanaka. Semuenzaniso, kune nzira dzekuwedzera ura. Muzviitiko zvakakomba, kana pasina kumwe kurapwa kunoshanda, kuisirwa ura kunogona kudiwa.

Tariro ine tariro yekuchinjika muura

Iyi ndiyo tariro huru yevana nevabereki vane SBS. Miviri yedu inoshamisa. Mushure mekunge chikamu cheura chabviswa, chikamu chasara cheura chinotanga kuchinja nekufamba kwenguva. Izvi zvinonzi `Intestinal Adaptation`.

Izvi ndizvo zvinoitika:

• Nzvimbo yepamusoro yerusvingo rwemukati rweura hwasara inowedzera.
• Zvidimbu zvidiki zvakaita seminwe (villi) zvinotora zvinovaka muviri zvinoreba uye zvinokora.
• Kukura kweura kunowedzera.
• Kumhanya kunoita chikafu kunononoka, zvichiita kuti zvinovaka muviri zviwanikwe nguva yakawanda.

Nekuda kwemaitiro aya ekuchinja-chinja, vana vazhinji vanokwanisa kuchinja zvishoma nezvishoma kubva pakudya kwevabereki (TPN) kuenda pakudya nemuromo. Mishonga mitsva, yakaita seteduglutide, yava kuwanikwa inogona kukurumidzisa kuchinja uku.

SBS rwendo rwakaoma. Asi nekurapwa kwakakodzera, kutarisira kwakanaka kwekudya, uye rudo nekuzvipira kwevabereki, vana ava vanogonawo kurarama hupenyu hwakanaka uye hunofadza. Zvakakosha kugara uchitaurirana nachiremba wako nechikwata chezvekurapa uye kutevedzera mazano avo.