Dzimwe nguva tinonzwa nezvezvirwere zvisingawanzoitiki, zita razvo ratisati tambonzwa nezvazvo. Chirwere cheGaucher, kana kuti (Chirwere cheGaucher), chimwe chezvirwere zvisingawanzoitiki chinokonzerwa nemajini. Kunyangwe kurarama nemamiriro ezvinhu akadaro kuri dambudziko, nekufambira mberi kwemishonga yemazuva ano, kune mishonga yakanaka inovabatsira. Nhasi tichataura nezveimwe yemishonga yakadaro, mushonga weVelaglucerase alfa.
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Zvichitaurwa zviri nyore, chii chinonzi Gaucher's Disease?
Kuti tinzwisise izvi, ngatifungei nezvemuviri wedu sefekitori hombe. Mufekitori iyi, mune 'vashandi' vakakosha vanoita mabasa akasiyana-siyana kuti zvese zvishande nemazvo. Vashandi ava ndivo vatinodaidza kuti 'maenzayimu'. Enzyme yega yega ine basa rayo rakapihwa.
Mumunhu ane chirwere cheGaucher, rimwe rema enzyme aya, kana kuti rimwe remabasa, rinoshaikwa. Nekuda kweizvozvo, mamwe mafuta mumuviri haagone kuputswa zvakanaka uye kubviswa semarara. Zvinhu izvi zvinotanga kuungana zvishoma nezvishoma munhengo dzakadai sechiropa, spleen, uye bone morrow. Ichi ndicho chikonzero chikuru chezviratidzo.
Saka basa remushonga uyu wekudzivirira chirwere cheVelaglucerase alfa nderei?
Velaglucerase alfa (zita rechiratidzo VPRIV) yakafanana nemushandi anotsiva uyo masayendisiti akasika murabhoritari kuti atsive mushandi asipo mufekitori. Kutaura chokwadi, iyi ienzyme inogadzirwa nenzira yekugadzira kuti itsive enzyme iyo varwere veGaucher vasina mumiviri yavo.
Kana mushonga uyu ukapihwa kumuviri, unotora basa rakanga ramiswa, unoputsa mafuta akaunganidzwa, uye unobatsira kudzora zviratidzo.
Chinhu chinonyanya kukosha: Uyu hausi mushonga wechirwere cheGaucher. Zvisinei, unogona kubatsira kudzora zviratidzo, kuderedza kukuvara kwenhengo, uye kukubatsira kurarama hupenyu huri nani.
Mushonga uyu unopihwa sei?
Uyu hausi mushonga waunogona kushandisa kumba. Velaglucerase alfa ijekiseni rinopihwa semvura ine saline mutsinga (infusion mutsinga). Kurapa uku kunopihwa muchipatara kana kiriniki yakasarudzika, pasi pekutarisirwa kwevashandi vekurapa. Saka hapana chikonzero chekunetseka nezvekuchengetedzeka kwako.
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Check Availability →Zvinhu zvekuudza chiremba wako usati watanga kurapwa
Zvakakosha kuti chiremba wako azive nhoroondo yako yese yehutano kuti aone kana kurapwa uku kwakakunakira uye kwakachengeteka. Iva nechokwadi chekuvaudza nezvezvinhu izvi kunyanya.
- Kurwara kwauinako:Kana wakambova neallergies kune mimwe mishonga, kunyanya imiglucerase (mushonga wakafanana), chikafu, madhayi, kana zvinochengetedza, iva nechokwadi chekuudza chiremba wako nezvazvo.
- Kubata pamuviri: Kana uine pamuviri, kana kuti uri kutarisira mwana munguva pfupi iri kutevera, unofanira kuudza chiremba wako.
- Kuyamwisa: Kana uri amai vari kuyamwisa mwana, zivisa chiremba wako nezveizvi zvakare.
- Zvimwe zvirwere nemishonga: Ipa chiremba wako runyoro rwakakwana rwemishonga chero ipi zvayo (yakanyorwa nachiremba kana kuti inotengeswa pasina kunyoreswa nachiremba), mishonga yemiti, uye mavhitamini auri kutora. Zvakakoshawo kuudza chiremba wako kana uchisvuta kana kunwa doro.
Kushandiswa kwevana
Mushonga uyu dzimwe nguva unopiwa vana vane makore mana chete, asi chete kana uri kufunga kupa mwana wako mushonga uyu, taura nachiremba wevana nezvenyaya iyi.
Ndezvipi zvimwe zvingakonzerwa nemushonga uyu?
Kufanana nemushonga upi zvawo, mushonga we'Velaglucerase alfa' unogona kukonzera migumisiro yakaipa kune vamwe vanhu. Zvisinei, havasi vese vanoiwana. Izvi zvinogona kukamurwa kuita mapoka maviri makuru. Zvimwe zvakakomba uye zvinofanira kutaurwa nekukasika. Zvimwe zvakajairika uye zvichapera mumazuva mashoma.
| Mhedzisiro yedivi | Zvaunofanira kuita |
|---|---|
| Migumisiro yakaipa yaunofanira kuudza chiremba wako kana mukoti wako nekukasika | |
| Kusawirirana kwemuviri (Kutsva kweganda, kuvaviwa, kuzvimba kwechiso, miromo, rurimi) | Izvi zvinogona kuitika panguva yekushandiswa kwemushonga kana mushure mekupiwa. Zivisa vashandi vekurapa nekukasika . |
| Matambudziko ekufema | Ichi chingave chiratidzo chakakomba. Taura nekukurumidza . |
| Dzungu, BP yakakwira kana yakaderera, kurova kwemoyo nekukurumidza | Kana izvi zvikaitika panguva yekupa mushonga, taurira mukoti kana chiremba nekukasika. |
| Kubuda ropa kusingawanzoitiki kana mavanga | Udza chiremba wako kana ukasangana nemavanga asina kutsanangurwa kana kuti kana uchinetseka kurega kubuda ropa. |
| Migumisiro inowanzo fanirwa kuudzwa chiremba kana ikaramba iripo kana kuti ichinetsa | |
| Musoro, kurwadziwa kwemuviri, kurwadziwa kwemusana, kurwadziwa kwemapfupa kana majoini | Izvi zvinowanzoitika. Kana zvikaramba zviripo, taura nachiremba wako. |
| Fivha, dzihwa, pahuro panorwadza | Zvinogona kuitika pazuva remushonga kana kuti gare gare. Udza chiremba wako kana zvichikunetsa. |
| Kusvotwa, kurwadziwa mudumbu | Zvinowanzopera. Kana zvikaramba zviripo, zivisa chiremba wako. |
| Kutsvuka, kuvaviwa, kana kurwadziwa panzvimbo yekubaiwa jekiseni | Izvi zvinowanzo pora mukati mezuva rimwe kana maviri. |
Rondedzero iyi haina migumisiro yese inogona kuitika. Kana ukasangana nechimwe chinhu chisingawanzoitika, usatya kutaura nachiremba wako nezvazvo.
Zvimwe zvinhu zvekurangarira panguva yekurapwa
- Kuwana kurapwa nenguva: Kuti uwane rubatsiro rwakawanda kubva mukurapwa uku, zvakakosha zvikuru kuwana kurapwa nenguva uye nenguva. Kana usingakwanise kuenda kuchipatara pazuva rakarongwa, zivisa chiremba kana chipatara pachine nguva uye ronga nguva yekuenda kuchipatara mangwana acho.
- Miedzo yekurapa:Chiremba achakutarisa nguva nenguva kuti aone kuti kurapwa kuri kushanda zvakanaka sei uye kuti kuri kukanganisa sei muviri wako. Saka, usapotsa kushanya kukiriniki.
- Kudhakwa: Uyu mushonga unopihwa kuchipatara, saka mikana yekuti izvi zviitike yakaderera. Zvisinei, kana uchifunga kuti watora mushonga uyu wakawandisa, fonera National Poisons Information Centre kuColombo National Hospital nekukasika, kana kuenda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo.
- Izvi ndezvenyu chete: Mushonga uyu wakanyorerwa mamiriro enyu uye rudzi rwemuviri wenyu. Saka, musagovane mushonga uyu nemumwe munhu chero chikonzero chipi zvacho.
Mharidzo Yekuenda Nayo Kumba
- Velaglucerase alfa mushonga wekugadzira maenzayimu unoshandiswa kudzora zviratidzo zvechirwere cheGaucher.
- Kunyangwe izvi zvisingarapi chirwere chose, zvinobatsira zvikuru kuvandudza hupenyu hwevarwere.
- Kurapwa uku kunopihwa kuburikidza netsinga muchipatara, saka haufanirwe kunetseka nezvekuchengetedzeka kwako.
- Usati watanga kurapwa, udza chiremba wako nezvezvirwere zvako zvese zvinokukanganisa, mimwe mishonga yauri kutora, uye mamiriro ehutano hwako.
- Kana paine migumisiro yakakomba (kunetseka kufema, allergies), zivisa vashandi vekurapa nekukasika.
- Zvakakosha kugara uchitaura nachiremba wako uye kuenda kumakiriniki akarongwa.
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