Fungidzira, mwana wako, kunyanya mukomana mudiki, anotanga kurara kwemazuva akawanda. Kunyangwe ukaedza kumumutsa, anongodzokera kurara. Anorara nguva dzese kunze kwekudya nekuenda kuchimbuzi. Pane amai kana baba vangatya kana vakaona chimwe chinhu chakadai? Zvakaoma kuziva kana iri dambudziko repfungwa kana chimwe chirwere. Nhasi tiri kutaura nezvechirwere chisingawanzoitiki chinokonzera hope dzakanyanya dzinogara kwemazuva akawanda nenzira isingawanzoitiki. Ndiyo Kleine-Levin Syndrome, kana KLS muchidimbu.
Chii chaizvo chinonzi Kleine-Levin Syndrome (KLS)?
Zvichitaurwa zviri nyore, chirwere cheKleine-Levin Syndrome (KLS) chirwere chisingawanzoitiki chekurara. Chinonyanya kuonekwa muvakomana vadiki . 70% yeavo vane chirwere ichi vanowira muchikamu ichi.
Chiratidzo chikuru chechirwere ichi kurara zvakanyanya nguva nenguva. Munguva idzi, murwere anogona kuratidzika seane hutano hwakanaka uye akajairika. Kureva kuti, asina zviratidzo.
Zviratidzo izvi zvine chekuita nechikamu chakakosha cheuropi hwedu. Ndiyo hypothalamus . Chikamu chidiki ichi chinodzora zvinhu zvakawanda zvakaita sekurara kwedu, nzara, nyota, kuda kudya, uye chishuwo chebonde. Zvinotendwa kuti kana paine KLS, mashandiro ehypothalamus iyi anokanganisika kwenguva pfupi.
Pakurapa, KLS inorongwa sechirwere chinonzi hypersomnia, zvinoreva kurara zvakanyanya. Zvisinei, nekuti zvimwe zvezviratidzo zvayo zvakafanana nezvirwere zvepfungwa, dzimwe nguva inoonekwa zvisizvo sechirwere chakadai sekuora mwoyo.
Mashoko akanaka ndeekuti zviratidzo izvi zvinodzikira zvishoma nezvishoma nekukura. Hazviwanzoitiki kuona zviratidzo zveKLS mumunhu ane makore anopfuura makumi mashanu.
Pane chikonzero chaicho cheKLS here?
Vaongorori havasati vakwanisa kutaura kuti chii chinokonzera dambudziko iri, asi pane zvimwe zvavanofungidzira.
Kazhinji, chiitiko chechirwere ichi chinotangira kune chimwe chirwere chiripo, chakadai sedzihwa, furuwenza, kana humwe utachiona .
Pamusoro pezvo, vamwe vaongorori vanotenda kuti kukuvara mumusoro, hutachiona, kana chirwere chemuviri chinokonzerwa nehutachiona zvinogona kunge zviri izvo zvinokonzera. Zvisinei, hachisi chirwere chinogara nhaka. Hazviwanzoitiki kuti vanhu vakawanda vemumhuri imwe chete vabatwe nechirwere ichi.
Ndezvipi zviratidzo zvechirwere cheKLS?
Sezvatakambotaura, muchirwere ichi, zviratidzo zvinoonekwa muchimiro chezviitiko 'zvisingatarisirwi'. Chikamu chimwe chinogona kutora kubva pavhiki kusvika kumwedzi miviri . Paavhareji, panogona kuva nezviitiko zvakadaro pakati pe2 ne12 pagore.
Munguva iyi, unogona kuona shanduko huru dzakawanda mumaitiro emurwere nemuviri wake. Pamusoro pekurara zvakanyanya, zvimwe zviratidzo zvakawanda zvinoonekwa.
| Chiratidzo | Tsananguro |
|---|---|
| Kurara zvakanyanya | Kurara kwemaawa angangoita makumi maviri pazuva, kwete kumuka kunze kwezvinhu zvinokosha zvakaita sekudya kana kuenda kuchimbuzi. |
| Kuchinja kwemaitiro | Kutsamwa pasina chikonzero, kuva nehasha, kusava nehanya nevamwe, kuora mwoyo, uye kuzvidya mwoyo. |
| Kudya zvakanyanya | Kudya zvakawanda kupfuura zvaunodya nguva dzose. Dzimwe nguva ungatonzwa kuda kudya zvinhu zvisingawanzoitiki. |
| Kuita zvepabonde zvisina kunaka | Kuda zvepabonde kwakawedzera zvisingawanzoitiki uye kutaura kana maitiro anowanzoitwa nezvazvo. |
| Kuvhiringidzika uye kutiza kubva muchokwadi | Kunzwa kunonoka, kuvhiringidzika, uye uri mumamiriro ekurota kunyangwe wakamuka. Dzimwe nguva, unogona kutoona zvinhu zvisipo (kufungidzira zvinhu zvisipo). |
| Ndangariro nehanya | Kukanganwa zviitiko, kutadza kuisa pfungwa pane chimwe chinhu. |
Nekuti zviitiko izvi zvinogona kutanga kamwe kamwe, pasina yambiro , vanhu vazhinji vane KLS vanopfeka zvinhu zvakaita sezvishongo zvekurapa zvinoratidza mamiriro avo ezvinhu.
Nzira yekuongorora chirwere ichi? (Kuongororwa)
Kuziva izvi kwakaoma nekuti hapana kuongororwa kweropa kana kuskenwa kwacho. Saka vanachiremba vanoedza kubvisa zvimwe zvirwere zvine zviratidzo zvakafanana. Isu tinozviti 'kubvisa'.
Chirwere cheKLS chinogona kusanganiswa nematambudziko aya:
- Kushungurudzika kana Bipolar Disorder
- Dambudziko rekushaya hope, rimwe dambudziko rehope
- Pfari
- Multiple Sclerosis
- Matumbu europi
- Migraine
- Migumisiro yemimwe mishonga (semuenzaniso, Benzodiazepines) kana mishonga
Saka, chiremba wako achasvika pamhedziso yakarurama nekutaura kwete newe chete, asiwo nevabereki vako nevemhuri yako vakambosangana nechirwere ichi.
Ndeapi marapirwo eKLS?
Hapana mushonga weKLS parizvino. Zvisinei, kune mishonga inogona kubatsira kudzora zviratidzo uye kuwedzera nguva pakati pezviitiko. Chinangwa chikuru chekurapa ndechekuderedza zviratidzo.
Kuti vaderedze hope dzakanyanya, vanachiremba vanogona kunyora mishonga inokurudzira. Semuenzaniso:
- Amphetamines
- Methylphenidate
- Modafinil
Pamusoro pezvo, mushonga we lithium unowanzo shandiswa zvinobudirira kudzora zviratidzo uye kuwedzera nguva pakati pezviitiko. Lithium mushonga unoshandiswawo kurapa zvirwere zvepfungwa. Zvinotendwa kuti mushonga uyu unoshanda nekuda kwekufanana kuripo pakati peKLS nezvimwe zvirwere zvepfungwa.
Asi ichi chinhu chaunofanira kurangarira . Hazvikurudzirwi kushandisa chero ipi zvayo yemishonga iyi usina kupiwa zano nachiremba wako. Chiremba chete ndiye anogona kunyatsoongorora chirwere chacho uye kunyora mushonga wakakodzera muchiyero chakakodzera.
Mharidzo Yekuenda Nayo Kumba
- Kleine-Levin Syndrome (KLS) chirwere chisingawanzoitiki chinonyanya kubata vakomana vadiki uye chinokonzera hope dzakanyanya dzinogara kwemazuva.
- Zviratidzo zvinosanganisira kwete kurara zvakanyanya chete, asiwo kuchinja maitiro, kuda kudya zvakanyanya, uye kuvhiringidzika.
- Ichi hachisi chirwere chepfungwa, asi chirwere chetsinga chinosanganisira hypothalamus yeuropi.
- Kuziva chirwere chacho kwakaoma uye kunoda kubvisa zvimwe zvirwere zvine zviratidzo zvakafanana.
- Kana iwe kana mumwe munhu waunoziva akaona zviratidzo izvi, usavhunduka uye tsvaga rubatsiro kubva kuna chiremba ane hunyanzvi nekukurumidza sezvinobvira.
- Kune mishonga inoshanda yekuderedza zviratidzo, asi inofanira kutorwa chete kana chiremba akurudzira.
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