Wakamboona here chivara chitsvuku-tsvuku pamuviri wemwana wako kana wemuviri wako? Pamwe wakangobata-bata chivara chacho zvinyoro nyoro nemunwe wako, uye kamwe kamwe chivara chacho chakashanduka chikatsvuka, chikatanga kuvava, uye tumapundu tudiki twakaonekwa pamusoro. Kana chiitiko ichi uchichiziva, zvakakosha kuti uzive nezvechirwere chatiri kutaura nezvacho nhasi.
Zvichitaurwa zviri nyore, chii chinonzi Urticaria Pigmentosa?
Urticaria Pigmentosa rudzi rwemapundu anowanikwa paganda. Anonyanya kuonekwa muvana vadiki nevechidiki. Chaizvoizvo imhando yechirwere chinonzi `mastocytosis'.
Zvino ungave uchishamisika kuti `mastocytosis` chii. Zviri nyore kwazvo. ``mast cells`` imhando yakakosha yemasero muimmune system yemuviri wedu. Akafanana nevarindi vemuviri. Kana nekuda kwechimwe chikonzero masero aya e mast akaungana zvakanyanya munzvimbo imwe yeganda, tinoadaidza kuti Urticaria Pigmentosa. Zvisinei, masero aya e mast anogona kuungana kwete muganda chete, asi dzimwe nguva mune dzimwe nhengo dzakadai semapfupa neura. Zvadaro zvinoshanduka kuita chirwere chinonzi ``systemic mastocytosis``. Asi usazvidya moyo, kazhinji, Urticaria Pigmentosa muvana inogumira paganda.
Muchirwere ichi, kana ganda rikaonekwa neruvara rwebrown, rinotsvuka, rinozvimba, rinokwenya, uye rinokwira sekunge rarohwa nemota. Mukurapa, chiratidzo ichi chinonzi "chiratidzo chaDarier."
Sei chimwe chinhu chakadai chichiitika?
Chikonzero chikuru cheizvi i "mast cells" yatakambotaura nezvayo. Idzi imhando yemasero machena eropa anogadzirwa mumongo wedu wemapfupa. Masero aya anowanikwa mumiviri yedu yese, kunyanya patinosangana nenyika yekunze, senge ganda, mapapu, uye ura. Kana chimwe chinhu chakaita sejemusi chikapinda mumuviri, masero aya emast cell anoburitsa kemikari inonzi "histamine" kuti ibatsire kuchengetedza muviri.
Urticaria Pigmentosa inokonzerwa nekuchinja kwemajini kunoita kuti masero aya emuviri aunganire zvakanyanya muganda. Kuchinja kwemajini uku kunowanzoitika mwana achiri mudumbu. Zvisinei, hachisi chinhu chinogara nhaka kubva kuvabereki kuenda kuvana . Chikonzero chaicho chekuchinja uku hachisati chawanikwa.
Kana vanhu vakuru vakabatwa nechirwere ichi, chinogona kutowedzera kuipa. Chinonzi `indolent systemic mastocytosis`. Muchiitiko ichi, mast cells anoungana munzvimbo dzakadai sebone morrow pamwe neganda. Kashoma, chirwere ichi chinogona kukura kuita kenza inonzi `mast cell leukemia`. Asi zvakare, izvi zvinhu zvisingawanzoitiki . 99% yeUrticaria Pigmentosa inowanikwa muvana haisi yakanyanya kuipa.
Ndezvipi zviratidzo zvechirwere ichi?
Chiratidzo chikuru uye chinonyanya kuoneka ndicho chinonzi 'Darier's sign' chatakataura nezvacho. Kureva kuti, mavara ebrown anotsvuka uye anokwenya kana akakwizwa. Pamusoro pezvo, vamwe vanhu vanogonawo kusangana nezviratidzo zvinotevera.
| Chiratidzo | Tsananguro iri nyore |
|---|---|
| Kurova kwemoyo | Kurova kwemoyo kunowedzera sekunge uri kunzwa kutya. |
| Manyoka (kurwadziwa kwemudumbu) | Zvinogona kukonzerwa nekushanda kwemaseru emudumbu mudumbu. |
| Kushambadza | Kutsvuka kamwe kamwe kwechiso nemuviri wepamusoro. |
| Kutadza kufema zvakanaka (Kufema nekufema) | Kurira kwe'chizi-chizi' kana uchifema, kwakafanana nekwevanhu vane asthma. |
| Kufenda | Kurasikirwa nepfungwa nekuda kwekudzika kamwe kamwe kweBP. |
| Musoro | Musoro. |
Vanopfuura 75% yevarwere vane Urticaria Pigmentosa vana vari pasi pemakore gumi. Muvana vazhinji, chirwere ichi chinongogumira paganda uye chinovandudzika nekukura.
Chiremba anoongorora sei izvi?
Kazhinji, chiremba wako anogona kuona chirwere ichi zviri nyore nekutarisa mavara ari paganda rako uye kutarisa chiratidzo chaDarier. Hapana mimwe miedzo inodiwa.
Zvisinei, kana paine kusava nechokwadi chekuti chirwere ichi hachingogumiri paganda chete asi kuti chakakanganisawo dzimwe nhengo dzemuviri, chiremba anogona kukurudzira bvunzo dzinotevera.
- Kuongororwa kweropa (`Kuwanda kweropa`): Dzidza nezvemhando dzakasiyana dzemasero muropa.
- Kuongororwa kweropa neropa: Kunoongorora kana paine enzyme muropa inoburitswa nemasero emuviri.
- Kuongorora huwandu hwemapfupa: Ona kuti mapfupa ako akasimba sei.
- Kuongororwa kwemupfupa: Kunoongorora kana mupfupa uri kugadzira masero ane hutano.
Nzira dzekurapa uye nzira dzekudzivirira chirwere ichi
Mashoko akanaka ndeekuti kuvana vazhinji, Urticaria Pigmentosa inozopera yoga pavanenge vachikura . Hapana mushonga chaiwo wekudzivirira mavanga matsva kuti asaumbe. Mavanga aripo anogona kutora makore kuti anyangarike.
Chero bedzi chirwere ichi chiri cheganda chete, hapana kurapwa kukuru kunowanzo dikanwa. Chiremba wako anogona kukurudzira zvinotevera kuti akubatsire kudzora zviratidzo zvako:
- Mishonga inorwisa mabhakitiriya inonwiwa: Dzivisa kuvaviwa nekuzvimba.
- Mafuta eCorticosteroid: Isa panzvimbo dzinokwenya.
- Cromolyn sodium: Mushonga unopiwa kurapa zviratidzo zvakaita sekurutsa nekuita manyoka.
- EpiPen: Mudziyo unopiwa vanhu vane allergy yakanyanya (anaphylactic reaction) kuti vashandise panguva ye emergency. Havasi vese vanoda izvi.
Zvinhu zvekudzivisa kunyanya
Chinhu chinonyanya kukosha muchirwere ichi ndechekudzivisa zvinhu zvinokonzera zviratidzo, kureva zvinhu zvinokonzera kuti mavara acho akwenye uye atsvuke.
| Mishonga yekudzivirira | Zvimwe zvinhu zvekudzivisa |
|---|---|
| Asipirini | Kurovedza muviri (kunyanya kuoma) |
| Doro | Kukwesha ganda nesimba nematauro |
| Mishonga inouraya marwadzo yakaita semorphine necodeine ('Opiates') | Kugeza mumvura inopisa |
| Thiamine (Vhitamini B1) | Zvinwiwa zvinopisa |
| Quinine (`Quinine` - mushonga wemarariya) | Kupisa zuva zvakanyanya |
| Dextromethorphan (mushonga wekukosora) | Kusangana nechando chakanyanya |
| Mimwe mishonga inonyaradza marwadzo uye madhayi eX-ray | Zvikafu zvinopisa uye zvinonaka |
Zvakakosha: Kana iwe kana mwana wako muchida kunwa mushonga wechimwe chirwere, iva nechokwadi chekuzivisa chiremba wako nezve Urticaria Pigmentosa.
Matambudziko anogona kuitika here?
Kashoma, chirwere ichi chinogona kusvika pakuva `systemic mastocytosis`. Vanhu vakadaro vari panjodzi yakakura yekurwara zvakanyanya kunonzi `anaphylactic shock`, izvo zvinogona kuisa hupenyu panjodzi. Kana ukaona zviratidzo zvakaita sekuoma kufema uye kurasikirwa nepfungwa , unofanira kuenda kuchipatara nekukurumidza .
Zvimwe zvinetso zve systemic mastocytosis zvinosanganisira:
- Osteoporosis: Kupera simba kwemapfupa.
- Cytopenia: Kuderera kwekugadzirwa kwemasero eropa mumuviri.
- Matambudziko echiropa.
- Kenza (kashoma kwazvo).
Zvakare, izvi hazviwanzoitiki. Hazviwanzoitiki kuvana vane Urticaria Pigmentosa.
Mharidzo Yekuenda Nayo Kumba
- Urticaria Pigmentosa chirwere cheganda chinonyanya kubata vana. Hachitapurirani kana kugara nhaka kubva kuvabereki.
- Chiratidzo chikuru ndechekuti kana chivara chebrown chikakwizwa, chinotsvuka, chinozvimba, uye chinokwenya ('chiratidzo chaDarier').
- Usatya zvisina kufanira, sezvo chirwere ichi chichazvigadzirisa chega kuvana vazhinji pavanenge vachikura.
- Nzira yakanakisisa yekugadzirisa chirwere ichi ndeyekurega kudya, mishonga, uye zvimwe zvinhu zvinowedzera zviratidzo.
- Kana iwe kana mwana wako muine chimwe chezviratidzo izvi, iva nechokwadi chekuona chiremba kuti akubatsirei kunyatsoongorora chirwere ichi uye kuti akupe mazano anodiwa.
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