Ngaba wena okanye umntwana wakho ninemeko ebizwa ngokuba yi-PROS? Oogqirha bayibiza ngokuba yi-PIK3CA-Related Overgrowth Spectrum. Ngamafutshane, yimeko apho izicubu kwezinye iindawo zomzimba zikhula ngendlela engaqhelekanga nangokukhawuleza. Yimeko engaqhelekanga, kwaye kunokuba nzima ukuyilawula. Kodwa namhlanje siza kuthetha ngeyeza elinokusetyenziswa ukulinyanga. Lipilisi ebizwa ngokuba yi-Alpelisib. Makhe sijonge ukuba liyintoni eli yeza, lisebenza njani, kwaye yintoni ekufuneka uyilumkele xa ulisebenzisa.
Lithini eli yeza libizwa ngokuba yiAlpelisib?
I-Alpelisib (igama lophawu elithi Vijoice) liyeza elisetyenziselwa ukulawula iimpawu ze-PROS. Kukho iproteni emzimbeni wethu enceda iiseli zikhule kwaye zahlukane. Kubantu abane-PROS, le nkqubo inzima kakhulu. Ngoko ke eli yeza lithintela isenzo seproteni ebangela ukukhula kweeseli ngokukhawuleza. Emva koko ukukhula kwezicubu okungafunekiyo kulawulwa kakhulu. Oku kunceda ukunciphisa iimpawu nokwenza ubomi bube lula.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale amayeza
Ngaphambi kokuba uqale i-Alpelisib, kubaluleke kakhulu ukuthetha nogqirha wakho ngokukhululekileyo ngemeko yakho yempilo. Qiniseka ukuba ubaxelela ngezi zinto ngokukodwa:
- Isifo seswekile: Xelela ugqirha wakho ukuba wena okanye umntu osapho lwakho unesifo seswekile.
- Izifo zemiphunga: Ukuba unayo nayiphi na imeko enxulumene nemiphunga.
- Ii-Allergies: Sixelele ukuba unayo nayiphi na i-allergies kwi-Alpelisib okanye naliphi na elinye iyeza, ukutya, okanye idayi.
- Ukukhulelwa: Kubalulekile ukuxelela ugqirha wakho ukuba ukhulelwe, uzama ukukhulelwa, okanye ukuba iqabane lakho lisenokukhulelwa na.
- Ukuncancisa: Ukuba uncancisa, qiniseka ukuba uyayikhankanya loo nto.
Ngokusekelwe kolu lwazi, ugqirha uya kugqiba ukuba eli yeza lifanelekile na kuwe okanye akunjalo.
Ulisebenzisa njani kanye kanye eli yeza?
Kubaluleke kakhulu ukulandela imiyalelo kagqirha wakho ngqo malunga nendlela yokusebenzisa eli yeza.
- Ezi pilisi mazithathwe ngomlomo. Zithathele kunye nesidlo .
- Ziqhelise ukusela amayeza akho ngexesha elifanayo yonke imihla. Ngale ndlela, awuyi kuyilibala.
- Musa ukuphula okanye ukuhlafuna ipilisi. Yiginye yonke.
- Qhubeka usebenzisa olu nyango de ugqirha wakho akuxelele ukuba uyeke.
Wenza ntoni xa umntu enengxaki yokuginya iipilisi?
Abanye abantu banengxaki yokuginya iipilisi. Kumntu onjalo, ungawathatha amayeza ngale ndlela:
1. Faka iipunipoyi ezi-4 ukuya kwezi-8 (ii-ounces ezi-2 ukuya kwezi-4) zamanzi kwikomityi ecocekileyo.
2. Yongeza iipilisi zakho zamayeza kuyo uze uyishiye malunga nemizuzu emi-5.
3. Emva koko, zityumze kakuhle izilayi ngecephe elicocekileyo.
4. Xuba kakuhle uze usele umxube emva kokuba unyibilikile.
5. Okulandelayo, yongeza ezinye iipunipoyi ezi-2-4 (ii-ounces ezi-1-2) zamanzi kwikomityi enye, hlambulula icephe elisetyenzisiweyo kakuhle, uze usele naloo manzi. Oku kubalulekile ukuze kungabikho chiza lichithwayo.
6. Yenza oku de kungasekho ziqwenga ziseleyo ekomityini.
Kubalulekile: Eli yeza lingamiselwa ngugqirha phantsi kweemeko ezithile, nakubantwana abaneminyaka emi-2 ubudala. Nangona kunjalo, kukho amanyathelo akhethekileyo okhuseleko abandakanyekayo. Ngoko ke, landela imiyalelo kagqirha ngokuchanekileyo.
Kuthekani ukuba ndingayithathanga idosi okanye ndihlanza?
- Ukuba uphoswe yidosi: Ukuba uphoswe yidosi, yithathe ngokukhawuleza ukuba uyakhumbula. Nangona kunjalo, ukuba idlule iiyure ezingaphezu kwe-9 kwixesha lakho elicwangcisiweyo, yitsibe loo dosi ngokupheleleyo. Thatha idosi yakho elandelayo ngexesha elicwangcisiweyo. Ungaze uthathe iidosi ezimbini ngaxeshanye.
- Ukuba uyahlanza: Ukuba uyahlanza emva kokusela iyeza, musa ukuthatha elinye ipilisi. Thatha idosi yakho eqhelekileyo ngexesha elicwangcisiweyo ngosuku olulandelayo.
Amanye amayeza anokusebenza kunye nale mayeza
Amanye amayeza owasebenzisayo anokusebenzisana ne-Alpelisib. Oku kunokunyusa okanye kunciphise ukusebenza kwe-Alpelisib, okanye kunyuse umngcipheko weziphumo ebezingalindelekanga. Ngoko ke xelela ugqirha wakho ngayo nayiphi na kwezi zilandelayo:
- Amanye amayeza asetyenziselwa ukuxhuzula (umz. i-carbamazepine, i-phenobarbital, i-phenytoin)
- I-Rifampin
- I-St. John's wort (esi sisongezelelo semifuno)
- I-Warfarin (i-blood thinner)
Olu luhlu aluphelelanga. Ngoko ke xelela ugqirha wakho ngawo onke amayeza, iivithamini, iimveliso zezityalo, kunye nezongezo ozithathayo. Angakunceda wenze isicwangciso sonyango esikhuselekileyo kuwe.
Izinto ezikhethekileyo ekufuneka uziqaphele xa usebenzisa amayeza
Kufuneka ulumke kancinci malunga notshintsho olusemzimbeni wakho ngelixa usebenzisa eli yeza.
- Bona ugqirha wakho rhoqo: Ugqirha wakho kuya kufuneka akubone rhoqo ukuze abone ukuba unyango lukuchaphazela njani. Uya kuyalela novavanyo lwegazi. Musa ukulibaleka.
- Izifo ezinzulu zesikhumba:Eli yeza linokubangela ukusabela okukhulu kwesikhumba kwabanye abantu. Oku kungenzeka kwiiveki okanye kwiinyanga emva kokuba uqalile iyeza. Xelela ugqirha wakho ngoko nangoko ukuba uvela irhashalala kunye neempawu ezifana nomkhuhlane okanye ukubanda. La marhashalala anokuba bomvu okanye abe mfusa, emva koko amadyungudyungu kwaye ulusu lunokuqala ukuxobuka. Kwakhona, ukuba ubona naluphi na ubomvu kwesikhumba kunye nokudumba kobuso, imilebe, okanye ukudumba kwentamo okanye kwamakhwapha, xelela ugqirha wakho ngoko nangoko.
- Ukuphelelwa ngamanzi emzimbeni: Xelela ugqirha wakho ukuba unesifo sorhudo esinzima, isicaphucaphu, ukuhlanza, okanye ukubila kakhulu. Ukulahleka kolwelo olugqithisileyo emzimbeni kunokuba yingozi ngelixa usebenzisa eli yeza.
- Iswekile ephezulu egazini (iHyperglycemia): Eli yeza linokubangela iswekile ephezulu egazini. Le ngozi iphezulu kubantu abasele benesifo seswekile. Xelela ugqirha wakho ukuba uneempawu ezifana nokunxanwa okungaqhelekanga, ukuchama rhoqo, ukudinwa kakhulu, okanye ukubona izinto ezingacacanga .
- Ukukhulelwa nokuncancisa:
- Ukusela eli yeza ngexesha lokukhulelwa kunokubangela iingxaki ezinkulu ekuzalweni komntwana. Ngoko ke, kufuneka wenze uvavanyo ukuqinisekisa ukuba awukhulelwanga ngaphambi kokuba uqale unyango.
- Kufuneka usebenzise uhlobo lokuthintela ukukhulelwa olusebenza kakuhle kakhulu ngalo lonke ixesha usela ipilisi, kwaye kangangeveki emva kokuthatha idosi yokugqibela .
- Ukuba iqabane lakho liyakwazi ukukhulelwa, kubalulekile ukusebenzisa ikhondom ngexesha lokwabelana ngesondo ngelixa uthatha ipilisi kwaye iveki emva kwedosi yokugqibela.
- Musa ukuncancisa umntwana xa usebenzisa eli yeza kwaye iveki enye emva komthamo wokugqibela.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, i-Alpelisib inokubangela iziphumo ebezingalindelekanga. Ezinye zezi zinokuba yingozi, ngoko ke kubalulekile ukuba uzazi.
| Iziphumo ebezingalindelekanga ekufuneka uzixele kugqirha wakho ngoko nangoko | |
|---|---|
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, amehlo, imilebe, ulwimi, izandla okanye iinyawo, ubunzima bokuginya okanye ukuphefumla. |
| Ubunzima bokuphefumla | Ukukhohlela okomileyo, ukuphefumla nzima, okanye ubunzima bokuphefumla. |
| Iswekile ephezulu egazini (iHyperglycemia) | Ukoma okungaqhelekanga, ukuchama rhoqo, ukudinwa kakhulu, ukubona izinto ezingaqhelekanga. |
| I-Pancreatitis | Intlungu ebuhlungu esiswini (ingakumbi emqolo), intlungu eba mandundu emva kokutya okanye xa uchukumisa isisu, umkhuhlane, isicaphucaphu, ukuhlanza. |
| Izifo ezinzulu zesikhumba | Ubomvu besikhumba, ukudumba, ukuxobuka kwesikhumba (nangaphakathi emlonyeni), umkhuhlane kunye nokudumba kweentsini. |
| Intlungu ebuhlungu yesisu | Intlungu ebuhlungu yesisu ngequbuliso, indle enegazi, umkhuhlane, isicaphucaphu, nokuhlanza. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
|---|---|
| Urhudo | Ulusu olomileyo |
| Ukulahleka kweenwele | Intloko ebuhlungu |
| Izilonda zomlomo okanye zomqala | Intlungu, ukuba bomvu, okanye ukudumba emlonyeni okanye emqaleni. |
Kubalulekile: Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ufumana naziphi na iimpawu ezingaqhelekanga, funa ingcebiso kagqirha.
Wenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba uthathe amayeza amaninzi kakhulu, yiya kwiCandelo loNgxamiseko lwesibhedlele (i-ETU) ngokukhawuleza. Okanye utsalele umnxeba iZiko loLwazi lwePoisons kwiSibhedlele sikaZwelonke saseColombo .
Eli yeza limiselwe wena wedwa. Musa ukwabelana ngalo nabanye abantu nangasiphi na isizathu.
Ugcina kwaye ulahla njani amayeza ngokukhuselekileyo?
- Indawo yokugcina: Gcina amayeza kude nabantwana nezilwanyana zasekhaya . Ubushushu begumbi (phakathi kwama-20-25 degrees Celsius) yeyona ilungileyo. Musa ukusebenzisa amayeza aphelelwe lixesha.
- Ukulahlwa: Buza ugqirha wakho ngeyona ndlela ilungileyo yokulahla amayeza angasetyenziswanga okanye aphelelwe lixesha. Amanye amayeza akufuneki ahlanjwe kwindlu yangasese. Ukuba oko akunakwenzeka, ungazisusa iipilisi ebhotileni, uzixube nento efana nekofu esetyenzisiweyo, umhlaba, okanye inkunkuma yeekati, uze uzifake ebhegini evalwe kakuhle uze uzifake enkunkuma.
Umyalezo Wokuya Ekhaya
- I-Alpelisib liyeza elilawula ukukhula kwezicubu ezingafunekiyo ezibangelwa yimeko ebizwa ngokuba yi-PROS.
- Soloko usela eli yeza njengoko uyalelwe ngugqirha wakho, ngexesha elimiselweyo, kunye nokutya.
- Xelela ugqirha wakho ngazo zonke ezinye iziyobisi kunye nezongezo ozithathayo.
- Ukuba ubona naziphi na iimpawu eziqatha zesikhumba, iimpawu zamanqanaba aphezulu eswekile egazini, okanye ubunzima bokuphefumla, yazisa ugqirha wakho ngoko nangoko.
- Lumka kakhulu ukuze ungakhulelwa ngexesha lonyango nangeveki enye emva konyango. Kwakhona, gwema ukuncancisa ngeli xesha.
- Eli yeza lelakho wedwa. Ungaze wabelane ngalo nabanye.
💬 Comments (0)
Akukho zimvo zithunyelweyo okwangoku. Faka uluvo lwakho apha okokuqala.
Faka uluvo lwakho