Ngaba ukhe waphawula umbala ongaqhelekanga emzimbeni womntwana wakho kwaye ukhathazekile? Mhlawumbi uziva unzima kancinci xa uchukumisa loo ndawo. Usenokucinga ukuba yingxaki yesikhumba edla ngokuvela ebantwaneni, kodwa unokucinga ukuba oku kwahlukile kancinci. Ngamaxesha anje, kubaluleke kakhulu ukuqaphela oku. Namhlanje sithetha ngemeko eyenzeka ebantwaneni, kodwa abantu abaninzi abakayiva loo nto, kodwa kufanelekile ukuyazi.
Yintoni i-Juvenile Localized Scleroderma?
Ngamafutshane, le yimeko yokuzikhusela komzimba apho ulusu lomntwana luba lukhuni kwaye luqine ngendlela engaqhelekanga. Elinye igama lale nto yi-`(Morphea)`.
Igama elithi 'Scleroderma' ngokwalo lenziwe ngamagama amabini esiGrike. Igama elithi "sclera" lithetha 'ukuqina', kwaye elithi "derma" lithetha 'ulusu'. Ngoko ke intsingiselo yalo ithi "ulusu oluqinileyo" . Igama elithi "localized" lithetha ukuba licacile , oko kuthetha ukuba lichaphazela kuphela iindawo ezincinci zomzimba.
Kulungile, masibone ukuba oku kwenzeka njani. Sonke sinenkqubo yokuzikhusela emizimbeni yethu esikhusela kwizifo. Siyibiza ngokuba yinkqubo yokuzikhusela. Kodwa kule meko, inkqubo yokuzikhusela yomntwana iqala ngempazamo ukuhlasela ulusu lwakhe . Ukuphendula olu hlaselo, ulusu luqala ukudumba (ukudumba). Oku kudumba kubangela ukuba iiseli eluswini zivelise iproteni eninzi ebizwa ngokuba yi-collagen.
Cinga ngayo njengesilonda esiphuma emva kokwenzakala. Kodwa okwenzekayo apha kukuba ulusu luqina njengesilonda ngaphandle kokwenzakala. Oku sikubiza ngokuba yi-'(fibrosis)'. Ungakubona oku emzimbeni womntwana wakho njengebala elitshintshileyo.
Ziziphi iintlobo eziphambili zesi sifo?
Kukho iintlobo ezahlukeneyo zale meko, iLocalized Scleroderma. Uhlobo ngalunye luneempawu ezahluke kancinci.
| Uhlobo lwesifo | Inkcazo |
|---|---|
| I-Circumscribed okanye i-Plaque Morphea | Olu lolona hlobo luqhelekileyo. Lubonakala njengeplaque enye okanye ezingaphezulu ezingqukuva okanye ezimile okweqanda. Ezi zichaphazela kakhulu ulusu. Ngamanye amaxesha, izicubu ezingaphantsi kolusu nazo zinokuchaphazeleka kancinci. |
| I-Linear Morphea | Kolu hlobo, amabala avela ngendlela efana nomgca. Kubonakala ngathi umntu uzobe umgca onomgca. La magama angabonakala ezingalweni nasemilenzeni yomntwana. Ingozi yoku kukuba oku kuqina kunokuchaphazela izihlunu namathambo angaphantsi, okwenza kube nzima ukugoba nokulungisa loo malungu. Oku kunokuchaphazela nokukhula komntwana. |
| I-Morphea eqhelekileyo | Kule meko, kuvela amabala amakhulu angaphezu kwamane kwiindawo ezingaphezu kwezibini zomzimba. Ahlala ebonakala rhoqo esiqwini nasemilenzeni. La mabala anokudibana aze abe makhulu. |
| I-Morphea enzulu | Olu lolona hlobo lunzima nolunqabileyo. Luchaphazela izicubu ezingaphantsi kolusu, njengemisipha namathambo. Umntwana usenokuva iintlungu ezilolu hlobo. |
Zithini iimpawu zesi sifo?
Kwimeko enjalo, iimpawu ziyatshintsha kancinci kancinci ngokuhamba kwexesha. Asikuko oko ukubonayo ekuqaleni, kodwa koko ukubonayo emva kwexesha elithile. Makhe sibone ukuba la mabala atshintsha njani.
- Inqanaba lokuqala: Okokuqala, kuvela ibala elibomvu-mfusa eluswini lomntwana. Ngeli xesha, ulusu alukaqini.
- Inqanaba eliphakathi: Emva kweentsuku ezimbalwa, la mabala ayaqina aze avuvuke kancinci. Umbindi webala uba mhlophe okanye mthubi ofana newax. I-halo epinki okanye emfusa inokubonakala ijikeleze.
- Kamva: Ekuhambeni kwexesha, oku kudumba nokuqina kuya kuphela, kwaye ulusu kwezo ndawo lunokuba mdaka okanye lube mhlophe kwaye lulahlekelwe ngumbala walo.
Ezinye iimpawu ezibonwa kwiimeko ezinzima
Kwezinye iimeko ezinzima, le meko ichaphazela nezicwili ezingaphantsi kolusu, ngoko ke nezinye iimpawu zinokuvela.
- Intlungu kunye nokungonwabi.
- Ukushukuma okulinganiselweyo kwamalungu kunye nemisipha.
- Ukuba la mabala avela ebusweni, angabangela iingxaki ngamazinyo okanye ekuboneni.
Nangona la mabala esenokuphela xa enyangwa, ngamanye amaxesha anokuphinda avuke.
Yintoni unobangela wale meko?
Enyanisweni, unobangela ochanekileyo wale meko (iScleroderma) awukafunyanwa . Nangona kunjalo, oogqirha bakholelwa ukuba ibangelwa kukudibana kwezinto zemfuza kunye neemeko ezingqongileyo.
Oku kuthetha ukuba abanye abantwana banesifo sofuzo sokuba nolu hlobo lokusabela kwenkqubo yomzimba yokuzikhusela. Emva koko, into ethile kwindawo engqongileyo, njengosulelo okanye ukwenzakala kwesikhumba, inokubangela esi sifo. Kodwa esi asisosifo esosulelayo .
Gqirha, uyixilonga njani le nto?
Xa usisa umntwana wakho kugqirha, into yokuqala aza kuyenza kukuhlolisisa umntwana ngononophelo aze akubuze ngeempawu zakhe. Ngokuqhelekileyo, esi sifo sinokubonwa ngokubonakala kwamabala eluswini.
Nangona kunjalo, ukuqinisekisa ukuxilongwa nokufumanisa ubunzulu besifo, ngamanye amaxesha kunokwenziwa uvavanyo oluninzi.
- I-biopsy yolusu: Oku kuquka ukuthatha iqhekeza elincinci kakhulu lolusu kwi-mole uze ulihlolisise nge-microscope. Oku kukuvumela ukuba ubone ngokuthe ngqo ukuba loluphi utshintsho olwenzekileyo kwiiseli zolusu.
- I-MRI scan: Oku kusetyenziswa ukubona ukuba ukuqina kwesikhumba kuyichaphazele kangakanani na ulusu kunye nokuba ichaphazele na imisipha namathambo angaphantsi.
Zithini iindlela zonyango zoku?
Injongo ephambili yonyango kukulawula ukudumba, ukuthintela ukusasazeka kwesi sifo, kunye nokunciphisa ukuqina kolusu. Ekubeni uhlobo lwesi sifo luhluka kumntwana ngamnye, unyango lukwaxhomekeke kuloo mntwana.
| Indlela yonyango | Inkcazo |
|---|---|
| Ii-Corticosteroids | La ngamayeza anamandla alawula ukudumba. Anganikwa njengeekhrimu ezisetyenziswa eluswini, iipilisi ezithathwa ngomlomo, okanye iinaliti emthanjeni. |
| Ezinye iikhrimu ezisetyenziswa apha ekhaya | Izithambiso ezifana ne (Calcipotriene, Tacrolimus) zilawula kwaye zinciphise ukusebenza kwenkqubo yomzimba yokuzikhusela kuloo ndawo. |
| Iiarhente zokunciphisa umzimba | Ukuba isifo sibi kakhulu, amayeza acinezela inkqubo yomzimba yokuzikhusela (afana neMethotrexate, iMycophenolate mofetil) ayanikwa. |
| Unyango olukhanyayo (iPhototherapy) | Unyango olusebenzisa imisebe ye-ultraviolet (UV) ukuthambisa amabala amnyama eluswini. Nangona kunjalo, ugqirha ucebisa oku ngononophelo olukhulu kuba kunokubangela iziphumo ebezingalindelekanga eluswini. |
| Ulungiso lwenyama | Oku kunceda kakhulu ukuqinisa izihlunu, ukugcina amalungu esebenza kakuhle, kunye nokunyusa ukuthamba kolusu. |
Khumbula, iziphumo zingcono kakhulu ukuba esi sifo sifunyenwe kwaye sinyangwa kwangethuba . Ngoko ke ukuba ubona naluphi na utshintsho eluswini lomntwana wakho, bonana nogqirha ngokukhawuleza.
Njengomzali ungamnceda njani umntwana wakho?
Kukho izinto ezimbalwa ezilula onokuzenza ukukhusela ulusu lomntwana wakho.
- Kuphephe ukusebenzisa isepha kunye neesepha ezinevumba elinamandla.
- Sebenzisa rhoqo izinto zokuthambisa ezithambileyo ezifanelekileyo kulusu olubuthathaka.
- Xa uhlamba, sebenzisa amanzi afudumeleyo endaweni yamanzi ashushu.
- Ukusebenzisa i-humidifier ukugcina umswakama emoyeni ekhaya kunokunceda ukuthintela ukoma kolusu.
- Xa uphuma, qiniseka ukuba unxiba i-sunscreen ukuze uzikhusele elangeni.
Le meko ibuchaphazela njani ubomi bomntwana?
Usenokoyika ukuva ngale nto, kodwa uvuyo lokwenene kukuba abantwana abanale meko banokuphila ubomi obuqhelekileyo nobonwabisayo .
- Ubude bobomi: Esi sifo asichaphazeli ubomi bomntwana nangayiphi na indlela. Musa ukukhathazeka ngaso.
- Ubomi bemihla ngemihla: Akukho mqobo kumntwana ukuya esikolweni, ukudlala, ukudlala imidlalo, nokuthatha inxaxheba kweminye imisebenzi njengesiqhelo. Enyanisweni, ukuzilolonga kunceda ukuqinisa izihlunu.
- Ukutya: Akudingi kutya okukhethekileyo. Ukutya okunesondlo nokulinganiselayo kwanele.
- Impilo Yengqondo:Ngamanye amaxesha, umntwana unokuziva engonwabanga okanye eneentloni eluntwini ngenxa yotshintsho olubonakalayo eluswini lwakhe. Ngelo xesha, kubaluleke kakhulu ukuba umqonde, umnike ukuzithemba, kwaye umchazele ukuba oku akulona ityala lakhe.
Umyalezo Wokuya Ekhaya
- I-Juvenile Localized Scleroderma yimeko engaqhelekanga kodwa engeyongozi kakhulu ebangela ukuqina kolusu ebantwaneni.
- Oku kungenxa yokungasebenzi kakuhle kwenkqubo yethu yokuzikhusela komzimba. Esi asisosifo esosulelayo.
- Ukuba ubona ibala elimnyama eluswini lwakho elitshintshe umbala, kubaluleke kakhulu ukubona ugqirha ngokukhawuleza ngaphandle kokulibazisa.
- Le meko ingalawulwa kakuhle ngonyango olufanelekileyo, kwaye ayichaphazeli ubomi bomntwana.
- Uthando, inkxaso, kunye nenkuthazo yabazali zizinto ezinamandla amakhulu kumntwana ukuze aphile ngempumelelo nale meko.
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