Ngaba ulwimi lomntwana wakho lukhulu kunomlomo wakhe? Masithethe nge-'Macroglossia'!

Ngaba wakha waqaphela okanye weva ukuba abanye abantu, ingakumbi abantwana abancinci, baneelwimi ezinkulu kunemilomo yabo? Ngamanye amaxesha ungabona ukuba ulwimi luphuma emlonyeni. Oku sikubiza ngokuba yi-'Macroglossia' kwisayensi yezonyango. Eli gama lisenokuvakala ngathi yinto enkulu, kodwa ungoyiki. Namhlanje siza kuthetha ngale nto ngendlela elula onokuyiqonda.

Ngoko ke, yintoni kanye kanye 'iMacroglossia'? Uyazi njani?

Ngamafutshane, i-'Macroglossia' lulwimi olukhulu ngokungaqhelekanga xa kuthelekiswa nobukhulu bomlomo. Ixhaphake kakhulu kubantwana abancinci, kodwa inokubakho nakubantu abadala. Kwiimeko ezininzi, izalwa nayo. Oko kukuthi, inxulunyaniswa neemeko ezithile zemfuza ezifana ne-'Beckwith-Wiedemann syndrome' okanye i-'Down syndrome'. Kwakhona, i-'Macroglossia' inokwenzeka ngenxa yeentlobo ezithile zomhlaza, usulelo oluqatha, okanye nasemva koko.

Usenokuba ucinga, ‘Ulwimi lomntwana wam lubonakala lukhulu kancinci, andazi nokuba naye unalo olu.’ Ngoko ke, qaphela ezi mpawu:

• Ulwimi oluphuma emlonyeni ngalo lonke ixesha: Olu luphawu oluphambili nolucacileyo. Kungathi akukho ndawo yaneleyo yokugcina ulwimi emlonyeni.
• Ubunzima bokuphefumla:
• Ngamanye amaxesha unokuva isandi esikhulu nesiphezulu xa uphefumla. Kufana nokuba kukho umntu obetha umlozi. Kwezonyango, oku sikubiza ngokuba yi-'stridor'.
• Okanye, ungaphefumla ngesandi sokurhona , ingakumbi xa ulele. Oku kubizwa ngokuba yi-'stertor'.
• Ubunzima bokuginya (dysphagia): Ulwimi olukhulu lunokwenza kube nzima ukubamba, ukuhlafuna, nokuginya ukutya ngokufanelekileyo. Iintsana ezincinci zinokuba nobunzima bokuncanca ubisi lwebele okanye ukusela ebhotileni. Zisenokuziva ngathi ziyakrwitshwa ngelixa zisitya.
• Ukuvuza amathe: Xa ulwimi lukhulu kakhulu ukuba lungawuvali umlomo kakuhle, amathe anokuphuma rhoqo. Ungaqaphela ukuba umqamelo umanzi ngamathe.
• Ubunzima bokuthetha: Kunokuba nzima ukubiza amagama nokuthetha ngokucacileyo. Oku kungenxa yokuba ulwimi sisitho esinceda kakhulu kwintetho. Xa ungakwazi ukubiza oonobumba kakuhle, intetho yakho inokuba yinto engacacanga.

Into ebalulekileyo ekufuneka uyikhumbule kukuba ukuba umntwana wakho unenye okanye ngaphezulu kwezi mpawu, isenokuba yiMacroglossia. Nangona kunjalo, kubalulekile ukukhumbula ukuba ezi mpawu zisenokuba yinxalenye yengxaki yempilo engabonakaliyo .

Usenokuba uzibuza ukuba le yimeko eqhelekileyo na. Enyanisweni, i-'Macroglossia' yimeko engaqhelekanga kakhulu. Kunzima ukutsho ukuba bangaphi abantu abanayo. Kuba idla ngokubonakala njengophawu lwesinye isifo.

Kutheni le nto i-'Macroglossia' isenzeka? Zithini izizathu?

Kukho izizathu ezininzi ze-macroglossia. Kunqabile kakhulu ukuba abanye abantu bazalwa benolwimi olukhulu ngaphandle kwezinye iingxaki zempilo. Nangona kunjalo, kuqheleke kakhulu ukuba kwenzeke njengophawu lwesifo esithile esingabonakaliyo. Ezinye zezi meko zinokuba zezokuzalwa (i-genetic), ngelixa ezinye zinokubangelwa yimeko yezonyango ekhula kamva ebomini. Ezinye iindlela zotyando kunye nonyango lwezonyango zinokubangela i-macroglossia.

Makhe sibone ukuba zeziphi ezi zizathu.

Zithini iimeko zokuzalwa (zemfuza)?

Le meko, ebizwa ngokuba yi-"Macroglossia," inxulunyaniswa nezifo ezininzi zemfuza. Nazi ezinye zazo:

• I-Beckwith-Wiedemann syndrome: Le yimeko echaphazela ukukhula kwabantwana. Kule meko, ubungakanani bomzimba womntwana kunye nezitho zangaphakathi ziba nkulu kunesiqhelo. Kwakhona, abantwana abanale meko basengozini enkulu yokufumana umhlaza othile wabantwana. Okubaluleke kakhulu, malunga ne-90% yabantwana abane-Beckwith-Wiedemann syndrome bane-macroglossia, oko kuthetha ulwimi olukhulu.
• I-Hurler/Hunter syndrome - mucopolysaccharidosis: Eli liqela lezifo ezichaphazela indlela umzimba wethu oqhekeza ngayo iimolekyuli zeswekile. Kule meko, ulwimi lunokukhula.
• I-Down syndrome: Usenokuba ukhe weva ngale nto. Abantwana abane-Down syndrome bazalwa bene-chromosome eyongezelelweyo. Oku kunokubangela utshintsho ekuphuhlisweni kwengqondo nomzimba wabo, nto leyo ekhokelela kwimingeni yomzimba neyengqondo. I-Macroglossia ikwaluphawu oluqhelekileyo lwe-Down syndrome.

Zithini iimeko ezifunyenweyo?

Ngamanye amaxesha, ulwimi lunokukhula ngenxa yezinye iimeko zonyango ezingabonakaliyo xa umntwana ezalwa. Umzekelo, lunokubangelwa zizifo ze-metabolic okanye ze-endocrine, iimeko ezifana ne-hypothyroidism, okanye usulelo olufana ne-diphtheria.

Nazi ezinye zeemeko ezinjalo:

• I-Amyloidosis: Esi sisifo esinxulumene neproteni. Kule meko, le proteni ifakwa kwizicwili nakwizitho zomzimba, nto leyo ethintela ukuba zingasebenzi kakuhle. Uphawu oluphambili lwe-Amyloidosis emlonyeni yiMacroglossia.
• I-Hypothyroidism:Le yimeko eqhelekileyo kakhulu. Okwenzekayo apha kukuba i-thyroid gland yakho ayivelisi i-hormone ye-thyroid eyaneleyo kwaye iyikhuphe egazini. Oku kuyayicothisa imetabolism yakho. I-Hypothyroidism yimbangela eqhelekileyo ye-macroglossia, ingakumbi ebantwaneni.
• I-Acromegaly: Le yimeko engaqhelekanga. Okwenzekayo apha kukuba umzimba wakho uvelisa i-growth hormone eninzi kakhulu. Abantu abane-acromegaly baneelwimi ezinkulu ngokungaqhelekanga, imihlathi, izandla kunye neenyawo.
• I-Diphtheria: Olu luhlobo losulelo olusulelayo. Oku kunokubangela ukuba ulwimi ludumbe.

Ziziphi iintlobo zeethumba ezibangela i-macroglossia?

I-Macroglossia inokuba luphawu lwezinye izimila ezingenabungozi nezinomhlaza.

• I-Lymphangioma: Le yithumba elingengomhlaza elikhula kwinkqubo ye-lymphatic. Linokubangela ukuba kubekho amaqhuma azele lulwelo kwi-mucous membranes ngaphakathi emlonyeni, nto leyo enokubangela ukuba ulwimi lukhule.
• I-Hemangioma: Ezi zi-tumor ezingezizo zomhlaza . Zenziwe ngemithambo yegazi.
• I-Lymphoma: Lo ngumhlaza ochaphazela inkqubo ye-lymphatic.

Oogqirha bayixilonga njani ngokuchanekileyo le meko?

Xa wena okanye umntwana wakho nibona ugqirha, into yokuqala abaya kuyenza kukuhlolwa komzimba . Oku kuya kuquka uvavanyo olucokisekileyo lolwimi, intloko, nentamo. Emva koko, banokwenza iimvavanyo ezininzi ukuze bafumanise i-macroglossia kunye nazo naziphi na iimeko ezinokubangela loo nto.

Ezinye zezo mvavanyo zezi:

• `I-CT Scan` (I-Computed Tomography - I-CT scan): Oku kuquka ukusebenzisa ii-X-ray kunye nekhompyutha ukuthatha imifanekiso ecacileyo enamacala amathathu (3D) yomlomo wakho, intloko, kunye nentamo yomntwana wakho. Oku kunokukunika umbono ongcono wento engaphakathi.
• Iskeni seMagnetic Resonance Imaging (MRI): Olu luvavanyo olungenabuhlungu olusebenzisa imagnethi enkulu, amaza erediyo, kunye nekhompyutha ukwenza imifanekiso ecacileyo yamalungu kunye nezakhiwo ezingaphakathi emzimbeni.

Ngokusekelwe kulwazi olufunyenwe kwezi mvavanyo, oogqirha bafumanisa unobangela wemeko 'yeMacroglossia' kunye nonyango olufanelekileyo ngayo.

Yintoni enokwenziwa ukunyanga le meko ibizwa ngokuba yi-'Macroglossia'?

Ngamanye amaxesha, ngokumangalisayo, abanye abantwana abane-macroglossia ebuntwaneni babo, njengoko bekhula, amathambo abo obuso ayakhula, nto leyo evumela ukuba ulwimi lungene emlonyeni, kwaye le meko iyaphucuka ngokwayo. Njengesuti efanela umzimba, umlomo nawo uyakhula ukuze ulingane nolwimi.

Nangona kunjalo, oku akusoloko kunjalo. Xa oogqirha benyanga i-macroglossia, baqala ngokuchonga baze banyange imeko ebangela oko. Kuphela emva koko banyanga iimpawu ze-macroglossia.

Unyango lwe-macroglossia lungabandakanya:

• Amayeza: Amayeza anjenge-corticosteroids anokunikwa ukunciphisa ukudumba kolwimi.
• Unyango lwe-Orthodontic: Ukuba ulwimi olukhulu luchaphazele indawo yamazinyo, olu nyango lunokunceda ekulungiseni loo meko.
• Utyando: Kwezinye iimeko, ingakumbi ukuba kukho iingxaki ezinzima ezifana nobunzima bokuphefumla okanye ukuginya, utyando lunokufuneka ukuze kuncitshiswe ubukhulu bolwimi. Nangona kunjalo, malunga ne-10% kuphela yabantu abane-macroglossia abafuna utyando.

Ngaba ndingayinciphisa ingozi yomntwana wam yokuba ne-macroglossia?

Ixesha elininzi, i-macroglossia izalwa nayo, oko kuthetha ukuba inxulumene neemeko zemfuza, ngoko ke akukho nto sinokuyenza ukuyithintela. Nangona kunjalo, ngamanye amaxesha inokubangelwa zizifo ezosulelayo, ngoko ke ukuzikhusela kwiintsholongwane ezinjalo kunokunciphisa lo mngcipheko ngandlela ithile. Umzekelo, kubalulekile ukugonyelwa izifo ezifana ne-diphtheria.

Ukuba umntwana wam uneMacroglossia, ndimele ndilindele ntoni?

Ngoku siyazi ukuba i-macroglossia idla ngokuba luphawu lwengxaki efihlakeleyo, nokuba yimeko yokuzalwa okanye esinye isifo. Ngoko ke, eyona nto ibalulekileyo kukuchonga nokunyanga loo meko ifihlakeleyo.

Ukuba umntwana wakho une-macroglossia, usenokuba sele efumana unyango lwengxaki ebangele oko. Eyona nto iphambili kuwe kukulandela eso sicwangciso sonyango. Thetha nogqirha wakho ngale nto. Uza kukuxelela into omawuyilindele kunye nexesha lokumbona kwakhona.

Ndingayibuza yiphi imibuzo ugqirha?

Ukuba umntwana wakho une-macroglossia, mhlawumbi unemibuzo emininzi. Kutheni oku kwenzeke kwaye yintoni onokuyilindela kunyango. Nazi ezinye zemibuzo onokuzibuza ugqirha wakho:

• Yintoni kanye kanye i-'Macroglossia'?
• Oku kuza kumchaphazela njani umntwana wam? Ngaba kuza kumchaphazela ubomi bemihla ngemihla?
• Kutheni umntwana wam waba ne-'Macroglossia'? Yintoni unobangela oyintloko?
• Loluphi unyango olucebisayo? Luphumelela kangakanani olo nyango?
• Luza kuthatha ixesha elingakanani unyango? Zeziphi iziphumo ebezingalindelekanga endinokuzilindela?
• Ngaba ikho indlela ekhethekileyo endifanele ndimnyamekele ngayo umntwana wam ekhaya? (umz. ukumnika ukutya, ukumlalisa)

Ungaze woyike ukubuza le mibuzo. Kubaluleke kakhulu ukususa onke amathandabuzo akho. Ugqirha uza kukuchazela yonke into.

Okokugqibela, izinto ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Macroglossia, okanye ulwimi olukhulu, isenokuvakala ngathi iyoyikisa kancinci. Nangona kunjalo, idla ngokuba luphawu lwengxaki ethile yempilo engabonakaliyo. Eyona nto ibalulekileyo kukungaphakuzeli kwaye ufune uncedo lwezonyango ngokukhawuleza.

• Ukuba ucinga ukuba ulwimi lomntwana wakho lukhulu ngokungaqhelekanga, okanye ukuba unezinye zeempawu esizixubushileyo, bonana nogqirha wabantwana okanye ugqirha wendlebe, impumlo, nomqala (ENT).
• I-Macroglossia inokulawulwa ngokuchonga unobangela oyintloko kunye nokunyanga ngokufanelekileyo.
• Kwabanye abantwana, le meko isenokuphucuka ngokwayo njengoko bekhula.
• Kubaluleke kakhulu ukulandela imiyalelo yoogqirha ngononophelo nokunika umntwana inkxaso nothando aludingayo.

Khumbula, awuwedwa. Kukho abanye abazali abajongene neemeko ezifanayo. Ngolwalathiso olufanelekileyo lwezonyango kunye nokuzinikela kwakho, unokufumana iziphumo ezilungileyo kumntwana wakho.

"I-Macroglossia, Ulwimi olukhulu, Ulwimi lwabantwana, Ubunzima bokuphefumla, Ubunzima bokuginya, I-Macroglossia, i-Beckwith-Wiedemann syndrome, i-Down syndrome, Ulwimi olukhulu, Izifo zolwimi