Ngaba wena okanye umntu omaziyo uxelelwe ngugqirha ukuba unesifo sikaFabry? Esi sisifo esingaqhelekanga, esibangelwa lufuzo. Iyeza elithile elisetyenziselwa ukulawula iimpawu zale meko libizwa ngokuba yiMigalastat. Ngoko ke namhlanje, masithethe ngale mithi, indlela echanekileyo yokuyisebenzisa, amanyathelo okhuseleko ekufuneka uwathathe, kunye nazo zonke iziphumo ebezingalindelekanga, ngendlela elula, njengomhlobo olungileyo.
Luhlobo luni lonyango iMigalastat?
Ngamafutshane, iMigalastat liyeza elisetyenziselwa ukunyanga isifo sikaFabry. Likwafumaneka kwimarike phantsi kwegama elithi Galafold. Apha kufuneka ukhumbule ingongoma ebaluleke kakhulu.
Olu asilonyango lwesifo sikaFabry. Nangona kunjalo, eli yeza linokunceda ukulawula umonakalo obangelwe sisifo kwaye lilawule iimpawu, likuvumela ukuba uphile ubomi obutofotofo nobuqhelekileyo.
Eli yeza lingasetyenziselwa nezinye iimeko ezingezizo isifo sikaFabry. Ukuba unemibuzo malunga noku, kungcono ukuthetha nogqirha wakho.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Ngaphambi kokuba unike iMigalastat, kubalulekile ukuba ugqirha wakho azi kakuhle imeko yakho yempilo. Ngoko ke, ukuba kukho nayiphi na kwezi zilandelayo ezikukhathazayo, qiniseka ukuba uxelela ugqirha wakho ngayo.
- Ukuba unesifo sezintso: Ukuba unesifo esinxulumene nezintso, kubaluleke kakhulu ukusityhila.
- Ukuba une-allergies kuyo nayiphi na into: Sixelele ukuba une-allergies, kungekuphela nje kwi-Migalastat, kodwa nakweyiphi na enye iyeza, ukutya, umbala wokutya, okanye isithinteli.
- Ukuba ukhulelwe okanye uzama ukukhulelwa: Kubalulekile ukwazisa ugqirha wakho ngale nto, njengoko kufuneka ulumke ngakumbi xa usebenzisa naliphi na iyeza ngeli xesha.
- Ukuba ungumama oncancisayo: Xoxa nogqirha wakho ngale nto kuba amayeza anokuchaphazela umntwana wakho ngobisi lwebele.
Lifanele lisetyenziswe njani iyeza ngokuchanekileyo?
Ukuze ufumane iziphumo eziphezulu kwiyeza, kubaluleke kakhulu ukulisebenzisa ngokuchanekileyo njengoko kuchaziwe.
- Indlela yokuthatha: Sela eli yeza ngomlomo neglasi yamanzi.
- Landela icebiso lezonyango: Landela imiyalelo enikwe ngugqirha wakho okanye ekwiphakheji yamayeza kanye njengoko kuyalelwe.
- Isisu Esingenanto: Eli linqaku elibaluleke kakhulu . Eli yeza lifanele lithathwe esiswini esingenanto.Uze ungatyanga. Ukuchaneka, akufanele uphinde utye emva kweeyure ezimbini emva kokutya okanye emva kweeyure ezimbini emva kokuthatha iyeza. Akukho ngxaki ekuseleni ulwelo olucacileyo olufana namanzi ngeli xesha. Ungaze ulisebenzise eli yeza kunye nokutya.
- Musa ukuphula okanye ukutyumza ipilisi: Musa ukuyisika, ukuyityumza, okanye ukuyihlafuna le capsule yeyeza. Yiginye yonke.
- Thatha amayeza ngexesha elifanelekileyo: Thatha amayeza ngamaxesha athile amiselweyo. Kuphephe ukuthatha amayeza angaphezu kwalawo acetywayo ngugqirha.
- Musa ukuyeka ukuthatha amayeza ngaphandle kwengcebiso kagqirha: Musa ukuyeka ukuwathatha amayeza ngaphandle kwengcebiso kagqirha wakho.
Xa unika abantwana
Kufuneka kuqatshelwe ngokukodwa xa kunikwa abantwana abancinci eli yeza. Ngoko ke, thetha nogqirha wezingane ngalo kwaye ulandele icebiso lakhe.
Umthamo ogqithisileyo
Ukuba ucinga ukuba uthathe amayeza amaninzi kakhulu, ungoyiki kwaye ngoko nangoko fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo . Okanye, yiya kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane ngokukhawuleza.
Ndingenza ntoni xa ndiphoswa lidosi leyeza?
Kubaluleke kakhulu ukusela eli yeza njengoko kumiselwe, ngaphandle kokutsiba nayiphi na idosi. Nangona kunjalo, ukuba uphoswa yidosi, ungoyiki. Nxibelelana nogqirha wakho ukuze akunike iingcebiso malunga nento omawuyenze ngokulandelayo. Musa ukuqikelela.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengakweyiphi na iyeza, abanye abantu banokufumana iziphumo ebezingalindelekanga xa besebenzisa iMigalastat. Nangona uninzi lwazo lungekho nzulu, kukho iimeko apho kufuneka ulumke kakhulu.
| Uhlobo lwesiphumo esibi | Iimpawu |
|---|---|
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha wakho ngoko nangoko | |
| Iimpendulo ze-Allergic | Iimpawu ezinje ngokurhawuzelela kwesikhumba, ukurhawuzelela okanye ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi. |
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ukuba ziyaqhubeka okanye ziyakhathaza | |
| Iingxaki zenkqubo yokugaya ukutya | Urhudo, iintlungu zesisu, isicaphucaphu. |
| Ezinye iingxaki eziqhelekileyo | Intloko ebuhlungu. |
Kubalulekile: Olu luhlu lusenokungabi nazo zonke iziphumo ebezingalindelekanga. Ukuba ufumana naziphi na iimpawu ezingaqhelekanga ezingadweliswanga apha, nxibelelana nogqirha wakho ukuze ufumane ingcebiso kwezonyango.
Lifanele ligcinwe njani iyeza?
- Gcina kude nabantwana: Gcina amayeza kwindawo ekhuselekileyo kude nabantwana abancinci .
- Ubushushu: Gcina kubushushu begumbi (phakathi kwe-15 kunye ne-30 degrees Celsius).
- Amayeza aphelelwe lixesha: Lahla amayeza aphelelwe lixesha.
Eli nqaku lishwankathelo nje leyeza iMigalastat. Ukuba unemibuzo engaphezulu malunga noku, nceda uxoxe ngayo ngokukhululekileyo nogqirha wakho kwaye usombulule naziphi na iingxaki.
Umyalezo Wokuya Ekhaya
- I-Migalastat liyeza elisetyenziselwa ukulawula isifo sikaFabry, kodwa alilonyango.
- Eli yeza kufuneka lithathwe esiswini esingenanto (iiyure ezi-2 ngaphambi okanye iiyure ezi-2 emva kokutya).
- Ngaphambi kokuba usebenzise iyeza, yazisa ugqirha wakho ngesifo sakho sezintso, i-allergies, kunye nawo onke amanye amayeza owasebenzisayo.
- Ukuba ufumana naziphi na iimpawu zokunganyamezelani komzimba ezifana nokurhawuzelela okanye ukudumba, funa ingcebiso kagqirha ngoko nangoko.
- Kuphephe ukuyeka amayeza okanye ukutshintsha umthamo ngaphandle kwengcebiso kagqirha wakho.
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