Xa ugqirha wakho ekuxelela ukuba unesifo esibizwa ngokuba yi-PBC (Primary Biliary Cholangitis), mhlawumbi unemibuzo emininzi engqondweni yakho. Kuqhelekile ukuzibuza, "Luhlobo luni lwesifo esi? Kuza kwenzeka ntoni ebomini bam? Ndenze ntoni ngoku?" Kungokwemvelo ukuziva usoyika kwaye uxhalabile xa ufunda ukuba esi sisifo esinganyangekiyo nesihlala ixesha elide. Kodwa ungakhathazeki, akufuneki uhambe wedwa kule ndlela. Ukuba usiqonda kakuhle esi sifo kwaye wakha inkqubo yokuxhasa enokukunceda, ngokuqinisekileyo ungaphila ubomi obomeleleyo nobonwabisayo nale meko. Makhe sibone indlela yokufumana amandla nolwazi oludingayo kolu hambo.
Isikhokelo sakho sokuqala nesilungileyo: Ugqirha wakho
Xa ufunda ngesi sifo, umntu onokuphendula imibuzo yakho ngcono ngugqirha wakho. Kungoko ke, kubaluleke kakhulu ukwakha ubudlelwane obuhle nobuqinileyo neqela lakho lezonyango.
Cinga ngayo, mingaphi imibuzo onayo ngesi sifo, uhlobo lwaso, indlela esichaphazela ngayo ubomi bakho, amayeza ekufuneka uwathathe, ukutya, umthambo? Thetha nogqirha wakho ngazo zonke ezi zinto ngaphandle koloyiko nangokucacileyo. Musa ukuzityeshela njengeengxaki ezincinci. Mamela yonke into esengqondweni yakho.
Kuya kuba lula kuwe ukuba wenza ezi zinto:
- Bhala phantsi imibuzo yakho: Ngaphambi kokuba uye kugqirha, bhala phantsi yonke imibuzo ofuna ukuyibuza encwadini. Ngamanye amaxesha xa sibona ugqirha, siyalibala into ebesifuna ukuyibuza. Xa uyibhala ngolu hlobo, awuyi kuphoswa nayinye yaloo mibuzo.
- Bhala amanqaku: Bhala phantsi yonke into ethethwa ngugqirha, njengemiyalelo akunika yona, iinkcukacha zamayeza, kunye novavanyo ekufuneka ulwenze. Kuya kukunceda ukuba uyihlolisise xa ufika ekhaya.
- Thetha: Ukuba kukho into ongayiqondiyo, ungoyiki ukubuza kwakhona. "Gqirha, andiyiqondanga into oyithethileyo. Ungaphinda uyichaze ngendlela elula?"
Ngokuthatha inxaxheba ngokukhutheleyo kwinkqubo yakho yonyango ngale ndlela, uya kukwazi ukujongana nesi sifo ngolawulo oluthe kratya , ngaphandle koloyiko olungeyomfuneko.
Lumka kakhulu xa ukhangela ulwazi kwi-Intanethi!
Kule mihla, indawo yokuqala esijonga kuyo xa sifuna ulwazi malunga nantoni na yi-intanethi. I-intanethi inokuba yindawo entle yokufumana ulwazi malunga ne-PBC. Nangona kunjalo, ifana nekrele elibukhali kabini. Ayilulo lonke ulwazi olukwi-intanethi oluchanekileyo. Ngamanye amaxesha, ulwazi olungachanekanga nolukhohlisayo lunokukudida kwaye lonakalise impilo yakho.
Musa ukushiyela yonke into ku-"Gqr. Google." Ngaphambi kokuba wenze isigqibo sokugqibela malunga naluphi na ulwazi olufumana kwi-intanethi, qiniseka ukuba uthetha nogqirha wakho ngalo.
Ezinye iiwebhusayithi zinokupapasha iintengiso zobuxoki ezifana nokuthi "Eli yeza liza kunyanga isifo sakho kwiintsuku ezisixhenxe." Okanye, zinokukukhohlisa ngeendlela ezahlukeneyo zonyango ezingakhange zingqinwe ngokwesayensi. Musa ukukhohliswa zezi.
Ngoko ke, singayifumana njani iwebhusayithi ethembekileyo?
Ukuze ufumane ulwazi olufanelekileyo nolunokuthenjwa, kufuneka ujonge iiwebhusayithi eziqhutywa ziiarhente zempilo zikarhulumente, izibhedlele ezidumileyo, kunye nezikolo zonyango zaseyunivesithi. Kukwakho nolwazi oluninzi oluxabisekileyo kwiwebhusayithi zamaqela aphesheya axhasa izigulane. Umzekelo, imibutho efana ne-American Liver Foundation kunye ne-PBCers Organisation inokukhankanywa.
Xa ujonga ulwazi kwiwebhusayithi, zibuze le mibuzo ukuze ubone ukuba lunokuthenjwa na.
| Ingxaki ekufuneka iqwalaselwe | Umbuzo ekufuneka uzibuze wona |
|---|---|
| Iinjongo zorhwebo | Ingaba le webhusayithi izama ukuthengisa naziphi na iimveliso okanye iinkonzo? Ngaba ixhaswa yiyo nayiphi na intlangano eyenza inzuzo? |
| Ucalucalulo | Ngaba le webhusayithi igxininisa kuphela izimvo zomntu othile okanye zeqela elithile? |
| Isiqinisekiso sezonyango | Ngaba olu lwazi luhlolisiswe yingcali yezonyango? Ngaba olu lwazi luqinisekisiwe zizifundo zesayensi? |
| Uxanduva kunye nobunini | Ngaba ungamchaza ngokucacileyo umnini wale webhusayithi kwaye ngoobani oogqirha abahlola ulwazi? |
| Umbono olungeleleneyo | Ngaba le webhusayithi inika ulwazi olulinganiselayo oluvela kwiimbono ezahlukeneyo ngesihloko esithile? |
Ukwazisa usapho lwakho kunye nabahlobo bakho nako kuyanceda kakhulu.
Xa uphila nesi sifo esifana nesi ixesha elide, inkxaso yosapho lwakho kunye nabahlobo abasondeleyo yeyona nto inokukunceda kakhulu. Kodwa ukuze bakuncede, nabo kufuneka baqaphele esi sifo.
Thetha nabo ngokukhululekileyo ngemeko yakho nendlela oziva ngayo. Bachazele ukuba i-PBC ayisuleli kwaye ingayichaphazela njani indlela ophila ngayo. Kuya kuba lula kubo ukukunceda xa beqonda ukuba unokuziva udiniwe ngezinye iintsuku okanye ungakwazi ukutya ukutya okuthile. Kukwangumbono olungileyo ukuza nomyeni wakho, umfazi wakho, okanye ilungu losapho olusondeleyo nawe xa usiya kugqirha.
Ungalibali ngempilo yengqondo kolu hambo.
Kuqhelekile ukuba lusizi, uxhalabile, kwaye ngamanye amaxesha ude ube nomsindo xa ufumanisa ukuba unesifo esifana ne-PBC. Musa ukuzama ukujongana nale mvakalelo wedwa. Ukuthetha ngeemvakalelo zakho nomntu omthembayo kunokuba ngumthombo omkhulu wentuthuzelo. Lo unokuba liqabane lakho, umhlobo osenyongweni, okanye ilungu losapho.
Xa uphila nesifo esifana nesi , impilo yengqondo ibaluleke njengempilo yomzimba . Awunakuba sempilweni ngaphandle kwentliziyo eyonwabileyo.
Ukuba uvakalelwa kukuba unengxaki yokulawula ixhala lakho kunye noxinzelelo, thetha nogqirha wakho ngaloo nto. Ukuba kuyimfuneko, uza kukuthumela kwingcali yezengqondo ukuze akuncede. Akukho sizathu sokuba neentloni okanye ukoyika oko.
Umyalezo Wokuya Ekhaya
- Nangona ukuxilongwa nge-PBC kunokuba ngumceli mngeni otshintsha ubomi, ngolwazi olufanelekileyo kunye nenkxaso, ungaqhubeka ngamandla.
- Ugqirha wakho kufuneka abe ngumthombo wakho oyintloko nothembekileyo wolwazi malunga nemeko yakho yempilo.
- Lumka kakhulu xa ufuna ulwazi kwi-intanethi. Sebenzisa iiwebhusayithi ezithembekileyo kuphela kwaye uxoxe ngolwazi olufumanayo nogqirha wakho.
- Usapho lwakho nabahlobo bakho ngabona bantu banamandla kuwe. Thetha nabo ngokukhululekileyo ngemeko yakho kwaye ucele inkxaso yabo.
- Ukugcina impilo yakho yomzimba kubaluleke njengempilo yakho yengqondo. Musa ukuthandabuza ukufuna uncedo lweengcali ukuba kuyimfuneko.
- Khumbula, awuwedwa kolu hambo!
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