Xa sijonga isisu somntwana osandul’ ukuzalwa, sidla ngokusibona sigudile kwaye sigcwele, akunjalo? Kodwa khawucinge, ngamanye amaxesha, ngokungalindelekanga, sibona ukuba ulusu esiswini somntwana lushwabene kakhulu, njenge-prune. Ukubona oku, njengomama okanye utata, ungaziva usoyika kwaye wothukile. "Owu, kwenzeke ntoni kumntwana wam?" Unokucinga. Esi sisifo esingaqhelekanga ngokwenene. Namhlanje sithetha ngesimo esingaqhelekanga esinokubangela oku, esibizwa ngokuba yiPrune Belly Syndrome . Ungakhathazeki, siza kuthetha ngayo yonke into ngokulula nangokucacileyo.
Ngamafutshane, yintoni iPrune Belly Syndrome?
I-Prune Belly Syndrome yimeko engaqhelekanga yokuzalwa. Igama layo livela kuba ulusu lwesisu somntwana lufana ne-prune. Ineempawu ezintathu eziphambili. Yiyo loo nto ngamanye amaxesha ibizwa ngokuba yi-'Triad Syndrome'. Ikwabizwa ngokuba yi-'Eagle-Barrett Syndrome' ukuhlonipha oogqirha abayifumeneyo.
Ezi mpawu zintathu ziphambili zezi:
1. Izihlunu zesisu ezibuthathaka okanye ezingekhoyo: Isisu sethu sinomqolo wemisipha esinceda ukugcina imo yaso kwaye sikhusele amalungu angaphakathi, njengamathumbu. Kwiintsana ezinesi sifo, ezi zihlunu azikhuli kakuhle. Ngamanye amaxesha aziveli konke konke. Yiyo loo nto ulusu lwesisu lubonakala lushwabene kwaye lugobile.
2. Amasende angaphumi: Kumntwana oyinkwenkwe, amasende ahlala engaphandle komzimba kwi-scrotum. Nangona kunjalo, kubantwana abanesifo esinjalo, amasende ahlala ngaphakathi esiswini. Akakahla.
3. Iingxaki zenkqubo yomchamo: Le yeyona nxalenye inzima kakhulu yengxaki. Izintso zomntwana, isinyi, kunye nemibhobho edibanisa zona (ii-ureters) azikakhuli ngokupheleleyo. Oku kunokubangela iingxaki ezinkulu zokuchama.
Ukongeza kwezi mpawu zintathu ziphambili, ezinye iintsana zinokuba neengxaki ezahlukeneyo zentliziyo, imiphunga, amathumbu kunye nenkqubo yamathambo.
Ixhaphake kangakanani le meko?
Le yimeko engaqhelekanga kakhulu. Ichaphazela malunga nenye kwiintsana ezisandul’ ukuzalwa ezingama-30,000 ukuya kuma-40,000. Okumangalisayo kukuba ama-95% ezi meko axelwa kubafana . Kungenxa yokuba ingxaki yamasende angabonakaliyo esithethe ngayo ngaphambili ichaphazela kuphela abafana.
Ziziphi iimpawu ezinokukunceda uqonde ukuba umntwana wakho unale meko?
Kuthiwa iPrune Belly Syndrome ineempawu ezingaphezu kwama-50. Nangona kunjalo, ezi mpawu zinokuhluka ukusuka kusana ukuya kolunye. Ezinye iintsana zinokuchaphazeleka kakhulu, ngelixa ezinye zisenokungabi nzima kangako. Ugqirha wakho uza kumhlola umntwana wakho aze enze uvavanyo olufunekayo ukuqinisekisa oku ngokuqinisekileyo.
Makhe sijonge le theyibhile ingezantsi ukuze sibone ukuba zeziphi iimpawu eziqhelekileyo.
| Uphawu | Ingcaciso elula |
|---|---|
| Ulusu olunemibimbi esiswini | Ngenxa yobuthathaka okanye ukungabikho kwezihlunu zesisu, ulusu lunokugoba luze lubonakale lushwabene njengeediliya. |
| Ukuba nesisu esikhulu | Ngenxa yokuba kungekho zihlunu esiswini, izinto ezifana namathumbu ngaphakathi zibonakala ngathi ziyatyhalelwa ngaphandle. Ngamanye amaxesha, amathumbu ajijekileyo anokubonakala ngesikhumba esincinci. |
| Amasende Angahlalwanga | Kwiintsana ezingamaduna, i-testicle enye okanye zombini zihlala ngaphakathi esiswini ngaphandle kokungena kwi-scrotum. |
| Iingxaki zenkqubo yomchamo | Iingxaki ezinzulu ezifana nokwanda kwesinyi kunye nezintso, ukuvaleka kwe-urethra, kunye ne-vesicoureteral reflux. |
| Iingxaki zenkqubo yokugaya ukutya | Iingxaki zamathumbu kunye neemeko ezifana nokuqhinwa. |
| Utshintsho kwinkqubo yamathambo | Iimeko ezinje nge-scoliosis okanye i-clubfoot. |
| Iingxaki zentliziyo | Isifo sentliziyo esizalwa naso okanye utshintsho oluthile kwisakhiwo sentliziyo. |
Kutheni oku kusenzeka kubantwana abancinci?
Inyaniso kukuba, oogqirha abakafumani unobangela ochanekileyo woku, kodwa kukho iingcamango ezininzi.
Abanye oogqirha bakholelwa ukuba le meko ibangelwa kukungaqheleki kwesinyi okuvela ngelixa umntwana ekhula esibelekweni. Oko kukuthi, xa umchamo uvalekile, wonke umchamo uqokelelana kwisinyi uze udumbe kakhulu. Njengoko isinyi sikhula ngale ndlela, siphazamisana nokukhula kwezihlunu zesisu.
Abanye bakholelwa ukuba le ngxaki yenzeka kuba izihlunu zesisu azikhuli kakuhle kwasekuqaleni. Abanye bathi isenokuba ibangelwa yimfuza. Le meko ikwabikwe nakwabantwana abazalwa nabo. Kwakhona, abanye abantwana abaneengxaki ze-chromosome ezifana ne-'Trisomy 18 (Edwards Syndrome)' kunye ne-'Trisomy 21 (Down Syndrome)' nabo bahlangabezana nale Prune Belly Syndrome.
Ziziphi iingxaki ezinokwenzeka ngenxa yale meko?
Ubunzima bePrune Belly Syndrome buxhomekeke kwezinye iingxaki ezinxulumene noko, ingakumbi ubungakanani bomonakalo kwinkqubo yomchamo.
Iingxaki eziqhelekileyo zezi:
- Ukuqhinwa: Izihlunu zesisu ezibuthathaka zenza kube nzima ukutyhala ngamandla ukuze kuphume indle.
- Ukukhubazeka kwamathambo: izinto ezinje ngokuphuma kwesinqe, ukukhubazeka kwezandla, iminwe, okanye iinzwane.
- Usulelo oluqhelekileyo lwendlela yomchamo: Usulelo lunokwenzeka lula kuba umchamo awukhutshwa kakuhle. Olu sulelo lunokonakalisa izintso.
- Ukungazali: Ukungaphumeleli kwamasende ukwehla kunokuchaphazela amandla okufumana abantwana kwixesha elizayo. Kukwakho nomngcipheko womhlaza wamasende.
- I-Pulmonary Hypoplasia: Imiphunga isenokungaphuhli kakuhle ngenxa yokungabikho kwesithuba esibelekweni.
- Ukungasebenzi kakuhle kwezintso okungapheliyo: Le yeyona ngxaki inzima. Iingxaki eziqhubekayo kwinkqubo yomchamo zinokubangela ukungasebenzi kakuhle kwezintso kancinci kancinci.
Ifunyaniswa njani le meko?
Kwiimeko ezininzi, le meko inokubonwa kwangethuba ngexesha lokukhulelwa kwakho nge-ultrasound scan ye-fetal.Oogqirha baya kukukrokrela oku ukuba iskeni ibonisa ukuba isinyi somntwana sikhulu kakhulu okanye izintso zidumbile. Esi skeni sinokubonisa nokuba umntwana akanazo izihlunu zesisu.
Emva kokuba umntwana ezelwe, ugqirha unokukukrokrela oku ngokusekelwe kwinkangeleko yangaphandle yomntwana, oko kukuthi, inkangeleko yesisu esishwabeneyo. Emva koko, kwenziwa uvavanyo olwahlukeneyo ukuqinisekisa isifo nokufumanisa ubungakanani bomonakalo wamalungu omzimba.
Zeziphi iimvavanyo ezenziwayo?
- Uvavanyo lwegazi: Funda ngokusebenza kwezintso.
- I-Ultrasound Scan: Jonga imeko yamalungu angaphakathi esiswini, njengezintso kunye nesinyi.
- I-X-reyi: Ukujonga naziphi na iingxaki kwinkqubo yamathambo.
- I-CT Scan okanye i-MRI Scan: Fumana umfanekiso ocacileyo noneenkcukacha ngakumbi ngezitho zomzimba.
- I-VCUG (i-Voiding Cystourethrogram): Olu luvavanyo olukhethekileyo lwe-X-ray. Oku kubandakanya ukufaka ulwelo olukhethekileyo kwisinyi nokujonga ulwelo oluhamba ngalo njengoko umntwana echama. Oku kunceda ekuqinisekiseni ukuba umchamo ubuyela umva na (reflux).
Zithini iindlela zonyango zoku?
Unyango lwePrune Belly Syndrome luyahluka kusana ngalunye. Kuba ayilulo lonke usana oluchaphazeleka ngendlela efanayo. Ngokwesiqhelo, iqela leengcali, ezinje ngeengcali zabantwana, iingcali zomchamo wabantwana, kunye neengcali ze-nephrologists, zisebenzisana ukuphuhlisa isicwangciso sonyango esingcono kumntwana wakho.
Xa ukhetha unyango, ezi zinto ziyaqwalaselwa:
- Impilo yomntwana iyonke.
- Ubudala bomntwana.
- Ubunzima besifo kunye namalungu omzimba awonakeleyo.
- Ukukwazi komntwana ukunyamezela utyando kunye nonyango.
- Izimvo neminqweno yenu njengabazali.
Ezinye iintsana zisenokufuna ukuqhubeka zithatha amayeza okubulala iintsholongwane ukuthintela usulelo lomchamo ukuba iimpawu zazo azikho mbi kangako.
Nangona kunjalo, iintsana ezininzi kuya kufuneka zenze utyando oluninzi. Olu tyando lwenzelwe ukuqinisa udonga lwesisu, ukwehlisa amasende, nokulungisa iingxaki kwinkqubo yomchamo.
Kukho iintlobo ezininzi eziphambili zotyando ezenziwayo:
- Utyando lweVesicostomy: Oku kuquka ukwenza umngxuma omncinci kwisisu esisezantsi ungene kwisinyi. Oku kuvumela umchamo ukuba uphume ngqo. Oku kunokunciphisa umonakalo kwizintso.
- I-Orchiopexy: Oku kuquka ukuhambisa amasende ngotyando, akwisisu, ehle aye kwi-scrotum aze alungiswe.
- I-Cystoplasty: Olu lutyando oluntsonkothileyo kancinci. Lubandakanya ukwakha kwakhona isinyi ngokupheleleyo.
Kwezinye iimeko ezinzima, ukuba izintso azisebenzi ngokupheleleyo,Kungafuneka nokufakelwa izintso.
Liza kuba njani ikamva laba bantwana?
Ndiyazi ukuba oku kunzima ukukuva. Kodwa kubalulekile ukwazi inyaniso. Ubomi baba bantwana buxhomekeke kubukhulu besifo. Ngelishwa, phakathi kwe-10% kunye ne-25% yeentsana ziyafa esibelekweni okanye zife ngenxa yeengxaki kwiiveki zokuqala zokuzalwa.
Kodwa, kukho icala elihle. Malunga nama-40% abantwana abane-Prune Belly Syndrome, nangona beneengxaki ezincinci kwinkqubo yabo yomchamo, bagcina izintso zisebenza kakuhle kwaye baphila ubomi obuqhelekileyo.
Abanye abangama-30% banokufuna ukufakelwa izintso ngaxa lithile ebomini babo. Okubaluleke kakhulu, nabani na onesi sifo kufuneka abe phantsi kweliso likagqirha ubomi bakhe bonke. Ukuhlolwa rhoqo kwenkqubo yomchamo kubalulekile ukunciphisa nawuphi na umonakalo kwizintso.
Ungamnyamekela njani umntwana wakho kwaye nini ixesha lokubonana nogqirha?
Ukuba umntwana wakho ufunyaniswe enePrune Belly Syndrome, eyona nto ibalulekileyo kukufumana ugqirha onamava onolwazi ngale meko. Uza kukuchazela yonke into aze akubonise indlela yokunyamekela umntwana wakho.
Izifo zoMchamo (UTIs) ziyingozi kakhulu kwaba bantwana. Ngoko ke, ukuba ubona nophawu oluncinci losulelo lomchamo, kufuneka ufowunele ugqirha wakho ngoko nangoko.
| Iimpawu ekufuneka uziqwalasele xa kukho usulelo lomchamo | |
|---|---|
| Umkhuhlane okanye ukubanda | Ukudinga rhoqo ukuchama |
| Kukho imfuneko engxamisekileyo yokuchama, kodwa kuphuma inani elincinci kuphela. | Ukutsha okanye intlungu xa uchama |
| Intlungu yesisu esisezantsi okanye emqolo | Umchamo omnyama okanye onamafu |
| Ivumba elibi nelinamandla elivela kumchamo | Igazi kumchamo |
Ukuba ubona naziphi na kwezi mpawu, musa ukulibazisa. Funa ingcebiso kagqirha ngoko nangoko. Kwakhona, kubalulekile ukuya kwiikliniki ngamaxesha amiselweyo kwaye umntwana wakho ahlolwe, njengoko ugqirha ecebisa.
Umyalezo Wokuya Ekhaya
- Isifo sesisu iPrune sisifo esingaqhelekanga esibangelwa kukuzalwa esibangela izihlunu zesisu ezibuthathaka, amasende angakhuli kakuhle, kunye neengxaki zomchamo.
- Eli gama livela kwinto yokuba ulusu lwesisu somntwana lubonakala lushwabene njengeediliya.
- Le meko inokubonwa kwangethuba xa kuskenwa ngexesha lokukhulelwa.
- Iindlela zonyango ziyahluka ngokuxhomekeke kwimeko yomntwana, kwaye kufuneka utyando oluninzi rhoqo.
- Usulelo lomchamo luyingozi kakhulu kwaba bantwana. Ukuba ubona nophawu oluncinci losulelo, bonana nogqirha ngokukhawuleza.
- Aba bantwana bafuna ukubekwa esweni nokhathalelo lobomi bonke ngoogqirha abaziingcali. Xa belawulwa ngokufanelekileyo, abantwana abaninzi banokuphila ubomi obuhle.
💬 Comments (0)
Akukho zimvo zithunyelweyo okwangoku. Faka uluvo lwakho apha okokuqala.
Faka uluvo lwakho