Uma wena noma othandekayo wakho ehlushwa yi-Beta Thalassemia, cishe uyazi ukuthi kukhathaza kangakanani ukumpontshelwa igazi njalo. Kodwa-ke, ngokuthuthuka kwesayensi yezokwelapha, sekunezelelwe ithemba elisha kulesi simo. Namuhla, sizokhuluma ngenye yezindlela ezintsha zokwelashwa ezithuthuke kakhulu. Igama layo yi-Betibeglogene Autotemcel. Yaziwa kakhulu ngegama lomkhiqizo i-ZYNTEGLO.
Kalula nje, iyini le Betibeglogene Autotemcel?
Lokhu akuyona iphilisi noma i-capsule evamile. Lokhu kuyindlela yokwelapha izakhi zofuzo eqondile kakhulu nethuthukisiwe. Umgomo oyinhloko walokhu ukusiza umzimba womuntu one-beta thalassemia ukukhiqiza amaseli egazi abomvu anempilo futhi asebenza kahle.
Ake sithi kukhona iphutha elincane embonini elenza amangqamuzana abomvu egazi emzimbeni wethu. Yilokho okwenzekayo ku-thalassemia. Lokhu kwelashwa okusha kusiza ukulungisa lelo phutha. Uma kuphumelele, kunganciphisa kakhulu isidingo sokumpontshelwa igazi njalo. Yeka impumuzo lokho okungaba yiyo, akunjalo?
Lokhu kwelashwa kunikezwa kanjani?
Le ndlela yokwelapha iyinkimbinkimbi kancane. Ngakho-ke, lokhu akuyona into engenziwa ekhaya. Lokhu kumele kwenziwe esibhedlela, ngaphansi kokuqondisa kwethimba lodokotela abangochwepheshe.
Into ebaluleke kakhulu ukuthi lokhu kwelashwa kwenziwe ngamaseli akho . Yebo, amangqamuzana omzimba athathwe kuwe aguqulwa elabhorethri kusetshenziswa inqubo ekhethekile, enikezwa ikhono lokukhiqiza amangqamuzana egazi abomvu anempilo, bese ephinde afakwe emzimbeni wakho ngomthambo. Lobu ubuchwepheshe obumangalisayo ngempela.
Lokhu kwelashwa kunganikezwa izingane ezingaphezu kweminyaka engu-4 ubudala. Kodwa-ke, kudinga ukulungiswa okukhethekile kanye nezinyathelo zokuphepha. Udokotela wakho uzokuchazela lokhu.
Okubaluleke kakhulu: Lokhu ukwelashwa okwenzelwe wena ngqo. Ngakho-ke, akunakukwabelwana ngakho nanoma ubani omunye noma kunikezwe omunye umuntu nganoma yisiphi isizathu.
Izinto okudingeka uzitshele udokotela wakho ngaphambi kokuqala ukwelashwa
Ngaphambi kokuqala ukwelashwa okuthuthukile kangaka, kubaluleke kakhulu ukuthi udokotela wakho azi umlando wakho wezempilo ophelele. Uma kukhona okulandelayo okusebenzayo kuwe, qiniseka ukuthi umtshela ngakho.
- Uma unesifo esifana ne-HIV noma i-AIDS .
- Uma usanda kuthola umuthi wokugoma , noma kulindeleke ukuthi uwuthole maduze (ikakhulukazi umuthi wokugoma oqukethe amagciwane aphilayo).
- Uma une -allergy kulo muthi, thatha eminye imithi, ukudla, amadayi, noma izithasiselo.
- Uma ukhulelwe noma uzama ukukhulelwa . (Lokhu kubaluleke kakhulu!)
- Uma ungumama oncelisayo .
Izinto okufanele uziqaphele kakhulu ngesikhathi sokwelashwa
Ithimba lakho lezokwelapha lizokuqapha eduze ngenkathi uthatha lo muthi nangemva kwalokho, futhi kubalulekile ukuthi uqaphele lezi zinto.
Ukukhulelwa kanye nokulawula ukubeletha
Lolu udaba oludinga ukucophelela okukhulu.
- Kwabesifazane: Ukukhulelwa ngenkathi uthatha lo muthi kungabangela ukukhubazeka okukhulu kokuzalwa. Ngakho-ke, kuzokwenziwa ukuhlolwa ukuqinisekisa ukuthi awukhulelwe ngaphambi kokuqala ukwelashwa. Kumelwe usebenzise uhlobo lokuvimbela inzalo, njengekhondomu noma i-diaphragm, ngesikhathi sokwelashwa kanye nezinyanga eziyisithupha ngemva kokuyeka ukwelashwa.
- Kwabesilisa: Indoda ethatha lolu hlobo lokwelashwa kumele isebenzise ikhondomu uma ilala nowesifazane okwazi ukukhulelwa umntwana. Kufanele uqhubeke nokusebenzisa lolu hlobo lokuvikela izinyanga eziyisithupha ngemuva kokuyeka ukwelashwa. Lokhu kungenxa yokuthi uma umlingani wakho ekhulelwa, kunengozi yokulimaza ingane engakazalwa. Uma usola ukuthi umlingani wakho ukhulelwe, tshela udokotela wakho ngokushesha.
Amanye amaphuzu abalulekile
- Gwema ukunikela ngegazi: Unganikeli ngegazi ngenkathi uthatha lokwelashwa noma nganoma yisiphi isikhathi ngemva kokuyeka.
- Ingozi yomdlavuza: Lokhu kwelashwa kungandisa kancane ingozi yakho yokuthola izinhlobo ezithile zomdlavuza. Ungakhathazeki ngalokhu, kodwa vula amehlo futhi uqaphele le ngozi ngokukhuluma nethimba lakho lezokwelapha.
- Eminye imithi: Tshela udokotela wakho ngayo yonke imithi oyithathayo (kufaka phakathi amavithamini kanye nemithi yamakhambi). Ikakhulukazi, imithi elandelayo ingase ihlangane nalokhu kwelashwa.
- Isici esikhuthaza ikholoni ye-granulocyte
- Imithi ye-iron chelator
- Imithi yokugomela igciwane ephilayo
Yimiphi imiphumela emibi engaba khona?
Njenganoma yikuphi ukwelashwa, imiphumela emibi ingenzeka. Eminye yayo kufanele ibikwe ngokushesha, kanti eminye ngokuvamile ayibi kakhulu. Lokhu kungaqondwa kahle kusukela kuthebula elingezansi.
| Ukuhlukaniswa kwemiphumela emibi | |
|---|---|
| 🚨 Izinto okufanele uzibike eqenjini lakho lezokwelapha ngokushesha | |
| Izimpawu zokungezwani komzimba | Ukuqubuka kwesikhumba, ukulunywa, ukuvuvukala kobuso, izindebe, ulimi noma umphimbo. |
| Izimpawu zokuphuma kwegazi | Indle emnyama noma enegazi, ukuhlanza igazi elifana nekhofi eligayiwe, umchamo obomvu/onsundu omnyama, amabala amancane abomvu/onsomi esikhumbeni, kanye nokulunywa noma ukuphuma kwegazi okungachazeki. |
| Izimpawu zokutheleleka | Umkhuhlane, ukubanda, ukukhwehlela, umphimbo obuhlungu. |
| 🙂 Izinto okufanele uzitshele udokotela wakho uma ngokuvamile zingabi zimbi kakhulu, kodwa ziqhubeka | |
| Eminye imiphumela emibi |
|
Uma usola ukuthi uthathe umuthi ngephutha, ubike ngokushesha e- Emergency Treatment Unit (ETU) yesibhedlela. Ungaxhumana ne-National Poisons Information Centre e-Colombo National Hospital ukuze uthole iseluleko ngezimo ezinjalo.
Umlayezo Wokuya Nawe Ekhaya
- I-Betibeglogene Autotemcel iyindlela yokwelapha izakhi zofuzo ethuthuke kakhulu ye-beta thalassemia enganciphisa isidingo sokumpontshelwa igazi njalo.
- Lokhu kwelashwa kwenziwa ngamaseli akho futhi kunikezwa yithimba lodokotela abangochwepheshe esibhedlela.
- Ngaphambi kokuqala ukwelashwa, kufanele utshele udokotela wakho ngalo lonke ulwazi lwakho lwezempilo, imithi oyiphuzayo, kanye nokungezwani komzimba.
- Kubalulekile ukuthi abesifazane nabesilisa balandele izindlela zokuvimbela inzalo eziqinile ngesikhathi sokwelashwa kanye nezinyanga eziyisithupha ngemuva kwalokho.
- Ungalokothi unikele ngegazi ngemva kokuthola lolu hlobo lokwelashwa.
- Ungesabi ukukhuluma ngokukhululekile nodokotela wakho nganoma yimiphi imiphumela emibi noma izinkinga.
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