Ingabe wena noma othile emndenini wakho unesifo esibizwa ngokuthi i-Phenylketonuria? Uma kunjalo, udokotela wakho kungenzeka ukuthi ukunike umuthi obizwa ngokuthi i-Pegvaliase. Njengoba lo umuthi ukhethekile, kuvamile ukuba nemibuzo nokukhathazeka ngawo. Ngakho-ke namuhla, ake sixoxe ngalo muthi nezinto okufanele uziqaphele uma uwusebenzisa.
Uyini lo muthi wokugomela i-Pegvaliase?
Kalula nje, i-Phenylketonuria (PKU) yisimo lapho imizimba yethu ingakwazi ukugaya kahle i-amino acid ebizwa ngokuthi i-phenylalanine. Lokhu kuyinto evame ukutholakala ekudleni okucebile ngamaprotheni esikudlayo. Uma le phenylalanine iqoqana emzimbeni womuntu one-PKU, iqoqana egazini futhi ingabangela umonakalo, ikakhulukazi ebuchosheni, ngokuhamba kwesikhathi.
Ngakho-ke, lokho okwenziwa yilo mjovo we-Pegvaliase ukunciphisa amazinga aleyo phenylalanine engafuneki, eningi egazini. Ngokuvamile itholakala ngaphansi kwegama lomkhiqizo i-Palynziq.
Kodwa kubalulekile ukukhumbula lokhu: Lokhu akulona ikhambi lazo zonke izifo. Kodwa-ke, kungasiza ekulawuleni amazinga ayingozi egazini futhi kunciphise umonakalo obangelwa yilesi sifo.
Izinto okudingeka uzitshele udokotela wakho ngaphambi kokuthatha umuthi
Ngaphambi kokuqala lo muthi, kubaluleke kakhulu ukukhuluma nodokotela wakho ngalezi zinto ngokucacile nangokwethembeka. Ungafihli lutho.
- Sitshele uma une-allergies ku-Pegvaliase noma kunoma yimuphi omunye umuthi, ukudla, noma udayi.
- Uma ukhulelwe noma unethemba lokukhulelwa, qiniseka ukuthi uyakusho lokho.
- Uma ungumama oncelisayo, yazisa udokotela wakho ngalokho futhi.
Ngokusekelwe kulolu lwazi, kuzoba lula ngodokotela ukunquma ukuthi lo muthi ukulungele yini noma cha.
Ungawusebenzisa kanjani umuthi wokugoma ngendlela efanele?
Lona umjovo ongaphansi kwesikhumba. Udokotela wakho noma umhlengikazi uzokunikeza imiyalelo ecacile yokuthi ungawunikeza kanjani ekhaya. Kubaluleke kakhulu ukulandela le miyalelo ngqo.
- Thatha umthamo ofanele, ngesikhathi esifanele: Thatha umuthi kuphela uma futhi ngenani elifanele njengoba udokotela wakho ekuyalile. Ungalokothi uthathe okungaphezu kwenani elibekiwe.
- Lahla izinaliti nezinaliti ngendlela efanele: Ungalokothi ulahle izinaliti nezinaliti ezisetshenzisiwe emgqonyeni kadoti. Kunalokho, zibeke esitsheni esikhethekile sezinto zokuhlaba. Uma ungenayo, cela udokotela wakho akunike yona.
- Incwajana yolwazi olukhethekile (i-MedGuide):Ngaphambi kokwelashwa ngakunye, uzonikezwa i-'MedGuide' ekhethekile, incwajana enemininingwane ngomuthi. Yifunde ngokucophelela njalo.
Kuthiwani uma ngiphuthelwa umthamo wemithi?
Uma uphuthelwa umthamo ngokuzumayo, ungakhathazeki. Ungathathi umthamo ophuthelwe. Thatha umthamo olandelayo ngesikhathi sakho esijwayelekile. Ungalokothi uthathe umthamo ophindwe kabili.
Kuthiwani uma ngisebenzisa ngokweqile?
Uma ucabanga ukuthi uthathe umuthi omningi kakhulu, shayela ngokushesha iNational Poisons Information Centre eColombo National Hospital, noma uye e-Emergency Treatment Unit (ETU) yesibhedlela esiseduze. Lesi yisimo esiphuthumayo, ungalibali.
Izinto okufanele uziqaphele kakhulu uma usebenzisa lo muthi:
Le ngxenye ibaluleke kakhulu. Kufanele uqaphele ngalezi zinto phakathi nesikhathi sonke sokusebenzisa lo muthi.
Ukusabela Okukhulu Kokungezwani Nomzimba
Ingozi enkulu nenkulu kakhulu yalo muthi ukuthi kungenzeka ukuthi kube nokusabela okukhulu kokungezwani komzimba, noma ngokwezokwelapha, i-anaphylaxis. Lesi yisimo esiphuthumayo esisongela impilo.
Ngenxa yalesi sizathu, udokotela wakho uvame ukukunikeza i-epinephrine auto-injector, umjovo okhethekile ongasetshenziswa ezimweni eziphuthumayo. Kufanele uwugcine nawe njalo.
Zicabange uthola umjovo futhi ngesikhathi esifushane, uba nobunzima bokuphefumula, ubuso bakho nezindebe zakho ziyavuvukala, futhi uzizwe unesiyezi. Lokho kungasho ukuthi une-allergy enkulu. Uma lokho kwenzeka, kufanele uthole umjovo we-epinephrine ngokushesha bese uya egumbini lezimo eziphuthumayo esibhedlela (ETU) ngokushesha okukhulu.
Ngenxa yale ngozi, udokotela wakho uvame ukukutshela ukuthi ube nomuntu oseduze nawe ngesikhathi somjovo nangehora elilodwa ngemva komjovo. Lokhu kwenzelwa ukuthi uma une-allergy enkulu, lowo muntu akwazi ukukusiza futhi akuyise esibhedlela ngokushesha.
Ukuhlolwa njalo kwezokwelapha kanye nokulawula ukudla
- Ukuhlolwa kwezokwelapha: Udokotela wakho uzokugada njalo ngenkathi uthatha lo muthi. Uzophinde akuyalele ukuhlolwa kwegazi okuvamile (umsebenzi wegazi) ukuhlola izinga le-phenylalanine egazini lakho. Ungakweqi lokhu.
- Ukudla: Uyakhumbula lapho sikhuluma ngokudla okukhethekile okudingeka ukulandele nge-PKU? Ngesikhathi uthatha lo muthi, kufanele futhi ulandele ukudla okukhethekile okunikezwe wena. Ungenzi noma yiziphi izinguquko ekudleni kwakho ngaphandle kokubonisana nodokotela wakho.
Imiphumela emibi yomuthi
Njenganoma yimuphi umuthi, lo ungaba nemiphumela emibi. Ungakhathazeki, kodwa kubalulekile ukuqaphela lokhu.
| Umphumela/izimpawu ezingemuhle | Incazelo |
|---|---|
| Uma uhlangabezana nalezi zimpawu, tshela udokotela wakho ngokushesha. | |
| Ukungezwani komzimba okukhulu | Ukuqubuka kwesikhumba, ukulunywa okukhulu, ukuvuvukala kwezindebe, ulimi, ubuso, nobunzima bokuphefumula. |
| Ubuhlungu besifuba noma ukuqina | Ukuzizwa sengathi isifuba sakho siyacinana uma uphefumula. |
| Ukushaya kwenhliziyo | Ukuzizwa sengathi inhliziyo yakho ishaya ngokushesha noma ukushaya kwenhliziyo yakho kuyashintsha. |
| Izimpawu zomfutho wegazi ophansi | Ukuzizwa unesizungu, unekhanda elibuhlungu, uphelelwa amandla, uzizwa ukhathele ngendlela engavamile. |
| Ezinye izimpawu ezinkulu | Ukuhlanza, ubuhlungu bamalunga, ukuqubuka kwesikhumba noma ukuxebuka, kanye nokudideka. |
| Uma lezi zimpawu ziqhubeka noma zikhathaza, tshela udokotela wakho. | |
| Ukusabela kwendawo yomjovo | Ukubomvu, ukulunywa, ubuhlungu, noma ukuvuvukala lapho kujovwe khona. |
| Imiphumela emibi evamile | Ikhanda elibuhlungu, isicanucanu, ukucasuka kwesisu, isifo sohudo, ukukhwehlela, umphimbo obuhlungu, ukuqothuka kwezinwele, ukukhathala. |
Ingabe kungaba nezinkinga ngeminye imithi?
Yebo, eminye imithi ingasebenzisana nalo muthi wokugomela. Isibonelo, izinto ezifana nomuthi wokugomela i-medroxyprogesterone acetate, osetshenziselwa ukuvimbela inzalo noma ukwelashwa ngama-hormone.
Lolu akulona uhlu oluphelele. Ngakho-ke, tshela udokotela wakho ngayo yonke imithi oyithathayo (kufaka phakathi amavithamini, amakhambi, kanye nezithasiselo). Futhi, tshela udokotela wakho uma ubhema noma uphuza utshwala.
Ungawugcina kanjani umuthi ngendlela efanele?
Lokhu nakho kubaluleke kakhulu. Ukuze kulondolozwe ikhwalithi yomuthi, kumele ugcinwe kahle.
- Faka esiqandisini: Gcina umuthi esiqandisini ezingeni lokushisa eliphakathi kwama-degree Celsius amabili kuya kwangu-8. Ungalokothi uwugcine esiqandisini.
- Izinga lokushisa legumbi: Uma kudingeka, ungagcina lo muthi ezingeni lokushisa legumbi (20-25 degrees Celsius) izinsuku ezingafika kwezingu-30.
- Okubaluleke kakhulu: Kubaluleke kakhulu ukuthi ungawubuyisi umuthi esiqandisini ngemva kokuba usukhishiwe esiqandisini. Uma ugcinwa endaweni yokushisa kwegumbi, kufanele usetshenziswe zingakapheli izinsuku ezingu-30. Ngemva kwezinsuku ezingu-30, lahla ngokuphephile noma yimuphi umuthi osele.
- Ungasebenzisi umuthi ophelelwe yisikhathi.
Umlayezo Wokuya Nawe Ekhaya
- Umuthi wokugomela i-Pegvaliase usebenza ngokunciphisa izinga le-phenylalanine egazini labantu abane-PKU. Awusiqedi ngokuphelele lesi sifo.
- Ingozi enkulu yalo muthi ukusabela okukhulu kokungezwani komzimba (i-anaphylaxis). Hlala ugcina umjovo we-epinephrine onikezwe udokotela eduze.
- Landela ukudla okukhethekile okunqunywe udokotela wakho ngenkathi uthatha lo muthi.
- Yazisa udokotela wakho ngayo yonke eminye imithi, amavithamini, kanye nemithi yendabuko oyithathayo.
- Gcina umuthi kahle esiqandisini. Ungawubuyisi umuthi esiqandisini uma usukhishiwe.
- Uma unemibuzo noma ukukhathazeka, ungesabi futhi khuluma nodokotela wakho njalo.
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