Ingabe uvele uphathwe yikhanda, ulahlekelwe yinkumbulo, kanye noshintsho oluncane ekuboneni nasekuzweni kwakho? Mhlawumbe lezi zinto zingenzeka ngesikhathi esisodwa. Kuvamile kithi ukwesaba lapho izimpawu ezinjalo zivela ngokuzumayo. Namuhla sizokhuluma ngesimo esingavamile esingadala izimpawu ezinjalo, kodwa esingaziwa kahle ezweni lakithi. Leso yiSusac Syndrome.
Iyini i-Susac Syndrome kalula?
Kalula nje, i-Susac Syndrome iyisimo sokuzivikela komzimba. Cabanga ngesimiso somzimba wethu sokuzivikela komzimba njengebutho lezwe lethu. Umsebenzi walo oyinhloko ukusivikela kumagciwane abangela izifo. Kodwa ngezinye izikhathi lolu hlelo lwenza iphutha elincane. Bese, esikhundleni sokuhlasela izitha ezivela ngaphandle, luqala ukuhlasela amangqamuzana amahle emizimba yethu. Yilokhu esikubiza ngokuthi izifo zokuzivikela komzimba.
Ku-Susac Syndrome, amasosha ethu omzimba ahlasela imithambo yegazi emincane ebuchosheni, i-retina, kanye ne-cochlea . Lokhu kuhlasela kubangela ukuthi leyo mithambo yegazi ivuvuke, kunciphise noma kuvimbele ngokuphelele ukugeleza kwegazi kuyo. Yilokho okubangela izimpawu zalesi sifo.
Lesi sifo sithinteka kakhulu kuphi?
Lesi simo sithinta kakhulu izingxenye ezintathu zomzimba: ubuchopho, amehlo, nezindlebe.
| Ingxenye ethintekile | Isimo esivelayo |
|---|---|
| Ubuchopho | I-Encephalopathy (ukungasebenzi kahle kobuchopho) ingabangela ikhanda elibuhlungu kakhulu kanye nokudideka. |
| Amehlo | Ukulahlekelwa ezinye izingxenye zombono wakho. Lokhu kusho ukuthi ungase uzizwe sengathi unamabala amnyama noma izingxenye zombono wakho seziphelile. |
| Izindlebe | Ukulahlekelwa ukuzwa. Lokhu kungenzeka kancane kancane kwabanye abantu, futhi ngokuzumayo kwabanye. |
Lesi yisimo esingavamile kakhulu. Ngakho-ke, kunzima ukusho ukuthi bangaki abantu abasitholayo. Ngezinye izikhathi, izimpawu zifana nesinye isifo esibizwa ngokuthi i-Multiple Sclerosis (MS), ngakho ngisho nodokotela ngezinye izikhathi bangadidanisa lezi zifo ezimbili. Ngakho-ke, ngezinye izikhathi kungathatha isikhathi ukuthola ukuxilongwa okufanele.
Ziyini izimpawu ze-Susac Syndrome?
Izimpawu zingase zihluke kumuntu nomuntu, kodwa zihlobene nezingxenye ezintathu eziyinhloko okukhulunywe ngazo ngaphambili. Ake sibone ukuthi ziyini.
| Uhlelo oluthintekile | Izici ezibonakalayo |
|---|---|
| Izici ezihlobene nobuchopho | |
| Ubuchopho | Ikhanda elibuhlungu kakhulu. |
| Ubunzima bokucabanga (isib., ukulahlekelwa inkumbulo yesikhashana, isivinini sokucabanga esihamba kancane, kanye nekhono lokuxazulula izinkinga). | |
| Inkulumo engaqondakali. | |
| Ubunzima bokuhamba. | |
| Izinguquko zobuntu. | |
| Izinkinga zengqondo (isib. ukucindezeleka, i-psychosis , ulaka, ukukhathazeka). | |
| Izimpawu ezihlobene namehlo | |
| Amehlo | Ukuba khona kwendawo emnyama noma ingxenye yensimu yokubona. |
| Umuzwa wokumbozwa "yikhethini elimnyama" lokubona. | |
| Ukulahlekelwa umbono ongaphandle. | |
| Izimpawu ezihlobene nendlebe yangaphakathi | |
| Indlebe Yangaphakathi | Ukulahlekelwa ukuzwa. |
| I-Vertigo. | |
| Ukuzwa ukukhala ezindlebeni (i-Tinnitus). | |
Lezi zici zikuthinta kanjani?
Lezi zimpawu aziveli ngendlela efanayo kuwo wonke umuntu. Abanye abantu bakhula lokhu kanye kuphela empilweni yabo. Kwabanye, izimpawu ziyafika zidlule, bese zibuya... njalo njalo. Ngokuvamile, izimpawu zingaba bomvu futhi zinciphe eminyakeni eminingana. Inani elincane kakhulu labantu linezimpawu zazo zontathu ngesikhathi esisodwa lapho kutholakala lesi sifo.
Into ebaluleke kakhulu ukuphuza umuthi njengoba nje udokotela emyalile. Kunethuba elikhulu lokuthi lesi sifo siphinde sivele (siqhume) ngokushesha nje lapho umuthi umiswa.
Kungani kwenzeka i-Susac Syndrome?
Imbangela eqondile yalokhu ayaziwa okwamanje. Kodwa siyazi ukuthi kuyisimo sokuzivikela komzimba. Njengoba kushiwo ngaphambili, amasosha ethu omzimba ahlasela amangqamuzana angaphakathi kwemithambo yegazi emincane ebuchosheni bethu, e-retina, nasendlebeni yangaphakathi. Lokhu kuhlasela kubangela ukuthi lawo maseli avuvuke. Khona-ke leyo mithambo yegazi ingavinjelwa kancane noma ngokuphelele. Uma lokho kwenzeka, lezo zingxenye zomzimba azitholi umoya-mpilo nezakhamzimba ezizidingayo. Yilokho okubangela zonke izimpawu okukhulunywe ngazo ngaphambili.
Ingabe lesi yisifo esizuzwe njengefa? Ubani osengozini enkulu?
Cha, abukho ubufakazi bokuthi lesi yisifo esidluliselwa ngofuzo. Kodwa-ke , abesifazane banamathuba aphindwe kathathu okuthola lesi sifo kunabesilisa. Izimpawu zivame ukuqala phakathi kweminyaka engama-20 nengama-40.
Yiziphi izinkinga ezingaba khona ngenxa yalesi sifo?
Ukulimala kwamehlo nezindlebe okubangelwa ukuvaleka kwemithambo yegazi ngezinye izikhathi kungaba unomphela.Lokhu kusho ukuthi kungenzeka ukuthi umuntu alahlekelwe umbono nokuzwa unomphela. Nakuba kungavamile kakhulu, isimo esibizwa ngokuthi i-dementia, lapho inkumbulo ilahleka khona ngokuphelele, singaba khona.
Udokotela usithola kanjani lesi sifo? (Ukuxilongwa)
Udokotela wakho uzokwenza izivivinyo eziningana ukuze axilonge lesi sifo.
- Ukuhlolwa komzimba
- Ukuhlolwa kwe-neurological
- Ukuhlolwa kwamehlo
Ngaphezu kwalokho, ungenza nokuhlolwa okufana nalokhu ukuze uthole okwengeziwe ngezimpawu zakho:
- Ukufanekisa Nge-Magnetic Resonance (MRI) yobuchopho: Lokhu kuvumela udokotela ukuthi abheke amabala amhlophe abizwa ngokuthi 'izilonda ze-snowball' endaweni lapho ama-hemispheres amabili obuchopho ehlangana khona (i-corpus callosum). Lezi ziwuphawu oluthile lwe-Susac Syndrome.
- I-Fluorescein Angiography: Lolu uhlobo lokuhlola olukhethekile oluhlola imithambo yegazi ku-retina yeso. Lungabona noma yikuphi ukuvinjelwa kwemithambo yegazi.
- I-Audiogram: Lokhu ukuhlolwa kokuzwa. Kuhlola ukuthi uyakwazi yini ukuzwa imisindo ephansi nokuthi unenkinga yokuqonda inkulumo.
Yiziphi izindlela zokwelapha lokhu?
Umgomo oyinhloko wokwelashwa ukulawula amasosha omzimba ethu, okuyinto engasebenzi kahle. Kusetshenziswa ama-immunosuppressants kulokhu. Ezinye izibonelo yilezi:
- Ama-Corticosteroids (isb. i-prednisone)
- I-immunoglobulin efakwa emthanjeni (IVIG)
- I-Mycophenolate
- I-Azathioprine
- I-Cyclophosphamide
- I-Rituximab
Le mithi inganikezwa umzimba ngezindlela ezahlukene. Eminye ithathwa njengamaphilisi noma ama-capsule. Eminye inikezwa njengomjovo. Eminye inikezwa nge-intravenous (IV) nge-saline. Le mithi isebenza ngokunciphisa amasosha omzimba asebenza ngokweqile.
Funda ngokwelashwa, ukululama, kanye nesimo sengqondo
Ingabe ikhona imiphumela emibi yokwelashwa?
Yebo, njengayo yonke imithi, lena ingaba nemiphumela emibi ehlukahlukene. Ngakho-ke, khuluma nodokotela wakho ngalokhu ngaphambi kokuqala ukwelashwa. Uma uhlangabezana nanoma yimiphi imiphumela emibi, yazisa udokotela wakho ngayo.
Kuzothatha isikhathi esingakanani ukululama ngemva kokwelashwa?
Uma lokhu kuqashelwa kusenesikhathi futhi ukwelashwa kuqalwe kusenesikhathi, izimpawu zingathuthuka ngokushesha. Abanye abantu bagula kanye kuphela. Abanye bangase babe nezigameko eziphindaphindayo eminyakeni edlule. Kodwa-ke , ngokwelashwa okufanele okucindezela amasosha omzimba, ingozi yokuphinda kuvele iyancipha kakhulu.
Impilo izoba njani ngalesi sifo? (I-Outlook)
Ithemba lalabo abathola ukwelashwa ngokushesha nje lapho kuvela izimpawu lihle kakhulu. Lokhu kungavimbela ukulimala okungapheli ebuchosheni, emehlweni nasezindlebeni. Izinkinga ezihlala njalo njengokulahlekelwa umbono kanye nokulahlekelwa ukuzwa azivamile. Lesi akusona isifo esisongela impilo, ngaphandle kwasezimweni ezingavamile kakhulu. Nakuba singathinta ikhwalithi yempilo yakho, asiyithinti ngqo impilo yakho.
Ungasivimbela kanjani lesi sifo nokuthi kufanele ubonane nini nodokotela?
Ayikho indlela eqondile yokuvimbela i-Susac Syndrome. Kodwa-ke, ngokulandela uhlelo lokwelashwa olunikezwe udokotela wakho ngqo, unganciphisa ukuphindaphinda kwezimpawu (ukuqubuka).
Uma uhlangabezana nanoma yiluphi lwalezi zinguquko, bona udokotela wakho ngokushesha:
- Ushintsho ekubukeni kwamehlo
- Ukulahlekelwa ukuzwa
- Ushintsho ekhonweni lokucabanga noma lokukhumbula
- Ushintsho ekuziphatheni noma ebuntwini
Uma lesi sifo sisheshe sibonakale, kulapho ungahlala uphilile futhi uvimbele umonakalo ohlala njalo.
Imibuzo okufanele uyibuze udokotela wakho
- "Ngingabuya yini ngemva kokuba izimpawu zami sezingcono?"
- "Ungincoma uhlobo luni lokwelashwa?"
- "Ngingayisebenzisa isikhathi esingakanani le mithi futhi kanjani?"
- "Yimiphi imiphumela emibi yalo muthi?"
- "Ingabe ngizodinga izinsiza zokuzwa noma i-cochlear implant?"
I-Susac Syndrome ingathinta impilo yakho yansuku zonke. Kuvamile ukuzizwa wesaba futhi ukhathazekile lapho izinto obulokhu uzikholelwa, njengokubona noma ukuzwa kwakho, zishintsha ngokuzumayo. Ngezinye izikhathi ukukhuluma nomeluleki wezempilo yengqondo kungaba impumuzo enkulu. Khumbula, kungcono ukutshela udokotela ngokushesha nje lapho ubona izimpawu, njengoba izinkinga zingase zivele. Ukwelashwa okusheshayo kungavimbela umonakalo ohlala njalo.
Umlayezo Wokuya Nawe Ekhaya
- I-Susac Syndrome yisifo esingavamile sokuzivikela komzimba esithinta ubuchopho, amehlo nezindlebe.
- Izimpawu ezifana nobuhlungu bekhanda, isiyezi, ukuncipha kokubona, kanye nokulahlekelwa ukuzwa zingase zibe khona, kodwa ziyahlukahluka kakhulu kumuntu nomuntu.
- Ukuxilongwa kusenesikhathi kanye nokwelashwa kubalulekile ukuvimbela umonakalo ohlala njalo, njengokungaboni noma ukungezwa.
- Ukwelashwa kuhilela ukusetshenziswa kwemithi ecindezela amasosha omzimba, futhi kubaluleke kakhulu ukuyithatha njengoba kuyalelwe ukuze kuvinjelwe ukuthi lesi sifo singaphinde sivele.
- Lesi akusona isifo esizuzwa njengefa futhi ngokuvamile asithinti isikhathi sokuphila, kodwa singathinta ikhwalithi yokuphila.
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