Mete ehu ne dadwen a ɛna anaa agya te nka bere a wohu biribi a ɛyɛ nwonwa wɔ wɔn ba ketewa no nipadua so no ase. Titiriw bere a akokoaa a wɔawo no foforo nya nsensanee bruu ne kɔkɔɔ mpofirim wɔ ne honam ani a, ebetumi ahaw adwene kɛse. Saa tebea yi ne nea yɛfrɛ no wɔ aduruyɛ mu sɛ "Blueberry Muffin Rash." Ebia edin yi bɛyɛ te sɛ nea ɛyɛ nwonwa, nanso ɛho hia sɛ wohu efisɛ nneɛma a anibere wom pii betumi de aba.
Dɛn ne ‘blueberry muffin rash’ yi?
Sɛ yɛbɛka no tiawa a, eyi yɛ honam ani yare a ebetumi aka mmofra a wɔawo wɔn foforo ne nkokoaa nkumaa. Wɔfrɛ no ‘blueberry muffin rash’ efisɛ nsensanee no te sɛ nsensanee bruu-akutu a ɛwɔ blueberry muffin so no. Ebetumi ada adi sɛ nsensanee kurukuruwa anaasɛ ntini a ɛkɔ soro wɔ honam ani.
Nea ɛho hia ne sɛ saa nsensanee yi nni honam ani, na mmom ɛte sɛ nea ayɛ honam ani tɔnn . Eyi nyɛ akisikuru a ɛfata.
Nneɛma atitiriw abiɛsa nti na saa nsensanee yi betumi ada adi:
1. Extramedullary hematopoiesis: Mpɛn pii no, yɛn mogya no yɛ nnompe mu ntini mu. Nanso, esiane aduruyɛ mu tebea horow bi nti, nkwammoaa a ɛma mogya fi ase boaboa ano na ɛyɛ akuwakuw wɔ nnompe mu ntini no akyi, te sɛ honam ani. Saa nkwammoaa akuwakuw yi ne nea ɛda adi sɛ nsensanee.
2. Mogya a ɛtɔ kɔ honam ani (Purpura): Saa nsensanee a ɛyɛ kɔkɔɔ yi betumi aba bere a mogya tu kɔ honam ani ntini no mu esiane mogya ntini a asɛe anaasɛ mmerɛwyɛ wɔ mogya a ɛtwetwe no mu nti.
3. Kokoram nkwammoaa a ɛtrɛw (Metastasis): Wɔ kokoram ahorow bi mu no, kokoram nkwammoaa tumi trɛw kɔ honam ani fi nipadua no afã afoforo na ɛma akisikuru te sɛ eyi.
Ayaresa mu tebea horow a ɛhyɛ ase a ɛde eyinom abiɛsa nyinaa ba no mu dodow no ara ho yɛ na. Afei nso, wo ba no bɛtaa anya sɛnkyerɛnne afoforo aka saa nsensanee yi ho. Saa nsensanee yi rensa wɔn ankasa yare. Enti, ‘blueberry muffin rash’ yɛ sɛnkyerɛnne a emu yɛ den a ɛkyerɛ sɛ wo ba no hia ayaresa ntɛm ara.
Nneɛma atitiriw bɛn na ebetumi de eyi aba?
Mma ɛnhaw wo, yɛbɛka ntease ahorow atitiriw a ɛka eyi ho asɛm pefee, mmiako mmiako.
TORCH Nyarewa a Wɔde Ma
TORCH yɛ nyarewa akuw pii a ɛka akokoaa anaa abofra a wɔawo no foforo wɔ awotwaa mu no tiawa. Saa nyarewa yi betumi afi ɛna mu akɔ abofra mu bere a wɔyem, bere a wɔrewo, anaa awo akyi.
TORCH gyina hɔ ma:
- T - Toxoplasmosis a ɛyɛ yareɛ
- O - Nyarewa foforɔ - sɛ nhwɛsoɔ no, syphilis, chickenpox, parvovirus B19
- R.- a ɛyɛ Rubella
- C - Nkwammoaa mu ɔyare mmoawa (CMV) .
- H - Herpes simplex mmoawa (HSV) .
Nea ɛka nyarewa yi ho no, akokoaa no betumi ada sɛnkyerɛnne afoforo nso adi te sɛ atiridiinini, aduan a ɛyɛ den sɛ obenya, jaundice, awo mu duru a ɛba fam, aso a ɛyɛ den, ne hepatosplenomegaly.
Eyi kyerɛ sɛnea ɛho hia sɛ wokɔ oduruyɛfo nkyɛn bere ano na wɔyɛ nhwehwɛmu a ɛho hia wɔ nyinsɛn mu. Ɛdenam eyi so no, wubetumi adi kan ahu sɛ ebia wowɔ saa nyarewa ahorow yi anaasɛ wowɔ ahoɔden a ɛko tia nyarewa.
Akisikuru ne Kokoram Bi
Mmofra kokoram ahorow bi nso betumi de saa ‘blueberry muffin rash’ yi aba. Eyinom yɛ tebea horow a ɛntaa nsi koraa.
- Nkwammoaa mu nkwaadɔm a ɛma nipadua no yɛ adwuma
- Leukemia (mogya mu kokoram) .
- Mastocytosis a ɛma mogya tu
- Ntini mu ntini mu yare
- Rhabdomyosarcoma a ɛma obi nya ɔyare a wɔfrɛ no Rhabdomyosarcoma
- Transient myeloproliferative disorder - Eyi taa ba mmofra a wɔwɔ Down syndrome mu titiriw.
Saa tebea horow yi betumi de sɛnkyerɛnne ahorow te sɛ ɔbrɛ kɛse, atiridiinini, mu duru a ɛso tew, fitaa (esiane mogya a ɛtɔ kɔ nipadua mu nti), ntini a ɛho ahonhon, ne ahome a ɛyɛ den ka ho.
Ɔhaw afoforo a ɛfa mogya a wɔyɛ ho (Extramedullary Hematopoiesis) .
Sɛnea yɛadi kan aka ho asɛm no, saa nsensanee yi nso fi extramedullary hematopoiesis. Nneɛma afoforo bi a ɛma eyi ba ne:
- Hemolytic disease of the newborn: Akokoaa no mogya mu nkwammoaa kɔkɔɔ a ɛpaapae ntɛmntɛm esiane nneɛma te sɛ ABO mogya su a ɛna no ne akokoaa no nhyia nti.
- Awosu mu spherocytosis: Awosu mu tebea a ɛma mogya mu nkwammoaa kɔkɔɔ no nsusuwii mu nsakrae ba.
- Twin-to-twin transfusion syndrome: Mogya a ɛnkɔ pɛpɛɛpɛ wɔ mmanoma a wɔwɔ awotwaa koro mu.
Ɔkwan bɛn so na nnuruyɛfo hu nea ɛde ba ankasa?
Wo ba no duruyɛfo bedi kan ahwɛ wo ba no mu yiye na wahwɛ sɛ yare no ho sɛnkyerɛnne afoforo wɔ hɔ anaa. Afei, wɔbɛkamfo nhwehwɛmu ahorow pii akyerɛ na wɔahu nea ɛde ba ankasa.
| Sɔhwɛ | Nea Ɛhwehwɛ Mu? |
|---|---|
| Mogya mu nhwehwɛmu | Mogya dodow a edi mũ (CBC), nhwehwɛmu a wɔyɛ de hwɛ nyarewa ne mogya mu nneɛma afoforo a ɛnteɛ. |
| Nsu mu nhwehwɛmu | Nsɛnkyerɛnne a ɛkyerɛ sɛ obi anya ɔyare mmoawa ne ayaresa tebea horow bi. |
| Akyi berɛmo mu tap/Lumbar Puncture | Hwɛ amemene mu nsu (CSF) no mu na hwehwɛ sɛnkyerɛnne ahorow a ɛkyerɛ sɛ ɔyare mmoawa no wɔ hɔ. |
| Honam ani nipadua mu nhwehwɛmu | Sɛnea ɛbɛyɛ a wɔbɛhwɛ sɛ mogya mu kokoram anaa kokoram nkwammoaa afoforo wɔ hɔ anaa. |
| Nnompe mu ntini mu nhwehwɛmu | Hwehwɛ mogya mu kokoram, mogya mu nneɛma afoforo a ɛnteɛ, ɔyare mmoawa, ne kokoram. |
| Yafunu mu ultrasound a wɔde yɛ nhwehwɛmu | Sɛ́ wɔbɛhwɛ sɛ mmerɛbo ne akyi berɛmo ayɛ kɛse ne akisikuru te sɛ neuroblastoma. |
Sɛ wosusuw sɛ ɔwɔ TORCH yare no a, oduruyɛfo no nso betumi akamfo nhwehwɛmu a ɛfata akyerɛ ɛna no.
Dɛn ne ayaresa ahorow a wɔde sa eyi?
Eyi yɛ ɔhaw a nnipa pii wɔ. Kae sɛ, ayaresa a wɔde sa ‘blueberry muffin rash’ ne sɛ wɔbɛsa tebea a ɛwɔ ase a ɛde bae no. Ɛne sɛ, esiane sɛ saa nsensanee yi yɛ sɛnkyerɛnne nti, ɛsɛ sɛ yɛsa tebea a ɛda adi a ɛde sɛnkyerɛnne no bae no.
Nhwɛsoɔ:
- Sɛ nea ɛde ba ne TORCH yare mmoawa a, wɔde nnuru a ekum ɔyare mmoawa, nnuru a ekum mmoawa, anaa nnuru a ekum ɔyare mmoawa ma.
- Sɛ nea ɛde ba ne kokoram te sɛ neuroblastoma a, ebia ɛho behia sɛ wɔyɛ oprehyɛn, nnuru a wɔde sa yare, nipadua no mu tumi a ɛko tia nyarewa, anaa mframa a wɔde sa yare.
Wo ba no aduruyɛ kuw no bɛkyerɛkyerɛ ayaresa nhyehyɛe a eye sen biara a wɔbɛyɛ ama wo ba no mu, enti ntwentwɛn wo nan ase sɛ wo ne wɔn bɛkasa afa nsɛmmisa anaa dadwen biara a ebia wowɔ ho.
Bere bɛn na ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn ntɛm ara?
Eyi ho mmuae biako pɛ ne sɛ "Ntɛm ara!"
Sɛ wuhu baabi a ɛyɛ bruu-akuturuku anaa akuru te sɛ eyi wɔ wo ba no nipadua so a, mmu w’ani ngu so. Sɛ wo ba no renya ayaresa dedaw wɔ ayaresabea a, ka kyerɛ oduruyɛfo anaa ɔyarehwɛfo no ntɛm ara. Sɛ wowɔ fie a, fa wo ba no kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) ntɛm ara.
Ɛwom sɛ saa tebea yi ntaa mma de, nanso ebetumi ayɛ sɛnkyerɛnne a ɛkyerɛ sɛ biribi a anibere wom reto wo ba no nipadua. Eyi betumi ayɛ hu paa, nanso nea ɛho hia sen biara ne sɛ woremmɔ hu na wonyɛ ade ntɛm. Aduruyɛfo kuw no behu nea ɛde ba no ntɛm ara na wɔde ayaresa a eye sen biara ama wo ba no.
Nkrasɛm a Wɔde Kɔ Fie
- Blueberry Muffin Rash nyɛ honam ani akisikuru kɛkɛ, ebetumi ayɛ tebea bi a emu yɛ den a ɛwɔ ase ho sɛnkyerɛnne.
- Ade titiriw ne sɛ ɛte sɛ nea saa nsensanee yi ba honam ani, na ɛnyɛ ne atifi.
- Sɛ wuhu sɛ nsensanee ahorow yi wɔ wo ba no honam ani a, ntwentwɛn wo nan ase na fa kyerɛ oduruyɛfo ntɛm ara anaa kɔ ayaresabea hɔ Emergency Treatment Unit (ETU).
- Ɛho hia sɛ wohwehwɛ aduruyɛ mu afotu a ɛfata ne nhwehwɛmu wɔ nyinsɛn mu na ama wɔasiw nyarewa te sɛ TORCH ano anaasɛ woahu ntɛm.
- Wo ne w’aduruyɛfo kuw no nkasa pefee mfa wo yare a woahu ne ayaresa nhyehyɛe a woayɛ no ho. Wɔbɛma wo ne wo ba no mmoa.
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