Mogya ntini bi a ɛwɔ amemene no mu? Momma yensua Cavernous Malformation (Cavernoma) ho ade wɔ nsɛm a ɛnyɛ den mu

So ɛtɔ mmere bi a wo ti yɛ wo yaw a ntease biara nnim? Anaasɛ woanya akisikuru mpofirim? Ebia wo duruyɛfo no kae bere a wɔreyɛ amemene mu nhwehwɛmu sɛ mogya ketewaa bi atɔ w’amemene mu? Ɛyɛ ade a ɛfata sɛ wobɛte ehu ne dadwen kakra nka bere a wote biribi a ɛte sɛɛ no. Nanso mma ɛnhaw wo. Mpɛn pii no, eyi nyɛ aniberesɛm. Ɛnnɛ yɛreka saa ‘amemene mu akisikuru’ anaasɛ aduruyɛ mu a wɔfrɛ no `Cavernous Malformation` yi ho asɛm. Momma yɛnka eyi ho asɛm tiawa, wɔ ɔkwan a wubetumi ate ase so.

Dɛn ne Cavernous Malformation?

Sɛ yɛbɛka no tiawa a, `Cavernous Malformation` yɛ akuru a ɛnyɛ ne kwan so a mogya ntini nketenkete a ɛwɔ yɛn nipadua mu a wɔfrɛ no capillaries a ɛyɛ tan no na ɛyɛ. Sɛ wohwɛ a, ɛte sɛ raspberry. Wɔ saa akuru yi mu no, ntokuru nketenkete pii a mogya ahyɛ mu ma.

Susuw ho hwɛ, yɛn mogya ntini a ɛte saa no yɛ afasu a ɛyɛ den. Nanso mogya ntini a ɛwɔ saa `Cavernous Malformation` yi mu no afasu yɛ teateaa yiye na ɛyɛ mmerɛw . Na wonni mmoa a ɛfata. Ɛha na ɔhaw no fi ase. Esiane saa afasu a ɛyɛ mmerɛw yi nti, ɛtɔ mmere bi a, hokwan kɛse wɔ hɔ sɛ mogya bi befi ntini yi mu akɔ ntini a atwa ho ahyia no mu.

Wɔtaa hu tebea yi wɔ yɛn amemene ne yɛn akyi berɛmo mu . Ɛno nti na wɔsan frɛ no `Cerebral Cavernous Malformation`. Nanso, ɛtɔ mmere bi a ebetumi aba wɔ mmeae te sɛ honam ani, mmerɛbo, ne aniwa.

Nnuruyɛfo frɛ tebea yi din ahorow. Enti mma ɛnhaw wo sɛ wuhu saa din yi mu biako wɔ w’amanneɛbɔ mu a, ne nyinaa kyerɛ ade koro.

• Cavernomas a ɛwɔ abodan mu
• Hemangiomas a Ɛwɔ Abodan Mu
• Amemene mu Abodan mu Nneɛma a Ɛyɛ Fɛ
• Angiomas a Ɛwɔ Abodan mu

So saa Cavernous Malformations yi yɛ asiane ankasa?

Asɛmmisa kɛse a nnipa pii nya bere a wɔte saa din yi ne sɛ, "So eyi yɛ kokoram? So eyi yɛ asiane?" Nea edi kan koraa no, ɛnyɛ kokoram .

Nanso sɛ́ ebia tebea yi yɛ nea asiane wom anaasɛ ɛnte saa no gu ahorow wɔ nnipa biara mu. Egyina nneɛma pii so:

• Akuru no kɛse: Hwɛ sɛnea ɛsõ.
• Nkuruwankuruwa dodow: Nkuruwa dodow a ɛte sɛ eyi na ɛwɔ wo nipadua mu.
• Beae: Ɛhe na ɛwɔ amemene no mu?
• Asiane a ɛwɔ hɔ sɛ mogya bɛtu: Hokwan wɔ hɔ sɛ ɛbɛpae na ama mogya atɔ no kɛse.

Esiane sɛ mogya ntini yi afasu yɛ teateaa nti, asiane wɔ hɔ sɛ mogya bɛtu. Mogya a ɛtɔ wɔ amemene no mu no betumi de tebea horow te sɛ akisikuru, obubuafo, anaa akisikuru aba. Sɛ mogya no mu yɛ den a, ebetumi de ne nkwa ato asiane mu.

Enti, sɛ wubehu nea wo tebea te ankasa a, ɛbɛyɛ papa sɛ wo ne wo duruyɛfo bɛkasa pefee. Ɔbɛhwɛ wo scan amanneɛbɔ no mu na wakyerɛkyerɛ asiane ahorow a ɛwɔ wo tebea no mu no mu.

Dɛn ne tebea yi ho sɛnkyerɛnne?

Nnipa dodow no ara a wɔwɔ saa tebea yi nni sɛnkyerɛnne biara. Nanso sɛ wɔyɛ saa a, ɛtaa yɛ sɛnkyerɛnne a ɛkyerɛ sɛ mogya kakraa bi retu afi mogya ntini no mu. Mpɛn pii no, saa sɛnkyerɛnne ahorow yi fi ase da adi bere a wɔadi mfe 20 kosi 60.

Wɔabobɔ sɛnkyerɛnne ahorow a ɛtaa ba no bi din wɔ pon a ɛwɔ ase ha no so.

Dɛn na ɛde tebea yi ba?

Mpɛn pii no, bɛyɛ 80% wɔ bere no mu no, nnuruyɛfo nnim nea ɛde saa `Cavernous Malformations` yi ba ankasa. Wɔba `bere ne bere mu`.

Nanso wɔ bɛyɛ 20% mu no, ɛwɔ awosu mu abusuabɔ bi . Eyi kyerɛ sɛ wobetumi de tebea no afi awo ntoatoaso so akɔ awo ntoatoaso so. Wɔahu awosu mu nkwaadɔm abiɛsa a ɛde ba:

• `CCM1 (KRIT1)`
• `CCM2`
• `CCM3 (PDCD10)`

Sɛ yɛbɛka no tiawa a, saa awosu mu nkwaadɔm yi na ɛma protein ahorow a ɛboa ma nkwammoaa a ɛwɔ yɛn mogya ntini mu no bom na ɛma ɛyɛ den no. Sɛ sintɔ anaa nsakrae bi ba saa awosu mu nkwaadɔm yi mu a, nkitahodi a ɛda saa nkwammoaa no ntam no yɛ mmerɛw. Ɛno ne bere a mogya ntini a ɛyɛ mmerɛw a ɛyɛ mmerɛw yi ba.

Saa tebea yi yɛ agyapade wɔ ``Autosomal Dominant`` nhyehyɛe mu. Eyi kyerɛ sɛ abofra betumi anya saa tebea yi sɛ́ ebia wonya awosu mu nkwaadɔm a asɛe no biako fi ɛna no anaa agya no hɔ no. Sɛ wowɔ saa awosu mu tebea yi a, ɛyɛ 50% sɛ wo ba no benya bi. Sɛ obi wɔ w’abusua mu wɔ saa tebea yi anaa sɛ obi wɔ saa awosu mu nkwaadɔm yi bɛboro biako a, ɛda adi sɛ efi awosu mu nneɛma bi.

Ɔkwan bɛn so na oduruyɛfo hu eyi?

Mpɛn pii no, wohu tebea yi wɔ akwanhyia mu bere a wɔreyɛ amemene mu nhwehwɛmu esiane biribi foforo te sɛ tiyɛ anaa akwanhyia, anaasɛ bere a sɛnkyerɛnne ahorow te sɛ akisikuru ada adi akyi.

Sɔhwɛ titiriw a wɔde hu eyi ne MRI (Magnetic Resonance Imaging) scan .

• MRI a Wɔyɛ no Daa: Eyi tumi hu nneɛma te sɛ beae a akuru no wɔ ne ne kɛse pefee.
• MRI Titiriw (Susceptibility-Weighted Imaging): Eyi yɛ mfoninitwa a ɛyɛ mmerɛw kɛse mpo. Etumi hu mogya a ɛtɔ nketenkete paa, ne mogya nketenkete bi a atwam a wɔatu no ho nsɛnkyerɛnne nso. Saa nsɛm yi betumi aboa wo duruyɛfo ma wanya asiane a ɛwɔ hɔ daakye ho adwene.

Bio nso, wobetumi ayɛ awosu mu nhwehwɛmu de ahwɛ abusua abakɔsɛm na sɛ ɛho hia a, wɔahu sɛ ɛyɛ awosu mu tebea anaa.

Dɛn ne ayaresa ahorow a ɛwɔ hɔ?

Ɛnyɛ obiara a wobehu sɛ ɔwɔ cavernous malformation na ebehia sɛ wɔyɛ no oprehyɛn. Ayaresa no gyina wo yare no ho sɛnkyerɛnne, faako a akuru no wɔ, ne sɛ ebia ɛretu mogya so.

1. Nneɛma a wɔhwɛ so

Sɛ wo nni sɛnkyerɛnne biara na mogya ntu wo mfi akuru no mu a, wo duruyɛfo no bɛtaa adi "ɔwɛn twɛn" kwan so.

• MRI scans wɔ bere ne bere mu : Wɔyɛ scan bɛyɛ pɛnkoro afe biara de hwɛ sɛ nsakrae aba wɔ akisikuru no kɛse mu ne mogya foforo a ɛretu no anaa.
• Nsɛnkyerɛnne a wubehu: Wɔbɛma woahu sɛnkyerɛnne ahorow a ɛsɛ sɛ wohaw wo ho ne bere a ɛsɛ sɛ wobɔ oduruyɛfo amanneɛ ntɛm ara.

2. Nnuru a wɔde siw sɛnkyerɛnne ahorow ano

Sɛ wowɔ sɛnkyerɛnne ahorow te sɛ akisikuru anaa tiyɛ esiane akisikuru no nti a, wo duruyɛfo bɛkyerɛw wo nnuru a wode bedi saa sɛnkyerɛnne ahorow no so. Saa nnuru yi remma akisikuru no nkɔ, nanso ebetumi aboa ma wɔadi ɔhaw a ɛde ba no so.

3. Oprehyɛn a Wɔde Yi Fi Mu

Wɔkamfo oprehyɛn kyerɛ wɔ nsɛm titiriw bi mu nkutoo.

• Sɛ mogya atɔ wo bɛboro pɛnkoro a ɛwɔ sɛnkyerɛnne ahorow a .
• Sɛ mogya a ɛretu no ama ntini mu yare (e.g., nkate a ɛyera wɔ nipadua no fã biako, nsakrae a ɛba wɔ anisoadehu mu) na tebea no reyɛ kɛse da biara da a.
• Sɛ wowɔ akisikuru a wontumi mfa nnuru nni dwuma a .
• Sɛ akisikuru no wɔ baabi a wobetumi ayi afi hɔ dwoodwoo a ɛrensɛe amemene no kɛse a.

Ntini mu oprehyɛn ho oduruyɛfo na osi gyinae sɛ wɔbɛyɛ oprehyɛn anaasɛ wɔrenyɛ no oprehyɛn bere a ɔne wo abɔ oprehyɛn no mu mfaso ne ɔhaw ahorow ho nkɔmmɔ tenten akyi.

Dɛn na metumi ayɛ na ama mogya a ɛbɛtɔ me no so atew?

Bere a ɔkwan biara nni hɔ a wobɛfa so asiw saa akuru yi ano no, nneɛma kakraa bi wɔ hɔ a wubetumi ayɛ de atew asiane a ɛwɔ hɔ sɛ mogya bɛtu anaasɛ ɛbɛpae no so. Ɛno kyerɛ sɛ wobɛhwɛ w’akwahosan nyinaa yiye.

• Kura mogya mmoroso, srade, ne asikre dodow a ɛfata mu .
• Sɛ mprempren worenom nnuru biara te sɛ nea ɛma mogya yɛ mmerɛw , ne wo duruyɛfo nkasa mfa nkyerɛ sɛ ebia ebetumi aka tebea yi anaa.
• Anyɛ yiye koraa no, teɛteɛ w’apɔw mu simma 30 dapɛn no mu nna dodow no ara.
• Kwati tawa ho nneɛma a wode bedi dwuma (sigaretnom) koraa .
• Wo ne oduruyɛfo no hyia wɔ bere a wɔahyɛ sɛ wobɛkɔ akɔhwɛ wo no mu na bisa sɛ wowɔ nsɛmmisa anaa nsɛm bi a ɛhaw wo anaa.

Bere bɛn na ɛsɛ sɛ mekɔ ETU ntɛm?

Eyi ho hia paa. Sɛ wunim sɛ wowɔ `Cavernous Malformation`, na sɛnkyerɛnne ahorow a edidi so yi da adi mpofirim a, nsɛe bere na ntɛm ara kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) .

Eyinom betumi ayɛ mogya a ɛretu wɔ amemene no mu ho sɛnkyerɛnne, a ebetumi ama obi anya akisikuru, enti ɛho hia sɛ wohwehwɛ ayaresa ntɛm.