So wo ba no wɔ aniwa ho haw a ɛte sɛɛ? Momma yensua Coats Disease ho ade.

So woahyɛ biribi soronko nsow pɛn bere a wohwɛ wo ba kumaa no ani no? Ebia aniwa biako te sɛ nea ɛyɛ nwonwa kakra, anaasɛ ɛte sɛ nea wɔn ani so yɛ kusuu kakra? Sɛ wuhu biribi a ɛte saa a, mfa nyɛ hwee. Ɛnnɛ yɛbɛka ɔhaw bi a ebia ɛbɛba w’adwene mu wɔ bere a ɛte saa mu ho asɛm, na ɛno ne tebea bi a wɔfrɛ no Coats Disease . Eyi yɛ aniwa mu yare a ɛntaa nsi a ɛtaa ka mmofra nkumaa, titiriw mmarimaa.

Dɛn ne Coats Yare? Momma yɛnte ase tiawa koraa.

Sɛ yɛbɛka no tiawa a, Coats Disease yɛ tebea a ɛba bere a mogya ntini a ɛwɔ wo ba aniwa mu no nnyin yiye no. Eyi ka retina a ɛyɛ aniwa no akyi no pɔtee. Susuw ho saa kwan yi so: sɛ yɛn aniwa te sɛ mfoninitwa afiri a, retina no te sɛ sini a ɛwɔ mu no. Sɛ hann hyɛn aniwa no mu a, ehu mfonini ahorow na ɛde nkrasɛm kɔ amemene no mu denam saa retina yi so.

Enti, wɔ Coats Disease mu no, mogya ntini nketenkete a ɛwɔ retina no mu no hohoro na ɛkyinkyim, na efi ase tu anaasɛ nsu te sɛ plasma . Eyi te sɛ nsu paipu a tokuru wɔ mu na nsu retu. Ɛwom sɛ ebia ɛrensɛe ade kɛse ntɛm ara de, nanso bere kɔ so no, saa nsu a ɛtwetwe yi betumi asɛe retina no na aka anisoadehu.

Saa yare yi taa ka aniwa biako. Nanso, ɛntaa ntumi nka aniwa abien no nyinaa bere koro mu. Ɛwom sɛ wɔtaa hu wɔ mmofra nkumaa ne mmabun mu de, nanso ebetumi aba wɔ mfe biara mu. Eyi betumi ama obi nhu ade yiye, ɔhaw ahorow a emu yɛ den te sɛ retina a ɛtwetwe, na awiei koraa no, saa aniwa no ani afura. Enti, sɛ wuhu nsakrae bi wɔ wo ba no ani anaa n’ani so a, ɛho hia sɛ wokɔ oduruyɛfo nkyɛn ntɛm ara.

Dɛn ne sɛnkyerɛnne ahorow yi? Woyɛ dɛn hu wɔn?

Coats Disease Ebia ɛremma sɛnkyerɛnne biara mma wɔ mfiase no. Nanso, bere a yare no kɔ so no, abofra no betumi ada sɛnkyerɛnne ahorow te sɛ:

• Anisoadehu so retew nkakrankakra: Ebia wo ba no bɛte nka sɛ ontumi nhu ade yiye wɔ aniwa biako mu. Ebia wubehu nneɛma te sɛ sɛ wobɛbɛn wo ho bere a worehwɛ TV anaa w’ani a wobɛbɔ bere a worekenkan nhoma bi.
• Strabismus: Ɛte sɛ nea aniwa biako dan kɔ baabi foforo sen foforo no.
• Aniwa mu yaw: Mmofra binom nso betumi anwiinwii wɔ aniwa mu yaw ho.
• Leukocoria: Eyi yɛ sɛnkyerɛnne a ɛyɛ soronko kakra. Sɛ wohwɛ wo ba aniwa , anaa wotwa mfonini a, ebia ɛbɛyɛ te sɛ nea ɛyɛ fitaa anaa dwetɛ. Ɛtɔ da bi a wɔfrɛ eyi "ɔkraman aniwa." Sɛ wuhu saa sɛnkyerɛnne yi a, akyinnye biara nni ho sɛ ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn ntɛm ara.

Fa no sɛ, sɛ wo ba no redi agoru a, wuhu sɛ ɔmfa n’ani biako nhu ade yiye, anaasɛ sɛ wotwa mfonini anadwo a, baabi fitaa bi wɔ aniwa biako anim tuntum no mu. Ɛno ne nea ebetumi aba sɛ ɛrekɔ so wɔ ha.

Dɛn ne Coats Disease no fã ahorow?

Wɔakyekyɛ Coats Disease mu afã horow pii, a egyina sɛnea ɛkɔ so, a ɛte sɛ antweri so.

• Ɔfã 1: Eyi ne ɔfã a ɛho hia sen biara. Ɛha yi, aniwa ho oduruyɛfo no tumi hu sɛ abofra no mogya ntini a ɛnteɛ wɔ aniwa no mu, nanso abofra no nnya nnyaa ɔhaw anaa sɛnkyerɛnne biara esiane ɛno nti.
• Ɔfã 2: Eyi ne baabi a nsu fi ase tu fi mogya ntini a ɛnyɛ ne kwan so no mu. Mpɛn pii no, eyi betumi aka abofra no anisoadehu.
• Ɔfã 3: Sɛ yare no du saa gyinabea yi a, abofra no retina fi ase tetew. Eyi yɛ tebea a emu yɛ den kɛse.
• Ɔfã 4: Wɔ ɔfã a ɛto so anan mu no, abofra no ani betumi anya glaucoma , yare a ɛma nhyɛso a ɛwɔ aniwa no mu no yɛ kɛse.
• Ɔfã 5: Eyi ne Coats Disease no fã a emu yɛ den na etwa to sen biara. Saa bere yi de, ebia aniwa a ayɛ no anifurae koraa.

Nea ɛho hia sen biara ne sɛ, ɛmfa ho sɛnea yare no akɔ so no, dodow a wohu no ntɛm na wɔsa no, dodow no ara na hokwan a ɛwɔ hɔ sɛ wɔbɛkora abofra no ani so no so.

Dɛn nti na Coats Disease ba?

Nokwarem no, abenfo ntumi nhu nea ɛde Coats Disease (idiopathic ) ba da so ara. Ɛne sɛ, ɛtaa ba ara kwa, a biribiara pɔtee biara nni ho.

Ade foforo a ɛho hia ne sɛ Coats Disease nyɛ awosu mu yare . Ɛne sɛ, ɛnyɛ awosu mu yare a efi awo ntoatoaso so kɔ awo ntoatoaso so. Sɛ obiara nni w’abusua mu mpo a, wo ba no betumi anya bi. Afei nso, esiane sɛ na wo mma no mu biako wɔ bi nti, ɛho nhia sɛ wohaw wo ho sɛ mmofra afoforo nso benya bi.

Hena na ɛda adi sɛ obenya eyi? (Nneɛma a ɛde asiane ba) .

Ɛwom sɛ obiara betumi anya Coats Disease de, nanso nnipa binom wɔ asiane kɛse mu.

• Wɔahu sɛ mmarimaa betumi anya saa yare yi bɛyɛ mprɛnsa sen mmeawa.
• Sɛ yɛhwɛ mfe a obi adi a:
• Nnuruyɛfo taa hu eyi wɔ mmofra ne mpanyimfo nkumaa a wonnii mfe 16 mu .
• Ɛntaa mma koraa sɛ wobetumi awo nkokoaa binom a wɔwɔ saa tebea yi, anaasɛ ebetumi ada adi wɔ awo akyi asram kakraa bi.
• Wɔbɔ amanneɛ nso sɛ nnipa a wɔwɔ Coats Disease no mu bɛyɛ nkyem abiɛsa mu biako yɛ mpanyimfo a wɔadi boro mfe 30 .

Ɔkwan bɛn so na oduruyɛfo hu eyi? (Nyare a Wɔahu) .

Sɛ wokɔ oduruyɛfo nkyɛn, titiriw aniwa ho ɔyaresafo , bere a woahu biribi soronko wɔ wo ba no ani so akyi a, ade a edi kan a ɔbɛyɛ ne sɛ ɔbɛhwehwɛ abofra no ani mu yiye.

• Ɔde nnwinnade soronko hwehwɛ abofra no ani fi akyi ne ne mu nso.
• Wɔyɛ aniwa mu nhwehwɛmu de hwɛ sɛnea abofra no hu ade yiye. Nea ɛka eyi ho ne nkrataa ne mfonini a wɔde bɛkyerɛ wɔn na wɔama wɔakenkan.

Bio nso, wobetumi ayɛ mfoninitwa nhwehwɛmu titiriw a edidi so yi mu biako anaa nea ɛboro saa de asi Coats Yare no so dua:

• Optical Coherence Tomography (OCT) scan: Eyi twa retina no fã bi a wɔatwa no ho mfonini.
• Angiography nhwehwɛmu: Eyi hwehwɛ sɛ wode aduru titiriw bi bɛhyɛ ntini bi a ɛwɔ w’abasa mu mu na woatwa mfonini bere a ɛfa mogya ntini a ɛwɔ w’aniwa mu no mu . Eyi ma wutumi hu biribiara a ɛretu pefee.
• Ultrasound scan: Eyi betumi ahwɛ aniwa no mu.
• MRI (Magnetic Resonance Imaging) afiri a wɔde hwɛ nneɛma so.
• CT mfonini (Computed Tomography mfonini) a wɔde yɛ nhwehwɛmu.

Saa nhwehwɛmu ahorow yi ma oduruyɛfo no hu nea ɛrekɔ so wɔ aniwa no mu, baabi a mogya ntini no asɛe kodu, ne sɛ ebia nsu retu anaa.

Dɛn ne ayaresa ahorow no?

Coats Disease ayaresa gyina faako a yare no wɔ wɔ abofra no mu so. Sɛ nhwɛso no, sɛ wohu yare no ntɛm paa (ɔfã 1 anaa mfiase 2) , ebia abofra no renhia ayaresa biara koraa. Wɔ tebea horow a ɛtete saa mu no, aniwa ho oduruyɛfo no bɛhwɛ abofra no ani daa na wahwɛ sɛ nsakrae bi aba mogya ntini a ɛwɔ retina no mu.

Nanso, sɛ abofra no nya yare no ho sɛnkyerɛnne a emu yɛ den, anaasɛ sɛ yare no mu yɛ den kɛse a, ayaresa ahorow bi wɔ hɔ te sɛ:

• Cryotherapy: Nea ɛka eyi ho ne sɛ wɔde awɔw a ano yɛ den di dwuma de ma mogya ntini a ɛnyɛ ne kwan so no yɛ nwini na wɔsɛe no, na afei ɛmma nsu ntumi nkɔ mu.
• Nnuru a Wɔde Sa: Aniwa ho oduruyɛfo betumi de aduru bi a ɛko tia VEGF (Anti-vascular endothelial growth factor) ahyɛ abofra no ani so tẽẽ. Saa aduru yi boa ma nsu ntumi nkɔ saa mogya ntini no mu na ɛmma retina no ntew.
• Oprehyɛn: Sɛ abofra no wɔ yare no fã a emu yɛ den mu, anaasɛ tebea bi te sɛ retina detachment aba a, ebia ɛho behia sɛ wɔyɛ oprehyɛn de siesie nea asɛe no.

Sɛ me ba no wɔ Coats Disease a, dɛn na metumi ahwɛ kwan?

Nkɛntɛnso a Coats Disease nya wɔ abofra aniwa ne n’ani so no gyina bere a wohu yare no ne sɛnea aniwa no yɛ n’ade yiye wɔ ayaresa ho so. Nhwehwɛmu ahorow ada no adi sɛ dodow a abofra nyin bere a wohu yare no, dodow no ara na ɛnyɛ den sɛ obenya nkɔso akodu baabi a emu yɛ den .

Sɛ wohu Coats Disease ntɛm (afã 1 anaa 2) a, ɛnyɛ den koraa sɛ abofra no benya nkɛntɛnso a emu yɛ den, a ɛtra hɔ kyɛ. Nanso, sɛ wɔsa yare mpo a, ebia aniwa a ayɛ no yaw no da so ara ntumi nhu ade yiye kodu baabi (aniwa a ɛba fam).

Sɛ yare no akɔ anim akodu baabi a emu yɛ den kɛse a, asiane kɛse wɔ hɔ sɛ aniwa a ɛka no no befura. Ɛno nti na yɛhyɛ nyansa sɛ kɔ oduruyɛfo nkyɛn ntɛm ara, sɛ wuhu nsakrae ketewaa bi mpo a.

Nsɛnnennen afoforo bɛn na eyi betumi de aba?

Wɔ Coats Disease mu no, abofra wɔ asiane kɛse mu sɛ obenya aniwa mu yare afoforo te sɛ:

• Glaucoma a ɛma obi ho yɛ hyew
• Aniwa a ɛyɛ mmerɛw
• Uveitis ( ntini a ɛwɔ aniwa no mu a ɛyɛ hyew) .
• Ntini a ɛma ntini foforo

Enti, ɛho hia paa sɛ wudi oduruyɛfo no akwankyerɛ akyi yiye na wokɔyɛ nhwehwɛmu wɔ bere ano.

So wobetumi asiw Coats Disease ano?

Esiane sɛ saa yare yi ba kwa, a enni nea ɛde ba pɔtee biara nti, biribiara nni hɔ ankasa a yebetumi ayɛ de asiw Coats Disease ano.

Nanso, sɛ wohu yare no wie a, ɛho hia sɛ wɔyɛ aniwa mu nhwehwɛmu daa akyi sɛnea aniwa ho oduruyɛfo kamfo kyerɛ de hwɛ nsakrae a ɛba abofra no ani so. Eyi bɛboa ma wɔahu yare no mu den biara na wɔayɛ nneɛma a ɛho hia.

Bere bɛn na ɛsɛ sɛ mekɔ oduruyɛfo nkyɛn?

Sɛ wuhu nsakrae bi wɔ wo ba no ani anaa n’ani so a, kɔ oduruyɛfo anaa aniwa ho oduruyɛfo nkyɛn ntɛm ara. Ntwentwɛn wo nan ase.

Afei nso, sɛ wuhu saa sɛnkyerɛnne ahorow yi bi a, kɔ ayaresabea dwumadibea a wɔhwɛ ntɛmpɛ so ntɛm ara :

• Anisoadehu a ɛyera mpofirim.
• Aniwa mu yaw a emu yɛ den.
• Wobetumi aka ho asɛm sɛ wohu hann a ɛrehyerɛn anaasɛ wuhu nneɛma a ɛsensɛn nsu so wɔ aniwa anim.

Nsɛm bɛn na ɛsɛ sɛ wubisa oduruyɛfo no?

Sɛ wokɔ oduruyɛfo nkyɛn a, ebia wobɛpɛ sɛ wubisa nsɛm te sɛ eyinom:

• Coats Disease no fã bɛn na me ba no wɔ?
• Mpɛn ahe na ɛsɛ sɛ meba bɛyɛ sɔhwɛ ahorow a edi akyi?
• So abofra no hia ayaresa?
• Ayaresa bɛn na ohia?
• Coats Disease bɛka n’ani so ahe?

Bisa nsɛm te sɛ eyinom na yi w’adwenem naayɛ nyinaa fi hɔ. Oduruyɛfo no bɛkyerɛkyerɛ biribiara mu akyerɛ wo.

Nsonsonoe bɛn na ɛda Coats Disease ne Retinoblastoma ntam?

Coats Disease ne Retinoblastoma yɛ tebea abien a ɛka mmofra nkumaa retina.

• Coats Disease yɛ tebea a mogya ntini a ɛwɔ abofra retina mu no nyin wɔ ɔkwan a ɛnteɛ so, na ɛma nsu tu kɔ aniwa no mu.
• Retinoblastoma yɛ kokoram a ɛntaa nsi a ɛba retina no mu. Ɛwom sɛ ɛyɛ kokoram de, nanso sɛ akisikuru no antrɛw ankɔ aniwa no akyi a, mmofra dodow no ara betumi atra ase a kokoram biara nni wɔn ho bere a wɔasa wɔn yare awie no.

Nyarewa abien no nyinaa ho sɛnkyerɛnne a edi kan no di nsɛ yiye. Titiriw no, wobetumi ahu sɛnea iris tuntum (leukocoria) no yɛ fitaa no wɔ abien no nyinaa mu. Enti, sɛ wuhu nsakrae anaa sɛnkyerɛnne biara wɔ wo ba aniwa mu a, ɛho hia sɛ wokɔ aniwa ho oduruyɛfo nkyɛn ntɛm ara na ama woahu nea ɛyɛ pɛpɛɛpɛ. Oduruyɛfo no betumi ayɛ nhwehwɛmu na wakyerɛ wo nyarewa abien yi mu nea ɛyɛ pɛpɛɛpɛ.

Nkrasɛm a Wɔde Kɔ Fie

Coats Disease yɛ tebea a ɛntaa nsi a ɛka mogya ntini nketenkete a ɛwɔ retina, wo ba aniwa akyi no. Eyi ma nsu fi saa mogya ntini no mu, na ɛsɛe anisoadehu.

Adeɛ a ɛho hia paa sɛ yɛkae ne sɛ, ɔkwan pa a wɔbɛfa so atew nkɛntɛnsoɔ a yareɛ yi nya wɔ abofra aniwa ne n’ani so ne sɛ wɔbɛkyere yareɛ no wɔ ne mfitiaseɛ.

Enti, sɛ wuhu nsakrae ketewaa bi mpo wɔ wo ba ani anaa ɔkwan a ɔfa so hu nneɛma so a, mmu w’ani ngu so na kɔ oduruyɛfo anaa aniwa ho oduruyɛfo nkyɛn ntɛm ara. Sɛ wohu ntɛm a, hokwan kɛse wɔ hɔ sɛ wo ba no betumi agye n’ani so denam ayaresa so. Mma ɛnhaw wo, nnuruyɛfo wɔ hɔ sɛ wɔbɛboa wo ne wo ba no.

` Coats yareɛ, mmofra aniwa mu nyarewa, mogya ntini a ɛwɔ aniwa mu, retina, anisoadehunu a ɛyera, aniwa ayaresa, mmofra akwahosan