So wo ba no da asiane mu? Momma yɛnka Fetal Hydantoin Syndrome ho asɛm

Sɛ woanyinsɛn anaa woreyɛ nhyehyɛe sɛ wobɛyɛ ɛna nnansa yi ara a, ɛho hia sɛ wuhu nnuru a wonom no yiye. Titiriw sɛ worenom nnuru ama tebea bi te sɛ akisikuru (akisikuru) a, ebia ɛbɛhaw wo sɛ ebia aduru no bɛka wo ba a ɔhyɛ yafunu mu no anaa. Enti, ɛnnɛ yɛrebɛka tebea pɔtee a ebetumi aba akokoaa no mu esiane nnuru bi a wɔnom wɔ nyinsɛn mu nti.

Dɛn ne Awotwaa mu Hydantoin Syndrome?

Sɛ yɛbɛka no tiawa a, Fetal Hydantoin Syndrome yɛ sɛnkyerɛnne ahorow a wɔaboaboa ano a ebetumi aba wɔ nkokoaa a wɔde nnuru bi a ɛma akisikuru a ɛna no nom bere a wɔyem, titiriw Phenytoin (ahyɛnsode Dilantin®) . Nnuruyɛfo frɛ saa nnuru yi teratogens , a ɛkyerɛ sɛ ɛyɛ nneɛma a ebetumi asiw akokoaa no nkɔso kwan sɛnea ɛsɛ.

Wobetumi ahu saa yare yi ho sɛnkyerɛnne ahorow bi wɔ awo mu. Sɛ nhwɛso no, wotumi hu akokoaa no anim, ne ti, ne ne nsateaa mu awosu bi.

Nanso, ebia sɛnkyerɛnne ahorow bi renna adi ntɛm ara. Ebia nkɔso a ɛkyɛ ne adwene mu dɛmdi renna adi kosi akyiri yi. Enti, ɛsɛ sɛ nnuruyɛfo ne abusua no mufo bom hwehwɛ nea ɛde tebea no ba na wɔma akokoaa no ayaresa ne mmoa a ɛho hia.

Nanso, ɛho hia sɛ yɛhyɛ no nsow sɛ ɛnyɛ akokoaa biara a wɔde nnuru yi bedi dwuma no na obenya Fetal Hydantoin Syndrome. Mpɛn pii no, ɛrenyɛ saa. Nanso, esiane sɛ asiane ahorow bi wɔ hɔ nti, wo duruyɛfo bɛhwɛ wo yiye wɔ wo nyinsɛn no nyinaa mu. Ebia ɛho behia sɛ wosesa wo nnuru no.

Ɛho hia paa sɛ wunnyae w’aduru nom da a wunnya wo duruyɛfo afotu. Saa a wobɛyɛ no betumi ayɛ asiane ama wo ne wo ba a ɔhyɛ yafunu mu no. Wo duruyɛfo bɛtew w’aduru dodow so sɛnea ɛho hia, anaasɛ ɔbɛsesa wo akɔ aduru foforo so. Enti, di wo duruyɛfo akwankyerɛ akyi pɛpɛɛpɛ. Bisa sɛ biribi wɔ hɔ a wonte ase anaa.

Saa tebea yi abu so dɛn?

Akontaabu mu no, awotwaa a wɔde aduru a wɔfrɛ no Phenytoin di dwuma no mu 5% kosi 11% betumi anya Fetal Hydantoin Syndrome.

Nanso, ɛnyɛ papa sɛ yebegyina dodow yi nkutoo so asi gyinae. Nnuruyɛfo taa hwɛ nkɛntɛnso a nnuru a ɛko tia apɔwmuden nya wɔ nyinsɛn mu nyinaa. Ɛne sɛ, nnuruyɛfo dwen nkɛntɛnso ahorow a ebetumi afi nnuru ahorow a ɛko tia apɔwmuden mu aba nyinaa ho – bere a wɔnom nkutoo ne bere a wɔnom bom nyinaa – sen sɛnea ɔyare pɔtee bi abu so no.

Sɛ nhwɛso no, nnuru a wɔde sa akisikuru bɛboro biako a wobɛnom bere koro mu no betumi ayɛ nea asiane wom sen sɛ wobɛnom biako pɛ. Afei nso, nnuru bi (te sɛ nneɛma a valproate wom) taa de ɔhaw ahorow a emu yɛ den ba sen afoforo.

Wo duruyɛfo betumi akyerɛkyerɛ sɛnea nnuru a wonom no betumi aka wo nyinsɛn no mu pɔtee. Wɔbɛhwɛ asiane a ɛwɔ mu no na wɔatu wo fo sɛnea ɛfata.

Dɛn ne awotwaa mu hydantoin syndrome ho sɛnkyerɛnne?

Fetal Hydantoin Syndrome ho sɛnkyerɛnne ahorow bi a wotumi hu wɔ awo mu ne:

• Wɔma aniwa no da nsow kɛse sen sɛnea ɛte daa (wɔ nnuruyɛ mu frɛ no hypertelorism ).
• Aniwa a wɔatwa (strabismus) .
• Anofafa a apaapae ne/anaasɛ anom a apaapae .
• Hwene no bridge no yɛ tratraa anaasɛ ɛtrɛw sen sɛnea ɛte daa.
• Ne ti yɛ ketewaa sen sɛnea ɛte daa (microcephaly) .
• Nsateaa nnadewa ne nansoaa nnadewa a ennyin yiye anaasɛ asɛe.

Bere a wo ba no nyin no, ebia wubehu sɛnkyerɛnne ahorow a ɛkyerɛ sɛ ne nyin akyɛ . Nkɔso a ɛkyɛ ne bere a wo ba no ka akyi wɔ nkɔso mu nneɛma atitiriw bi ho bere a wɔde toto nkokoaa afoforo a wɔn mfe akɔ anim ho no. Sɛ nhwɛso no, serew a odi kan, ɔbobɔw ne ho, anaa n’anammɔn a edi kan a obetu.

Ebia wubehu sɛnkyerɛnne ahorow nso a ɛkyerɛ sɛ obi adi dɛm wɔ adwene mu . Adwene mu dɛmdi yɛ biribi a ɛka ɔkwan a wo ba no fa so sua ade na ɔne wiase a atwa ne ho ahyia no di nkitaho. Sɛ nhwɛso no, ebia wo ba no rentumi nkɔ tiafi anaa ɔnyɛ ne ho dwumadi ahorow ntɛm sɛnea wopɛ. Anaasɛ, ebia wobenya ɔhaw wɔ nsusuwii ahorow te sɛ sika ne bere a wɔde di dwuma ho ntease mu.

Dɛn nti na ɛte saa?

Nea ɛde Fetal Hydantoin Syndrome ba titiriw ne nnuru a wɔde ma akokoaa no fa awotwaa no mu bere a wanyinsɛn no.

Nhwehwɛmufo da so ara nte ɔkwan a nnuru yi fa so de saa nkwaadɔm mu nsakrae ne nsakrae afoforo ba no ase yiye. Wogye di sɛ nneɛma afoforo te sɛ awosu mu nneɛma betumi adi dwuma bi. Sɛ nhwɛso no, awosu mu nkwaadɔm mu nsakrae bi betumi aka ɔkwan a wo nipadua no fa so bubu nnubɔne. Ɛno nso betumi ayɛ nea enti a nnubɔne betumi aka wo bere a woanyinsɛn no.

Yɛwɔ anidaso sɛ daakye nhwehwɛmu bɛda nsɛm pii adi afa sɛnea saa yare yi kɔ so ne onii a ɔwɔ asiane kɛse mu ho.

Ɔkwan bɛn so na nnuruyɛfo hu saa tebea yi?

Nnuruyɛfo hu Fetal Hydantoin Syndrome wɔ awo mu anaasɛ ne mmofraase bere a akokoaa no da tebea no ho sɛnkyerɛnne a ɛtaa ba adi no. Ɛna no aduruyɛ ho abakɔsɛm (a nnuru ka ho) nso boa ma wohu yare no. Nhwehwɛmu pɔtee biara nni hɔ a ɛkyerɛ sɛ obi anya Fetal Hydantoin Syndrome.

Saa ara nso na nhwehwɛmu pɔtee biara nni hɔ a ɛkyerɛ sɛ Fetal Hydantoin Syndrome wɔ hɔ wɔ bere a edi awo anim no mu. Nanso, ebia nnuruyɛfo begyina awo mu dɛmdi ahorow bi a wohu bere a wɔreyɛ nhwehwɛmu te sɛ scan ahorow so besusuw sɛ ɔyare no wɔ hɔ.

Dɛn ne ayaresa ahorow no?

Nnuruyɛfo begyina ne yare no ho sɛnkyerɛnne ne n’ahiade pɔtee so asa wo ba no yare. Saa ayaresa ahorow yi betumi asesa bere a wo ba no nyin no. Ayaresa a wobetumi de adi dwuma no bi ne:

• Oprehyɛn: Sɛ nhwɛso no, oprehyɛn a wɔyɛ de siesie anofafa ne anom a apaapae.
• Nnuru a wɔde di dwuma.
• Nipadua mu ayaresa.
• Adwuma mu ayaresa.

Ebia wo ba behia mmoa foforo wɔ adesua mu. Wo ba no aduruyɛ kuw no ne wo bɛyɛ adwuma de ayɛ Ankorankoro Abusua Dwumadi Nhyehyɛe (IFSP) . Eyi yɛ krataa a wɔayɛ ama wo ba no ahiade. Ɛyɛ nhyehyɛe ma nnwuma a ebia wo ba behia, te sɛ mfiridwuma a ɛboa ne kasa mu ayaresa .

Ebia nnuruyɛfo ne ayaresa ho animdefo a wɔbom hwɛ wo ba no bi ne:

• Mmofra nnuruyɛfo.
• Nnuruyɛfo a wɔyɛ oprehyɛn a wɔde yɛ plastic.
• Nnuruyɛfo a wɔyɛ anom oprehyɛn.
• Mmofra adwene ho animdefo.
• Mmofra ntini ho animdefo.
• Adwuma mu ayaresa ho animdefo.
• Ɔkasa ho ayaresa ho animdefo.

Sɛ me ba no wɔ saa tebea yi a, dɛn na ɛsɛ sɛ mehwɛ kwan?

Wo ba no aduruyɛ kuw no begyina wo ba no yare no ho sɛnkyerɛnne so akyerɛ wo nea ɛsɛ sɛ wohwɛ kwan. Ebia wo ba no behia oprehyɛn bi wɔ n’asetra mfiase, ne nnwuma bi te sɛ mmoa a wɔde ma wɔ adesua mu, bere a ɔrenyin no.

Mma biribiara nhaw wo prɛko pɛ. Fa no anammɔn biako biara. Sɛ wote adwennwen anaa nhyɛso kɛse nka a, kɔ oduruyɛfo bi nkyɛn . Wobetumi aka wo nkate ho asɛm na wɔaboa wo ma woanya akwan pa a wobɛfa so adi w’adwennwen ho dwuma.

So wobetumi asiw Fetal Hydantoin Syndrome ano?

Ɛtɔ mmere bi a, ne titiriw no, sɛ aduru no ho hia ma w’akwahosan a, ɛnyɛ bere nyinaa na wubetumi asiw aduru no ano na ɛrempira wo ba a ɔhyɛ yafunu mu no. Nanso, wo duruyɛfo betumi ne wo ayɛ adwuma de aboa ma asiane a ɛwɔ hɔ sɛ obenya awotwaa mu hydantoin syndrome no so atew. Sɛ nhwɛso no, wobetumi:

• Nnuru a wobɛsesa ansa na woanyinsɛn ne bere a woanyinsɛn. Ebia eyi bɛhwehwɛ sɛ wobɛtew nnuru dodow a wonom da biara no so. Anaasɛ, sɛ wɔbɛdan akɔ nnuru afoforo a ɛnyɛ den sɛ ebepira akokoaa no so.
• Tu mmea fo sɛ wɔnnom folic acid a wɔde ma ansa na wɔanyinsɛn ne bere a wɔanyinsɛn no na aboa ma wɔabɔ wɔn ho ban afi awo mu dɛmdi ho.

Wo duruyɛfo bɛhwɛ wo yiye wɔ wo nyinsɛn no nyinaa mu na wayɛ nsakrae biara a ɛho hia wɔ wo nnuru no mu. Enti, hwɛ hu sɛ wubedi bere a woahyɛ da ayɛ no so na woaka nsɛmmisa anaa dadwen biara a ebia wowɔ ho asɛm akyerɛ wo duruyɛfo.

Bere bɛn na ɛsɛ sɛ wohwehwɛ aduruyɛ mu afotu?

Sɛ worenom nnuru a ɛbɛboa wo ma woanya ahoɔden na woatumi anyinsɛn, anaasɛ woreyɛ nhyehyɛe sɛ wubenyinsɛn a, hwɛ hu sɛ wo ne wo duruyɛfo bɛkasa. Wɔbɛhwɛ wo nnuru no mu na wɔasi gyinae sɛ ebia ɛsɛ sɛ wɔyɛ nsakrae bi anaa.

Sɛ woanyinsɛn dedaw na worenom nnuru a ɛbɛma woayɛ apɔw-mu-teɛteɛ a, di wo duruyɛfo no nhyehyɛe a wode bɛkɔ akɔhwɛ wo no akyi pɛpɛɛpɛ. Saa nhyehyɛe ahorow yi ho hia yiye efisɛ ɛno ne bere a wo duruyɛfo betumi ahwɛ wo nyinsɛn no so na wayɛ nsakrae wɔ w’aduru no mu sɛnea ɛho hia. Wɔbɛyɛ nea wobetumi biara de aboa wo ma woansiw akisikuru ano bere a wɔremma ɔhaw biara a ɛbɛba wo ba no so nso ayɛ ketewaa bi.

Nsɛm bɛn na ɛsɛ sɛ mibisa oduruyɛfo no?

Nsɛmmisa bi a ebia wobɛpɛ sɛ wubisa ansa na woanyinsɛn:

• So asiane biara nni ho sɛ menyinsɛn?
• Nsakrae bɛn na ebehia sɛ meyɛ wɔ nnuru a mede di dwuma no mu?
• Hokwan bɛn na ɛwɔ hɔ sɛ m’aduru no bɛka akokoaa no nyin?
• Bere bɛn na ɛsɛ sɛ meba bɛhwɛ wo bio?

Nsɛmmisa a ɛsɛ sɛ wubisa sɛ wo ba no anya Fetal Hydantoin Syndrome anaa:

• Ɔkwan bɛn so na saa tebea yi bɛka me ba no?
• Ayaresa bɛn na wokamfo kyerɛ, na bere bɛn na wofi ase?
• Ɔkwan bɛn so na ɛsɛ sɛ mehwɛ me ba wɔ fie?
• Ɔkwan bɛn so na saa tebea yi bɛka me ba no nkɔso anaa n’adwene?
• Dɛn na ɛsɛ sɛ mehwɛ kwan bere a me ba no renyin no?

Nyinsɛn yɛ bere a nnipa pii nnim. Afei nso, sɛ wowɔ tebea bi a ɛhwehwɛ sɛ wonom nnuru a, ebia woresusuw sɛnea saa aduru no bɛka wo ba no ho. Nnuru a wɔakyerɛw ama obi a ɔbɛnom akisikuru bere a nyinsɛn no betumi de awotwaa mu hydantoin syndrome anaasɛ nneɛma afoforo a wɔmpɛ aba. Mmom,Ɛbɛyɛ sɛ aduru no rennya wo nyinsɛn no so nkɛntɛnso – ɛno ne tebea a ɛda adi kɛse. Wo duruyɛfo betumi aka nea wobɛhwɛ kwan ho nsɛm pii akyerɛ wo na waboa wo wɔ anammɔn biara a wobɛtu.

Nkrasɛm a Wɔde Kɔ Fie

Fetal Hydantoin Syndrome a yɛkaa ho asɛm nnɛ no yɛ tebea a ebetumi aba nkokoaa mu esiane nnuru a ɛma akisikuru te sɛ Phenytoin a ɛna no nom bere a ɔyem nti. Eyi nsi obiara , nanso asiane bi wɔ hɔ.

Ade a ɛho hia sen biara ne sɛ wo ne wo duruyɛfo bɛkasa sɛ worenom nnuru a ɛbɛma wo ho ayɛ wo hyew na woresusuw ho sɛ wubenyinsɛn, anaasɛ woanyinsɛn dedaw a. Nnyae w’aduru nom da a wunnya wo duruyɛfo afotu. Wo duruyɛfo bɛboa wo ma woadi w’aduru no ho dwuma wɔ ɔkwan a ahobammɔ wom sen biara so ama wo ne wo ba no nyinaa.

Sɛ wo ba no wɔ saa tebea yi a, mma wo ho nnyɛ wo hu, hwehwɛ aduruyɛ mu afotu na nya ayaresa ne mmoa a ɛho hia. Kae sɛ ɛnyɛ wo nko ara, nnuruyɛfo, ayaresa ho animdefo, ne abusua mufo wɔ hɔ a wɔbɛboa wo.

` Fetal hydantoin syndrome, nnuru a wɔde di dwuma bere a wɔyem, phenytoin, akisikuru ne nyinsɛn, awo mu dɛmdi, onyin a ɛmma wontumi nnyin, Dilantin