So wo anaa obi a ɔwɔ w’abusua mu wɔ awosu mu yare bi a ɛntaa nsi a wɔfrɛ no hATTR? So wo duruyɛfo akyerɛw wo aduru bi a wɔfrɛ no Inotersen sɛ aduru a wɔde sa ntini mu haw ahorow a efi mu ba no? Enti ɛnnɛ yɛbɛka aduru yi ho asɛm pefee, sɛnea yɛde di dwuma, ne nneɛma a ɛsɛ sɛ yɛhwɛ yiye wɔ ho. Esiane sɛ eyi yɛ aduru a ɛyɛ den kakra nti, ɛho hia yiye sɛ wubenya ho ntease pa.
Dɛn ne aduru yi a wɔfrɛ no Inotersen?
Sɛ yɛbɛka no tiawa a, Inotersen yɛ aduru a wɔde sa ntini a ɛsɛe ayarefo a wɔwɔ awosu mu tebea pɔtee bi a wɔfrɛ no hereditary transthyretin-mediated amyloidosis (hATTR) . Wɔtaa tɔn no wɔ edin a wɔde frɛ no Tegsedi ase.
Afei ma yɛnhwɛ nea tebea a wɔfrɛ no hATTR yi yɛ. Eyi yɛ yare a ɛntaa nsi a ɛnam awosu mu nkwaadɔm so fi awo ntoatoaso so kɔ awo ntoatoaso so. Esiane nkwaadɔm mu nsakrae a ɛnteɛ a ɛba protein bi a wɔfrɛ no transthyretin a ɛba yɛn nipadua no mmerɛbo mu nti, saa protein yi boaboa ano na ɛkɔto nipadua no afã horow, titiriw wɔ ntini mu. Saa nneɛma a ɛwɔ hɔ yi (amyloid deposits) sɛe ntini no na ebetumi ama akwaa no ayɛ mmerɛw, ayɛ yaw, ayɛ mmerɛw, ayɛ den sɛ ɔbɛnantew, na ebetumi aka koma ne asaabo nso.
Enti nea Inotersen vaccine no yɛ ne sɛ ɛhwɛ sɛnea saa protein a ɛnteɛ no yɛ so na ɛtew ɔsɛe foforo a ɛba ntini ahorow so no so. Eyi nyɛ yare no ano aduru, nanso ɛboa kɛse ma yare no nkɔanim, kyerɛ sɛ, yare no mu yɛ den no so.
Kae sɛ, wobetumi de saa aduru yi nso adi dwuma wɔ ayaresa tebea afoforo mu sɛnea wo duruyɛfo bɛkyerɛ wo no. Enti di wo duruyɛfo akwankyerɛ akyi bere nyinaa.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom saa aduru yi
Ansa na wubefi ase de Inotersen ayɛ ayaresa no, ɛho hia sɛ woka w’akwahosan ho abakɔsɛm a edi mũ kyerɛ wo duruyɛfo. Hwɛ hu sɛ wobɛka:
- Asaabo mu yare: Sɛ wowɔ asaabo mu yare biara anaasɛ woanya bi pɛn a.
- Mogya mu haw: Sɛ wowɔ tebea bi a ɛma nkwammoaa kɔkɔɔ, nkwammoaa fitaa, anaa mogya mu nkwammoaa a ɛwɔ wo mogya mu no so tew a. Eyi ho hia yiye efisɛ saa aduru yi betumi aka wo mogya nkwammoaa dodow.
- Allergies: Sɛ wo ho ayɛ wo hyew wɔ Inotersen, aduru foforo biara, aduan, anaa nnuru a wɔde yɛ nneɛma ho a.
- Nyinsɛn: Sɛ woanyinsɛn, anaasɛ wowɔ anidaso sɛ wobɛnyinsɛn daakye a enni akyiri a.
- Nufusu: Sɛ woyɛ ɛna a worema wo ba nufu a.
Wo duruyɛfo no begyina saa nsɛm yi so asi gyinae sɛ ebia saa aduru yi fata wo ne ahwɛyiye foforo a ɛsɛ sɛ woyɛ bere a woreyɛ ayaresa no.
Ɔkwan bɛn so na ɛsɛ sɛ mede aduru no di dwuma?
Eyi yɛ aduru a wɔde twitwiw honam ani. Wɔtaa de ma pɛnkoro dapɛn biara.
- Ntetee: Wo duruyɛfoɔ anaa ɔyarehwɛfoɔ a wɔatete no bɛkyerɛ wo pefee sɛdeɛ wobɛsiesie saa vaccine yi ne sɛdeɛ wobɛfa wo ho wɔ fie. Mma ɛnhaw wo, sɛ wode ayɛ wo su pɛ a, ɛyɛ mmerɛw yiye.
- Di akwankyerɛ no akyi: Nom aduru no sɛnea wɔakyerɛ no pɛpɛɛpɛ, wɔ mmere a ɛfata mu, na nnom nea ɛboro dodow a wɔakyerɛw ama no da.
- Nnade a wɔtow gu: Ntow nnade ne syringe a wɔde adi dwuma ngu nwura mu da. Ɛsɛ sɛ wɔde gu ade titiriw bi a wɔde nnam ayɛ mu. Sɛ wunni bi a, wubetumi anya bi afi wo duruyɛfo anaa ayaresabea hɔ.
- Nnuru a wɔnom boro so: Sɛ wususuw sɛ woanom nnuru pii a, mma wo ho nnyɛ wo hu na frɛ National Poisons Information Center a ɛwɔ Colombo National Hospital ntɛm ara, anaa kɔ Emergency Treatment Unit (ETU) a ɛwɔ ayaresabea a ɛbɛn wo no.
- Sɛ wopa dose bi a: Sɛ wopa dose bi a, fa no bere a woakae ara pɛ. Nanso sɛ ennu nna abien kosi sɛ wobɛma wo dodow a edi hɔ no a, twa dodow a woayera no so. Fa dodow a edi hɔ no ara wɔ bere a wɔahyɛ da ayɛ no mu. Mfa nnuru mmɔho abien da.
Nneɛma bɔne a ebetumi afi mu aba bere a wɔrenom aduru no
Te sɛ aduru biara no, Inotersen betumi de ɔhaw ahorow bi aba. Eyinom bi betumi ayɛ aniberesɛm, enti ɛho hia sɛ wohu.
| Nsunsuanso bɔne | Nneɛma a ɛsɛ sɛ yɛhwɛ yiye wɔ ho |
|---|---|
| Sɛ wowɔ saa sɛnkyerɛnne ahorow yi a, kɔ wo duruyɛfo anaa ETU nkyɛn ntɛm ara. | |
| Nneɛma a ɛma obi ho yɛ no yaw | Honam ani akisikuru, ɛyaw, anim, ano anaa tɛkrɛma a ɛho ahonhon, ɛyɛ den sɛ wobɛhome. |
| Mogya a ɛtɔ a ɛnyɛ ne kwan so | Nsu a ɛyɛ tuntum anaa mogya, nsu a ɛyɛ kɔkɔɔ anaa bruu tuntum, ade a ɛte sɛ kɔfe a wɔfe, honam ani nsensanee kɔkɔɔ, mogya a ɛyɛ soronko a efi anom, hwene, anaa aniwa mu. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ obi anya ɔyare a ɛma obi hwe ase | Anisoadehu mu nsakrae, adwene a ɛyɛ basaa, ɛyɛ den sɛ ɔbɛkasa anaa ntease, tiyɛ a emu yɛ den, anim, abasa anaa nan a ɛyɛ mmerɛw anaa ɛyɛ mmerɛw mpofirim, nantew a ɛyɛ den, adwenemhaw. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ asaabo asɛe | Ɛyɛ den sɛ wobɛtow nsu anaasɛ nsakrae a ɛba nsu dodow a epue mu. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ mmerɛbo asɛe | Nsu a ɛyɛ kɔkɔɔ anaa bruu tuntum, aniwa anaa honam ani yɛ kɔkɔɔ, te nka sɛ wo ho ayɛ mmerɛw, atiridiinini, ɛyaw wɔ yafunu no atifi nifa so, akisikuru. |
| Sɛ eyinom kɔ so anaasɛ ɛhaw adwene a, ka kyerɛ wo duruyɛfo. | |
| Nneɛma bɔne a ɛtaa ba | Tiyɛ, nkwaa mu yaw, ntini mu yaw, akisikuru, ɔfe, ɔbrɛ, kɔkɔɔ, ɛyaw, anaa ɛyaw wɔ baabi a wɔde aduru no guu no. |
Nneɛma afoforo a ebia ɛne aduru yi bedi nkitaho
Nnuru afoforo a wonom betumi ne Inotersen adi nkitaho, na aka sɛnea ɛyɛ adwuma anaa nea efi mu ba no. Enti, ka nnuru a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo. Hwɛ yiye titiriw wɔ nnuru a edidi so yi ho:
- Nnuru a ɛma mogya yɛ mmerɛw: Nnuru te sɛ warfarin, apixaban, clopidogrel, ne aspirin. Sɛ wɔde eyinom ka Inotersen ho a, ebetumi ama asiane a ɛwɔ hɔ sɛ mogya bɛtɔ no ayɛ kɛse.
- Nnuru a wɔde kum ɛyaw (NSAID): Nnuru te sɛ ibuprofen ne naproxen. Eyinom nso betumi aka asaabo no na ama mogya a ɛbɛtɔ no ayɛ kɛse.
- Nnuru afoforo a ebetumi aka asaabo no bi ne: nnuru bi a ekum ɔyare mmoawa ne nnuru a ɛma nsu fi nipadua mu (nnuru a ɛma nsu mu nsu kɔ soro).
- Vitamin A: Ebia wo vitamin A dodow so bɛtew bere a wonom aduru yi no. Enti, ɛho hia paa sɛ wubenya vitamin A a ɛdɔɔso.Wo ne wo duruyɛfo nkasa fa nnuan ne vitamin ahorow a wudi ho, na sɛ ɛho hia a, fa vitamin A a wɔde ma.
Ebia nkitahodi ahorow a ebetumi aba nyinaa nka saa din a wɔahyehyɛ yi ho. Enti ka nnuru, nhabannuru, vitamin, ne nnuru a wɔde ka ho a worenom nyinaa ho asɛm kyerɛ wo duruyɛfo. Sɛ wonom sigaret, wonom nsa, anaa wode nnuru foforo di dwuma a, hwɛ hu sɛ wobɛka akyerɛ wo duruyɛfo.
Nkrasɛm a Wɔde Kɔ Fie
- Inotersen yɛ aduru a wɔde sa ntini a ɛsɛe a awosu mu tebea pɔtee bi a wɔfrɛ no hATTR de ba no.
- Ansa na wubefi ayaresa ase no, ka w’ayaresa tebea horow nyinaa (titiriw asaabo ne mogya ho) ne nea ɛma wo ho yɛ wo hyew no ho asɛm kyerɛ wo duruyɛfo.
- Sua sɛnea wɔde vaccine no bɛhyɛ mu yiye. Tow nnade ne syringe a wode adi dwuma no gu dwoodwoo.
- Sɛ wunya ɔhaw bi a anibere wom te sɛ mogya a ɛtɔ soronko, sɛnkyerɛnne a ɛkyerɛ sɛ woabɔ wo akisikuru, anaasɛ wo ho yɛ wo hyew a, hwehwɛ ayaresa ntɛm ara.
- Saa aduru yi yɛ wo nkutoo dea. Mma nnkyɛ obi foforo biara esiane biribiara nti.
- Kɔ so ne wo duruyɛfo nni nkitaho daa na kɔ nhwehwɛmu ne bere a wɔahyɛ ato hɔ.
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