So wo taa yɛ wo akisikuru nso? (Interstitial Cystitis/Bladder Pain Syndrome) - Momma yɛnka eyi ho asɛm!

So wotaa te ɛyaw anaa wo ho nyɛ wo dɛ wɔ wo yafunu ase, baabi a akisikuru no wɔ no? So wowɔ bere tiaa bi, nanso ɛho hia sɛ wototo wo ho mpɛn pii ? Sɛ saa a, eyi yɛ biribi a ebia ɛho hia wo. Yɛfrɛ saa tebea yi "Interstitial Cystitis" anaa "Bladder Pain Syndrome" (BPS) . Sɛ yɛbɛka no tiawa a, eyi yɛ ɛyaw a enni sabea anaasɛ ɛnyɛ dɛ wɔ akisikuru no mu.

Dɛn ne Interstitial Cystitis/Akisikuru mu Ɛyaw (IC/BPS)?

Sɛ yɛbɛka no tiawa a, interstitial cystitis yɛ tebea a "interstitial" a ɛwɔ mu no kyerɛ biribi a ɛka yɛn ntini anaa akwaa ntam kwan. "Cystitis" kyerɛ sɛ ɔfe. Enti, nea ɛba ne sɛ ɛyaw bi wɔ hɔ a ɛde ɔfe bi ba wo akisikuru no afasu mu.

Sɛ wowɔ IC/BPS a, ebia ɛho behia sɛ wototo wo ho mpɛn pii (mpɛn pii) sen sɛnea ɛte daa. Ebia wobɛte nka nso sɛ ɛho hia sɛ woto wo ho mpofirim (ɛho hia ntɛm) . Wɔsan frɛ eyi sɛ:

• Akisikuru a ɛyɛ yaw
• Mpɛn dodow-ntɛmpɛ-dysuria syndrome
• Ɛyaw a enni sabea a ɛba akyi berɛmo mu

IC/BPS ahorow atitiriw abien na ɛwɔ hɔ.

Nnuruyɛfo kyekyɛ eyi mu atitiriw abien:

1. Ulcerative IC/BPS: Wɔ eyi mu no, akuru a ɛyɛ yaw a wɔfrɛ no "Hunner's ulcers" ba wɔ akisikuru no fasu so. Nanso, eyi ho yɛ na kakra, ɛka nnipa a wɔwɔ IC/BPS no mu 5% kosi 10%.

2. IC/BPS a ɛnyɛ akuru: Eyi ne nea abu so sen biara. Nnipa a wɔwɔ IC/BPS no mu bɛyɛ 90% na wɔwɔ saa saa. Wɔ saa su yi mu no, wohu mogya a ɛtɔ nketenkete paa, a ɛte sɛ akuru nketenkete (glomerulations) , wɔ akisikuru no fasu mu.

Fa no sɛ wo akisikuru te sɛ balloon ketewaa bi. Ɛyɛ kɛse bere a nsu ahyɛ mu ma no , na ɛsan yɛ ketewaa bio bere a woretow nsu no . Afei, wɔ IC/BPS mu no, ɛte sɛ nea lining a ɛwɔ saa balloon no mu no asɛe na ɛbɛyɛ sensitive.

Dɛn ne "Stage 4" IC/BPS yi?

Ebia woate "Stage 4" IC/BPS ho asɛm. Eyi yɛ ma nnipa a wɔanya IC/BPS ho sɛnkyerɛnne a ɛkɔ so bɛboro mfe abien. Saa bere yi de, akisikuru no mu ntini no yɛ den yiye, enti entumi nkura nsu pii sɛnea na ɛte kan no bio. Wɔtaa hu saa tebea yi wɔ nnipa a wɔwɔ "Hunner akuru" a yɛadi kan aka ho asɛm no mu.

Saa tebea yi abu so dɛn?

IC/BPS yɛ tebea a ɛtaa ba ankasa sen sɛnea ebia wubesusuw. Sɛ nhwɛso no, wɔ United States nkutoo no:

• Mmarima ɔpepem 1 kosi 4
• Wobu akontaa sɛ saa tebea yi ka mmea ɔpepem 3 kosi 8.

Eyi kyerɛ sɛ eyi yɛ biribi a wɔtaa hu wɔ mmea mu, nanso ebetumi aba mmarima nso mu.

Dɛn ne IC/BPS ho sɛnkyerɛnne ahorow?

Nsɛnkyerɛnne no betumi ayɛ soronko wɔ onipa biara ho. Ebia nnipa binom behu sɛ wɔn ho nyɛ wɔn dɛ kakra , bere a afoforo nso betumi ate ɛyaw a emu yɛ den . Afei nso, saa sɛnkyerɛnne ahorow yi betumi aba bere nyinaa, anaasɛ ebetumi aba na akɔ bere ne bere mu.

Eyinom ne sɛnkyerɛnne ahorow a wɔtaa hu:

• Akisikuru a ɛyɛ hyew (cystitis) .
• Ɛyaw a ɛba wo yafunu ase, kyerɛ sɛ, baabi a wo akisikuru wɔ no.
• Nhyɛso anaasɛ ɔhaw a ɛba bere a nsu ahyɛ akisikuru no ma no .
• Nsu a wɔtaa tow ne mpofirim a wɔte nka sɛ ɛsɛ sɛ wɔtow nsu .
• Nsu kakraa bi pɛ na ɛba bere a wɔretoto nsu no .

Saa sɛnkyerɛnne ahorow yi betumi asɛe kɛse wɔ wo nna a wowɔ ɔsram biara mu, titiriw sɛ woyɛ ɔbea a.

Eyi te nka dɛn?

Eyi te nka sɛ ɛsono obiara ankasa. Ebia nnipa binom bɛte nka sɛ wɔn yafunu ase ayɛ duru kakra anaasɛ wɔn ho nyɛ wɔn dɛ. Ebia afoforo nso bɛte ɛyaw a ano yɛ den, te sɛ nea obi repiapia wɔn afi mu, anaasɛ ɔde sekan rebɔ wɔn. Nea ɛka eyi ho no, hia a ehia sɛ wɔtow nsu bere nyinaa , ne hia a ehia sɛ wɔsan tow nsu bere a wɔatwam kakra mpo no yɛ ahometew kɛse.

Dɛn ne nneɛma a ɛde IC/BPS ba?

Sɛ yɛbɛka nokware a, nnuruyɛfo ne nnuruyɛ mu nhwehwɛmufo nnya nhuu nea ɛde IC/BPS ba ankasa . Nanso, wosusuw sɛ ebia ɛne ayaresa tebea horow a edidi so yi bi wɔ abusuabɔ:

• Nyarewa a nipadua no tumi ko tia nyarewa: Ɛne sɛ, nyarewa a yɛn nipadua no ankasa nipadua mu tumi a ɛko tia nyarewa no tow hyɛ yɛn ankasa nkwammoaa so.
• Allergies: Nnipa binom wɔ allergy wɔ nneɛma ahorow ho.
• Mfomso ahorow bi wɔ wo akisikuru no mu.
• Ntini mu yare / ntini mu yare .
• Nneɛma a ɛnteɛ wɔ "mast cells" mu, nkwammoaa bi a ɛde akisikuru ho sɛnkyerɛnne ba.
• Nneɛma a ɛnteɛ a wowɔ wɔ wo nsu mu . Sɛ nhwɛso no, protein dodow a ɛkɔ soro bere nyinaa wɔ nsu mu (proteinuria) .
• Nyarewa a wonnim.

Ebia nneɛma yi mu biako anaa nea ɛboro saa na ɛde tebea yi ba.

Hena na tebea yi ka no kɛse?

Obiara betumi anya IC/BPS. Nanso, ebia wobɛkɔ asiane kɛse mu sɛ wubenya saa tebea yi sɛ:

• Sɛ ɔbea bi .
• Mfe 30 anaa nea ɛboro saaSɛ obi.
• Sɛ wowɔ aduruyɛ mu tebea foforo a ɛde ɛyaw a ɛtra hɔ kyɛ (e.g. Irritable Bowel Syndrome, Fibromyalgia).

Ɔkwan bɛn so na wobetumi ahu IC/BPS pɛpɛɛpɛ? (Nyare a Wɔahu) .

Sɔhwɛ pɔtee biara nni hɔ a ebetumi akyerɛ wo yiye sɛ wowɔ IC/BPS anaa. Nanso, oduruyɛfo bi bɛhyɛ sɛ wɔnyɛ nhwehwɛmu pii na ama woahwɛ ahu sɛ wunni nyarewa afoforo anaa ayaresa tebea horow. Ebia sɔhwɛ ahorow yi bi ne:

• Aduruyɛ ho abakɔsɛm: Wo duruyɛfo bebisa wo wo yare no ho sɛnkyerɛnne ahorow ho asɛm. Ebia wɔbɛka akyerɛ wo sɛ kyerɛw wo da biara da, a nea ɛka ho ne wo yare no ho sɛnkyerɛnne, nea wonom, dodow a wonom, ne dodow a wotow . Eyi bɛboa wo duruyɛfo no ma wahu wo tebea no yiye.
• Nsuo mu nhwehwɛmu / nsuo mu nhwehwɛmu: Sɛ wode nsuo nhwɛsoɔ ma a, wɔde afiri a wɔde hwɛ nneɛma nketenkete hwehwɛ mu hwɛ sɛ mogya wɔ nsuo no mu (hematuria) ne ɔyareɛ ho sɛnkyerɛnne (mmoawa, akisikuru, mogya mu nkwammoaa fitaa). Sɛ ɔyare mmoawa bi wɔ hɔ a, oduruyɛfo no bɛkyerɛw nnuru a ekum ɔyare mmoawa . Sɛ ɔyare mmoawa biara nni wo nsu mu wɔ ayaresa akyi, nanso wo yare no ho sɛnkyerɛnne no kɔ so a, ebia wo duruyɛfo besusuw sɛ IC/BPS.
• Biopsy: Eyi hwehwɛ sɛ wɔde wo bɛhyɛ aduru a wɔde kum nipadua no mu (a ɛkyerɛ sɛ woada) na wɔde ade fɛfɛ bi adi dwuma de agye ntini ketewaa bi afi akisikuru no fasu ne nsu a ɛkɔ nsu mu no mu. Wɔyɛ eyi de hwɛ hu sɛ tebea foforo biara a emu yɛ den te sɛ akisikuru a ɛwɔ akisikuru mu nni hɔ.
• Cystoscopy: Wɔ saa adeyɛ yi mu no, oduruyɛfo hwɛ wo nsu a ɛkɔ wo nsu mu ne wo akisikuru mu. Wɔde afiri a ɛyɛ tratraa a ɛyɛ mmerɛw a mfoninitwa afiri ne kanea wɔ ano biako (cystoscope) na ɛyɛ eyi . Wɔde eyi fa wo nsu a ɛkɔ wo nsu mu no mu na ɛkɔ wo akisikuru mu. Mpɛn pii no, wunhia nnuru a wɔde kum nipadua no wɔ saa adeyɛ yi mu. Nanso, sɛ wo duruyɛfo si gyinae sɛ ɛho hia sɛ wɔyɛ nipadua mu nhwehwɛmu ka cystoscopy no ho a, wobetumi ama wo aduru a wɔde kum nipadua no.
• Cystoscopy wɔ aduru a wɔde kum nipadua no mu a wɔde hydrodistension yɛ: Ɛtɔ mmere bi a nnuruyɛfo nso yɛ nhwehwɛmu yi. Bere a wɔreyɛ cystoscopy no, nsu hyɛ akisikuru no ma na ɛtrɛw ma ɛyɛ kɛse sen biara. Saa adeyɛ yi betumi ahwɛ sɛ ebia apirakuru anaa nusu biara wɔ akisikuru no mu anaa. Ɛyɛ yaw, enti wɔyɛ no wɔ aduru a wɔde kum nipadua no mu. Nanso, nnipa pii nya ahotɔ bere tiaa bi fi wɔn IC/BPS sɛnkyerɛnne ahorow no mu wɔ eyi akyi.

Ɔkwan bɛn so na wɔsa IC/BPS?

Nea ɛho hia ne sɛ wontumi nsa IC/BPS koraa . Nanso, ayaresa pii wɔ hɔ a wobetumi de adi dwuma. Botae titiriw a ɛwɔ ayaresa mu ne sɛ wobedi wo sɛnkyerɛnne ahorow so na ama woanya ahotɔ.Oduruyɛfo bi ne wo bɛkasa na wakyerɛ ayaresa a eye ma wo. Ɛtɔ mmere bi a, wobetumi de ayaresa ahorow a wɔaka abom adi dwuma.

Nnuruyɛfo ntumi nkyerɛ sɛnea wobɛyɛ w’ade wɔ ayaresa biara ho. Enti, ebia ɛsɛ sɛ wosɔ ayaresa ahorow hwɛ na wohwɛ sɛnea wo nipadua no yɛ n’ade. Ebia wo yare no ho sɛnkyerɛnne no befi hɔ koraa, anaasɛ ebetumi asɛe kɛse. Sɛ wo yare no ho sɛnkyerɛnne no fi hɔ mpo a, ebia ɛbɛsan aba akyiri yi.

Ebia IC/BPS ayaresa ahorow no bi ne:

Nsakrae a ɛba w’aduan mu

Nnipa binom a wɔwɔ IC/BPS ka sɛ nnuan ne anonne bi na ɛkanyan wɔn yare no ho sɛnkyerɛnne. Enti, ɛho hia sɛ wokyerɛw aduan ho kyerɛwtohɔ a ɛkyerɛ nea wudi ne nea wonom da mũ no nyinaa, ne dodow a wudi na wonom. Sɛ wokyerɛw nea wudii na wonom ansa na wo yare no ho sɛnkyerɛnne no afi ase, anaasɛ ansa na woayɛ kɛse a, wubetumi ahu nnuan a ɛkanyan wo sɛnkyerɛnne no na woakwati.

Sɛ wuhu sɛ nnuan ne anonne a acid wom (te sɛ nnuaba a wɔfrɛ no citrus te sɛ lemon ne orange, chili peppers, anonne a carbonated wom, tomato) ma wo yare no ho sɛnkyerɛnne no yɛ kɛse a, ebia wo duruyɛfo bɛkamfo akyerɛ sɛ fa aduru a ekum asikre ka w’aduan ho. Nnuru a ɛko tia acid yɛ adwuma denam acid dodow a ɛwɔ wo nsu mu a ɛtew so so .

Nnuan ne anonne bɛn na ebetumi apira sɛ wowɔ IC/BPS a?

Eyinom ne nnuan ne anonne a mpɛn pii no ebetumi ama IC/BPS sɛnkyerɛnne ahorow no ayɛ kɛse:

• Nsaden
• Nneɛma a wɔde yɛ aduan dɛdɛ
• Caffeine (a wohu wɔ tii ne kɔfe mu) .
• Nsã a wɔde carbon ayɛ (te sɛ soda) .
• Kyokolate
• Tomato a wɔde yɛ aduan
• Nnuaba mu nsu (titiriw nea acid pii wom) .

Oduruyɛfo nso betumi de wo akɔma aduan ho ɔbenfo bi a obetumi aboa wo ma woanya aduan a eye sen biara a ɛbɛma wo IC/BPS sɛnkyerɛnne ahorow no so atew.

Apɔw-mu-teɛteɛ

Apɔw-mu-teɛteɛ ne apɔw-mu-teɛteɛ betumi aboa ma IC/BPS ho sɛnkyerɛnne ahorow no afi hɔ. Eyinom bi ne:

• Renante
• Sakraman a wɔde tu kwan
• Ntrɛwmu a ɛyɛ brɛoo anaa yoga

Adwennwen a wɔbɛtew so

Adwennwen betumi ama IC/BPS sɛnkyerɛnne ahorow no ayɛ kɛse. Enti, sɛ wusua sɛnea wubehu adwennwen na woadi ho dwuma a, ebetumi aboa ma wo sɛnkyerɛnne ahorow no so atew. Sɛ wo ne adwenemyare ho ɔfotufo (adwene mu ayaresa) bɛkasa a, ebetumi aboa ma adwennwen so atew.

Nipadua mu ayaresa

Wo akyi berɛmo ntini ne nea ɛma wo akisikuru no gyina hɔ na ɛboa wo ma wudi wo nsu a wobɛtow so . Ntini yi a wɔhyɛ mu den (Kegel apɔw-mu-teɛteɛ) ., sɛ wobɛtrɛw wo ho, na titiriw no, wobɛhome a, ebetumi aboa ma interstitial cystitis/bladder pain syndrome ho sɛnkyerɛnne ahorow no afi hɔ. Oduruyɛfo betumi aboa ma woahwɛ ahu sɛ woreyɛ saa apɔw-mu-teɛteɛ yi yiye. Nnipa pii ne obi a ɔyɛ apɔw-mu-teɛteɛ ho ɔyaresafo a ɔhwɛ akyi berɛmo so yɛ adwuma de sua sɛnea wɔma saa ntini ahorow yi dwo yiye.

Akisikuru a wɔsan tete wɔn

Sɛ wo yaw wɔ wo akisikuru mu a, ɛnyɛ den sɛ wobɛfa wo su sɛ wobɛkɔ aguaree bere a wote ɛyaw no nka anaasɛ ɛho hia sɛ woto wo ho ntɛm ara pɛ, sɛ mpo wo akisikuru no nhyɛ ma koraa a. Eyi bɛboa wo nipadua no ma ayɛ ne su sɛ ɛbɛtaa akɔ aguaree. Nea ɛka akisikuru a wobɛsan atete wo ho ne sɛ wobɛtete wo ma woakura wo nsu mu bere tenten na woagyae saa su yi.

Sɛnea ɛbɛyɛ na eyi ayɛ wo su no, kyerɛw mpɛn dodow a wotow ne mpɛn dodow a wote nka sɛ ɛsɛ sɛ woto wo ho . Fa wo da biara da kyerɛwtohɔ no di dwuma, bɔ mmɔden sɛ wode nkakrankakra bɛma bere a ɛda aguaree akwantu ntam no ayɛ kɛse.

Nnuru a wɔnom

Nnuru a wɔnom a edidi so yi betumi aboa ma wɔasa IC/BPS sɛnkyerɛnne ahorow:

• Nnuru a wɔde yɛ komayare: Nnuru a wɔde kum asikre a wɔtɔn (e.g., Tums®, Rolaids®) betumi aboa ma acid dodow a ɛwɔ wo nipadua mu no so atew na ama yare no ho sɛnkyerɛnne so atew.
• Nnuru a ekum adwenemhaw: Nnuru a ɛko tia adwenemhaw a ɛwɔ tricyclic te sɛ amitriptyline (Elavil®) a ɛba fam no betumi aboa ma ɛyaw no so atew na wɔtaa tow nsu.
• Hydroxyzine: Nnuru bi a wɔfrɛ no histamine betumi ama obi anya IC/BPS ho sɛnkyerɛnne. Hydroxyzine yɛ nnuru bi a ekum akisikuru . Ɛboa ma woyi histamine fi wo akisikuru mu.

Akisikuru a wɔde hyɛ nipadua mu

Wɔ saa adeyɛ yi mu no, oduruyɛfo de plastic tube (catheter) a ɛyɛ tratraa bi hyɛ wo urethra mu na ɔde asaawa kɔ wo dwonku mu. Afei, ɛnam afiri no mu no, wɔde nnuru pii a wɔadi afra, a dimethyl sulfoxide (DMSO) , steroid, ne aduru a ɛma wo ho yɛ wo hyew ka ho ahyɛ wo dwonku mu ma. DMSO yɛ aduru a ɛyɛ nsu a ɛboa ma yare no ho sɛnkyerɛnne ahorow no fi hɔ.

Hydrodistension - sɛ ayaresa

Oduruyɛfo de nsu a ɛnyɛ den bɛhyɛ wo akisikuru ma na watrɛw mu. Eyi bɛboa ma akisikuru no akura nsu pii.Ne kɛse kɔ soro. Afei nso, nsu a ɛtrɛw betumi ama ntini a ɛyɛ adwuma boro so a ɛka kyerɛ w’amemene no sɛ wowɔ akisikuru mu yaw no adwo anaasɛ asɛe no. Wɔma wo aduru a wɔde kum nipadua no bere a hydrodistension no, enti woada, enti wonte ɛyaw biara bere a wɔreyɛ oprehyɛn no.

Ntini a ɛkanyan obi

Neuromodulation therapy ma wo akisikuru no yɛ adwuma yiye, na ɛtew ɔpɛ a wowɔ sɛ wobɛtow ne ho a wobɛtaa tow wo ho no so. Ɛde anyinam ahoɔden a ɛkanyan wo ntini di dwuma de kanyan wo ntini na ɛma woyɛ ho biribi. Ɛtɔ mmere bi nso a ebetumi aboa ma ɛyaw a ɛwɔ wo dwonku ne wo yafunu mu no so atew.

Botulinum awuduru a wɔde twitwiw nipadua mu

Oduruyɛfo bi nam cystoscope so de Botulinum awuduru (Botox®) gu wo akisikuru ntini mu. Botox kakraa bi ma ntini no yɛ mmerɛw na ɛma ɛyaw no so tew. Nanso, ebia ebehia sɛ wobɔ wo Botox aduru asram anan kosi akron biara.

Sɛɛgyiri

Sɛ wowɔ IC/BPS sɛnkyerɛnne a emu yɛ den yiye na wonyɛ ayaresa afoforo ho biribi a, ebia wo duruyɛfo bɛkamfo akyerɛ sɛ wɔnyɛ oprehyɛn. Eyi hwehwɛ sɛ wuyi wo akisikuru no fã bi anaa ne nyinaa (cystectomy) . Nanso wɔyɛ eyi sɛ ɔkwan a etwa to nkutoo.

Nneɛma afoforo a ɛsɛ sɛ wususuw ho

Wɔ wo akisikuru ne wo hwene fam ayaresa akyi no, oduruyɛfo besusuw tebea afoforo a ebia ɛde wo yaw no nso ho. Nhwɛsoɔ:

• Hormone ahorow a ɛnkari pɛ
• Endometriosis (awotwaa mu ntini a enyin wɔ awotwaa no akyi) .
• Nsɛm a ɛka wo dwensɔtwaa ketewa anaa kɛse

So wɔbɛsa interstitial cystitis/bladder pain syndrome no koraa da bi?

Ɛyɛ den sɛ yɛbɛka. Ɛho behia sɛ wɔsa nnipa dodow no ara a wɔwɔ interstitial cystitis/bladder pain syndrome no yare wɔn nkwa nna nyinaa. Sɛ wɔannya ayaresa a, wɔn yare no ho sɛnkyerɛnne betumi asan aba. Wobetumi anya yare no ho sɛnkyerɛnne ahorow a ɛyɛ hyew bere mpo a wɔda so ara renom wɔn IC/BPS ayaresa no.

Nanso, nnipa binom yɛ wɔn ade yiye wɔ ayaresa ho. Wɔn sɛnkyerɛnne ahorow no so tew nkakrankakra, na ɛtɔ mmere bi mpo a ɛyera koraa.

So ɔkwan bi wɔ hɔ a wobɛfa so ayi IC/BPS afi hɔ ntɛm?

Ade a eye sen biara a ɛsɛ sɛ woyɛ ne sɛ wobɛkɔ oduruyɛfo nkyɛn ntɛm ara . Obetumi aka ayaresa ahorow a ɛbɛma woanya ahotɔ ntɛmntɛm afi wo IC/BPS sɛnkyerɛnne ahorow no mu akyerɛ wo. Nyansa wom sɛ wobɛhwehwɛ aduruyɛ mu afotu mmom sen sɛ wobɛyɛ nea wote nka sɛ wobɛyɛ ara kwa.

Ɛrenkyɛ na me ho atɔ me wɔ ayaresa akyi?

Ebia ebegye adapɛn anaa asram pii ansa na wo sɛnkyerɛnne ahorow afi ase ayɛ yiye wɔ IC/BPS ayaresa akyi. Ɛho hia sɛ wunya abotare wɔ w’ayaresa no ho.

So wobetumi asiw IC/BPS nkɔso ano?

Nnuruyɛfo ne nnuruyɛ mu nhwehwɛmufo da so ara nnim ɔkwan pɔtee a wɔbɛfa so atew asiane a ɛwɔ hɔ sɛ obi benya interstitial cystitis/bladder pain syndrome no so anaasɛ ɔkwan a wɔbɛfa so asiw sɛnkyerɛnne ahorow no ano bio. Nanso, wubetumi ayɛ nea edidi so yi de aboa ma wɔasiw ogyaframa ano:

• Yɛ aduan ho kyerɛwtohɔ, hu nnuan a ɛde ɔhaw ba wo so, na kwati.
• Wo ayaresa a wobɛtoa so sɛ wo yare no ho sɛnkyerɛnne no yera mpo a.
• Mmɔden a wobɛbɔ sɛ wobɛtew adwennwen so wɔ w’asetra mu.

Sɛ mewɔ IC/BPS a, dɛn na ɛsɛ sɛ mehwɛ kwan?

Wɔ nnipa pii fam no, interstitial cystitis/bladder pain syndrome yɛ tebea a ɛtra hɔ kyɛ. Ebia wo yare no ho sɛnkyerɛnne no nyɛ den anaasɛ emu yɛ den. Ebia ɛba bere ne bere mu nkutoo anaasɛ ɛkɔ so daa.

Ɛho hia sɛ wo ne oduruyɛfo kasa na ama woahu wo tebea no ne ayaresa a eye sen biara a wubetumi apaw.

Dɛn ne obi a ɔwɔ IC/BPS nkwa nna?

Interstitial cystitis/bladder pain syndrome nyɛ tebea a ɛde nkwa to asiane mu. Ɛmma akisikuru mma akisikuru anaasɛ ɛnka wo nkwa nna. Nanso, ebetumi aka w’asetra pa.

Sɛ mewɔ IC/BPS a, mɛyɛ dɛn ahwɛ me ho?

Nea edidi so yi betumi aboa ma bere tenten a wo interstitial cystitis/bladder pain syndrome flare-ups ne sɛnea emu yɛ den no so atew:

• Sɛ wote nka sɛ yare no ho sɛnkyerɛnne no akɔ soro mpofirim (flare-up) ara pɛ a, nom nnuru a ɛbɛboa ma wo sɛnkyerɛnne ahorow no so atew.
• Nom nsu pii na ama wo nsu no ayɛ mmerɛw .
• Kwati nnuan ne anonne a ɛma yare no ho sɛnkyerɛnne no mu yɛ den.
• Fa nsukyenee anaa ade a wɔde yɛ ɔhyew gu wo yafunu anaa baabi a ɛda wo honam ani fã a ɛwɔ wo honam ani (perineum) ntam no so .
• Tena nsu a ɛyɛ hyew (sitz bath) kuruwa mu .
• Sɔ yoga tebea horow bi hwɛ na aboa ma wo hwene mu ntini ahorow no adwo. Sɛ nhwɛso no, wubetumi abɔ fam a wo nan atrɛw ("onyamewa squat"), anaasɛ wobɛda w'akyi a wo nkotodwe atwe akɔ wo moma so, wo nan akɔ soro, na wo nan akyi abɔ mu ("anigye akokoaa").
• Sɔ akwan a wobɛfa so agye w’ahome te sɛ apɔw-mu-teɛteɛ a wode bɛhome denneennen, adwennwen, anaa aduru a wɔde twitwiw wo ho hwɛ.
• Kwati sɛ wobɛhyɛ ntade a ɛyɛ den (sɛ nhwɛso no, pantan a ɛyɛ den, ntade a ɛyɛ den, abɔso) a ɛtwetwe wo yafunu.
• Sɛ ɔbarima ne ɔbea nna ma yare no ho sɛnkyerɛnne yɛ kɛse a, fa nnuru a wɔde kum ɛyaw ansa na woada na fa srade di dwuma na ama wo ho akyere wo.

Bere bɛn na ɛsɛ sɛ mekɔ oduruyɛfo nkyɛn?

Sɛ wowɔ interstitial cystitis/bladder pain syndrome ho sɛnkyerɛnne a, yɛ nhyehyɛe kɔ oduruyɛfo nkyɛn ntɛm ara . Oduruyɛfo bɛhyɛ sɛ wɔnyɛ nhwehwɛmu de hwɛ sɛ wunni ɔyare mmoawa anaa tebea afoforo a ebetumi de wo IC/BPS sɛnkyerɛnne ahorow aba. Ebia ɔbɛkyerɛw nnuru nso ama wo na wama wo afotu.

Bere bɛn na ɛsɛ sɛ mekɔ Emergency Treatment Unit (ETU) ?

Sɛ wo yare no ho sɛnkyerɛnne no mu yɛ den yiye, anaasɛ sɛ ɛnkɔ yiye wɔ ayaresa akyi a, kɔ baabi a ɛbɛn wo a wɔhwɛ wɔn a wɔwɔ yare a egye ntɛmpɛ .

Nsɛm bɛn na ɛsɛ sɛ mibisa oduruyɛfo?

Ebia ɛbɛyɛ nea mfaso wɔ so sɛ wubebisa wo duruyɛfo nsɛm yi:

• Wobɛyɛ dɛn ahu sɛ mewɔ interstitial cystitis/bladder pain syndrome?
• Sɛ minni interstitial cystitis/bladder pain syndrome a, tebea foforo bɛn na metumi anya?
• Sɔhwɛ bɛn na wobɛyɛ de asi w’asɛm no so dua?
• Ayaresa bɛn na wokamfo kyerɛ?
• So nsunsuanso bɔne bi wɔ ayaresa a wokamfo kyerɛ no ho?
• So wokamfo ayaresa biako anaa ayaresa ahorow pii a wɔaka abom kyerɛ?
• Dɛn ne nnuan ne anonne a ɛsɛ sɛ mekwati a wɔahyehyɛ no nyinaa?
• Asetra mu nsakrae bɛn na ebetumi aboa ma madi me yare no ho sɛnkyerɛnne ahorow ho dwuma?
• So ɛsɛ sɛ mekɔ oduruyɛfo a ɔhwɛ aduannuru so, oduruyɛfo a ɔhwɛ ntini mu yare, anaa oduruyɛfo foforo nkyɛn?

Nsonsonoe bɛn na ɛda interstitial cystitis/bladder pain syndrome ne urinary tract infection (UTI) ntam?

Ɛtɔ mmere bi a nkurɔfo ma interstitial cystitis/bladder pain syndrome ne urinary tract infection (UTI) frafra . Nanso IC/BPS ne UTI nyɛ ade koro. Mmoawa (mpɛn pii no mmoawa, titiriw E. coli ) na ɛde UTI ba. Nnuruyɛfo da so ara nnim nea ɛde IC/BPS ba ankasa. Nanso, aduruyɛ mu tebea horow a ebia ɛne IC/BPS wɔ abusuabɔ no bi ne nyarewa a nipadua no tumi ko tia nyarewa, akisikuru, ne ɔhaw ahorow a ɛwɔ wo mogya ntini mu.

Nea etwa to no, nneɛma a ɛsɛ sɛ wokae (Take-Home Message) .

Interstitial cystitis/bladder pain syndrome (IC/BPS) yɛ tebea a ɛtaa ba, ɛtra hɔ kyɛ a ɛma wo akisikuru no ho hyehye na ɛyɛ wo yaw. Ɛbɛtumi nso aka wo nsuo a wode tow nsuo – ebia ɛho bɛhia sɛ woto nsuo mpɛn pii da biara, na sɛ ɛhia sɛ woto nsuo , ɛbɛtumi ayɛ ahiadeɛ a ɛhia ntɛm.

Ɛyaw, ahometew, ne nsu mu haw betumi ama w’ani awu na woasuro. Nanso, sɛ wowɔ IC/BPS ho sɛnkyerɛnne ahorow a, mma wofɛre sɛ wo ne oduruyɛfo bɛkasa. Obetumi ayɛ sɔhwɛ ahorow de ahwɛ ahu sɛ wunni tebea afoforo. Obetumi ne wo nso ayɛ adwuma de ayɛ ayaresa nhyehyɛe a etu mpɔn sen biara a ebetumi atew bere tenten a wo hyew no so na emu yɛ den so na ama w’asetra atu mpɔn.Ɛnyɛ wo nko ara, mmoa wɔ hɔ ma eyi.

` Akisikuru mu yaw, Interstitial Cystitis, Bladder Pain Syndrome, Nsu a wɔtaa tow, Nsuo mu yareɛ, Akisikuru mu opira, IC/BPS, Sinhala akwahosan