So wo mogya ntini a atew wɔ w’ahurututu mu nso? Momma yɛnka Pulmonary Arterial Hypertension (PAH) ho asɛm!

So ɛtɔ mmere bi a wote nka sɛ wo home yɛ wo yaw kakra? Anaasɛ wote nka sɛ woabrɛ wɔ ɔkwan soronko so bere a wonam akyirikyiri mpo no? So woahyɛ no nsow pɛn sɛ wo nsateaa ano ne w’ano dan bruu a wo koko mu yɛ den anaa ɛyaw bi ka ho? Mmu eyinom ngu sɛ nneɛma a ɛyɛ daa ara kwa. Efisɛ ɛtɔ mmere bi a, wɔ saa sɛnkyerɛnne ahorow yi akyi no, ebia akwahosan tebea bi wɔ hɔ a ɛsɛ sɛ wɔhwɛ so kakra. Tebea a ɛte saa no biako ne Pulmonary Arterial Hypertension (PAH) . Ɛwom sɛ ebia edin no bɛyɛ te sɛ nea ɛyɛ hu kakra de, nanso momma yɛnka ho asɛm tiawa na yɛmfa ɔkwan a wubetumi ate ase so.

Dɛn ne Ahurututu mu Ntini a Ɛma Ntini Mu Ntini Mu Ntini (PAH)? Sɛ yɛbɛka no tiawa a...

Sɛ yɛbɛka no tiawa a, Pulmonary Arterial Hypertension (PAH) yɛ tebea a ɛma mogya ntini nketenkete a ɛwɔ w’ahurututu mu (pulmonary arteries) no mu yɛ teateaa. Fa no sɛ nsu paipu a asiw, na ɛyɛ den sɛ nsu no bɛsen fa mu. Sɛ mogya ntini yi yɛ teateaa a, mogya no ntumi nkɔ w’ahurututu mu yiye. Eyi ma nhyɛso a ɛwɔ mogya ntini yi mu, anaa mogya mmoroso, yɛ kɛse dodo . Saa mogya ntini yi na ɛde mogya a oxygen nnim fi wo koma mu kɔ w’ahurututu mu, na ɛhɔ tew.

Enti sɛ eyi ba a, dɛn na ɛba? Ɛsɛ sɛ wo koma nifa yɛ adwumaden sen sɛnea ɛtaa yɛ na ama mogya akɔ ahurututu no mu. Ɛte sɛ nea worema adesoa a emu yɛ duru so na woaforo bepɔw. Sɛ bere kɔ so no, ɛsɛ sɛ koma no soa adesoa foforo yi a, efi ase brɛ ase nkakrankakra. Sɛ wɔansa saa tebea yi, PAH, yiye a, ɛnyɛ wo koma ne w’ahurututu nko na ebetumi de ɔhaw ahorow aba, na mmom wo nipadua nyinaa nso.

Kae sɛ PAH yɛ ɔkwan pɔtee biako pɛ a ɛwɔ ɔfã kɛse bi a wɔfrɛ no Pulmonary Hypertension . Pulmonary Hypertension yɛ nhyɛso a ɛkɔ soro wɔ mogya ntini a ɛwɔ ahurututu no mu esiane biribiara a ɛde ba nti.

Ɔkwan bɛn so na PAH ka wo nipadua?

Pulmonary Arterial Hypertension (PAH) titiriw de nhyɛso ba wo koma no fã nifa so. Nea enti a ɛte saa ne sɛ koma no fã yi de mogya a oxygen nnim kɔ ahurututu no mu. Bere kɔ so no, saa nhyɛso kɛse yi betumi ama koma no nifa ayɛ adwuma .

Ɛnyɛ ɛno nko, PAH nso ma mogya a ɛkɔ koma ne ahurututu ntam no brɛ ase. Eyi kyerɛ sɛ mogya kakraa bi na ɛrekɔ ahurututu no mu na ama wɔanya oxygen foforo. Ne saa nti, oxygen kakraa bi na ɛrekɔ wo nipadua no akwaa ne ntini afoforo no mu. Nokwarem no, yɛn nipadua no fã biara hia mframa pa na ama atumi atra ase. Sɛ ɛnnɔɔso a, ɔhaw ahorow betumi asɔre.

Wɔfrɛ tebea yi PAH aniberesɛm dɛn?

Pulmonary Arterial Hypertension (PAH) yɛ tebea a emu yɛ den yiye, ɛtɔ mmere bi a ɛde nkwa to asiane mu . Nanso, sɛ wohu no ntɛm na wɔsa no ntɛm a, wubetumi atra ase akyɛ na eye. Ɛno nti na ɛho hia sɛ yɛhwɛ yare no ho sɛnkyerɛnne ahorow no.

Henanom na PAH ka wɔn kɛse?

PAH betumi aka mpanyimfo a wɔadi mfe biara. Nanso, ɛtaa ba mmea so kɛse , a wɔtaa hu sɛ wɔwɔ yare no fi mfe 30 kosi 60. Wɔahu nso sɛ mmarima a wɔadi boro mfe 65 a wonya PAH no betumi anya asiane kɛse sɛ wobenya yare no.

Saa tebea yi betumi aka nkokoaa nkumaa nso. Sɛ ɛba mmofra a wɔawo wɔn foforo so a, yɛfrɛ no Persistent Pulmonary Hypertension in the Neonate (PPHN) .

PAH abu so dɛn?

Sɛ wɔde toto ahurututu mu mogya mmoroso ahorow afoforo te sɛ ahurututu mu mogya mmoroso a komayare anaa ahurututu mu yare de ba ho a, PAH nyɛ tebea a ɛtaa ba . Wɔ ɔman te sɛ United States mpo mu no, afe biara nnipa foforo 500 kosi 1,000 pɛ na wohu sɛ wɔanya PAH. Wɔ Atɔe Fam aman mu no, nnipa dodow a ɛba no bɛyɛ ɔpepem biara mu 25.

Dɛn ne Pulmonary Arterial Hypertension (PAH) ho sɛnkyerɛnne ahorow?

Ebia worenhu sɛnkyerɛnne biara wɔ PAH mfiase. Nnipa dodow no ara fi ase nya sɛnkyerɛnne ahorow bere a yare no kɔ so no. Saa sɛnkyerɛnne ahorow yi bi ne:

• Nsateaa ano anaa anofafa kɔla a ɛsakra bruu: Te sɛ nea mframa pa nni mogya no mu.
• Koko mu yaw anaasɛ ɛyɛ den: Te sɛ nea obi repiapia wo moma so.
• Adwene a ɛyɛ basaa anaa atɔ piti: Eyi betumi aba bere a mogya a ɛkɔ amemene no mu no so atew no.
• Ɔbrɛ: Ɔbrɛ a ɛtra so a wobɛte nka , ɛnyɛ ɔbrɛ kɛkɛ.
• Koma a ɛbɔ denneennen anaasɛ ɛbɔ denneennen.
• Ɔhome a ɛyɛ tiaa: Eyi kɔ soro bere a bere kɔ so no. Nnwuma nketenkete mpo a wobɛyɛ no betumi ama obi ahome ayɛ tiaa.
• Ɔhonhon (Edema): Ɔhonhon betumi afi ase kan wɔ nan ne nansoaa mu, afei atrɛw akɔ yafunu ne kɔn mu.

Sɛ wɔansa saa PAH sɛnkyerɛnne ahorow yi a, bere kɔ so no, ɛbɛkɔ so asɛe. Ebia wubehu sɛ wuntumi nyɛ da biara da nnwuma a ɛho hia sen biara mpo a ɛho nhia sɛ wohome anaasɛ wohome.

Dɛn na ɛde Pulmonary Arterial Hypertension (PAH) ba?

Nea ɛde PAH ba titiriw ne mogya ntini a ɛwɔ w’ahurututu mu no a ɛsɛe. Nanso, ɛnyɛ bere nyinaa na ɛda adi pefee sɛ nea ɛde ɔsɛe yi ba.

Nsɛm a wontumi nhu nea ɛde ba biara (Idiopathic PAH) .

Ɛtɔ mmere bi a, wontumi nhu nea ɛde ba pɔtee biara . Yɛn nnuruyɛfo frɛ no “idiopathic” ahurututu mu ntini mu mogya mmoroso . Ɛte sɛ ahintasɛm.

Nneɛma a wonim sɛ ɛde ba

Nanso, mmere foforo mu no, nneɛma bi wɔ hɔ a ɛda adi pefee. Nneɛma a wonim sɛ ɛde PAH ba no bi ne:

• Ayaresa mu tebea horow bi:
• Koma mu yare a wɔde awo obi
• Glycogen a wɔkora so nyarewa
• HIV a ɛma obi nya ɔyare mmoawa
• Mmɛn mu yare
• Nyarewa a nipadua no tumi ko tia nyarewa te sɛ lupus
• Portal hypertension (nhyɛso a ɛkɔ soro wɔ mogya ntini a ɛkɔ mmerɛbo no mu) .
• Pulmonary capillary hemangiomatosis (ntini a ɛwɔ ahurututu mu no nyin wɔ ɔkwan a ɛnteɛ so) .
• Pulmonary veno-occlusive disease (ntini a ɛwɔ ahurututu mu a esiw) .
• Schistosomiasis (ɔyare mmoawa a ɔyare mmoawa bi de ba) .
• Scleroderma (honam ani ntini ne ntini a ɛka bom a ɛyɛ den) .

• Awosu mu nkwaadɔm mu nsakrae:
• Mpɛn pii no, eyi fi nsakrae a ɛba wo BMPR2 awosu mu abɔde mu . Saa awosu mu abɔde yi na ɛhwɛ nkwammoaa dodow a ɛwɔ yɛn nipadua mu ntini ahorow bi mu so. Enti, sɛ wɔsakra saa awosu mu abɔde yi a, nkwammoaa a ɛwɔ mogya ntini nketenkete a ɛwɔ w’ahurututu mu no betumi anyin dodo. Sɛ saa nkwammoaa yi hyɛ ma a, mmubue a ɛwɔ mogya ntini no mu no yɛ teateaa.
• PAH tumi tu mmirika wɔ mmusua mu. Yɛfrɛ no agyapade PAH . Nnipa a wɔwɔ saa tebea yi mu bɛyɛ 80% wɔ nkwaadɔm mu nsakrae wɔ BMPR2 awosu mu abɔde mu.
• Nnipa binom kura saa awosu mu abɔde a wɔasesa yi, nanso wonnya PAH da.
• Nnipa binom betumi anya PAH ɛwom mpo sɛ obiara nni wɔn abusua mu a ɔwɔ bi de, esiane awosu mu nsakrae nti. Wɔfrɛ eyi PAH a ɛba bere ne bere mu .

• Nnuru ne nnuru bi:
• Mprempren wɔabara aduannuru bi , te sɛ aduru dedaw “fen-phen,” nanso ɛda so ara tumi de PAH ba wɔ mfe pii akyi.
• Nnubɔne a wɔde gye wɔn ani , sɛ nhwɛso no, cocaine ne methamphetamine.

Ɔkwan bɛn so na wohu ahurututu mu mogya mmoroso (PAH)?

Ebetumi ayɛ den sɛ wobehu PAH efisɛ PAH ho sɛnkyerɛnne te sɛ nyarewa afoforo pii de. Wo duruyɛfo bɛyɛ nipadua mu nhwehwɛmu na ɔne wo akasa afa wo yare no ho sɛnkyerɛnne ne w’ayaresa ho abakɔsɛm ho. Wɔbɛyɛ nhwehwɛmu ahorow pii (a mfoninitwa nhwehwɛmu ne mogya mu nhwehwɛmu ka ho) de ahu sɛ ebia wowɔ ahurututu mu mogya mmoroso anaa, na sɛ ɛte saa a, ɛyɛ ko a ɛyɛ.

Ebia wo duruyɛfo nso de wo bɛkɔ ahurututu ho oduruyɛfo anaa komayare ho oduruyɛfo nkyɛn . Saa animdefo yi bɛyɛ nhwehwɛmu titiriw de ahwɛ sɛnea wo koma ne w’ahurututu yɛ adwuma. Wɔn na wɔbɛkyerɛ sɛ ebia wowɔ PAH anaasɛ ahurututu mu mogya mmoroso foforo. Wɔbɛhwɛ sɛnea wo tebea no mu yɛ den nso.

Ayaresa pɔtee bi wɔ hɔ a wɔde sa PAH a wontumi nnya mma ahurututu mu mogya mmoroso ahorow afoforo. Enti, ɛsɛ sɛ w’aduruyɛfo kuw no hu nea ɛrekɔ so wɔ w’ahurututu ne wo koma mu no ho nsɛm pii sɛnea wobetumi. Saa nsɛm yi bɛboa wɔn ma wɔayɛ ayaresa nhyehyɛe a eye sen biara ama wo.

Nhwehwɛmu bɛn na wɔde hu PAH?

Wo nnuruyɛfo kuw no de nhwehwɛmu ahorow a wɔaka abom bedi dwuma de ayi nyarewa afoforo afi hɔ na wɔahu PAH.

Sɛ wo duruyɛfo susuw sɛ ebia wowɔ PAH wɔ wo nipadua mu nhwehwɛmu akyi a, nhwehwɛmu a edi kan a wɔbɛkra ne transthoracic echocardiogram . Saa sɔhwɛ yi hwehwɛ sɛnea wo koma no nyinaa te ne sɛnea ɛyɛ adwuma.

Sɔhwɛ afoforo betumi ayɛ:

• Mogya mu nhwehwɛmu: Hwɛ sɛnea akwaa no yɛ adwuma, hormone dodow, na hu nyarewa a ɛde ba. Titiriw nhwehwɛmu te sɛ metabolic panel a edi mũ ne mogya dodow a edi mũ .
• Chest CT scan: Sɛnea ɛbɛyɛ a wɔbɛhwɛ tebea afoforo te sɛ asaabo mu yare na wɔayi afi hɔ. (Ebia ɛsɛ sɛ asaabo mu yare a ɛwɔ asɛm a edi kan no mu no yɛ ahurututu mu yare. CT chest scan hwɛ ahurututu ne koko mu akwaa ahorow. Momma yɛnka sɛ yɛrehwɛ ahurututu no tebea.
• Chest X-ray: Sɛnea ɛbɛyɛ a wobɛhwɛ sɛ wo koma anaa wo ahurututu mu ntini no sõ sen sɛnea ɛte daa anaa.
• Koma MRI: Hwɛ sɛnea wo koma nifa so ahurututu (eyi ne koma no dan a ɛde mogya kɔ ahurututu no mu) no.
• Polysomnogram (PSG): Ɛhwɛ sɛ ebia nna mu ahomegye a ebetumi ama PAH ayɛ kɛse anaa. PSG yɛ nna ho sɔhwɛ bi a wɔyɛ no anadwo biako.
• Ahurututu mu dwumadi ho nhwehwɛmu: Hwɛ sɛnea w’ahurututu reyɛ adwuma yiye.
• Pulmonary ventilation/perfusion (VQ) scan: Ɛhwɛ sɛ mogya atɔ ahurututu no mu anaa. Saa sɔhwɛ yi betumi ayi tebea bi a wɔfrɛ no chronic thromboembolic pulmonary hypertension afi hɔ .
• Koma nifa mu catheterization: Ɛsusu nhyɛso a ɛwɔ mogya ntini a ɛwɔ w’ahurututu mu (pulmonary artery pressures). Saa sɔhwɛ yi ho hia na ama wɔahu PAH no yiye.
• Simma asia nantew sɔhwɛ: Hwɛ apɔw-mu-teɛteɛ dodow a wubetumi agyina ano ne oxygen dodow a di akɔneaba wɔ wo mogya mu bere a woretu no.

Wo ne wo duruyɛfo nkasa mfa nhwehwɛmu ahorow a ɛsɛ sɛ woyɛ ne sɛnea wusiesie wo ho ma ho.

Dɛn ne gyinapɛn ahorow a wɔde hu Pulmonary Arterial Hypertension?

Nnuruyɛfo hu ahurututu mu mogya mmoroso denam nhyɛso a ɛwɔ mogya ntini a ɛwɔ w’ahurututu mu a wosusuw so. Nneɛma a wɔde hu ne sɛ ahurututu mu ntini a ɛwɔ w’ahurututu mu no boro mercury milimita 20 (20 mmHg) bere a woagye w’ahome no . Wɔde koma nifa mu catheter na ɛkyerɛ saa bo yi .

Dɛn ne ayaresa ahorow a wɔde sa Pulmonary Arterial Hypertension (PAH)?

Botae atitiriw a ɛwɔ PAH ayaresa mu ne sɛ wobedi yare no nkɔso so na ama woanya asetra pa. Ayaresa biako biara nni hɔ a wɔde sa PAH. Wo duruyɛfo ne wo bɛyɛ adwuma de ahu ayaresa a eye sen biara ma w’ahiade pɔtee.

Ebia wo PAH ayaresa nhyehyɛe no bi ne:

• Balloon atrial septostomy (BAS): Wɔtaa yɛ saa adeyɛ yi ma nkokoaa a wɔwoo wɔn koma mu dɛmdi, nanso ɛtɔ mmere bi a wɔde di dwuma ma mpanyimfo a wɔwɔ PAH. Septostomy boa ma nhyɛso a ɛwɔ koma no nifa so no so tew, na ɛma mframa pa pii di akɔneaba wɔ mogya no mu. Wobetumi ayɛ no nso sɛ bridge a wɔde kɔ ahurututu a wɔde bɛma obi foforo so.
• Calcium channel blockers: Saa nnuru yi boa ma mogya mmoroso a ɛwɔ w’ahurututu mu mogya ntini mu ne wo nipadua nyinaa mu no so tew.
• Nnuru a ɛma nsu fi nipadua no mu: Wɔsan frɛ no "nsu mu nnuru," saa nnuru yi boa ma woyi nsu a ɛboro so fi nipadua no mu na ɛtew ɔfe so.
• Oxygen ayaresa: Ebia ayaresa yi ho behia sɛ wunni oxygen a ɛdɔɔso wɔ wo mogya mu a. Oxygen a ɛboro so betumi aboa bere a woregye w’ahome, woada, anaa woreyɛ apɔw-mu-teɛteɛ no.
• Ahurututu mu ntini a ɛtrɛw: Nnuru yi boa mogya ntini a ɛwɔ w’ahurututu mu (ahurututu mu ntini) no ma ɛyɛ mmerɛw na ebue kɛse. Eyi ma nhyɛso a ɛwɔ wo koma so no so tew na ɛboa ma wo yare no ho sɛnkyerɛnne no fi hɔ.

Wɔ nnipa binom a wɔwɔ PAH a emu yɛ den fam no , ebia ahurututu a wɔde bɛma obi foforo ne ɔkwan a etwa to. Oprehyɛn yi betumi ama woanya ahurututu foforo biako anaa abien. Koma ne ahurututu a wɔde si ananmu nso betumi ama woanya koma foforo.

Nnuru bɛn na wɔde ma PAH?

Nnuru a wɔde sa PAH no wɔ akwan horow so:

• Nnuru a wɔnom: Nnuru yi boa ma mogya ntini a ɛwɔ ahurututu mu no dwo na ɛmma ɛntete. Saa nnuru yi nso betumi aboa wo ma woayɛ apɔw-mu-teɛteɛ.
• Nnuru a wɔhome: Sa ɔhome a ɛyɛ den.
• Portable infusion pump: Eyi betumi aboa ma mogya ntini ahorow abue na ama mogya no akɔ soro. Eyi betumi aboa ma wo yare no ho sɛnkyerɛnne atu mpɔn.
• Nnuru a wɔde fa ntini mu (IV): Bue mogya ntini mu na ɛma sɛnkyerɛnne te sɛ koko mu yaw ne ahome a ɛyɛ den no fi hɔ.

Nnuru bi a U.S. Aduan ne Nnuru Dwumadibea (FDA) apene so ama PAH ayarefo ni:

• Ambrisentan (a wɔde ano ka) .
• Bosentan (a wɔde ano ka) .
• Epoprostenol (IV) a wɔde yɛ aduru .
• Iloprost (a wɔhome) .
• Macitentan (a wɔde ano ka) .
• Riociguat (a wɔde ano ka) .
• Selexipag (a wɔde ano ka) .
• Sildenafil (a wɔde ano ka) .
• Tadalafil (a wɔde ano ka) .
• Treprostinil (anom, wɔhome, pɔmpɛ, IV) .

Nsunsuanso bɔne a efi PAH nnuru mu ba

Nnuru a wɔde sa PAH no mu nsunsuanso bɔne bi a ɛtaa ba ne:

• Sɛ wote nka sɛ wo ho ayɛ wo hyew anaasɛ woatɔ piti.
• Ɔhyew a wɔte nka wɔ anim, kɔn, anaa nsa (hohoro).
• Yafunu mu sɛnkyerɛnne te sɛ ahurututu, akisikuru, ɔfe, ne akisikuru.
• Tiyɛ (tiyɛ).
• Mogya mmoroso a ɛba fam (Hypotension) .
• Nan ne nansoaa a ɛho ahonhon (Pedal edema) .
• Wora a ɛyɛ mmerɛw.
• Ɔhome akwaa a ɛwɔ soro a ɛyɛ den a wɔte nka.

Nnuru bi betumi anya nsunsuanso foforo. Wo ne wo duruyɛfo nkasa mfa sɛnea wubedi ɔhaw biara a ɛbɛba no ho dwuma ho. Wɔ tebea horow bi mu no, ebia ebehia sɛ wo duruyɛfo sesa wo nnuru dodow.

So wobetumi asa Pulmonary Arterial Hypertension (PAH) koraa?

Ɛwom sɛ nnuru a wɔde di dwuma mprempren no tumi siw PAH a ɛkɔ so no so de, nanso entumi nsan nsɛe ade a asɛe dedaw no . Nanso, nhwehwɛmufo reyɛ nnuru foforo a wosusuw sɛ ebetumi adan PAH no mu nhwehwɛmu. Nnuru a ɛtete saa betumi asiesie endothelial nkwammoaa a ɛhyehyɛ mogya ntini a ɛwɔ w’ahurututu mu no.

Wo ne wo duruyɛfo nkasa na sua pii fa nhwehwɛmu a aba foforo ne ayaresabea sɔhwɛ ahorow a wɔayɛ wɔ PAH ayaresa ho no ho.

Nneɛma bɛn na ɛma asiane a ɛwɔ hɔ sɛ obi benya Pulmonary Arterial Hypertension (PAH) no yɛ kɛse?

Nneɛma pii a ɛma asiane a ɛwɔ hɔ sɛ obi benya PAH no yɛ kɛse ne:

• Ntini a ɛka bom yɛ yare .
• Down syndrome .
• Abusua abakɔsɛm a ɛfa ahurututu mu mogya mmoroso ho.
• HIV a ɛma obi nya ɔyare mmoawa.
• Nnuru a wɔde tew mu duru so te sɛ “fen-phen” (dexfenfluramine ne phentermine) a wɔde bedi dwuma.
• Nnubɔne a mmara mma ho kwan (mmɔnten so nnubɔne) a wɔde di dwuma.

Sɛ obi wɔ w’abusua mu wɔ PAH a, bisa wo duruyɛfo awosu mu nhwehwɛmu ho asɛm. Sɛ wohu sɛ wowɔ PAH a, ɛyɛ papa sɛ wobɛka akyerɛ w’abusua sɛ wonsusuw awosu mu nhwehwɛmu nso ho.

Ɔkwan bɛn so na wobetumi asiw Pulmonary Arterial Hypertension (PAH) ano?

Yɛrentumi nni asiane ahorow bi a ɛde PAH ba (te sɛ awosu mu nsakrae) so. Nanso, sɛ wotwe wo ho fi nnubɔne a mmara mma ho kwan ho a, ebetumi atew asiane a ɛwɔ hɔ sɛ ɛnyɛ PAH nko, na mmom akwahosan ho haw afoforo pii so. Afei nso, wo ne wo duruyɛfo nkasa ansa na woanom nnuru biara a wɔde tew wo mu duru so.

Ebia wo duruyɛfo bɛkamfo akyerɛ sɛ wɔnyɛ nhwehwɛmu a wɔde siw PAH ano, a egyina asiane ahorow a ɛwɔ so no so.

Dɛn ne daakye anidaso ma nnipa a wɔwɔ Pulmonary Arterial Hypertension (PAH)?

Esiane sɛ wɔanya nkɔso wɔ ayaresa mu nti, nnipa a wɔwɔ PAH no retra ase akyɛ sen bere biara. Wo nkwa nna gyina nneɛma pii so, a nea ɛka ho ne sɛnea wo tebea no mu yɛ den ne sɛnea wohu ntɛm. Wo ne wo duruyɛfo nkasa mfa wo tebea pɔtee no ho.

Nea ɛho hia sen biara ne sɛ wobɛtoa w’ayaresa no so na woadi wo duruyɛfo akwankyerɛ akyi yiye. Nneɛma kakraa bi wɔ hɔ a wubetumi ayɛ na ama hokwan a wowɔ sɛ wubenya nkwa no atu mpɔn:

• Yɛ ade a wɔde hyɛ nneɛma a egye ntɛmpɛ mu. Nneɛma ne nsɛm bi wɔ hɔ a ɛsɛ sɛ wode ka wo ho bere nyinaa. Bisa wo duruyɛfo nea wode bɛka wo kit no ho, na mfi fie da a wunni bi.
• Nya nnuru a wɔde bɔ wo ho ban wɔ bere bi mu sɛnea wo duruyɛfo kamfo kyerɛ no. Ɛho hia paa sɛ wobɛbɔ wo ho ban afi atiridii ne ahurututu mu yare ho.
• Di bere a wɔahyɛ sɛ wobɛdi akyi nyinaa so. Ɛho hia sɛ woyɛ wo ho nhwehwɛmu daa na ama woatumi ahwɛ sɛnea w’ahurututu ne wo koma yɛ adwuma na woahu sɛnea w’ayaresa no rekɔ so.
• Fa wo nnuru no sɛnea wo duruyɛfo kyerɛ no pɛpɛɛpɛ, bere koro no ara mu da biara. Mma nsakra ɔkwan a wofa so nom wo nnuru a wo duruyɛfo nka ho afotu.

Nsakrae bɛn na ɛsɛ sɛ meyɛ wɔ asetra mu?

Di wo duruyɛfo afotu a ɛfa asetra mu nsakrae biara a wopɛ sɛ woyɛ ho akyi. Mpɛn pii no, afotu bi a ɛho hia ni:

• Kwati nsu a ɛyɛ hyew, sauna, ne akwantu a wobɛkɔ mmeae a ɛkorɔn.
• Susuw awo ano aduru ho. Nyinsɛn betumi ayɛ asiane ama nnipa a wɔwɔ PAH. Sɛ woreyɛ nhyehyɛe anyinsɛn anaasɛ ebia wobɛnyinsɛn a, wo ne wo duruyɛfoɔ nkasa.
• Apɔw-mu-teɛteɛ na kɔ so yɛ nnam sɛnea wubetumi biara. Wo ne wo duruyɛfo nkasa mfa apɔw-mu-teɛteɛ a asiane biara nni ho mma wo ne dwumadi dodow a ɛsɛ sɛ woyɛ da biara da ho asɛm. Bisa wo duruyɛfo ansa na woafi apɔw-mu-teɛteɛ nhyehyɛe foforo ase.
• Di aduan a ɛma koma nya ahoɔden akyi. Nea ɛka eyi ho ne nnuan a srade a ɛdɔɔso, trans fat, ne sodium nnim.
• Gyae sigaretnom ne tawa ho nneɛma a wode di dwuma. Afei nso, kwati sigaret a wɔde di dwuma dedaw.
• Hwehwɛ mmoa, mmɔ mmɔden sɛ wo nkutoo bɛfa wo PAH akwantu no mu. Bisa wo duruyɛfo no akuw a wɔboa ne nneɛma a wɔde boa no ho asɛm.

Bere bɛn na ɛsɛ sɛ mefrɛ me duruyɛfo?

Sɛ wowɔ nsɛmmisa yi bi a, frɛ wo duruyɛfo:

• Sɛ koma no bɔ boro 120 wɔ simma biara mu (koma bɔ ntɛmntɛm).
• Sɛ ɔhome mu yare anaa ɔfe mu yɛ den a.
• Sɛ wotaa te nka sɛ w’adwene tu fra anaasɛ wotɔ piti a.
• Sɛ wo koko yɛ wo yaw anaasɛ wo ho nyɛ wo dɛ wɔ apɔw-mu-teɛteɛ ho a.
• Sɛ wobrɛ kɛse anaasɛ sɛnea wotumi yɛ nnwuma a ɛfata no so tew a.
• Akisikuru anaasɛ aduan ho akɔnnɔ a ɛyera.
• Ahomegye a enni hɔ anaasɛ adwene a ɛyɛ basaa.
• Sɛ wo home a ɛyɛ tiaa no mu yɛ den, titiriw sɛ wote nka sɛ wo home yɛ den bere a woanyane no a.
• Sɛ wo nansoaa, wo nan, anaa wo yafunu mu a ɛho ahonhon no mu yɛ den a.
• Ɔhome a ɛyɛ den bere a woreyɛ nneɛma a ɛfata anaasɛ bere a wɔregye wɔn ahome.
• Mu duru a ɛkɔ soro (nkaribo 2 da biara anaa nkaribo 5 dapɛn biara).

Bere bɛn na ɛsɛ sɛ mekɔ Emergency Treatment Unit (ETU) ?

Sɛ wowɔ saa nneɛma yi bi a, kɔ baabi a wɔhwɛ wɔn a wɔwɔ yare a egye ntɛmpɛ anaa frɛ nɔma a ɛwɔ wo mpɔtam hɔ no:

• Sɛ koma no bɔ (ɛbɔ 120-150 simma biara) a, ɛntew a.
• Totɔ piti, a ɛma obi ntumi nhu hwee.
• Nsɛnnennen a efi wo IV anaa infusion pɔmpɛ mu (te sɛ ɔyare mmoawa, catheter a ɛretu, solution a ɛretu, mogya a ɛretu, IV pɔmpɛ a entumi nyɛ adwuma yiye).
• Sɛ ahome a ɛyɛ tiaa no nkɔ bere a wagye n’ahome mpo a.
• Koko mu yaw a ɛba mpofirim na emu yɛ den.
• Ti a ɛyɛ yaw mpofirim na emu yɛ den.
• Nsa anaa nan a ɛyɛ mmerɛw mpofirim anaasɛ ɛyɛ obubuafo.

Nea etwa to no, nkrasɛm bi a ɛsɛ sɛ yɛma ɛtra yɛn adwenem

Pulmonary Arterial Hypertension (PAH) yɛ ɔyare a ɛsakra asetra. Sɛ wo anaa wo dɔfo bi anya yare yi foforo a, gye bere sua tebea no ne nea wubetumi ahwɛ kwan ho ade. Bisa wo duruyɛfo no nneɛma a ɛkyerɛkyerɛ sɛnea PAH yɛ adwuma ne sɛnea ayaresa betumi aboa mu.

Nneɛma a ɛsom bo paa a wubetumi anya no mu biako ne mmoa a afoforo de bɛma wo wɔ w’asetra mu. Mmɔ mmɔden sɛ wo nkutoo bedi tebea yi ho dwuma. Sɛ w’abusua ne wo nnamfo nni hɔ a, bisa wo duruyɛfo no mmoa akuw ne mpɔtam hɔ nneɛma ho asɛm.

Sɛ wɔahu sɛ wo dɔfo no anya saa yare yi a, yɛ nea wubetumi biara na ama wate nka sɛ wɔboa no na boa no ma ɔne afoforo nni nkitaho. Yare betumi ama yɛate nka sɛ yɛatew yɛn ho wɔ akwan bi so, nanso ebetumi ama yɛabɛn yɛn ho nso. Fa saa bere yi kyekye mpɔtam a ebetumi aboa wo anaa wo dɔfo no ma wakɔ n’anim.

` Pulmonary Arterial Hypertension, PAH, ahurututu mu mogya mmoroso, ahome a ɛyɛ tiaa, komayare, ahurututu mu yare, sɛnkyerɛnne ahorow