Sɛ wo duruyɛfo ka kyerɛ wo anaa obi a ɔbɛn wo sɛ wowɔ Amyotrophic Lateral Sclerosis (ALS) a, ɛyɛ ade a ɛfata sɛ wobɛte adesoa kɛse nka wɔ wo koma so. Saa yareɛ yi nso ebinom frɛ no ‘Lou Gehrig yareɛ’. Eyi yɛ yare a ɛfa ntini a ɛma nipadua no ntini yɛ mmerɛw nkakrankakra. Ɛwom sɛ wonni aduru biara a wɔde sa yare yi de, nanso nnuru bi wɔ hɔ a ebetumi aboa ma wɔadi ne ahoɔhare so na ama asetra ayɛ mmerɛw kakra. Riluzole yɛ nnuru a ɛte saa no mu biako. Enti ɛnnɛ, momma yɛnka Riluzole nsuo aduru yi (oral suspension) ho asɛm wɔ nsɛm a ɛnyɛ den mu.
Sɛ yɛbɛka no tiawa a, dɛn ne Riluzole?
Riluzole yɛ aduru a ɛboa ma Amyotrophic Lateral Sclerosis (ALS) no kɔ so brɛoo. Ɛyɛ adwuma denam yare no a ɛma ɛkɔ so brɛoo no so. Fa no sɛ ɛte sɛ nea worebrɛ kar bi ase. Ɛnsa yare no koraa, nanso ɛboa ayarefo ma wɔyɛ wɔn da biara da dwumadi ahorow bere tiaa bi na ɛtwentwɛn sɛnkyerɛnne ahorow te sɛ ahome a ɛyɛ tiaa no mfiase ase kodu baabi. Saa aduru yi nso wɔ hɔ wɔ edin a wɔde frɛ no Tiglutik ase.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom saa aduru yi
Ansa na wubefi ase anom Riluzole no, ɛho hia sɛ wo duruyɛfo hu w’akwahosan ho abakɔsɛm nyinaa. Hwɛ hu sɛ wobɛka saa nneɛma yi akyerɛ wo duruyɛfo a woremfa biribiara nsie .
- Sɛ wowɔ mmerɛbo mu yare biara a .
- Sɛ woadi kan anya akisikuru wɔ Riluzole, aduru foforo biara, aduan, anaa nnuru a wɔde yɛ nneɛma ho a.
- Sɛ woanyinsɛn anaasɛ worebɔ mmɔden sɛ wubenyinsɛn a .
- Sɛ woyɛ ɛna a worema abofra nufu a .
Ɛho hia yiye sɛ wobɛka saa nsɛm yi akyerɛ wo duruyɛfo no pɛpɛɛpɛ, na ama woanya ahobammɔ ne mfaso kɛse afi aduru no mu.
Ɔkwan bɛn so ankasa na wode saa aduru yi di dwuma?
Sɛ wobɛnya saa aduru yi so mfasoɔ koraa a, ɛho hia paa sɛ wode di dwuma wɔ ɔkwan a ɛfata so.
- Eyi yɛ aduru a ɛyɛ nsu a wɔnom nom. Ɛsɛ sɛ wɔwosow toa no yiye ansa na wɔde adi dwuma.
- Fa nsenia anaa dropper soronko a ɛka aduru no ho no nkutoo susuw. Mfa teaspoons a wɔde di dwuma daa a efi wo dan mu nni dwuma, efisɛ ɛremma wunnya susudua a edi mu.
- Eyi ne ade a ɛho hia sen biara: Ɛsɛ sɛ wɔnom saa aduru yi bere a yafunu da mpan . Ɛne sɛ, anyɛ yiye koraa no, dɔnhwerew biako ansa na wɔadidi anaa nnɔnhwerew abien wɔ adidi akyi. Sɛ wɔde ka aduan ho a, ebetumi atew aduru no a ɛbɛkɔ nipadua no mu no so.
- Fa aduru no sɛnea wo duruyɛfo akyerɛ wo no pɛpɛɛpɛ, wɔ bere a wɔakyerɛw ama wo no mu. Mma dodow no nkɔ soro anaasɛ nnom no mpɛn pii, sɛ wote nka mpo a.
- Mma nnnyae nnuru no nom mpofirim a wo duruyɛfo nka ho afotu.
- Sɛ wɔde saa aduru yi ma mmofra a, ɛho hia sɛ wokɔ mmofra oduruyɛfo nkyɛn ansa na wode ama wɔn. Ebia ɛho behia sɛ wɔhwɛ yiye titiriw.
Na sɛ mepa nnuru dodow bi nso ɛ?
Sɛ wo werɛ fi sɛ wobɛnom dose bi a, fa no bere a woakae ara pɛ. Nanso sɛ ɛkame ayɛ sɛ bere aso sɛ wobɛma wo dodow a edi hɔ no a, twa dodow a woayera no so na fa dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru abien prɛko pɛ da mfa nsiesie dodow a wo werɛ afi no.
Sɛ nnuru no dodow kɔ soro a, dɛn na ɛsɛ sɛ woyɛ?
Sɛ wususuw sɛ woanom nnuru pii a, kɔ ayaresabea Emergency Department (ETU) a ɛbɛn wo ntɛm ara . Anaasɛ frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea hɔ no na woanya afotu.
Nneɛma afoforo a ɛsɛ sɛ wohwɛ yiye bere a worenom Riluzole no
- Hwɛ wo duruyɛfo daa: Kɔ wo duruyɛfo nkyɛn wɔ nna a wɔahyɛ ato hɔ mu na woahu sɛnea aduru no reka wo.
- Hwɛ yiye wɔ nyarewa ho: Ebia tumi a wo nipadua no tumi ko tia nyarewa (immunity) no so bɛtew kakra bere a worenom saa aduru yi no. Enti, sɛ wuhu sɛnkyerɛnne ahorow te sɛ atiridiinini, atiridiinini, nipadua mu yaw, anaa wo menewa mu yaw a, nnyɛ wo ho aduru na kɔ oduruyɛfo nkyɛn ntɛm ara. Bɔ mmɔden sɛ wobɛtwe wo ho afi nnipa a wɔyare ho.
- Hwɛ yiye wɔ nnuru a wɔde kum ɛyaw ho: Nnom nnuru a wɔde kum ɛyaw te sɛ aspirin, paracetamol, ne ibuprofen a wonkɔ wo duruyɛfo nkyɛn, efisɛ eyinom betumi asiw sɛnkyerɛnne te sɛ atiridii ano.
- Dae ne adwenemhaw: Ebia saa aduru yi bɛma woate nka sɛ woda anaasɛ wo ho bɛtɔ wo. Enti, nka kar, mfa mfiri nni dwuma , anaa nyɛ biribiara a ɛhwehwɛ sɛ wode w’adwene si biribi so kosi sɛ wubehu sɛnea aduru yi ka wo ankasa. Sɛ woyɛ obi a ne mfe akɔ anim a, sɔre gyina hɔ brɛoo, te sɛ bere a woresɔre afi akongua so no.
- Sigaretnom: Sɛ wonom sigaret a, ka kyerɛ wo duruyɛfo. Ebia sigaretnom bɛma aduru yi anyɛ adwuma yiye. Sɛ woresusuw ho sɛ wubegyae sigaretnom a, wo ne wo duruyɛfo nka ho asɛm.
Nsunsuanso bɔne a ebetumi aba ne nnuru a ɛne ne ho di nkitaho
Te sɛ nnuru nyinaa no, Riluzole betumi de ɔhaw ahorow aba. Ebetumi aba nso sɛ saa aduru yi ne nnuru afoforo bedi nkitaho. Ɛho hia sɛ wohu eyi.
| Nea ɛsɛ sɛ wohwɛ so yiye | Nkyerɛmu |
|---|---|
| Nsunsuanso bɔne a ɛhwehwɛ sɛ wonya ayaresa ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no yaw | Wora mu akisikuru, ɛyaw, anim, ano anaa tɛkrɛma a ɛho ahonhon. |
| Nsɛnkyerɛnne a Ɛkyerɛ sɛ Mmenewa Apira | Nsu a ɛyɛ kɔkɔɔ anaa bruu tuntum, aniwa anaa honam ani yɛ kɔkɔɔ, ɛyaw wɔ yafunu no atifi nifa so, aduan ho akɔnnɔ a ɛyera, akisikuru, ɔbrɛ a ɛyɛ soronko. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ obi anya ɔyare mmoawa | Atiridiinini, atiridiinini, ne menewam yaw. |
| Nsunsuanso bɔne a ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo no sɛ ɛkɔ so a | |
| Nneɛma bɔne a ɛtaa ba | Ɔfe, tiyɛ, akisikuru, ɔfe, yafunu mu yaw, ɔbrɛ. |
| Nkitahodi a ɛda Riluzole ntam | |
| Nnuru ne nneɛma afoforo | Nnuru te sɛ Allopurinol, awo ano aduru, Ciprofloxacin, Fluvoxamine, Methyldopa, Sulfasalazine, ne nea ɛkeka ho Bio nso, ka nnuru foforo biara, vitamin, aduru a wɔde di dwuma wɔ amanne kwan so, nsa, ne sigaretnom a worenom ho asɛm kyerɛ wo duruyɛfo . |
Ɔkwan bɛn so na wɔde aduru no sie?
- Fa sie baabi a ahobammɔ wɔ a mmofra ntumi nkɔ hɔ .
- Mfa nhyɛ frigye mu. Fa sie wɔ dan mu hyew (a ɛyɛ digrii Celsius 15 kosi 30 ntam) .
- Nea ɛho hia paa:Tow aduru biara a aka no gu nnafua 15 akyi bere a woadi kan abue toa no. Mfa nni dwuma ntra nnafua 15.
Nkrasɛm a Wɔde Kɔ Fie
- Riluzole nyɛ ALS aduru, nanso ɛboa ma yare no kɔ so yɛ den.
- Bere nyinaa fa saa aduru yi bere a wo yafunu da mpan, kyerɛ sɛ, dɔnhwerew biako ansa na woadidi anaa nnɔnhwerew abien wɔ adidi akyi.
- Ka nnuru afoforo, vitamin, ne ayaresa tebea afoforo a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo.
- Sɛ wunya ɔhaw ahorow a emu yɛ den te sɛ atiridiinini, wo honam ani yɛ kɔkɔɔ, anaasɛ wo ho yɛ wo hyew a, hwehwɛ ayaresa ntɛm ara.
- Tow aduru biara a aka no gu nnafua 15 akyi bere a woabue toa no.
- Nnyae nnuru nom anaasɛ ɛnsesa dodow a wode ma no da a wunnya wo duruyɛfo afotu.
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