Ɛyɛ ade a ɛfata sɛ wobɛte adesoa kɛse nka bere a wo duruyɛfo ka kyerɛ wo anaa obi a ɔwɔ w’abusua mu wɔ ntini mu yare a emu yɛ den te sɛ Amyotrophic Lateral Sclerosis (ALS) no. Riluzole yɛ aduru titiriw bi a ɛboa ma yare yi kɔ so, kyerɛ sɛ, yare no kɔ so nkakrankakra. Enti ɛnnɛ, momma yɛnka aduru a ɛho hia yi ho asɛm wɔ ɔkwan a ɛnyɛ den so, te sɛ nea yɛrekyerɛkyerɛ mu akyerɛ yɛn adamfo bi.
Dɛn ne Riluzole?
Sɛ yɛbɛka no tiawa a, Riluzole yɛ aduru a ɛma Amyotrophic Lateral Sclerosis (ALS) , yare a ɛma ntini mu yare (a wɔsan frɛ no Lou Gehrig yare) no kɔ so brɛoo. Ɛnsa yare no koraa, nanso ebetumi aboa ma wɔadi ntini mu nkwammoaa a ɛsɛe no so na ama wɔanya ahotɔ kakra. Nnuruyɛfo nso betumi akyerɛw saa aduru yi ama tebea afoforo. Sɛ wowɔ nsɛmmisa bi fa ho a, ɛbɛyɛ papa sɛ wubebisa wo duruyɛfo.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woafi ase anom nnuru
Ɛho hia paa sɛ wo duruyɛfo no hu w’akwahosan tebea no yiye ansa na wama wo saa aduru yi. Hwɛ hu sɛ wobɛka akyerɛ wo duruyɛfo sɛ wowɔ tebea horow a wɔabobɔ din wɔ ase ha no bi a.
| Wo tebea no | Dɛn nti na ɛho hia sɛ wobɔ oduruyɛfo no amanneɛ? |
|---|---|
| Mmɛn mu yare | Wɔnam mmerɛbo so yi saa aduru yi fi nipadua no mu titiriw. Sɛ wowɔ mmerɛbo mu haw biara a, ebia ɛho behia sɛ wɔyɛ nsakrae wɔ dodow a wode ma no mu anaasɛ ɛho behia sɛ wɔyɛ wo nhwehwɛmu titiriw. |
| Nneɛma a ɛma obi ho yɛ no hyew | Sɛ wo ho yɛ wo hyew wɔ riluzole, nnuru afoforo, nnuan, anaa nneɛma a wɔde sie ho a, yɛsrɛ sɛ di kan ma yɛnhu. |
| Sɛ woanyinsɛn anaasɛ worehwɛ akokoaa kwan a | Da so ara nni asɛm a edi mũ biara a ɛfa ahobammɔ a aduru yi wɔ bere a wɔyem no ho. Enti, ɛsɛ sɛ wo ne wo duruyɛfo susuw eyi ho na wusi mfaso ne asiane a ɛwom no ho gyinae. |
| Sɛ ɛna bi rema ne ba nufu a | Esiane sɛ wonni nsɛm a emu da hɔ a ɛkyerɛ sɛ ebia aduru yi nam nufusu so kɔ akokoaa no nkyɛn nti, sɛ woyɛ ɛna a ɔma nufu a, ɛho hia sɛ wobɔ oduruyɛfo no amanneɛ. |
Ɔkwan bɛn so ankasa na mede saa aduru yi di dwuma?
Sɛnea ɛbɛyɛ na woanya aduru bi so mfaso kɛse no, ɛho hia paa sɛ wode di dwuma yiye.
- Fa nsu kuruwa mene saa aduru yi nyinaa.
- Fa w’aduru no wɔ bere a ɛfata mu, sɛnea wo duruyɛfo akyerɛ wo no. Sɛ wɔka kyerɛ wo sɛ fa no mprenu da biara a, bɔ mmɔden sɛ wubegyaw nnɔnhwerew pii kwan wɔ mprenu no ntam.
- Nea ɛho hia sen biara: Ɛsɛ sɛ wɔnom saa aduru yi bere a yafunu da mpan . Ɛno kyerɛ sɛ, anyɛ yiye koraa no, fa dɔnhwerew biako ansa na woadi anaa nnɔnhwerew abien wɔ adidi akyi. Mfa no nka aduan ho. Eyi betumi atew aduru no a ɛkɔ nipadua no mu no so.
- Mma nnnyae w’aduru no nom mpofirim a wo duruyɛfo nka ho afotu.
- Saa aduru yi yɛ wo nkutoo dea. Mfa w’aduru nkyerɛ afoforo da.
Na sɛ mepa dose bi nso ɛ?
Sɛ wo werɛ fi sɛ wobɛnom dose bi a, fa no bere a woakae ara pɛ. Nanso, sɛ ɛkame ayɛ sɛ bere aso sɛ wobɛma wo dodow a edi hɔ no a, twa dodow a woayera no so na fa wo dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru abien prɛko pɛ esiane biribiara nti.
Nsɛntitiriw titiriw a ɛsɛ sɛ wususuw ho ne nea efi mu ba
Hwɛ nneɛma yi yiye bere a worenom nnuru no.
- Aduruyɛ mu nhwehwɛmu daa: Kɔ so kɔ ayaresabea na kɔyɛ mogya mu nhwehwɛmu sɛnea wo duruyɛfo ka kyerɛ wo no, efisɛ eyi ho hia na ama woahu sɛ saa aduru yi reka wo mmerɛbo anaa.
- Atiridii ne Nyarewa: Sɛ wowɔ atiridiinini, atiridiinini, wo menewa mu yaw, anaa sɛnkyerɛnne afoforo a ɛkyerɛ sɛ woanya ɔyare no a, nnyɛ wo ho aduru. Frɛ wo duruyɛfo ntɛm ara. Ebia saa aduru yi bɛtew tumi a wo nipadua wɔ sɛ ɛbɛko atia nyarewa no so.
- Sigaretnom: Sɛ wonom sigaret a, ka kyerɛ wo duruyɛfo. Ebia sigaretnom bɛma aduru yi anyɛ adwuma yiye. Afei nso, sɛ woreyɛ nhyehyɛe agyae sigaretnom a, ka kyerɛ wo duruyɛfo.
- Dae ne adwenemhaw: Ebia wobɛte nka sɛ wobɛda kakra na woayɛ basaa bere a worenom aduru yi no.Ebia wobɛte nka sɛ wo ho ayɛ wo yaw. Enti, nka kar anaa mfa mfiri nni dwuma kosi sɛ wubehu sɛnea aduru yi ka wo. Ne titiriw no, sɛ woabɔ akwakoraa a, kwati sɛ wobɛsɔre na woatra ase ntɛm.
Nneɛma bɔne a ebetumi afi mu aba
Te sɛ nnuru nyinaa no, eyi betumi de ɔhaw ahorow aba, ɛwom sɛ ɛnyɛ obiara na onya bi de. Hwɛ yiye wɔ sɛnkyerɛnne ahorow a ɛwɔ ase ha no ho.
| Nsunsuanso bɔne | Nkyerɛmu |
|---|---|
| Nneɛma bɔne a anibere wom a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no yaw | Wora mu akisikuru, ɛyaw, anofafa, tɛkrɛma anaa anim a ɛho ahonhon, ɛyɛ den sɛ wobɛhome. |
| Nsɛnkyerɛnne a Ɛkyerɛ sɛ Mmenewa Apira | Nsu a ɛyɛ kɔkɔɔ anaa bruu tuntum, aniwa anaa honam ani yɛ kɔkɔɔ, ɛyaw wɔ yafunu no atifi nifa so, akisikuru, aduan ho akɔnnɔ a ɛyera, ɔbrɛ a ɛtra so. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ obi anya ɔyare mmoawa | Atiridiinini, atiridiinini, ne menewam yaw. |
| Nneɛma bɔne a ɛtaa ba a ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo sɛ ɛkɔ so anaasɛ ɛhaw adwene a | |
| Ɔhaw ahorow a ɛtaa ba | Ɔfe, tiyɛ, akisikuru, ɔfe, yafunu mu yaw, ɔbrɛ a ɛba obiara so. |
Na sɛ wonom nnuru pii nso ɛ? (Nnuru a wɔde ma boro so) .
Sɛ wususuw sɛ woanom nnuru pii sen sɛnea wususuw a, kɔ ayaresabea Emergency Department (ETU) a ɛbɛn wo ntɛm ara . Anaasɛ, frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea hɔ no na woanya afotu.
Nnuru afoforo a ebia ɛne aduru yi bedi nkitaho
Ka nnuru a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo, a nnuru a wɔkyerɛw ma wo ne nea wɔtɔn, vitamin, ne nhabannuru ka ho. Nnuru a ebetumi ne riluzole adi nkitaho no bi ne:
- Allopurinol a wɔde di dwuma
- Nnuru a wɔde siw awo ano
- Ciprofloxacin a wɔde yɛ nnuru
- Fluvoxamine a wɔde di dwuma
- Methoxsalen a wɔde yɛ nnuru
- Nnuru te sɛ sulfasalazine.
Saa nsɛm a wɔahyehyɛ yi nwiei, enti ɛyɛ nea asiane biara nni ho sɛ wobɛka nnuru a wonom nyinaa ho asɛm akyerɛ wo duruyɛfo.
Nkrasɛm a Wɔde Kɔ Fie
- Riluzole nyɛ ALS aduru, nanso ɛboa ma yare no kɔ so yɛ den.
- Bere nyinaa fa saa aduru yi bere a wo yafunu da mpan, kyerɛ sɛ, dɔnhwerew biako ansa na woadidi anaa nnɔnhwerew abien wɔ adidi akyi.
- Hwɛ hu sɛ wobɛka nnuru afoforo a wonom nyinaa, wo suban (sigaretnom, nsanom), ne ayaresa tebea foforo biara a ebia wowɔ ho asɛm akyerɛ wo duruyɛfo.
- Sɛ wunya atiridiinini, wunya ɔyare mmoawa ho sɛnkyerɛnne, anaa mmerɛbo asɛe ho sɛnkyerɛnne (te sɛ wo honam ani/aniwa a ɛyɛ kɔkɔɔ) bere a worenom aduru no a, hwehwɛ ayaresa ntɛm ara.
- Mfa nnuru a wɔakyerɛw ama wo no nkyerɛ afoforo da. Di wo duruyɛfo akwankyerɛ akyi bere nyinaa.
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