Momma yensua Tezacaftor ho ade; Ivacaftor aduru a wɔde sa cystic fibrosis

So wo anaa w’abusua mu obi wɔ cystic fibrosis? Sɛ saa a, ebia wo duruyɛfo akyerɛw wo aduru bi a ɛka nnuru abien a wɔfrɛ no Tezacaftor ne Ivacaftor bom. Ebia wubenya eyi wɔ brand din Symdeko ase. Eyi yɛ aduru titiriw bi kakra. Enti ɛnnɛ, momma yɛnka nea aduru yi yɛ ankasa, sɛnea wɔde di dwuma pɛpɛɛpɛ, nneɛma a ɛsɛ sɛ yɛhwɛ yiye wɔ ho, ne nsunsuanso bɔne a ebetumi de aba ho asɛm wɔ ɔkwan a ɛyɛ mmerɛw na ɛyɛ adamfofa su so.

Dɛn na ɛba wɔ aduru yi ho ankasa?

Sɛ yɛbɛka no tiawa a, cystic fibrosis yɛ yare a awosu mu sintɔ bi a ɛhwɛ ma nkyene ne nsu kari pɛ wɔ yɛn nipadua mu na ɛde ba. Ne saa nti, nsu a ɛtwetwe, titiriw wɔ ahurututu ne aduan mu te sɛ nsu a ɛyɛ nwini no, yɛ den yiye na ɛyɛ nnam. Nokwarem no, ɛte sɛ gluu. Saa nsu a ɛyɛ den yi ma ɛyɛ den sɛ wɔbɛhome wɔ ahurututu no mu, na ebetumi ama obi anya ɔyare mmoawa mpɛn pii .

Fa no sɛ ɛte sɛ apon nketewa a ɛwɔ yɛn nipadua mu nkwammoaa mu, a ɛhɔ na nkyene ne nsu kɔ nkwammoaa no mu na efi mu ba no. Wɔ cystic fibrosis mu no, saa apon yi ntumi nyɛ adwuma yiye.

Eyi ne baabi a nnuru abien yi, Tezacaftor ne Ivacaftor, ba Nea nnuru yi yɛ ne sɛ ɛkɔ saa apon (protein) a entumi nyɛ adwuma yiye no so na ɛboa ma wɔyɛ adwuma yiye . Sɛ wɔsan de nkyene ne nsu no kankyee wɔ saa kwan yi so a, nkakrankakra nsu a ɛyɛ den no dan nsu na ɛnyɛ den sɛ wobeyi afi ahurututu no mu. Afei ɔhome yɛ mmerɛw, na wotumi di sɛnkyerɛnne ahorow no so kɛse.

Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom nnuru

Ansa na wubefi ase anom saa aduru yi no, ɛho hia yiye sɛ woka w’akwahosan tebea a edi mũ kyerɛ wo duruyɛfo. Efisɛ tebea horow bi wɔ hɔ a ɛsɛ sɛ wɔhwɛ so yiye bere a wɔde aduru yi redi dwuma no. Hwɛ hu sɛ wobɛka saa nneɛma yi ho asɛm titiriw akyerɛ wɔn.

• Sɛ wowɔ asaabo mu yare a .
• Sɛ wowɔ mmerɛbo mu yare biara a . Eyi ho hia yiye, efisɛ wɔfa mmerɛbo no so yi saa aduru yi fi nipadua no mu .
• Sɛ wo ho yɛ wo hyew wɔ Tezacaftor, Ivacaftor, anaa aduru foforo biara, aduan, anaa aduru a wɔde yɛ ade ho a .
• Sɛ woanyinsɛn anaasɛ worebɔ mmɔden sɛ wubenyinsɛn aEdin ahorow.
• Sɛ woyɛ ɛna a ɔma nufu a .

Oduruyɛfo no begyina saa nsɛm yi so asi gyinae sɛ ebia aduru yi fata wo anaasɛ ɛnsɛ, anaasɛ ɛsɛ sɛ wɔsesa dodow a wɔde ma no.

Ɛsɛ sɛ wɔde aduru no di dwuma wɔ ɔkwan a ɛfata so.

Sɛnea ɛbɛyɛ na woanya aduru yi so mfaso kɛse no, ɛho hia yiye sɛ wobɛnom no yiye.

• Fa ka aduan ho: Ɛsɛ sɛ wɔde saa aduru yi ka aduan a srade wom ho . Sɛ nhwɛso no, nkesua, atoko bɔta, kyiisi, nufusu, yogurt, anaa aduan a wɔde akutu ngo kakra ahyɛ mu. Eyi ne ɔkwan a eye sen biara a wobɛfa so agye aduru no.
• Fa no bere koro mu: Bɔ mmɔden sɛ wobɛnom w’aduru no bere koro mu da biara sɛnea wubetumi biara. Gyae bɛyɛ nnɔnhwerew 12 wɔ anɔpa ne anwummere dodow no ntam.
• Mene aduru no nyinaa: Mbubu, nbubu, anaa nwe aduru no. Fa nsu kuruwa mene tablet no nyinaa . Esiane sɛ wɔayɛ saa aduru yi sɛnea ɛbɛyɛ a ɛbɛpete nkakrankakra wɔ nipadua no mu nti, sɛ wobubu a, ebetumi asakra ɔkwan a aduru no fa so yɛ adwuma.
• Grapefruit Juice: Ade foforo a ɛho hia yiye ne sɛ woremfa saa aduru yi nka grapefruit nsu ho da. Ebetumi aka sɛnea aduru no tu mpɔn kɛse. Afei nso, gyae bobe aba a wudi.
• Nnyae: Nnyae w’aduru nom kosi sɛ wo duruyɛfo bɛka akyerɛ wo. Kɔ so nom sɛ wo ho atɔ wo mpo a.

Sɛ wopa nnuru dodow bi a, dɛn na ɛsɛ sɛ woyɛ?

Fa no sɛ wo werɛ fii sɛ wobɛnom w’aduru anɔpa nnɔnwɔtwe. Sɛ wokae bɛyɛ awia 12, a ɛkyerɛ sɛ ɛboro nnɔnhwerew 6 kosi sɛ wobɛma wo dodow a edi hɔ no a, fa dodow a woayera no bere a woakae ara pɛ. Nanso sɛ ennu nnɔnhwerew 6 kosi wo dodow a edi hɔ a wobɛma no so a, twa dodow a woayera no so na fa dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru abien prɛko pɛ da.

Nnuru afoforo a ebia ɛne aduru yi bedi nkitaho

Ebia saa aduru yi ne nnuru afoforo bi bedi nkitaho. Enti, ɛho hia sɛ woka nnuru a worenom nyinaa (a vitamin, nhabannuru, ne nnuru a wɔde ka ho) ho asɛm kyerɛ wo duruyɛfo.

Saa nsɛm a wɔahyehyɛ yi nwie pɛyɛ, enti ka biribiara a wode bedi dwuma ho asɛm kyerɛ wo duruyɛfo.

Nneɛma a ɛsɛ sɛ wohwɛ yiye wɔ ho bere a worenom nnuru no

Wo duruyɛfo bɛhwɛ wo daa bere a worenom saa aduru yi no.

• Hwɛ a wobɛkɔ akɔhwɛ wo daa: Wo duruyɛfo bɛka akyerɛ wo sɛ bra ayaresabea hɔ wɔ nna a wɔahyɛ ato hɔ no mu. Mma nntwa eyinom so. Eyi ho hia na woahu sɛ wo yare no ho sɛnkyerɛnne renya nkɔso anaasɛ ɛnte saa.
• Mogya mu nhwehwɛmu: Ɛda adi sɛ wo duruyɛfo bɛhyɛ sɛ wɔnyɛ mogya mu nhwehwɛmu kakraa bi bere a worenom aduru yi no. Wɔbɛhwɛ wo mmerɛbo mu enzymes, titiriw wo mmerɛbo mu enzymes. Eyi yɛ ade a ɛfata, enti mma ɛnhaw wo. Ɛyɛ sɛ wobɛhwɛ sɛ aduru no reyɛ adwuma ama wo na ɛnka wo mmerɛbo.
• Aniwa mu nhwehwɛmu: Ebia wɔbɛka akyerɛ wo nso sɛ wɔnyɛ w’ani mu nhwehwɛmu ansa na woafi aduru no ase ne bere a worenom no. Sɛ wuhu nsakrae biara wɔ w’ani so (te sɛ aniwa a ɛyɛ mmerɛw, nkaa a wuhu a atwa akanea ho ahyia) , ka kyerɛ wo duruyɛfo ntɛm ara.

Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?

Te sɛ aduru biara no, eyi betumi de ɔhaw ahorow bi aba. Ɛnyɛ obiara na onya wɔn. Nanso ɛho hia sɛ wohwɛ wɔn yiye.

Sɛ wunya sɛnkyerɛnne foforo biara a ɛyɛ soronko a wɔanka ho asɛm wɔ saa nsɛm yi mu a, yɛsrɛ sɛ ka ho asɛm nso kyerɛ wo duruyɛfo.

Ɔkwan bɛn so na wɔkora nnuru so dwoodwoo?

• Twe wo ho fi mmofra ho: Bere nyinaa fa nnuru sie baabi a mmofra ne afieboa ntumi nkɔ, wɔ baabi a wɔato mu.
• Ɔhyew a ɛfata: Fa sie wɔ dan mu hyew (a ɛwɔ digrii Celsius 20 kosi 25 ntam). Bɔ ho ban fi ɔhyew ne nsu a ɛboro so ho.
• Nnuru a Ne Bere Atwam: Mfa nnuru a atwam bere a ne bere atwam nni dwuma. Tow gu sɛnea ɛsɛ.
• Nneɛma a Wɔtow gu: Mfa nnuru a wɔmfa nni dwuma no nkɔ tiafi mu anaasɛ nkɔ nwura mu tẽẽ. Bisa wo duruyɛfo no ɔkwan pa a wobɛfa so atow agu.