Sɛ wo anaa obi a wunim no wɔ cystic fibrosis a, ebia wo duruyɛfo akyerɛw aduru yi a wɔfrɛ no Tezacaftor; Ivacaftor na ɔkyerɛwee. Aduru yi din ne Symdeko. Esiane sɛ eyi yɛ nnɛyi aduruyɛ a ɛyɛ soronko kakra nti, ɛho hia yiye sɛ wubehu ho asɛm pɛpɛɛpɛ na wode adi dwuma yiye. Enti ɛnnɛ, momma yɛnka aduru yi ho asɛm kɛkɛ, sɛnea ɛyɛ adwuma, sɛnea wɔnom, ne biribiara a ɛsɛ sɛ wohwɛ yiye wɔ ho.
Dɛn ne Tezacaftor; Ivacaftor na ɛyɛ?
Sɛ yɛbɛka no tiawa a, eyi yɛ aduru a wɔde sa yare bi a wɔfrɛ no Cystic Fibrosis (CF). Nanso, wɔmfa mma CF ayarefo nyinaa. Saa aduru yi yɛ adwuma ma nnipa a wɔwɔ nkwaadɔm mu nsakrae bi wɔ wɔn awosu mu nkutoo. Wo duruyɛfo bɛyɛ nhwehwɛmu a ɛho hia de ahu sɛ saa aduru yi fata wo anaa. Ɛboa ma wosiesie ɔhaw bi a ɛfa protein ahorow a ɛwɔ wo nipadua mu a CF de ba no ho. Ebia wo duruyɛfo nso bɛkyerɛw ama wo esiane nneɛma afoforo nti. Enti sɛ wowɔ nsɛmmisa bi a, bisa wo duruyɛfo.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woafi saa aduru yi ase
Ansa na wo duruyɛfo bɛkyerɛw saa aduru yi no, ebehia sɛ ohu w’akwahosan ho abakɔsɛm nyinaa. Enti, sɛ wowɔ tebea horow a edidi so yi mu biara a, hwɛ hu sɛ wobɛka akyerɛ wo duruyɛfo .
- Sɛ wowɔ asaabo mu yare a.
- Sɛ wowɔ mmerɛbo mu yare a.
- Sɛ woadi kan anya akisikuru soronko bi wɔ nneɛma a wɔde yɛ Tezacaftor, Ivacaftor, anaa aduru foforo biara, aduan, anaa ade a wɔde siesie nneɛma ho a.
- Sɛ woanyinsɛn, anaasɛ worehwɛ kwan sɛ wobɛnyinsɛn nnansa yi ara a.
- Sɛ woyɛ ɛna a ɔma nufu a.
Ɛho hia paa ma w’ankasa ahobammɔ sɛ wobɛka saa nsɛm yi akyerɛ oduruyɛfo no a womfa nsie.
Ɔkwan bɛn so ankasa na mede saa aduru yi di dwuma?
Sɛ wubenya aduru yi so mfaso kɛse a, ɛsɛ sɛ wonom sɛnea wɔakyerɛw ama wo no pɛpɛɛpɛ.
- Fa ka aduan a srade wom ho: Ɛsɛ sɛ wɔde saa aduru yi ka aduan a srade wom ho bere nyinaa . Sɛ nhwɛso no, nkesua, kyiisi, atoko bɔta, avocado, ne nea ɛkeka ho bɛboa nipadua no ma atwe aduru no yiye.
- Mene aduru no nyinaa: Mbubu, nbubu, anaa nwe aduru no. Fa nsu kuruwa mene no nyinaa.
- Mfa Grapefruit Juice nka ho: Eyi ho hia yiye. Kwati sɛ wubedi anaa wobɛnom bobe anaa bobe nsu koraa bere a worenom saa aduru yi no.Ebetumi asiw aduru no a etu mpɔn no kwan.
- Fa no bere ano: Nom w’aduru no bere a wo duruyɛfo bɛkyerɛw ama wo no, wɔ bere a ɛfata mu. Sɛ ɛyɛ pɛnkoro da biara a, bɔ mmɔden sɛ wobɛnom bere koro mu da biara.
- Nnyae w’aduru nom a wo duruyɛfo mfa afotu mma: Nnyae w’aduru no a wunni kan mmisa wo duruyɛfo, sɛ́ ɛyɛ nea wo ho atɔ wo anaasɛ biribi foforo biara nti.
Sɛ wode saa aduru yi ma mmofra a...
Ɛtɔ mmere bi a wɔkamfo saa aduru yi kyerɛ mmofra a wɔadi boro mfe 6. Nanso, eyi yɛ gyinaesi a wo mmofra oduruyɛfo na obesi. Di n’akwankyerɛ akyi pɛpɛɛpɛ.
Sɛ wonom nnuru pii (overdose) a, dɛn na wobɛyɛ?
Sɛ wususuw sɛ woanom nnuru a ɛboro so a, mma wo ho nnyɛ wo hu na frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no ntɛm ara . Anaasɛ, sɛ ɛbɛyɛ yiye a , kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) ntɛm ara sɛnea wubetumi.
Na sɛ mepa nnuru dodow bi nso ɛ?
Sɛ wo werɛ fi sɛ wobɛnom dose bi a, fa no bere a woakae ara pɛ. Nanso sɛ ennu nnɔnhwerew 6 kosi wo dodow a edi hɔ a wode bɛma a, twa dodow a woayera no so. Fa dodow a edi hɔ no ara wɔ bere a wɔahyɛ da ayɛ no mu. Mfa nnuru abien prɛko pɛ da mfa nsiesie dodow a wo werɛ afi no.
Nnuru afoforo a ebetumi ne saa aduru yi adi nkitaho (Drug Interactions) .
Ebia saa aduru yi ne nnuru afoforo bi bedi nkitaho. Enti, ɛho hia sɛ woka nnuru a worenom nyinaa (a vitamin, nhabannuru, ne nnuru a wɔde ka ho) kyerɛ wo duruyɛfo. Pon a ɛwɔ ase ha no kyerɛkyerɛ eyi mu kɔ akyiri.
| Nnuru ahorow a wɔde di dwuma | Nkyerɛkyerɛmu / Nhwɛso ahorow |
|---|---|
| Kwati sɛ wobɛka eyinom abom koraa. | |
| Nnuru bi a wɔde ma sɛnea ɛbɛyɛ a ɛfata | Carbamazepine, Phenobarbital, Phenytoin, aduru a ɛma nipadua no yɛ adwuma |
| Nnuru a wɔde sa nsamanwaw | Rifampin, Rifabutin a wɔde yɛ nneɛma |
| Nnuadewa bi a wɔfrɛ no herb | Ɔhotefo Yohane Wort |
| Nsã bi a wɔnom | Grapefruit nsu a wɔde yɛ |
| Eyinom nso betumi adi nkitaho (fa di dwuma wɔ aduruyɛ mu afotu nkutoo ase) . | |
| Nnuru bi a ekum ɔyare mmoawa | Clarithromycin, Erythromycin, Telithromycin a ɛyɛ aduru a ɛma mogya tu |
| Nnuru a ɛko tia fungal | Fluconazole, Itraconazole, Ketoconazole, Posaconazole, Voriconazole a wɔde di dwuma |
| Nnuru a wɔde ma bere a wɔde nipadua foforo ahyɛ nipadua mu akyi | Cyclosporine, Everolimus, Sirolimus, Tacrolimus a wɔde di dwuma wɔ ɔkwan a ɛyɛ nwonwa so |
| Aduru a wɔde sa komayare | Digoxin a wɔde di dwuma |
Nneɛma bɔne a ebetumi afi mu aba bere a wɔrenom aduru no
Te sɛ aduru biara no, eyi betumi de ɔhaw ahorow aba nnipa binom so. Ebi yɛ aniberesɛm, ebi nso yɛ odwo.
| Nsunsuanso bɔne no su | Mpopoeɛ |
|---|---|
| Nneɛma bɔne a anibere wom a ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo no ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no yaw | Honam ani akisikuru, ɛyaw, anim, ano anaa tɛkrɛma a ɛho ahonhon, ɛyɛ den sɛ wobɛhome. |
| Anisoadehu sesa | Aniwa a ɛyɛ kusuu, nsakrae a ɛba aniwa fitaa mu (cataracts). |
| Nsɛnkyerɛnne a Ɛkyerɛ sɛ Mmenewa Apira | Nsu a ɛyɛ kɔkɔɔ anaa bruu tuntum, aniwa anaa honam ani yɛ kɔkɔɔ (jaundice), aduan ho akɔnnɔ a ɛyera, akisikuru, ɛyaw wɔ yafunu no atifi nifa so, nsu a ɛyɛ mmerɛw, ɔbrɛ a ɛyɛ soronko. |
| Nsunsuanso bɔne a ɛtaa ba a ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo no sɛ ɛkɔ so a | |
| Tipaeɛ | Tiyɛ a ɛyɛ yaw wɔ ɔkwan a ɛkɔ akyiri so. |
| Adwene a ɛyɛ basaa | Sɛ wote nka sɛ n’adwene atu afra. Kwati sɛ wobɛka kar. |
| Abofono | Sɛ wote nka sɛ wobɛfe. |
| Sinus ho haw ahorow | Anom a ɛyɛ mmerɛw, nsu a ɛyɛ nwini. |
Sɛ wunya sɛnkyerɛnne foforo biara a ɛyɛ soronko a wɔanka ho asɛm wɔ saa nsɛm yi mu a, ka ho asɛm nso kyerɛ wo duruyɛfo.
Nkrasɛm a Wɔde Kɔ Fie
- Tezacaftor a ɛwɔ hɔ; Ivacaftor (Symdeko) yɛ aduru titiriw a wɔde ma Cystic Fibrosis awosu mu tebea horow bi.
- Ɛsɛ sɛ wɔde saa aduru yi ka aduan a srade wom ho bere nyinaa .
- Kwati sɛ wobɛnom bobe nsu koraa bere a worenom aduru yi no.
- Ka nnuru afoforo a worenom nyinaa ho asɛm kyerɛ wo duruyɛfo.
- Sɛ wuhu sɛnkyerɛnne biara a ɛkyerɛ sɛ mmerɛbo no asɛe, te sɛ nsakrae a ɛba w’ani so anaasɛ wo honam ani yɛ kɔkɔɔ a , hwehwɛ aduruyɛfo afotu ntɛm ara.
- Saa aduru yi yɛ wo nkutoo dea. Mfa nnkyɛ obi foforo da.
- Mma ntwentwɛn wo nan ase sɛ wubebisa wo duruyɛfo no ɔhaw biara ho asɛm.
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