So woabrɛ sɛ wobɛyare bere nyinaa a atiridii , ɔfe, ne atiridii? Ɛtɔ da bi a, yɛdwene sɛ, “Oo, me nipadua ayɛ mmerɛw.” Nanso ɛnyɛ bere nyinaa na ɛno nti na ɛte saa. Ɛtɔ da bi a, nea enti a ɛte saa no betumi ayɛ mmerɛwyɛ wɔ yɛn nipadua no ahobammɔ nhyehyɛe mu, kyerɛ sɛ, nipadua no mu tumi a ɛko tia nyarewa no. Ɛnnɛ, yɛrebɛka tebea a ɛte saa, yare bi a wɔfrɛ no CVID , a ebetumi aka yɛn da biara da asetra kɛse ho asɛm.
Dɛn ne CVID?
Sɛ yɛbɛka no tiawa a, CVID (Common Variable Immunodeficiency) yɛ awosu mu yare a ɛne yɛn nipadua mu tumi a ɛko tia nyarewa no wɔ abusuabɔ. Ɛka nyarewa kuw a wɔfrɛ no `primary immunodeficiency disease (PIDD)` ho.
Fa no sɛ ɛyɛ abankɛse. Saa abankɛse yi wɔ asraafo a wɔbɔ ho ban fi atamfo a wɔfrɛ wɔn mmoawa ho . Saa asraafo yi ne nea yɛfrɛ no antibodies wɔ nnuruyɛ mu. Obi a ɔwɔ CVID no yɛ saa nnuru a ɛko tia nyarewa yi wɔ dodow a ɛba fam koraa mu. Enti, sɛ asraafo dodow a wɔwɔ yɛn abankɛse no mu so tew a, dɛn na ɛba? Ɛnyɛ den sɛ amannɔne atamfo, a ɛne mmoawa, betumi akɔ nipadua no mu na wɔde nyarewa aba .
Ne saa nti, nnipa a wɔwɔ CVID taa nya aso mu yare , ahurututu mu yare, ne ahurututu mu yare . Tebea no nso ma asiane a ɛwɔ hɔ sɛ wobenya tebea horow a emu yɛ den kɛse, te sɛ dwensɔtwaa mu haw, mogya ne nyarewa a nipadua no tumi ko tia nyarewa, ne kokoram no yɛ kɛse .
Hena na ɔwɔ asiane kɛse mu sɛ obenya CVID?
Sɛ wɔde toto nyarewa afoforo a ɛma nipadua no tumi ko tia nyarewa ho a, CVID yɛ tebea a ɛtaa ba. Sɛ wɔkyekyem pɛpɛɛpɛ a, ɛka nnipa bɛyɛ 25,000 biara mu biako.
Ɛwom sɛ ebetumi aka obiara de, nanso ɛtaa ba mpanyimfo mu. Ɛwom sɛ CVID tumi ka mmofra ne mmerante ne mmabaa a wɔadu mpanyin afe so de, nanso wɔtaa hu no wɔ mpanyin afe so. Wɔtaa hu yare no bere a wɔadi mfe 20 kosi 50 .
Nanso nhwehwɛmu ahorow ada no adi sɛ nnipa bɛyɛ 10 biara mu 2 na wɔwɔ CVID na wohui sɛ nipadua no mu tumi a ɛko tia nyarewa no ntumi nyɛ adwuma yiye wɔ wɔn mmofraase.
Dɛn na ɛde CVID ba?
Nokwarem no, nnuruyɛfo da so ara nnim nea ɛma CVID ayarefo dodow no ara nya saa tebea yi ankasa.
Nanso, wɔ nnipa 10 biara a wɔwɔ CVID mu bɛyɛ biako fam no, nea ɛde ba no fi awosu mu. Eyi kyerɛ sɛ tebea no betumi afi awosu mu nsakrae bi a ɛba wo DNA mu so . Sɛ yɛbɛka no tiawa a, ebia wunya tebea no fii wo maame, wo papa, anaa w’abusua muni foforo hɔ.
CVID nso betumi afi awosu mu sintɔ ahorow a ɛwɔ nipadua no mu tumi a ɛko tia nyarewa no mu. Saa sintɔ ahorow yi ma nipadua no yɛ immunoglobulins, protein bi a ɛko tia mmoawa, ne titiriw no, nipadua no mu nkwammoaa a ɛko tia nyarewa a wɔfrɛ no immunoglobulin G (IgG) a ɛba fam koraa. Eyi ma nipadua no mu tumi a ɛko tia nyarewa no yɛ mmerɛw. Ɛtɔ da bi a, saa tebea yi betumi aba akyiri yi wɔ asetra mu.
Dɛn ne CVID ho sɛnkyerɛnne?
CVID ho sɛnkyerɛnne betumi ayɛ soronko wɔ onipa biara ho. Nnipa binom nya yare no ho sɛnkyerɛnne a emu nyɛ den, bere a afoforo nso betumi anya bi a emu yɛ den yiye. Egyina sɛnea wo nipadua mu ahoɔden a ɛko tia nyarewa no yɛ mmerɛw so.
Nsεmfua a εwɔ aseɛ ha yi kyerɛ CVID ho nsɛnkyerɛnneε a ɛtaa ba no bi.
| Nsɛnkyerɛnne a ɛkyerɛ | Nkyerɛmu |
|---|---|
| Ɔhome nhyehyɛe mu nyarewa | Ɔfe a ɛtaa ba na ɛkyɛ, ɛyɛ den sɛ ɔbɛhome, ne ahurututu mu yare (a ebetumi de tebea horow te sɛ ahurututu mu yare anaa ahurututu mu yare aba). |
| Aso ne ntini mu yare | Aso mu yare a ɛtaa ba ne sinus mu yare. |
| Nnuan a wɔyam no mu haw ahorow | Ɔyare, akisikuru, ɔfe, ne mu duru a ɛso tew a wontumi nkyerɛkyerɛ mu. |
| Nkwaa ne akyi berɛmo | Nkwaa te sɛ nkotodwe, nsateaa, ne nsateaa a ɛho ahonhon na ɛyɛ yaw. Akisikuru a ɛyɛ kɛse. |
| Nneɛma afoforo a ɛwom | Mmɛn dwumadi ho haw, mogya mu nkwammoaa a ɛba fam, ne nneyɛe a ɛyɛ soronko anaasɛ emu yɛ den wɔ nnuru a wɔde bɔ nkurɔfo ho ban ho. |
Ɔkwan bɛn so na wohu CVID?
Sɛ worenya aso, sinus, anaa ahurututu mu yare bere nyinaa, anaasɛ woyɛ w’ade wɔ ɔkwan soronko so wɔ nnuru a wɔtaa kamfo kyerɛ ho a, hwɛ hu sɛ wobɛbɔ wo duruyɛfo amanneɛ.
Sɛ woka saa nsɛnkyerɛnne yi kyerɛ wo duruyɛfo a, ebia obesusuw sɛ CVID. Nea ɛbɛyɛ na wakyerɛ sɛ wɔahu yare no, obebisa w’ayaresa ho abakɔsɛm ne w’abusua aduruyɛ ho abakɔsɛm. Afei, wɔbɛhyɛ sɛ wɔnyɛ mogya mu nhwehwɛmu bi. Saa mogya mu nhwehwɛmu ahorow yi betumi ahwɛ sɛnea wo nipadua mu nkwammoaa a ɛko tia nyarewa no sua ne sɛnea wo nipadua mu tumi a ɛko tia nyarewa no reyɛ adwuma yiye.
Ɛtɔ da bi a, wo duruyɛfoɔ betumi ama wo aduru a wɔde bɔ yareɛ foforɔ ho ban na wayɛ nhwehwɛmu ahwɛ sɛ wo nipadua mu nkwammoaa a ɛko tia nyarewa no dodoɔ kɔ soro sɛdeɛ ɛfata wɔ mmuaeɛ mu anaa.
So ayaresa bi wɔ hɔ a wɔde sa CVID?
CVID ano aduru biara nni hɔ de besi nnɛ. Nanso mma ɛnhaw wo. Wubetumi adi tebea no ho dwuma yiye, abɔ wo ho ban afi nyarewa ho, na woabɔ bra a ɛfata na apɔwmuden wom.
Ayaresa titiriw ne immunoglobulin (IgG) a wɔde si ananmu . Nea ɛka eyi ho ne sɛ wɔbɛma ɔyarefo no IgG antibodies, a wonya fi mogya a wɔde ma a wɔwɔ apɔwmuden hɔ. Eyi ma nipadua mu nkwammoaa a ɛko tia nyarewa no dodow kɔ soro na ɛhyɛ nipadua no mu tumi a ɛko tia nyarewa no mu den.
Wobetumi afa akwan abien so anya saa ayaresa yi:
1. IV kwan: Sɛ́ nkyene aduru a wɔde gu ntini mu (IV) pɛnkoro ɔsram biara.
2. Ɔkwan a wɔfa so de honam ani: Sɛ́ wɔde twitwiw honam ani pɛnkoro dapɛn biara anaa adapɛn abien biara.
Nea ɛho hia sen biara ne sɛ ɛsɛ sɛ wɔfa saa ayaresa yi nkwa nna nyinaa.
Nnipa dodow no ara nnya ayaresa yi mu nsunsuanso bɔne biara a ɛho hia. Nanso, ebinom betumi anya tiyɛ anaasɛ wɔn ho kyere wɔn. Wo ne wo duruyɛfo nkasa na ama woahu ayaresa a eye ma wo.
Bio nso, sɛ wowɔ ɔyare mmoawa bi a, wo duruyɛfo bɛkyerɛw nnuru a ekum ɔyare mmoawa anaa nnuru a ekum ɔyare mmoawa de asa.
Nsɛnnennen afoforo a ebetumi aba esiane CVID nti
Esiane sɛ nipadua no mu tumi a ɛko tia nyarewa no ntumi nyɛ adwuma yiye nti, nnipa a wɔwɔ CVID no wɔ asiane kɛse mu sɛ wobenya ayaresa mu tebea afoforo a emu yɛ den.
- Nyarewa a nipadua no tumi ko tia nyarewa: Eyi ne bere a nipadua no mu tumi a ɛko tia nyarewa no di mfomso tow hyɛ n’ankasa nkwammoaa a ɛte apɔw so no. Eyinom betumi de tebea horow te sɛ `autoimmune hemolytic anemia` (mogya mu nkwammoaa kɔkɔɔ a ɛte apɔw a wɔsɛe no), `rheumatoid arthritis` (ntini mu yare), ne `thrombocytopenia` (mogya mu mogya mu nkwammoaa a ɛba fam) aba.
- Kokoram: CVID ma asiane a ɛwɔ hɔ sɛ obi benya kokoram ahorow bi te sɛ lymphoma anaa yafunu mu kokoram no yɛ kɛse.
- Ahurututu mu yare: Ahurututu mu yare a ɛtaa ba no betumi asɛe mframa kwan a ɛwɔ ahurututu no mu no na ama atrɛw koraa. Eyi betumi ama ɔfe a ɛkɔ so a nsu a ɛyɛ fĩ wom na ama ayɛ den sɛ obeyi nsõ no afi hɔ.
- Granulomas: Eyinom yɛ akuru nketenkete a mogya mu nkwammoaa fitaa a ɛboaboa ano na ɛba. Wɔtaa hu wɔn wɔ ahurututu, honam ani, anaa akwaa afoforo mu.
Nkrasɛm a Wɔde Kɔ Fie
- CVID yɛ awosu mu tebea a ɛma nipadua no mu tumi a ɛko tia nyarewa no yɛ mmerɛw esiane nnuru a ɛko tia nyarewa a nipadua no yɛ a ɛba fam nti.
- Aso, ahurututu, ne ahurututu mu yare a wɔtaa nya no ne sɛnkyerɛnne atitiriw.
- Sɛ wo anaa obi a wunim no wɔ saa sɛnkyerɛnne yi a, kɔ oduruyɛfo nkyɛn ntɛm ara kɔhwehwɛ afotu.
- Ɛwom sɛ wontumi nsa CVID koraa de, nanso wobetumi de nkwa nna nyinaa antibody ayaresa (IgG therapy) adi ho dwuma yiye.
- Sɛ wowɔ CVID a, ɛho hia paa sɛ wobɛkɔ so anya ahotew ho su pa, te sɛ wo nsa a wobɛhohoro mpɛn pii, de abɔ wo ho ban afi mmoawa ho.
CVID, Common Variable Immunodeficiency, nipadua mu ahoɔden a ɛko tia nyarewa, yare a ɛtaa ba, ɔyare mmoawa, nipadua mu nkwammoaa a ɛko tia nyarewa, IgG ayaresa
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