Kpakpaluʋui ƒe ʋuʋudedi si le mo: Mina míasrɔ̃ nu tso Acute Cutaneous Lupus (ACLE) ŋu le nya bɔbɔewo me

Ðe ʋuʋudedi si le abe kpakpaluʋui ƒe aʋala ene, alo ʋuʋudedi dzĩ aɖe le wò ŋgonu kple ŋɔti ŋu kpɔa? Ame geɖe susuna be ɣe ƒe dzoxɔxɔ alo nulɔdɔ koe wònye. Gake ɣeaɖewoɣi la, ate ŋu anye nane si le vevie wu ƒe dzesi. Egbea míele nu ƒom tso ‘Acute Cutaneous Lupus’, si nye lupus ƒomevi aɖe si gblẽa nu le ŋutigbalẽ ŋu eye dzesi siawo tututu le eŋu.

Gbã la, mina míakpɔe ɖa, nukae nye Lupus?

Kpuie ko la, lupus nye dɔléle si dɔlélenutsiŋutete ŋutɔ hena vɛ. Papa, ɖe nya ma ɖi nya sesẽ aɖea? Enyo, na maɖe eme. Tsɔe be ametakpɔnu aɖe le míaƒe ŋutilã si. Míeyɔa esia be dɔlélenutsiŋutete. Woƒe dɔe nye be woade dzesi futɔwo abe dɔlékuiwo, dɔlékuiwo, kple dɔlékui siwo tso egodo gena ɖe ŋutilãa me ene ahadze wo dzi, eye woakpɔ mía ta tso dɔléle me.

Gake, le amesi ŋu dɔléle si tsoa dɔlélenutsiŋutete gbɔ abe lupus ene le gome la, nane gblẽna. Ametakpɔnu ma wɔa vodada eye mete ŋu dea vovototo dutatɔwo ƒe amedzidzelawo kple mía ŋutɔwo ƒe lãmenugbagbeviwo kple lãkusi siwo le lãmesẽ me dome o. Eyata, wodzea mía ŋutɔwo ƒe lãmenugbagbevi siwo le lãmesẽ me dzi dzedze gɔme. Esia ate ŋu ana ame ƒe akpa vovovowo navuvu, ase veve, eye wòagblẽ nu le ame ŋu.

Lupus ƒomevi si bɔ wu eye wòbɔ wue nye Systemic Lupus Erythematosus (SLE) . Le nɔnɔme sia me la, menye ŋutigbalẽa ɖeɖekoe dɔlélenutsiŋutete ƒe amedzidzedzea dzɔna o. Ate ŋu agblẽ nu le ŋutinuwo abe ayiku, dzi, lãkusi, kple ƒunukpeƒewo ene hã ŋu. Dɔléle sia le ame ene ɖesiaɖe si ŋu lupus le dometɔ etɔ̃ ɖesiaɖe ŋu.

Eyata nukae nye ŋutigbalẽ me lupus?

Nya 'cutaneous' gɔmee nye "si do ƒome kple ŋutigbalẽ." Cutaneous Lupus Erythematosus (CLE) nye dɔléle si me lupus gblẽa nu le ŋutigbalẽ ŋu koŋ. Esiae nye ne dɔlélenutsiŋutete dze ŋutigbalẽ ƒe lãmenugbagbeviwo dzi tẽ. Esia hea teƒe vovovowo, abi, kple abi ƒomevi vovovowo vaa ŋutigbalẽa dzi.

Acute Cutaneous Lupus (ACLE) nye ŋutigbalẽ me lupus ƒomevi aɖe. 'Acute' gɔmee nye "nudzɔdzɔ kpata." Eyata nusi dzɔna le go sia mee nye be dzesiawo, vevietɔ kpakpaluʋui ƒe ʋuʋudedi, dzena zi ɖeka. Zi geɖe la, esia dzɔna le ɣe ƒe keklẽ vɔ megbe.

Nukawoe nye ŋutigbalẽ me lupus ƒomeviwo?

Lupus ƒomevi vevi etɔ̃e li siwo gblẽa nu le ŋutigbalẽ ŋu. Aɖuɖɔtoe vovovo le ƒomevi ɖesiaɖe ŋu. Be nàse esia gɔme nyuie wu la, kpɔ kplɔ̃ si le ete.

Amekae ate ŋu axɔ ACLE dɔléle sia wu?

Womeke ɖe nusi tututu gbɔ lupus tsona ŋu haɖe o, gake wokpɔe be ame aɖewo le afɔku me wu.

• Domenyiŋusẽfianu: Ne lupus alo dɔléle bubu siwo dɔlélenutsiŋutete hena vɛ le wò ƒomea me la, àte ŋu aɖo afɔku me hã.
• Ŋutsu alo nyɔnu nyenye: Nukutɔe la, dɔléle sia bɔ ɖe nyɔnuwo dome wu.
• Ƒe: Zi geɖe la, ebɔ ɖe nyɔnu siwo xɔ tso ƒe 20 va ɖo ƒe 50 dome.
• Ameƒomevinyenye: Dɔléle sia bɔ ɖe to aɖewo me wu, le kpɔɖeŋu me, amesiwo tso Afrika kple Asia.

Ame siwo ŋu SLE le la dometɔ siwo ade eve le etɔ̃ me dzea ŋutigbalẽ ƒe dzesiwo, siwo dome ACLE hã le. Wokpɔa lupus le ame aɖewo ŋu zi gbãtɔ ne kpakpaluʋui ƒe ʋuʋudedi sia dze.

Nukae nye ACLE ƒe dzesiwo?

Dzesi vevitɔ si dze ƒã wue nye kpakpaluʋui ƒe ʋuʋudedi si ŋu míeƒo nu tsoe. Woyɔa esia le atikewɔwɔ me be ‘malar rash’. ‘Malar’ gɔmee nye ŋgonu. Togbɔ be edze abe ŋdɔkutsu dzatsɛ ene hã la, zi geɖe la, mevea ame o. Ke hã, ate ŋu avivi vie ɣeaɖewoɣi.

Nu nyui si le ʋuʋudedi sia ŋue nye be megblẽa abi ɖi le ɣeyiɣi aɖe megbe o. Gake ne ʋuʋudedia haya la, ŋutigbalẽ ƒe amadede si le teƒe mawo ate ŋu akɔ vie alo ado viviti wu tsã.

Tsɔ kpe ɖe kpakpaluʋui ƒe ʋuʋudedi ŋu la, dzesi bubuwo ate ŋu ado mo ɖa.

• Asiwo kple afɔwo ƒe ʋuʋudedi le ŋdɔkutsu dzatsɛ megbe.
• Abi siwo le veve sem le nu me (Canker sores).
• Vevesese ƒe ʋuʋudedi siwo kɔ ɖe ŋutigbalẽa dzi (hives).
• Taɖa ƒe vuvu hena ɣeyiɣi aɖe.

Nukae nye "flare-up" sia?

Dzesi aɖeke menɔa amesi ŋu ACLE le ŋu ɣesiaɣi o. Dzesiwo ƒe tsatsam nɔa anyi siwo dzena, nu fa hena ɣeyiɣi aɖe, eye wogadzena ake. Dzesiwo ƒe dzidziɖedzi kpata siae nye nusi míeyɔna be "flare-up."

Nu tɔxɛ aɖewo li siwo gbɔ wòtsona, alo ‘nu siwo ʋãa ame’, siwo hea dzobibi siawo vɛ.

• Ɣe ƒe keklẽ (UV keklẽ): Esiae nye nu vevitɔ si ʋãa ame. Esia tae ʋuʋudedia nu sẽna ɖe edzi ne èdo go le ŋdɔ me.
• Nuteɖeamedzi: Nuwo abe nyaƒoɖeamenu fũ kple dzimaɖitsitsi ene ate ŋu ana dɔlélea nagagblẽ ɖe edzi.
• Dɔlékuiwo ƒe nɔnɔme aɖewo.
• Alɔ̃madɔmadɔ nyuie o.

Aleke woawɔ anya dɔléle sia?

Ne dzesi siawo le ŋuwò la, nu gbãtɔ si wòle be nàwɔe nye be nàkpɔ wò ƒomea ƒe ɖɔkta. Aɖo wò ɖe ŋutigbalẽŋutinunyala alo lãmekaŋutinunyala gbɔ, ne ehiã.

Wò ɖɔkta ado wò ŋutigbalẽ kpɔ. Ɣeaɖewoɣi la , ahiã be woaɖe ŋutigbalẽ ƒe lãmenugbagbeviwo ɖa hafi woate ŋu anya dɔlélea godoo . Esia bia be woaɖe ŋutigbalẽ sue aɖe tso teƒe si ʋuʋudedia le eye woatsɔ nusuekpɔmɔ̃ adoe kpɔ. Esia ate ŋu akpe ɖe ŋuwò nànya ne ACLE alo ŋutigbalẽ ƒe nɔnɔme bubu aɖe gbɔe ʋuʋudedia tso.

Nukawoe nye atikewɔmɔnuawo?

ACLE menye dɔléle si woate ŋu ada keŋkeŋ o. Gake woate ŋu aɖu dzesiawo kple woƒe dzodzo dzi nyuie ŋutɔ ne woda dɔ na wo nyuie. Wò ɖɔkta aŋlɔ atike nyuitɔ na wò le alesi wò dzesiawo nu sẽe nu.

• Steroid ami siwo wotsɔna ƒoa ƒui: Esiawo nye atike siwo wotsɔna ƒoa ŋutigbalẽ si me ʋuʋudedia le. Le kpɔɖeŋu me, fluocinolone acetonide alo hydrocortisone butyrate. Esiawo ɖea abi kple dzodzro dzi kpɔtɔna.
• Atike siwo tsia dzodzodzoetsitsi nu: Atikewo abe dapsone alo methotrexate si ƒe agbɔsɔsɔme le sue ate ŋu aɖe vevesese kple abi dzi akpɔtɔ.
• Asrãtikewo: Atikewo abe `hydroxychloroquine` (Plaquenil®) wɔa dɔ nyuie ŋutɔ le asrã dada me. Woɖea ɖeɖiteameŋu, ʋuʋudedi, kple ƒunukpeƒeveame dzi kpɔtɔna.
• Atike siwo tsia dɔlélenutsiŋutete nu (Calcineurin inhibitors): Atikewo abe tacrolimus alo pimecrolimus ene kpɔa dɔlélenutsiŋutete ƒe dɔwɔwɔ dzi vaseɖe afi aɖe, si wɔnɛ be eƒe amedzidzedze ɖe ŋutigbalẽa ŋu dzi ɖena kpɔtɔna.

Aleke woawɔ axe mɔ ɖe dzobibi nu?

Abe alesi atike nono le vevie ene la, ele vevie be woaƒo asa na nusiwo ate ŋu ana ame naxɔ dzo. Ame siwo ŋu lupus le ƒe 40% va ɖo 70% kpɔa dzobibi le UV keklẽ megbe, eyata ele be ɣe ƒe takpɔkpɔ nanye xexlẽdzesi gbãtɔ.

• Zã ɣe ƒe keklẽŋusẽtike gbesiagbe ne èdo go le ŋdɔ me. Tia ɣe ƒe keklẽŋusẽtike si ƒe dɔwɔwɔ keke ta si ƒe SPF 30 ya teti alo esi wu nenema si kpɔa ame ta tso UVA kple UVB keklẽ siaa me.
• Ƒo asa na ɣe ƒe dzoxɔxɔ ƒe gaƒoƒo. Ƒo asa na ŋdɔkutsu dzatsɛ yiyi alesi nàte ŋui le ŋdi ga 10 kple fiẽ ga 4 dome.
• Do awu siwo tsyɔ nu dziwò nyuie. Zã nuwo abe abɔta legbewo, kposɔ siwo ƒe alɔwo keke, kple ɣe ƒe ŋkumewu ene.
• Ƒo asa na UV kekelitsoƒe siwo wowɔ abe lãgbalẽ ƒe abawo ene keŋkeŋ.
• Fluorescent-kaɖi aɖewo siwo wozãna le xɔ me hã ate ŋu ana UV keklẽ sue aɖe nado. Eyata ɖe wo hã zazã ɣeyiɣi didi dzi kpɔtɔ.

Nu bubu kae nàte ŋu awɔ tsɔ kpe ɖe ɖokuiwò takpɔkpɔ tso ɣea si me?

• Ƒo nuɖuɖu si me nunyiame le. De atikutsetse, amagbe, mɔli, kple nuku blibo geɖe wò nuɖuɖu me.
• Kamedede. Wɔ kamedede si me nuteɖeamedzi mele o, abe azɔlizɔzɔ alo yoga ene, gbesiagbe.
• Kpɔ nuteɖeamedzi dzi. Na wò susu naɖe dzi ɖi le mɔ si asɔ na wò nu, abe ŋugbledede alo haƒoƒo sese ene.
• Mlɔ anyi nyuie. Dɔ alɔ̃ gaƒoƒo 7-8 ya teti gbesiagbe.
• Ne ènoa atama la, dzudzɔ enumake. Sigaretnono ate ŋu ana ŋutigbalẽ ƒe ʋuʋu nagado gã ɖe edzi eye wòaɖe atike siwo wozãna tsɔ daa dɔa ƒe dɔwɔwɔ dzi akpɔtɔ.