Ðe asibidɛ kple afɔbidɛ siwo le blɔ, dzĩ, kple veve hã le ŋuwò le vuvɔŋɔli, vevietɔ ne èyi teƒe aɖe abe Nuwara Eliya enea? Ðe abi suesuesuewo va nɔa ŋuwò ɣeaɖewoɣia? Togbɔ be ame geɖe susuna be dzamezã koe esia nye hã la, ɣeaɖewoɣi la, esia ate ŋu anye nɔnɔme si hiã be woalé ŋku ɖe eŋu vie. Egbea míele nu ƒom tso ‘Chilblain Lupus’, si nye lupus ƒomevi si mebɔ o gake wòle vevie ŋutɔ ŋu.
Nukae nye Chilblain Lupus?
Kpuie ko la, Chilblain Lupus nye lupus ƒomevi aɖe si mebɔ o si gblẽa nu le míaƒe ŋutigbalẽ ŋu. Le atikewɔwɔ me la, míeyɔnae be ``cutaneous lupus erythematosus alo CLE.`` Ame si ŋu dɔléle sia le la xɔa abi dzĩ alo aŋutiɖiɖi si le veve sem, kpewo, le ŋutigbalẽ ŋu ne edo go vuvɔ.
Nya "chilblain" gɔmeɖeɖe ŋutɔŋutɔe nye "vuvɔ ƒe abi." Esia tututue dzɔna le nɔnɔme sia me. Vuvɔ ate ŋu ahe dzesi siawo vɛ, alo ana nɔnɔme aɖe si li xoxo la nagagblẽ ɖe edzi.
Zi geɖe la, ame aɖewo xɔa Chilblain Lupus le esi wokpɔe be lupus ƒomevi vevitɔ, ``systemic lupus erythematosus'' le yewo ŋu vɔ megbe. Gake ame bubuwo ate ŋu axɔ dɔlélea evɔ womekpɔe do ŋgɔ o. Gake vevesese kple vevesese si nɔnɔme sia hena vɛ la nu sẽ ŋutɔ. Ne ède dzesii be teƒe siwo le ʋuʋum, siwo kɔ ɖe dzi le wò asibidɛwo ŋu, vevietɔ le wò asibidɛwo kple afɔbidɛwo ŋu la, anyo wu be nàyi ɖɔkta gbɔ enumake eye nàxɔ atike.
Nukae nye nɔnɔme sia ƒe dzesiwo?
Chilblain Lupus ƒe dzesi koŋue nyea ɖa dzĩ alo aŋutiɖiɖi alo abi siwo le ŋutigbalẽa ŋu. Wokpɔa esiawo zi geɖe wu le:
- Le asibidɛwo dzi
- Le afɔkpodziwo dzi
- Le afɔkpodziwo dzi
- Le afɔbidɛwo me
Gake ƒã ŋutɔ la, abi siawo ate ŋu adzɔ ɖe asibidɛwo, klowo, ŋɔti, alo towo hã dzi. Esiawo katã nu sẽna wu le yame ƒe fafa alo tsidzadza me.
Tsɔ kpe ɖe dzesi vevi siawo ŋu la, dzesi bubu geɖewo hã li siwo woate ŋu akpɔ. Na míakpɔ nusiwo wonye ɖa.
| Dzesi si dzena | Numeɖeɖe bɔbɔe aɖe |
|---|---|
| Ʋuʋudedi alo abi | Abi siwo medaa gbe le ŋutigbalẽa ŋu o le ʋu ƒe sisi nyuie o ta. |
| Ŋutilã ƒe amadede ƒe tɔtrɔ (Depigmentation) . | Ŋutilã ƒe akpa aɖewo ƒe amadede megava nɔa ɣie o. |
| Afɔkpodzi ƒe ʋuʋu | Afɔkpodzi ƒe ŋutigbalẽ me gbagbã goglowo. |
| Ŋutilã ƒe ƒoƒo (Hyperkeratosis) . | Ŋutilã ƒe ƒoƒo ɖe afisi ŋutigbalẽ ƒe abiwo dzɔ le. |
| Raynaud ƒe nudzɔdzɔa | Ne vuvɔ le ame ŋu la, ʋu ƒe sisi yi asibidɛwo kple afɔbidɛwo gbɔ nu sẽna hena ɣeyiɣi aɖe. Esia ate ŋu ana asibidɛawo nazu ɣie, blɔ, alo azu dzĩ. |
Nukatae Chilblain Lupus va dzea ame dzi? Nukawoe gbɔ wòtsona?
Nu vevi eve li siwo gbɔ Chilblain Lupus tsona. Ðeka nye domenyiŋusẽfianu , eye evelia nye esi dzɔna ɣeaɖewoɣi .
Nusiwo gbɔ domenyiŋusẽfianu tsona
Nɔnɔme sia ate ŋu atso tɔtrɔ aɖewo siwo va le míaƒe domenyiŋusẽfianuwo me gbɔ. Vevietɔ la, wokpɔe be tɔtrɔ siwo va domenyiŋusẽfianu `(TREX1)` kple `(SAMHD1)` me kpɔa ŋusẽ ɖe esia dzi. Ne míagblɔe bɔbɔe la, `TREX1` domenyiŋusẽfianu kpena ɖe míaƒe DNA dzadzraɖo ŋu, eye `SAMHD1` domenyiŋusẽfianu hã kpɔa gome le míaƒe dɔlélenutsiŋutete ƒe dɔwɔwɔ me. Ne domenyiŋusẽfianu siawo gblẽ la, ate ŋu anye nusi gbɔ Chilblain Lupus tsona le ƒomea me kple ɖevi suewo me.
Edzɔna susu aɖeke manɔmee
Le ame aɖewo gome la, esia menye domenyiŋusẽfianu o. Ate ŋu adze zi ɖeka le ame tsitsi me. Womeke ɖe nusi tututu gbɔ wòtso ŋu haɖe o.
Amekawoe le afɔku gã me be woaxɔ esia?
Togbɔ be nɔnɔme sia ate ŋu adze ame sia ame dzi hã la, ame tsitsiwo mee wòbɔ ɖo wu . Ame siwo le nuto siwo me vuvɔ kple fafa nɔa anyi ɖaa le hã le afɔku me wu.
Tsɔ kpe ɖe eŋu la, atikewɔwɔ me nɔnɔme bubu aɖewo ate ŋu ana Chilblain Lupus xɔxɔ ƒe afɔkua nadzi ɖe edzi.
- Anorexia nervosa: Esia nye nuɖuɖukuxi sesẽ aɖe si dea ame ƒe agbe afɔku me.
- Dɔgbo me ʋumenugbagbeviɣidɔ: Esia nye kansa ƒomevi aɖe si mebɔ o si dzɔna le míaƒe dɔgbo suea ƒe ʋukawo me.
- Fufɔfɔ: Afɔku le nyɔnu aɖewo me be woaxɔ nɔnɔme sia le fufɔɣi gɔ̃ hã.
Kuxi kawoe ate ŋu ado mo ɖa ne womewɔ atike nɛ o?
Ne womeda dɔléle sia nyuie o la, dɔlékuiwo ate ŋu axɔ ŋutigbalẽa ƒe abiwo . Ame siawo le afɔku me be woaxɔ ŋutigbalẽ me dɔlélewo abe ``cellulitis`` ene.
Azɔ hã, amesi ŋu Chilblain Lupus le ate ŋu axɔ systemic lupus erythematosus, si nye lupus ƒomevi si nu sẽ wu ɖesiaɖe si gblẽa nu le ŋutilã ƒe akpa vovovowo ŋu la mlɔeba.
Esia tae míegblɔna be ne ède dzesi nane si mebɔ o le wò ŋutigbalẽ ŋu, vevietɔ abi si mehaya o la, mele be nàŋe aɖaba aƒu edzi akpɔ ɖɔkta o.
Aleke tututu ɖɔkta awɔ anya esia?
Ne dzesi siawo le ŋuwò la, woate ŋu aɖo wò ɖe ŋutigbalẽŋutinunyala alo lãmekaŋutinunyala gbɔ .
Dodokpɔ vevitɔ si woatsɔ anya dɔléle siae nye ŋutigbalẽ ƒe lãmenugbagbeviwo ɖeɖe . Esia bia be nàɖe ŋutigbalẽ sue aɖe ŋutɔ tso abi aɖe si le wò ŋutigbalẽ ŋu me eye nàdoe kpɔ le nusuekpɔmɔ̃ me le nudokpɔƒe. Dodokpɔ sia ate ŋu aɖo kpe edzi nenye be Chilblain Lupus alo ŋutigbalẽdɔ bubu aɖe le ŋuwò.
Nukawoe nye atike siwo wozãna na esia?
Ne wò Chilblain Lupus mesẽ akpa o la, ɖewohĩ ɖeko wòahiã be nàkpɔ ɖokuiwò ta tso vuvɔa me. Azɔ hã, ne ènoa atama la, wò ɖɔkta aɖo aɖaŋu na wò godoo be nàdzudzɔ. Sigaretnono xea mɔ na míaƒe ʋukawo, si ate ŋu ana dzesi siawo nagagblẽ ɖe edzi.
Ne dzesiawo sɔ gbɔ alo nu sẽ la, ɖɔkta ate ŋu aŋlɔ atike vovovowo na wò.
| Atike ƒomevi aɖe | Dɔ si wòwɔna |
|---|---|
| Dɔlékuiwutikewo | Be woada dɔlékuiwo ƒe dɔlékui siwo le ŋutigbalẽ ƒe abiwo ŋu. Le kpɔɖeŋu me: `dicloxacillin`, `erythromycin`. |
| Atike siwo tsia asrãdɔ nu | Be woaɖe abi, ɖeɖiteameŋu, kple ƒunukpeƒeveame dzi akpɔtɔ le ŋutilãa me. Le kpɔɖeŋu me: `hydroxychloroquine`. |
| Atike siwo tsia dɔlélenutsiŋutete nu (Calcineurin inhibitors) . | Be woaɖe dɔlélenutsiŋutete ƒe dɔwɔwɔ dzi akpɔtɔ eye woaɖu dɔdzẽ dzi. Le kpɔɖeŋu me: `tacrolimus`, `mycophenolate mofetil`. |
| Calcium ƒe mɔxenu siwo xea mɔ na ʋuwo | Be woaʋu ʋukawo eye wòana ʋu nazɔ bɔbɔe. Le kpɔɖeŋu me: `nifedipine`. |
| Steroid-mi siwo wotsɔna ƒoa amie | Be woaɖe ŋutigbalẽa ƒe vuvu kple abi dzi akpɔtɔ. Le kpɔɖeŋu me: `fluocinolone acetonide`. |
| Steroid siwo wozãna le ɖoɖo nu | Be woaɖe abi kple dɔdzẽ dzi akpɔtɔ le ŋutilã bliboa me. Le kpɔɖeŋu me: `prednisone`. |
Ƒã ŋutɔ la, wò ɖɔkta ate ŋu aɖo aɖaŋu be nàwɔ dɔ na wò. Esia bia be woawɔ amekoko atsɔ aɖe abi la ɖa eye woatsɔ ŋutigbalẽ si wodo ɖe ŋutilãa ƒe akpa bubu si le lãmesẽ me la aɖo eteƒe.
Ɣekaɣie wòle be makpɔ ɖɔkta?
Ne ède dzesi abi dzĩ alo aŋutiɖiɖi, ʋuʋudedi, alo vevesese le wò asibidɛwo alo afɔbidɛwo, afɔkpodziwo, alo afɔkpodziwo ŋu la, yi ɖɔkta gbɔ kaba . Ate ŋu anya wò dɔlélea eye wòadze atikewɔwɔ si hiã la gɔme.
Ne èyi ɖɔkta gbɔ la, àte ŋu abia nya siawo hã:
- "Ðɔkta, nukae ateŋu anye susu gãtɔ si tae mele esia tum ɖo?"
- "Ðe wòanya wɔ be maxɔ systemic lupus?"
- "Nukae wòle be mawɔ be abi siawo nagadzɔ o?"
- "Nukae woateŋu awɔ tso abi siwo woxɔ fifia ŋu?"
Ðe woate ŋu axe mɔ ɖe Chilblain Lupus nua?
Nu nyuitɔ si nàte ŋu awɔ be nàɖe nɔnɔme sia ƒe afɔkua dzi akpɔtɔe nye be nàkpɔ ɖokuiwò ta tso vuvɔ me . Be nàte ŋu awɔ esia la, àte ŋu adze nusiawo yome.
- De kame edziedzi:Kamedede nana ʋu ƒe sisi nyona ɖe edzi eye wònaa ŋutilã ƒe dzoxɔxɔ nɔa ɖoɖo nu.
- Na dzoxɔxɔ nanɔ wò aƒe kple dɔwɔƒe: Trɔ asi le nuto si me nèle ŋu be nàkpɔ ɖokuiwò ta tso vuvɔ me.
- Tsɔ wò asiwo kple afɔwo de tsi dzodzoe me: Esia wɔwɔ zi geɖe gbesiagbe ana ʋu nazɔ nyuie wu.
- Do dzo na abɔ kple afɔ siwo fa miamiamia vivivi: Mègawɔ nuwo abe asikaka wo ŋu zi ɖeka ɖe dzo me ene o. Do dzo vivivi be ʋu nagaɖo sisi.
- Do awu siwo me dzo le: Do soxle ɣiwo, asigɛwo, kple afɔkpa siwo me dzo le ne èle teƒe siwo vuvɔ le.
Abe ŋutigbalẽ ƒe dɔléle bubuwo ene la, Chilblain Lupus ate ŋu ahe dzesi sesẽwo vɛ eye ɣeaɖewoɣi la, exɔa ɣeyiɣi aɖe hafi wokpɔa atike nyuitɔ. Gake mègana mɔkpɔkpɔ o. Dɔwɔwɔ kple ɖɔkta si dzi nèka ɖo ate ŋu akpe ɖe ŋuwò nàkpɔ egbɔkpɔnu si awɔ dɔ na wò. Le ɣeyiɣi sia me la, ne ège ɖe kpekpeɖeŋunaha aɖe si me nàte ŋu aƒo nu kple ame bubu siwo ŋu nɔnɔme ma ke le la me ate ŋu akpe ɖe ŋuwò ŋutɔ.
Gbedasi si Wotsɔ Yi Aƒeme
- Chilblain Lupus nye ŋutigbalẽ ƒe dɔléle si mebɔ o si nana be abi dzĩ/dzẽ siwo le veve sem le ŋutigbalẽa ŋu si nu sẽna ɖe edzi ne vuvɔ gasẽna ɖe edzi.
- Ne ède dzesi dzesi siawo le wò abɔwo kple afɔwo ŋu la, mègaŋe aɖaba ƒu wo dzi abe alesi wòle dzɔdzɔmee ene o eye nàdi atikewɔlawo ƒe aɖaŋuɖoɖo kaba ale si nàte ŋui.
- Nu vevitɔ kekeake si nàtsɔ axe mɔ ɖe nɔnɔme sia nu ahaɖu edzi enye be nàkpɔ ɖokuiwò ta tso vuvɔ me.
- Ele vevie ŋutɔ be woaƒo asa na atamanono keŋkeŋ, elabena atamanono xea mɔ na ʋukawo eye wònaa dzesiawo gagblẽna ɖe edzi.
- Togbɔ be esia nye ame ƒe agbemeŋkekewo katã ƒe nɔnɔme hã la, ne wowɔ atike na wo nyuie eye wokpɔ wo dzi nyuie la, woate ŋu aɖu dzesiawo dzi nyuie eye woate ŋu anɔ agbe si sɔ.
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