Ðe ŋkudɔ sia ƒomevi le viwòa ŋua? Mina míasrɔ̃ nu tso Coats Disease ŋu.

Ðe nède dzesi nu bubu aɖe kpɔ ne èlé ŋku ɖe viwò suea ƒe ŋkuwo ŋua? Ðewohĩ ŋku ɖeka adze nusi mewɔ nuku o vie, alo woƒe ŋkume adze abe ɖe wòle blukɔ vie enea? Ne èkpɔ nane si le abe ema ene la, mègabu eŋu nu tsɛe o. Egbea míele nu ƒom tso kuxi aɖe si ate ŋu ava susu me na wò le ɣeyiɣi sia tɔgbe me ŋu, eye eyae nye nɔnɔme aɖe si woyɔna be Coats Disease . Esia nye ŋkudɔ si mebɔ o si dzea ɖevi suewo dzi zi geɖe, vevietɔ ŋutsuviwo.

Nukae Nye Coats Dɔléle? Mina míase egɔme bɔbɔe ŋutɔ.

Kpuie ko la, Coats Disease nye nɔnɔme si dzɔna ne ʋuka siwo le viwò ƒe ŋku me metsi nyuie o. Esia gblẽa nu le ŋku ƒe ŋkume ƒe akpa si nye ŋkua ƒe megbe ŋu koŋ. Bu eŋu ale: ne míaƒe ŋku le abe fotoɖemɔ̃ ene la, ke ŋkume ƒe ŋkume le abe sinima si le eme ene. Ne kekeli ge ɖe ŋkua me la, edea dzesi nɔnɔmetatawo eye wòɖoa gbedasiwo ɖe ahɔhɔ̃a to ŋkume ƒe ŋkumeʋuʋu sia dzi.

Eyata le Coats Disease me la, ʋuka suesuesue siwo le ŋku ƒe ŋkume la vuvu hetrɔna, eye wodzea tsi siwo le dodom alo le dodo gɔme abe plasma ene . Esia le abe tsido si me do le eye tsi le dodom ene. Togbɔ be mate ŋu agblẽ nu boo aɖeke enumake o hã la, le ɣeyiɣi aɖe megbe la, tsi si le dodom sia ate ŋu agblẽ nu le ŋku ƒe ŋkume eye wòagblẽ nu le nukpɔkpɔ ŋu.

Zi geɖe la, dɔléle sia dzea ŋku ɖeka dzi. Gake ƒã hafi wòate ŋu adze ŋku eveawo dzi le ɣeyiɣi ɖeka me. Togbɔ be ɖevi suewo kple ƒewuiviwo mee wokpɔnɛ le zi geɖe hã la, ate ŋu adzɔ le ƒe ɖesiaɖe me. Esia ate ŋu ana ŋku nagate ŋu akpɔ nu o, kuxi sesẽwo abe ŋku ƒe ʋuʋu ene, eye ŋku ma nazu ŋkuagbãtɔ mlɔeba. Eyata ele vevie be nàyi ɖɔkta gbɔ enumake ne ède dzesi tɔtrɔ aɖewo le viwòa ƒe ŋkuwo alo nukpɔkpɔ me.

Nukawoe nye dzesi siawo? Aleke nèwɔna dea dzesi woe?

Coats Dɔléle ate ŋu ahe dzesi aɖeke vɛ le eƒe gɔmedzedze o. Gake ne dɔlélea le sesẽm ɖe edzi la, ɖevia ate ŋu aɖe dzesiwo abe:

• Nukpɔkpɔ dzi le ɖeɖem kpɔtɔ vivivi: Viwòa ate ŋu ase le eɖokui me be yemete ŋu le nu kpɔm nyuie le ŋku ɖeka me o. Àte ŋu ade dzesi nuwo abe tete ɖe ame ŋu ne èle TV kpɔm alo ŋkuʋuʋu ne èle agbalẽ xlẽm ene.
• Strabismus: Edze abe ŋku ɖeka trɔ ɖe mɔ bubu nu wu evelia ene.
• Ŋku ƒe vevesese: Ðevi aɖewo hã ate ŋu ato nyatoƒoe le ŋku ƒe veve ŋu.
• Leukocoria: Esia nye dzesi si mebɔ kura o. Ne èlé ŋku ɖe viwòa ƒe ŋkume , alo ɖe foto la, ate ŋu adze abe ɖe wòle ɣie alo klosalo ene. Woyɔa esia ɣeaɖewoɣi be "avũ ƒe ŋku." Ne èkpɔ dzesi sia la, ele be nàkpɔ ɖɔkta enumake godoo.

Bu eŋu kpɔ, ne viwòŋutsu le fefem la, ède dzesii be mete ŋu kpɔa nu nyuie kple ŋku ɖeka o, alo ne èɖe foto le zã me la, teƒe ɣi aɖe le ŋku ɖeka ƒe ŋkume yibɔ me. Emae nye nusi ate ŋu anɔ dzɔdzɔm le afisia.

Nukawoe nye Coats Disease ƒe afɔɖeɖewo?

Coats Disease ma ɖe akpa vovovowo me, le alesi wòyi ŋgɔe nu, si le abe atrakpui ene.

• Afɔɖeɖe 1: Esiae nye akpa vevitɔ kekeake. Le afisia la, ŋkudɔdala ate ŋu akpɔe be ʋuka siwo mesɔ o le ɖevia ŋu le ŋkua me, gake ɖevia mekpɔ vevesese alo dzesi aɖeke le wo ta haɖe o.
• Afɔɖeɖe 2: Afi siae tsi dzea dodo gɔme tso ʋuka siwo mesɔ o me. Zi geɖe la, esia ate ŋu akpɔ ŋusẽ ɖe ɖevia ƒe nukpɔkpɔ dzi.
• Afɔɖeɖe 3: Ne dɔlélea ɖo afɔɖeɖe sia la, ɖevia ƒe ŋkume ƒe ŋkumeʋuʋu dzea egɔme nɔa ɖeɖem ɖa. Esia nye nɔnɔme si nu sẽ wu.
• Akpa 4: Le akpa enelia me la, ɖevia ƒe ŋkuwo ate ŋu axɔ ŋkudɔ , si nye dɔléle si me nyaƒoɖeamenu si le ŋkua me dzina ɖe edzi.
• Afɔɖeɖe 5: Esiae nye Coats Disease ƒe akpa si nu sẽ wu eye wònye mamlɛtɔ. Le ɣeyiɣi sia me la, ŋku si ŋu dɔlélea le ate ŋu agbã keŋkeŋ.

Nu vevitɔe nye be, eɖanye afɔɖeɖe ka mee dɔlélea le o, zi alesi wokpɔe kaba hedae la, zi nenemae mɔnukpɔkpɔ si li be ɖevia nakpɔ nu nyuie ta.

Nukatae Coats Disease dzɔna?

Le nyateƒe me la, eŋutinunyalawo mete ŋu ke ɖe nusi gbɔ Coats Disease (idiopathic ) tsona ŋu haɖe o . Eyae nye be zi geɖe la, edzɔna le eɖokui si, eye susu aɖeke koŋ manɔmee.

Nu vevi bubue nye be Coats Disease menye domenyiŋusẽfianu ƒe dɔléle o . Eyae nye be menye domenyiŋusẽfianu ƒe dɔléle si tso dzidzime yi dzidzime o. Ne ame aɖeke mexɔe le miaƒe ƒomea me kpɔ o hã la, viwòa ate ŋu axɔe kokoko. Azɔ hã, esi viwòwo dometɔ ɖeka xɔe ta la, mehiã be nàtsi dzi be ɖevi bubuwo hã axɔe o.

Amekae ate ŋu axɔ nusia wu? (Afɔku siwo ate ŋu ahe ame) .

Togbɔ be amesiame ate ŋu axɔ Coats Disease hã la, ame aɖewo le afɔku me wu.

• Wokpɔe be ŋutsuviwo ate ŋu axɔ dɔléle sia abe zi gbɔ zi etɔ̃ ene wu nyɔnuviwo.
• Ne míelé ŋku ɖe ƒe si woxɔ ŋu la:
• Zi geɖe la ɖɔktawo kpɔa esia le ɖeviwo kple sɔhɛ tsitsi siwo mexɔ ƒe 16 haɖe o ŋu .
• Ƒã ŋutɔ hafi woate ŋu adzi vidzĩ aɖewo kple nɔnɔme sia, alo ate ŋu adze le wo dzidzi ɣleti ʋɛ aɖewo megbe.
• Woka nya ta hã be amesiwo ŋu Coats Disease le ƒe akpa etɔ̃lia lɔƒo nye ame tsitsi siwo xɔ wu ƒe 30 .

Aleke ɖɔkta wɔna dea dzesi esia? (Dɔléle ƒe dzesi) .

Ne èyi ɖɔkta gbɔ, vevietɔ ŋkudɔdala , le esi nède dzesi nu bubu aɖe le viwòa ƒe ŋkume vɔ megbe la, nu gbãtɔ si wòawɔe nye be wòado ɖevia ƒe ŋkuwo kpɔ nyuie.

• Ezãa dɔwɔnu tɔxɛwo tsɔ léa ŋku ɖe ɖevia ƒe ŋkuwo ŋu tso gota kpakple ememe.
• Wowɔa nukpɔkpɔ ƒe dodokpɔ aɖe tsɔ léa ŋku ɖe ɖevia ƒe nukpɔkpɔ ŋu. Esia bia be woadzidze nukpɔkpɔ to ŋɔŋlɔdzesiwo kple nɔnɔmetatawo ɖeɖefia wo kple nana be woaxlẽ wo me.

Tsɔ kpe ɖe eŋu la, woate ŋu awɔ nɔnɔmetatawo dodokpɔ tɔxɛ siwo gbɔna la dometɔ ɖeka alo esi wu nenema atsɔ aɖo kpe Coats Disease dzi:

• Optical Coherence Tomography (OCT) scan: Esia ɖea ŋku ƒe ŋkume ƒe akpa si wotso.
• Angiography dodokpɔ: Esia bia be nàdo amadede tɔxɛ aɖe ɖe ʋuka aɖe si le wò alɔnu me eye nàɖe foto esime wòle ʋuka siwo le wò ŋku me tom . Esia wɔnɛ be nàte ŋu ade dzesi tsi si le dodom la nyuie.
• Ultrasound scan: Esia ate ŋu akpɔ ŋkua ƒe akpa si le eme.
• MRI (Magnetic Resonance Imaging) ƒe fotoɖeɖefia.
• CT-dɔdamɔnu (Computed Tomography ƒe fotoɖeɖefia).

Dodokpɔ siawo nana ɖɔktaa nyaa nusi tututu le dzɔdzɔm le ŋkua me, alesi gbegbe ʋukawo gblẽe, kple ne tsi le dodom.

Nukawoe nye atikewɔmɔnuawo?

Coats Disease dada nɔ te ɖe alesi dɔlélea le ɖevia me dzi. Le kpɔɖeŋu me, ne wokpɔ dɔlélea kaba ŋutɔ (afɔɖeɖe 1 alo afɔɖeɖe 2 ƒe gɔmedzedze) , ɖewohĩ mahiã be woawɔ atike aɖeke na ɖevia kura o. Le nɔnɔme mawo me la, ŋkudɔdala alé ŋku ɖe ɖevia ƒe ŋkuwo ŋu edziedzi ahakpɔ tɔtrɔ siwo le ʋuka siwo le ŋkume ƒe ŋkume.

Gake ne ɖevia ƒe dzesiwo nu sẽ, alo ne dɔlélea le sesẽm wu la, atikewɔmɔnu aɖewo li abe:

• Cryotherapy: Esia bia be woazã vuvɔ si nu sẽ atsɔ awɔ tsikpe ahagblẽ ʋuka siwo mesɔ o, si ana tsi nagado le wo me o.
• Atikewo Zazã: Ŋkudɔdala ate ŋu ado atike si tsia tre ɖe VEGF ŋu (Anti-vascular endothelial growth factor) ɖe ɖevia ƒe ŋkume tẽ. Atike sia kpena ɖe ame ŋu be tsi nagadona le ʋuka mawo me o eye wòxea mɔ na ŋku ƒe ŋkume ƒe ʋuʋu.
• Amekoko: Ne ɖevia le dɔlélea ƒe nɔnɔme sesẽ aɖe me, alo ne nɔnɔme aɖe abe ŋku ƒe ʋuʋu ene do mo ɖa la, ate ŋu ahiã be woawɔ dɔ nɛ be wòaɖɔ nusi gblẽ la ɖo.

Nukae mate ŋu akpɔ mɔ na ne Coats Disease le vinye ŋu?

Ŋusẽ si Coats Disease kpɔna ɖe ɖevi ƒe ŋkuwo kple nukpɔkpɔ dzi nɔ te ɖe ɣeyiɣi si me wokpɔ dɔlélea le kple alesi ŋkua wɔa nui nyuie ne wowɔ atike nɛ dzi. Numekukuwo ɖee fia be zi alesi ɖevi tsi esime wokpɔ dɔlélea le eŋu la, zi nenemae wòate ŋu adzɔe be wòagasẽ ɖe edzi o .

Ne wokpɔ Coats Disease kaba (afɔɖeɖe 1 alo 2) la, anɔ eme be ɖevia makpɔ ŋusẽ sesẽ siwo anɔ anyi didi o. Gake ne wowɔ atike nɛ gɔ̃ hã la, ŋku si ŋu dɔlélea le la ate ŋu akpɔ nu vaseɖe afi aɖe kokoko (nukpɔkpɔ mebɔ o).

Ne dɔlélea yi ŋgɔ va ɖo afisi wòsẽ wu la, ŋku si ŋu dɔlélea le ƒe ŋkuagbã ƒe afɔkua lolo wu. Esia tae míele aɖaŋu ɖom na wò be nàyi ɖɔkta gbɔ kaba, ne ède dzesi tɔtrɔ suetɔ kekeake gɔ̃ hã.

Kuxi bubu kawoe esia ate ŋu ahe vɛ?

Le Coats Disease me la, ɖevi ate ŋu axɔ ŋkudɔ bubuwo, abe:

• Glaucoma ƒe dɔléle
• Ŋku ƒe ʋuʋu
• Uveitis ( lãmeka siwo le ŋkua me ƒe dɔdzẽ) .
• Ʋuka yeyewo ƒe dɔwɔwɔ

Eya ta ele vevie ŋutɔ be woawɔ ɖe ɖɔkta ƒe mɔfiamewo dzi nyuie eye woayi aɖado wo kpɔ ɖe game dzi.

Ðe woate ŋu axe mɔ ɖe Coats Disease nua?

Esi wònye be dɔléle sia dzɔna le vome ŋutɔ, evɔ naneke koŋ metso o ta la, le nyateƒe me la , naneke meli míate ŋu awɔ atsɔ axe mɔ ɖe Coats Disease nu o.

Gake ne wonya kpɔ dɔlélea ko la, ele vevie be woado ŋkumekpɔ edziedzi abe alesi ŋkudɔdala kafui ene be woalé ŋku ɖe tɔtrɔ siwo va le ɖevia ƒe ŋkume ƒe ŋkume ŋu. Esia akpe ɖe mía ŋu woade dzesi dɔlélea ƒe gbegblẽ ɖesiaɖe eye woaɖe afɔ siwo hiã.

Ɣekaɣie wòle be makpɔ ɖɔkta?

Ne ède dzesi tɔtrɔ aɖewo le viwòa ƒe ŋkuwo alo nukpɔkpɔ me la, yi ɖɔkta alo ŋkudɔdala gbɔ enumake. Mègahe ɖe megbe o.

Azɔ hã, ne èkpɔ dzesi siawo dometɔ aɖe la, yi kɔdzi ƒe dɔwɔƒe si kpɔa nudzɔdzɔ kpatawo gbɔ enumake :

• Nukpɔkpɔ ƒe bu kpata.
• Ŋku ƒe vevesese sesẽ.
• Woate ŋu agblɔ be enye kekeli ƒe keklẽ kpɔkpɔ alo tsiƒuƒu siwo le tsia dzi kpɔkpɔ le ŋkuwo ŋgɔ.

Nya kawoe wòle be nàbia ɖɔktaa?

Ne èyi ɖɔkta gbɔ la, àte ŋu abia nya siawo tɔgbe:

• Coats Disease ƒe akpa ka mee vinyea le?
• Zi nenie wòhiã be mava dodokpɔ siwo akplɔe ɖo?
• Ðe ɖevia hiã atikewɔwɔa?
• Atikewɔwɔ ka ƒomevie wòhiã?
• Aleke gbegbee Coats Disease akpɔ ŋusẽ ɖe eƒe ŋku dzii?

Bia nya siawo tɔgbe eye nàɖe wò ɖikekewo katã ɖa. Ðɔktaa aɖe nusianu me na wò.

Vovototo kae le Coats Disease kple Retinoblastoma dome?

Coats Disease kple Retinoblastoma nye nɔnɔme eve siwo gblẽa nu le ɖevi suewo ƒe ŋkume ƒe ŋkume ŋu.

• Coats Disease nye nɔnɔme si me ʋuka siwo le ɖevi ƒe ŋkume ƒe ŋkume tsina le mɔ si mesɔ o nu, si wɔnɛ be tsi sina yia ŋkua me.
• Retinoblastoma nye kansa ƒomevi aɖe si mebɔ o si dona le ŋkume ƒe ŋkume. Togbɔ be kansae wònye hã la, ne dɔdzẽa mekaka ɖe ŋkua godo o la, ɖevi akpa gãtɔ ate ŋu anɔ agbe kansa manɔmee le atikewɔwɔ vɔ megbe.

Dɔléle evea siaa ƒe dzesi gbãtɔwo ɖi wo nɔewo ŋutɔ. Vevietɔ la, woate ŋu akpɔ ŋku yibɔ (leukocoria) ƒe dzedzeme ɣi le wo ame evea siaa me. Eyata ne ède dzesi tɔtrɔ alo dzesi aɖewo le viwò ƒe ŋkuwo ŋu la, ele vevie be nàyi ŋkudɔdala gbɔ enumake be nànya nusi tututu wònye. Ðɔktaa ate ŋu awɔ dodokpɔwo ahagblɔ dɔléle eve siawo dometɔ si tututu wònye na wò.

Gbedasi si Wotsɔ Yi Aƒeme

Coats Disease nye dɔléle si mebɔ o si gblẽa nu le ʋuka sue siwo le ŋku ƒe ŋkume, si nye viwò ƒe ŋku ƒe megbe ŋu. Esia wɔnɛ be tsi dona le ʋuka mawo me, si gblẽa nu le nukpɔkpɔ ŋu.

Nu vevitɔ si dzi wòle be míaɖo ŋkui enye be mɔ nyuitɔ si dzi woato aɖe ŋusẽ si dɔléle sia kpɔna ɖe ɖevi ƒe ŋkuwo kple nukpɔkpɔ dzi dzi akpɔtɔe nye be woalé dɔlélea le eƒe gɔmedzedze.

Eya ta, ne ède dzesi tɔtrɔ suetɔ kekeake gɔ̃ hã le viwò ƒe ŋkuwo alo alesi wòkpɔa nuwoe ŋu la, mègaŋe aɖaba ƒu edzi eye nàyi ɖɔkta alo ŋkudɔdala gbɔ enumake o. Ne wokpɔe kaba la, mɔnukpɔkpɔ geɖe wu li be woate ŋu akpɔ viwòa ƒe ŋkumekpɔkpɔ to atikewɔwɔ me. Mègatsi dzi o, ɖɔktawo li be yewoakpe ɖe mia kple viwòa ŋu.

` Coats dɔléle, ɖeviwo ƒe ŋkudɔ, ʋuka siwo le ŋku me, ŋkume ƒe ŋkume, ŋku ƒe nukpɔkpɔ ƒe bu, ŋkudɔdada, ɖeviwo ƒe lãmesẽ