Ðe nèle teƒe siwo le abe kpakpaluʋui ene kpɔm le wò ŋutigbalẽ ŋua? Mina míasrɔ̃ nu tso Cutaneous Lupus ŋu!

Ède dzesii kpɔ be teƒe dzĩ aɖe si le abe kpakpaluʋui ene le ame aɖewo ƒe ŋgonu kple ŋɔti ŋu kpɔa? Alo be ne wotsɔ ɣeyiɣi aɖe nɔ Sri Lanka ƒe ŋdɔ sesẽa me vɔ la, kasia ʋuʋudedi aɖe dona le woƒe ŋutigbalẽ ŋua? Menye ŋutigbalẽ ƒe kuxiwo koe esiawo nye o. Ɣeaɖewoɣi la, esiawo ate ŋu anye kuxi aɖe si le míaƒe ŋutilã me ƒe gotagome dzesiwo. Egbea míele nu ƒom tso nɔnɔme aɖe si ɖea dzesi mawo tɔgbe fiana, si ame geɖe menya tututu o, gake ele vevie ŋutɔ be woanya. Emae nye Cutaneous Lupus.

Nukae nye Cutaneous Lupus?

Kpuie ko la, ŋutigbalẽ me lupus nye dɔléle si dɔlékuiwutikewo ƒe dɔlélenutsiŋutete wɔna si gblẽa nu le míaƒe ŋutigbalẽ ŋu. Fifia ɖewohĩ èle eŋu bum be nukae nye "autoimmune" nu sia hã. Enyo, na maɖe eme alea.

Tsɔe be míaƒe dukɔa ƒe aʋakɔa le afima be woakpɔ mía ta tso gotagome futɔwo si me. Nenema kee dɔlélenutsiŋutete le míaƒe ŋutilã hã si. Eƒe dɔe nye be wòakpɔ mía ta tso dɔlélewo me to avuwɔwɔ kple futɔwo abe dɔlékuiwo, dɔlékuiwo, kple dɔlékui siwo tso egodo gena ɖe ŋutilãa me ene me.

Gake, le dɔléle si dɔlélenutsiŋutete wɔna me la, nane si wɔ nublanui ŋutɔ la dzɔna. Mía ŋutɔwo míaƒe ŋutilã ƒe ametakpɔnu, si nye dɔlélenutsiŋutete, tɔtɔna. Mate ŋu anya amesi nye xɔlɔ̃ kple amesi nye futɔ o. Eyata le esi teƒe be wòadze duta dɔlékuiwo dzi la, edzea mía ŋutɔwo ƒe lãmenugbagbevi siwo le lãmesẽ me dzi dzedze gɔme . Ele abe mía ŋutɔwo ƒe aʋakɔ si le mía ŋutɔwo míaƒe amewo dzi dzem ene.

Le ŋutigbalẽ me lupus me la, dɔlélenutsiŋutete dzea míaƒe ŋutigbalẽ ƒe lãmenugbagbeviwo dzi, si wɔnɛ be ŋutigbalẽa xɔa abi atraɖii, si wɔnɛ be dzesiwo abe ʋuʋudedi, teƒeteƒewo, ʋuʋudedi, kple vuvu ene dona.

Ðe esia nye dɔléle ma ke si ŋu amesiame nya nu tsoe ne wogblɔ be lupus?

Ao, ɖewohĩ èse dɔléle aɖe si woyɔna be Systemic Lupus Erythematosus (SLE) ŋu nya kpɔ. Ema hã nye lupus ƒomevi aɖe. Gake le SLE me la, menye ŋutigbalẽa koe dɔlélenutsiŋutete dzea edzi o. Ate ŋu agblẽ nu le míaƒe ŋutilã bliboa hã ŋu, si me ŋutinu veviwo abe ƒunukpeƒewo, ʋukawo, ayikuwo, kple dzitodzitowo ene hã le.

Cutaneous Lupus Erythematosus (CLE) nye lupus ƒomevi aɖe si ƒe ŋutigbalẽ koŋue wòdzɔna. Gake ɣeaɖewoɣi la, amesi ŋu CLE le ate ŋu axɔ SLE emegbe. Eyata ele vevie ŋutɔ be nànya lupus ƒe dzesi ɖesiaɖe si le ŋutigbalẽa me.

Ðe lupus ƒomevi vovovowo lia?

Ẽ, ŋutigbalẽ me lupus ate ŋu ava eye wòadzo. Le ame aɖewo gome la, dzesiwo va nɔa wo ŋu eye wodzona. Le ame bubuwo gome la, woyia edzi ɖea dzesiwo fiana, ŋkeke aɖewo mesẽna boo o eye ŋkeke aɖewo hã nu sẽna wu. Woda dɔlélea ɖe hatsotsowo me le ɣeyiɣi didi si dzesiawo nɔa anyi kple ŋutigbalẽa ƒe abi ƒomevi nu. Mina míalé ŋku ɖe ƒomevi veviawo ŋu.

Nukae nye dɔléle sia ƒe dzesiwo?

Lupus si le ŋutigbalẽ me ate ŋu ahe ŋutigbalẽ ƒe dzesi vovovowo vɛ. Dzesi aɖewo ku ɖe lupus ŋu koŋ. Woate ŋu akpɔ bubuwo le ŋutigbalẽdɔ bubuwo me. Mina míalé ŋku ɖe dzesi veviawo ŋu.

Dzesi siwo wokpɔna zi geɖe

• Dzĩ siwo me ʋuʋudedi le: Esiawo ate ŋu anye diskoid alo asigɛ, vevietɔ le teƒe siwo ŋdɔ ʋuna le .Wokpɔa wo le ta, kɔ, kple asiwo dzi wu. Le amesiwo ƒe ŋutigbalẽ ƒe amadede do viviti wu gome la, teƒe siawo ate ŋu adze abe aŋutiɖiɖi alo aŋutiɖiɖi ene.
• Malar Rash: Esiae nye dzesi si ame akpa gãtɔ susuna ne wobu lupus ŋu. Enye ʋuʋudedi dzĩ si dzena le ŋɔti ƒe ŋgonu kple tɔdzisasrã dzi, si ɖi kpakpaluʋui si keke eƒe aʋalawo.
• Ŋutilã ƒe amadede trɔna: Ne teƒe siwo ɖiƒoƒo siwo nɔ tsã la haya vɔ la, ŋutigbalẽ ƒe amadede si le teƒe mawo ate ŋu aɖiɖi (hypopigmentation) alo ado viviti (hyperpigmentation).
• Kekeli ƒe dɔwɔwɔ: Ame siwo ŋu lupus le la ƒe ŋutigbalẽ ƒe dzesiwo dzina ɖe edzi ne wodo wo ɖe ɣe ƒe keklẽ me. Ɣea ƒe keklẽ kpui aɖe gɔ̃ hã ate ŋu ana aɖuɖɔɖɔɖɔ, eye ʋuʋudedia ate ŋu asẽ.
• Taɖa ƒe vuvu: Ne lupus ƒe teƒeteƒewo (discoid lesions) va le ta ŋu la, ate ŋu axɔ abi eye wòana ɖa navu tegbee.
• Abi siwo le nu alo ŋɔti me: Abi suesuesue siwo me vevesese mele o ate ŋu adze nu me, ŋgonu me, alo ŋɔti me.
• Ŋutilã ƒe ʋuʋu kple vuvu: Teƒe aɖewo ate ŋu anye ʋuʋudedi kple vuvu, vevietɔ le ŋkuwo ŋu (edema).

Nukatae esia dzɔna ɖo? Nukawoe nye afɔku siwo le eme?

Abe alesi míegblɔe va yi ene la, esia nye dɔléle si dɔlélenutsiŋutete ŋutɔ hena vɛ. Esia fia be vodada aɖe si le mía ŋutɔwo ƒe dɔlélenutsiŋutete me gbɔe wòtso. Dzɔdzɔmeŋutinunyalawo meka ɖe nusitae esia dzɔna dzi 100% haɖe o. Gake woxɔe se be nu vovovowo ƒe ƒuƒoƒo ate ŋu awɔ akpa aɖe.

Wonye domenyiŋusẽfianu ƒe nɔnɔme kple nutoa me ƒe nusiwo ʋãa ame .

Kpuie ko la, dɔléle sia ƒomevi xɔxɔ le ame aɖewo ƒe domenyiŋusẽfianu me vie. Gake menye esi nɔnɔme ma le wo si ta koe dɔlélea doa mo ɖa o. Ne nuto me nu aɖewo do go amesi ŋu domenyiŋusẽfianu ma le la, ate ŋu aʋã dɔlélenutsiŋutete eye wòana dɔlélea nadze.

Nu bubu siwo nana afɔkua dzina ɖe edzi:

• Nyɔnu nyenye: Nyɔnuwo le afɔku me be woaxɔ lupus wu ŋutsuwo, vevietɔ le ɣeyiɣi siwo me estrogen ƒe agbɔsɔsɔ sɔ gbɔ me.
• Domenyinu: Ne lupus alo dɔléle bubu si dɔlékuiwutikewo tsona le wò ƒomea me la, àte ŋu anɔ afɔku me vie hã.
• Dɔléle bubu siwo dɔlélenutsiŋutete hena vɛ ƒe amesinɔnɔ: Amesiwo ŋu dɔléle bubu siwo dɔlékuiwutikewo tsona, abe lãkusidɔ kple ƒunukpeƒetetedɔ ene, le afɔku gã aɖe me be woaxɔ lupus.
• Atike aɖewo zazã ɣeyiɣi didi:Atike aɖewo, abe ʋusɔgbɔdɔtikewo kple asrãtikewo ene, ate ŋu ahe nɔnɔme siwo le abe lupus ene vɛ ne wozã wo ɣeyiɣi didi.
• Susu alo ŋutilã me nuteɖeamedzi sesẽ: Nuteɖeamedzi sesẽ ɖe ŋutilã dzi, abe dɔlékui sesẽ alo afɔku ene, ate ŋu ahe dɔlélea vɛ ɣeaɖewoɣi.
• Sigaretnono: Sigaretnono nye nu sesẽ aɖe si hea lupus vɛ eye dzesiawo gagblẽna ɖe edzi.

Aleke ɖɔkta awɔ ake ɖe esia ŋu?

Ne èkpɔ ŋutigbalẽ ƒe dzesi siawo la, nu nyuitɔ si nàwɔe nye be nàyi ɖɔkta gbɔ, eye anyo wu be nàkpɔ ŋutigbalẽŋutinunyala . Abia nya wò tso wò dzesiwo ŋu eye wòalé ŋku ɖe wò ŋutigbalẽ ŋu nyuie.

Woate ŋu ade dzesi lupus ƒe ʋuʋudedi aɖewo (abe malar ƒe ʋuʋudedi ene) enumake. Gake esi wònye be teƒe aɖewo ɖi ŋutigbalẽ ƒe nɔnɔme bubuwo ta la, ahiã be woagawɔ dodokpɔ bubuwo atsɔ aɖo kpe dɔlélea dzi.

• Skin Biopsy: Esia bia be woano atike sue aɖe si nana ame ƒe lãme gbãna le teƒe aɖe eye woaɖe ŋutigbalẽ sue aɖe atsɔ adoe kpɔ le nusuekpɔmɔ̃ me. Esia ate ŋu akpe ɖe ame ŋu wòanya ne tɔtrɔ aɖewo le ŋutigbalẽmenugbagbevi siwo do ƒome kple lupus ŋu.
• Direct Immunofluorescence: Esia hã nye dodokpɔ tɔxɛ aɖe si wowɔna le ŋutigbalẽ ƒe lãmenugbagbeviwo ɖeɖe me. Ate ŋu ade dzesii ne kpeɖodzi li be dɔlélenutsiŋutete le ŋutigbalẽa dzi dzem.
• Ʋudodokpɔ: Ɣeaɖewoɣi la, wò ɖɔkta aɖo aɖaŋu na wò hã be nàwɔ ʋudodokpɔ aɖewo. Wowɔa esiawo tsɔ léa ŋku ɖe SLE, si nye dɔléle si gblẽa nu le ŋutilã ƒe ŋutinu ememetɔwo ŋu, tsɔ kpe ɖe lupus si le ŋutigbalẽa dzi ŋu.

Nukawoe nye atike siwo wozãna na esia?

Nu gbãtɔ si wòle be míagblɔe nye be womekpɔ atike aɖeke na ŋutigbalẽ me lupus haɖe o , elabena edo ƒome kple mía ŋutɔwo ƒe dɔlélenutsiŋutete ƒe dɔwɔwɔ.

Wokpɔa atikewɔwɔ ƒe ɖoɖoa to lupus ƒomevi si le ŋuwò, wò dzesiwo ƒe sesẽme, kple alesi wole ŋusẽ kpɔm ɖe wò agbe dzii ŋu bubu me.

Atikewɔwɔmɔnu kple mɔfiame vevitɔwoe nye:

1. Ɣe ƒe takpɔkpɔ: Esiae nye nu vevitɔ kekeake eye wòle be woawɔ. Ele be woaɖe Sri Lanka ƒe ŋdɔ sesẽa ƒe dzedzeme dzi akpɔtɔ alesi woate ŋui.

• Ƒo asa na gota le ŋdɔkutsu dzatsɛ me le ŋdi ga 10:00 kple fiẽ ga 4:00 dome.
• Ne èdo go yi gota la, do awu siwo tsyɔ wò ŋutilã dzi, abe kposɔ si ƒe abɔwo keke kple awu si ƒe abɔwo didi ene.
• SPF ƒe asixɔxɔ 50 alo esi wu nenemaZã ɣe ƒe keklẽŋusẽtike nyui aɖe abe alesi wò ɖɔkta kafui ene. Tsɔe de eme aɖabaƒoƒo 20 hafi nàdo go.

2. Atike Siwo Wozãna Le Atikewo Ŋu:

• Wò ɖɔkta ate ŋu aŋlɔ atike siwo wotsɔna ƒoa ɖae, atike siwo wotsɔna ƒoa ɖae, alo ami siwo woatsɔ axe mɔ ɖe ŋutigbalẽ ƒe dɔdzẽ kple ʋuʋudedi nu. Corticosteroid- tikewo kple tacrolimus- miwoe wozãna wu.

3. Atikewo dodo ɖe lãme:

• Ɣeaɖewoɣi la, ne teƒeawo le ɣie ŋutɔ eye womewɔa nu ɖe ​​atikewɔwɔ ŋu o la, ɖɔkta ate ŋu ado steroid-tike aɖe ɖe teƒea tẽ.

4. Atike Siwo Wonona:

• Ne ŋutigbalẽ ƒe dzesiwo nu sẽ alo wometsɔ atike siwo wozãna ɖe ŋutigbalẽ ŋu ɖu wo dzi o la, woate ŋu aŋlɔ atike siwo woano na ame. Atike siwo wozãna wu na lupus enye hydroxychloroquine kple chloroquine . Esiawo kpena ɖe ame ŋu be woaɖu dɔlélenutsiŋutete ƒe dɔwɔwɔ fũ akpa dzi.

5. Vitamin D: 1.1.

• Ƒo asa na ŋdɔkutsu dzatsɛ ate ŋu ana vitamin D nagbɔdzɔ le wò ŋutilã me. Wò ɖɔkta ado esia kpɔ eye wòaŋlɔ vitamin D ƒe atikekuiwo na wò ne ehiã.

Nusiwo ŋu wòle be woabu ne wole agbe kple lupus

Cutaneous lupus nye dɔléle si nɔa ame ŋu le wò agbe me katã, gake ne èkpɔ egbɔ nyuie la, àte ŋu anɔ agbe kplii dzidzedzetɔe. Togbɔ be ate ŋu asesẽ be nàtrɔ ɖe tɔtrɔ siawo ŋu le gɔmedzedzea me hã la, le ɣeyiɣi aɖe megbe la, woava zu wò agbe ƒe akpa aɖe.

• Ƒo asa na ŋutigbalẽ ƒe ɖiƒoƒowo fɔfɔ alo wo ƒoƒo. Esia wɔwɔ ate ŋu agblẽ nu le ŋutigbalẽa ŋu geɖe wu eye wòana ɖiƒoƒo yeyewo nado.
• Ne ètsi dzi ɖe ɖiƒoƒo ŋu la, zã atsyɔ̃ɖomi tɔxɛ siwo wò ɖɔkta kafu be nàtsɔ atsyɔ wo dzi.
• Anyo hã ne àte ŋu aɖe akaɖi siwo me keklẽŋusẽ le (tube lights) zazã dzi akpɔtɔ le aƒeme kple dɔwɔƒe . Woɖea UV keklẽ sue aɖe hã doa goe.
• Kpɔ wò ɖɔkta edziedzi. De dodokpɔ siwo wowɔna edziedzi be nàlé ŋku ɖe wò nɔnɔmea ŋu eye nàlé ŋku ɖe nɔnɔme bubuwo abe SLE ene ŋu.
• Bu wò susu ƒe lãmesẽ hã ŋu kpɔ. Ðiƒoƒo siwo dzena le wò ŋutigbalẽ ŋu ate ŋu ana nàlé blanui eye nàtsi dzimaɖi ɣeaɖewoɣi. Le ɣeyiɣi siawo tɔgbe me la, ƒo nu kple amesi dzi nèka ɖo eye nàdi aɖaŋuɖoɖo ne ehiã.

Ŋutilã me lupus menye dɔléle si ate ŋu ade ame ƒe agbe afɔku me o. Gake ate ŋu akpɔ ŋusẽ ɖe wò agbenɔnɔ ƒe nyonyome dzi. Nu vevitɔe nye be nànya nu tso dɔlélea ŋu nyuie, awɔ ɖe wò ɖɔkta ƒe mɔfiamewo dzi nyuie, eye nàdi atikewɔwɔ kple agbenɔnɔ si sɔ na wò.