Ðe dzesi wɔnuku siawo le viwòa ŋua? Mina míasrɔ̃ nu tso ɖevimenɔɣi ƒe dɔléle si nye multiple sclerosis (MS) ŋu!

Ðe azɔlizɔzɔ le fu ɖem na viwò suea kasia? Alo ɖe woƒe ŋkuwo me mekɔna o alo ɖe woƒe ŋkuwo me mekɔna oa? Ɣeaɖewoɣi la, nusiawo ate ŋu anye nu suesuesue siwo doa mo ɖa ko. Ke hã, le go siwo mebɔ o me la, dzesi siawo ate ŋu anye dɔléle aɖe ƒe dzesi gbãtɔ siwo ŋu míeƒoa nu tsoe fũ o, gake ele vevie ŋutɔ be míanɔ ŋudzɔ. Egbea míele nu ƒom tso nɔnɔme mawo dometɔ ɖeka ŋu, si woyɔna be `Multiple Sclerosis` alo `MS`, si dzea ɖevi siwo mexɔ ƒe 18 haɖe o dzi.Mègatsi dzi o, míaƒo nu tso esia ŋu ko, le mɔ si gɔme nàte ŋu ase nu.

Nukae nye ``multiple sclerosis (MS)'' si ɖevi siawo xɔna?

Kpuie ko la, dɔléle si tso dɔlélenutsiŋutete ƒe dɔmawɔmawɔ nyuie gbɔe esia nye. Míaƒe ŋutilã ƒe dɔlélenutsiŋutete le abe aʋakɔ si kpɔa dukɔ aɖe ta ene. Eƒe dɔe nye be wòakpɔ míaƒe ŋutilã ta to avuwɔwɔ kple dɔlékuiwo kple dɔléle siwo tso egodo me. Ke hã, le ɖevi si ŋu `MS` le gome la, dɔlélenutsiŋutete sia wɔa vodada sue aɖe. Edzea eya ŋutɔ ƒe ŋutilã ƒe lãmenugbagbevi siwo le lãmesẽ me dzi dzedze gɔme.

Ne míagblɔe tututu la, amedzidzedze sia tɔa ŋku ɖevia ƒe Central Nervous System. Eyae nye ahɔhɔ̃ kple aklã. Lãmetsi siwo le ahɔhɔ̃a kple aklã me la ƒe ametakpɔnu aɖe ƒo xlã wo, abe aŋekotoku si ƒo xlã elektrikka ene. Míeyɔa nutsyɔnu sia be ``Myelin.'' ``Myelin'' nye nusi na gbedasiwo te ŋu zɔa mɔ kabakaba eye wònɔa bɔbɔe to lãmekawo me.

Le MS me la, dɔlélenutsiŋutete dzea myelin lãmenugbagbevi siawo dzi hegblẽa nu le wo ŋu. Ðeko wòle abe ɖe wotso elektrikka la ƒe akɔta le teƒe aɖewo ene. Esia wɔnɛ be lãmekawo ƒe gbedasi siwo tso ahɔhɔ̃a me yia ŋutilãa ƒe akpa mamlɛa gbɔ la xea mɔ alo tɔtɔna.

Ne myelin sia gblẽ la, ehea dzesiwo abe lãmekawo ƒe gbɔdzɔgbɔdzɔ, ɖeɖiteameŋu, ŋkuɖoɖonudzi ƒe dɔmawɔmawɔ nyuie, azɔlizɔzɔ sesẽ, kple nukpɔkpɔ ƒe tɔtrɔ vɛ.

Tsɔe be, xɔ̃wò aɖe si ŋkɔe nye Nilanthi le viwòa si. Kasia Nilanthi te vevesese le ŋku ɖeka me, eye eƒe ŋkuwo megakpɔa nu nyuie o. Ne etsɔe fia ɖɔkta ko hafi wòva nya be ate ŋu anye MS ƒe dzesi gbãtɔ.

Fifia la, womekpɔ atike aɖeke na MS o. Gake atikewɔmɔnu nyui aɖewo li siwo dzi woato aɖu dzesiawo dzi eye woaɖe nuwɔametɔnyenye si dɔlélea hena vɛ ɣeyiɣi didi dzi akpɔtɔ. Eyata mehiã be nàtsi dzi o.

MS ƒomevi kawoe dzɔna ɖe ɖeviwo dzi?

MS ƒomevi si bɔ wu le ɖeviwo me enye ``Relapsing-Remitting MS (RRMS) .`` Ðevi siwo ade 98% ŋue ƒomevi sia le. Le go sia me la, dzesiawo dona kpata (flare-up/regense), nɔa anyi hena ɣeyiɣi aɖe, emegbe woɖiɖina alo buna keŋkeŋ (remission). Woate ŋu atrɔ ava le ɣeyiɣi aɖe megbe. To mɔ sia dzi la, dzesiawo va dona eye wodzona le ɖevia ƒe agbemeŋkekewo katã me.

Ƒomevi bubue nye `Primary Progressive MS (PPMS)`.Esia mebɔ ɖe ɖeviwo ŋu kura o. Nusi dzɔnae nye be dzesiawo nu sẽna ɖe edzi vivivi le ɣeyiɣi aɖe megbe. Ŋgɔyiyi boo aɖeke mele dometsotsoawo me o.

Nukawoe nye MS ƒe dzesi gbãtɔ siwo dzena le ɖeviwo ŋu?

Ne ɖɔktawo le MS kpɔm la, woléa ŋku ɖe dzesi gbãtɔ siawo ŋu etɔxɛe:

• Optic Neuritis: Esia nye dɔléle si nana ŋku ɖeka alo evea siaa sea veve, tsɔ kpe ɖe ŋku ƒe nukpɔkpɔ ƒe gbegblẽ ŋu. Etɔxɛe la, ŋku ƒe lãmeka si le ŋkua me la va xɔa dzo. Ðevi aɖewo hã ate ŋu atrɔ le woƒe amadede ƒe dzedzeme ŋu.
• Transverse Myelitis: Esia nye esime dɔdzẽ si le aklã ƒe akpa aɖe na abi, si xea mɔ na lãmekawo ƒe dzesiwo. Esia ate ŋu ahe dzesiwo abe abɔ kple afɔwo ƒe gbɔdzɔgbɔdzɔ, lãmetutudɔ, kple azɔlizɔzɔ ƒe ŋutetemanɔamesi ene vɛ.

Bu eŋu kpɔ, viwò, mina míagblɔ be eŋkɔe nye Kavindu. Gbeɖeka, esi Kavindu tso suku gbɔ va aƒeme la, egblɔ be, "Dada, nye afɔwo se le wo ɖokui me be yevuvu." Le ɣeyiɣi aɖe megbe la, esesẽna nɛ be wòazɔ. Esia ate ŋu atso Transverse Myelitis gbɔ.

Nukawoe nye MS ƒe dzesi siwo bɔ ɖe ɖeviwo me?

MS ƒe dzesiwo ate ŋu ato vovo tso ame ɖeka gbɔ yi bubu gbɔ. Le ɖevi ɖeka gɔ̃ hã gome la, dzesiwo ate ŋu ato vovo tso ŋkeke yi ŋkeke. Menye amesiamee akpɔ dzesi siawo katã o, gake zi geɖe la, wo dometɔ ʋɛ aɖewo koe woakpɔ.

• Numbness, tingling (paresthesia) : Seselelãme sia ate ŋu adzɔ le teƒewo abe asiwo, afɔwo, kple mo ene.
• Taɖuame
• Azɔlizɔzɔ alo dadasɔ sesẽ
• Ðeɖiteameŋu: Menye ɖeɖiteameŋu si sɔ koe nye esia o. Enye seselelãme be ɖeɖi te ŋuwò eɖanye aleke kee nèdɔ alɔ̃ o.
• Lãmetsiwo ƒe gbɔdzɔgbɔdzɔ
• Ʋuʋudedi/ʋuʋudedi
• Kuxi siwo le susu ƒe dɔwɔwɔ alo ŋkuɖoɖonudzi ŋu
• Nukpɔkpɔ ƒe nyawo: abe nukpɔkpɔ si me mekɔ o alo nukpɔkpɔ eve ene.

Esi dzesi siawo dometɔ ɖeka alo eve le ŋuwò ta la, mègasusu be MS ye o. Gake ne dzesi siawo gakpɔtɔ li alo ele sesẽm na viwòa la, ele vevie be nàdi atikewɔlawo ƒe aɖaŋuɖoɖo.

Nukae nana ɖeviwo xɔa MS?

Nu vevitɔ si gbɔ MS tsonae nye demyelination . Míeƒo nu tso myelin ƒe akɔtaɖonu ŋu do ŋgɔ. Demyelination nye nusiwo gblẽ le myelin ƒe akɔta.

Mía vi ƒe dɔlélenutsiŋutete, le susu aɖewo ta, bua akpa sia si le lãmesẽ me si woyɔna be `Myelin` be enye nusi gblẽa nu le ŋutilã ŋu. Emegbe edzea edzi dzedze gɔme. Amedzidzedze sia gblẽa nu le `Myelin` ŋu. Abi (siwo ɖɔktawo yɔna hã be `lesions` alo `plaques`) ateŋu adzɔ le teƒe siawo siwo gblẽ. Woateŋu akpɔ abi siawo kple fotoɖeɖewo abe `MRI (Magnetic Resonance Imaging)`.

Ne myelin gblẽ la, gbedasi siwo tso ahɔhɔ̃a me yi ŋutilã ƒe akpa vovovowo la me gblẽna. Emae nye nusi hea MS ƒe dzesiwo vɛ.

Numekulawo menya nusita tututu dɔlélenutsiŋutete wɔa nu gbegblẽ alea haɖe o.

Nukawoe nye afɔku siwo ate ŋu ana ɖevi naxɔ MS?

Wokpɔe be nu aɖewo siwo gblẽa nu le vidadaa ŋu le fufɔɣi ate ŋu ana ɖevia naxɔ MS ƒe afɔkua nadzi ɖe edzi:

• Aɖinuwo ƒe amedzidzedze: Le kpɔɖeŋu me, dzudzɔ si wozãna tsã, nudzodzoeviwutikewo, kple bubuawo ƒe amedzidzedze.
• Vitamin D ƒe agbɔsɔsɔ si bɔbɔ ɖe ʋu me.
• Dɔlékui aɖewo ƒe amedzidzedze: Le kpɔɖeŋu me, Epstein-Barr dɔlékui alo mononucleosis (si woyɔna hã be nugbugbɔdɔ).
• Amidada.

Eyata ele vevie ŋutɔ be woanɔ lãmesẽ me le fufɔɣi. Atikewɔlawo ƒe aɖaŋuɖoɖowo dzi wɔwɔ ate ŋu aɖe afɔku siawo dzi akpɔtɔ.

Kuxi kawoe ate ŋu ado tso ɖevimenɔɣi ƒe MS me?

Ðeviwo ate ŋu axɔ kuxi aɖewo le MS ta. Zi geɖe la, nusiawo medzena enumake o, eye ne woɖo tsitsime ko hafi ate ŋu akpɔ ŋusẽ ɖe wo dzi.

• Azɔlizɔzɔ sesẽe kpekpeɖeŋu manɔmee.
• Blanuiléle Kple Dzimaɖitsitsi.
• Sukudɔwo wɔwɔ sesẽ.
• Asiwo ƒe dɔwɔwɔ ɖekae nyuie o.
• Aɖuɖɔ alo aɖuɖɔ dzi ɖuɖu sesẽ (incontinence).

Menye nusiawo katãe gblẽa nu le ɖevi ɖesiaɖe ŋu o, gake ele vevie be nànya nu siawo ale be nàte ŋu axɔ kpekpeɖeŋu kaba ne ehiã.

Aleke ɖɔktawo wɔa dea dzesi MS le ɖeviwo ŋui?

Ðɔkta aɖe dea dzesi ɖevi aɖe be MS le eŋu to ŋutilãmedɔdada, ahɔhɔ̃mekawo dodokpɔ, kple dodokpɔ tɔxɛ bubu geɖe wɔwɔ me . Le dodokpɔ siawo me la, ɖɔktaa abia nya wò tso viwòa ƒe dzesiwo kple nenye be dɔlélea le wò ƒomea me dometɔ aɖe ŋu.

Dodokpɔ siwo wowɔna tsɔ dea dzesi dɔlélea hã kpena ɖe ame ŋu be woaɖe dɔléle bubu siwo ƒe dzesiwo sɔ kple MS tɔ ɖa. Dodokpɔ siawo dometɔ aɖewoe nye:

• Ʋudodokpɔ kple aɖuɖɔ dodokpɔ.
• Nɔnɔmetata dodokpɔwo abe MRI (Magnetic Resonance Imaging) scans (dodokpɔ siwo léa ŋku ɖe ŋku ƒe lãmekawo ŋu hã li, abe Optical Coherence Tomography ene).
• Akɔta ƒe Ʋuʋu:Le esia me la, woxɔa tsi si ƒo xlã aklãa ƒe akpa aɖewo hedoa wo kpɔna.
• Evoked Potential (EP) Test: Esia dzidzea alesi gbedasiwo zɔna kabakaba to lãmekawo me.

Esi wònye be MS ƒe dzesiwo sɔ kple dɔléle bubu geɖewo tɔ ta la, ate ŋu axɔ ɣeyiɣi aɖe hafi woate ŋu anya nɔnɔmea tututu. Esia ate ŋu anye kuxi na dzilawo vie, eye ate ŋu abia be woayi ɖɔkta gbɔ zi geɖe. Gake ne wonya kpɔ dɔlélea dze sii nyuie ko la, anya wɔ be nàwɔ atike na viwòa nyuie eye nàkpe ɖe eŋu wòakpɔ dzidzɔ le ɖevime si me tɔtɔ boo aɖeke mele o.

Ðe ɖevi suewo ate ŋu ade dzesi `MS`a?

MS ƒe dzesiwo medzena le vidzidzi me o. Eyata anɔ eme kura be womakpɔ MS le vidzĩ aɖe ŋu o. Dzesiawo va dzena ne ɖevia le tsitsim. Zi geɖe la, nɔnɔmea dzea egɔme le sɔhɛmenɔɣi. Zi geɖe la, wokpɔa dɔlélea hafi xɔa ƒe 16.

Aleke wodaa MS le ɖeviwo ŋui?

Atike vevitɔ si wozãna na MS si gbugbɔna yia edzi (RRMS), si bɔ ɖe ɖeviwo me lae nye dɔléle si trɔa dɔlélea (DMT). DMT-tike siawo kpɔa dɔlélea ƒe ŋgɔyiyi dzi eye woɖea dzesiawo ƒe dzɔdzɔ zi geɖe dzi kpɔtɔna. Atike ɖeka si dzi FDA (Nuɖuɖu Kple Atike Ŋuti Dɔwɔƒe) da asi ɖoe nye atikekui si woyɔna be fingolimod . Wokafui na ɖevi siwo xɔ ƒe 10 kple edzivɔ. Wole nu srɔ̃m tso DMT bubuwo ŋu fifia be woazã le ɖeviwo me.

Tsɔ kpe ɖe eŋu la, ɖɔktawo daa dɔ na ɖevia ƒe dzesi tɔxɛwo hã. Esiawo ate ŋu anye:

• Dɔdamɔnu: Ekpena ɖe ame ŋu le gbesiagbedɔwo wɔwɔ me.
• Lãmesẽnyawo Gbɔkpɔkpɔ: Ekpena ɖe ame ŋu wòsẽa ŋu eye wòdaa asɔ.
• Nuƒoƒo ƒe Dɔdamɔnu: Ne nuƒoƒo alo nu mimi sesẽ na wò.
• Ahɔhɔ̃mekawo ƒe susuŋutinunya dodokpɔwo kple atikewɔwɔwo: Ekpena ɖe ame ŋu le nuwo abe ŋkuɖoɖonudzi, susu ƒe dɔwɔwɔ, kple nusɔsrɔ̃ ene me.

Ne dɔlélea gblẽ nu le ɖevia ƒe ŋkuɖoɖonudzi kple tamebubu ŋutete (si ƒe susu ƒe dɔwɔwɔ) ŋu la, ate ŋu ahiã be woakpe ɖe eŋu bubuwo le suku.

Mɔnukpɔkpɔ ate ŋu asu asiwò hã be nàkpɔ gome le dɔdamɔnu dodokpɔ siwo doa atike yeyewo kpɔna me. Wò ɖɔkta agblɔ nya geɖe tso esia ŋu na wò.

Ɣekaɣie wòle be makpɔ vinyea ƒe ɖɔkta?

Ne viwòa gblɔ na wò tso lãmetutudɔ, nukpɔkpɔ ƒe tɔtrɔ, alo dzesi bubu ɖesiaɖe si mebɔ o ŋu na wò la, ele vevie be nàƒo nu kple viwòa ƒe ɖɔkta enumake. MS ƒe dzedze kaba nyo wu. Ðɔktawo ate ŋu ado viwòa kpɔ ahanya mɔ nyuitɔ si dzi nàto anya dɔlélea.

Ne wokpɔ dɔlélea vɔ la, ele be wò alo viwòa nana atikewɔlawo nanya ne dzesi yeye aɖewo dze alo ne dzesiawo gagblẽ ɖe edzi zi ɖeka (flare-up).

Nukae nye ɖevi siwo ŋu ɖevime MS le ƒe etsɔme?

Zi geɖe la, etsɔme ƒe nukpɔsusu nyui ate ŋu anɔ ɖevi siwo ŋu wokpɔ MS le ŋu. Atikewɔwɔ aɖewo li siwo dzi woato aɖe dzesiawo ƒe dzɔdzɔ zi gbɔ zi geɖe kple woƒe sesẽ dzi akpɔtɔ. Be woaxe mɔ ɖe nuwɔametɔnyenye si nɔa anyi didi nu la, ele be woakpɔ dɔlélea gbɔ le woƒe agbemeŋkekewo katã me. Ahiã be viwòa nado go kple woƒe MS atikewɔlawo ƒe ƒuƒoƒoa edziedzi le eƒe agbemeŋkekewo katã me.

Ðevi aɖewo siwo ŋu MS si gagbugbɔna (RRMS) le ate ŋu axɔ nɔnɔme aɖe si woyɔna be secondary progressive MS (SPMS) le woƒe tsitsime. Esiae nye esime dzesiawo nu sẽna ɖe edzi vivivi. Gake numekukuwo ɖee fia be amesiwo ŋu wokpɔ MS le le woƒe ɖevime la ƒe dɔlélea ƒe ŋgɔyiyi blewu wu amesiwo ŋu SPMS le le woƒe tsitsime.

Ðe MS akpɔ ŋusẽ ɖe vinyea ƒe sukugbenɔnɔ dzia?

Esi wònye be MS ate ŋu akpɔ ŋusẽ ɖe ɖevi ƒe ŋkuɖoɖonudzi kple tamebubu ŋutete dzi (sidzedze ƒe dɔwɔwɔ) ta la, ɖevia ate ŋu ado go kuxiwo le sukudɔwo me. Eyata anyo be woawɔ ahɔhɔ̃mekawo ƒe dɔwɔwɔ ŋuti dodokpɔ ɖeka ya teti. Le ema megbe la, ele vevie be nàƒo nu kple ɖevia ƒe nufialawo edziedzi. Àte ŋu axɔ kpekpeɖeŋu be wòakpe ɖe ɖevia ŋu wòayi ŋgɔ le eya ŋutɔ ƒe ablaɖeɖe nu eye wòaɖo woƒe sukudede ƒe taɖodzinuwo gbɔ.

Ðevi geɖe siwo ŋu MS le la nɔa anyi nyuie kple ɖevi bubu siwo nye woƒe ƒemetɔwo. Woate ŋu afe ahakpɔ gome le dɔwɔnawo me abe ɖevi bubuwo ene.

Ne nya aɖe le asiwò la, ɖɔktaa aɖo aɖaŋu na wò nenye be dɔwɔna aɖewo le dedie na vidzĩa.

Abe dzila ene la, ɖewohĩ àtsi dzi vevie ne èse be MS le viwòa ŋu. Ema sɔ. Gake ɖo ŋku edzi be MS ƒe akpa gãtɔ siwo gblẽa nu le ɖeviwo ŋu la nye esiwo gbugbɔna yia edzi (RRMS). Esia fia be dzesiwo vaa eme eye wodzona. Ðɔkta ate ŋu awɔ atikewɔwɔ ƒe ɖoɖo aɖe be wòaɖe dzesiawo ƒe dzɔdzɔ zi gbɔ zi geɖe kple woƒe sesẽ dzi akpɔtɔ. Togbɔ be MS nye dɔléle si le eƒe agbemeŋkekewo katã me eye eƒe atike aɖeke meli o hã la, ne wokpɔ egbɔ nyuie la, àte ŋu akpe ɖe viwòa ŋu wòafe ahasrɔ̃ nu evɔ womatɔ te wo o.

Gbedasi si Wotsɔ Yi Aƒeme

• Ðevimenɔɣi ƒe MS nye nɔnɔme si me dɔlélenutsiŋutete dzea myelin si le lãmekawo me dzi.
• Dzesiawo to vovo, eye woate ŋu anye ŋku ƒe kuxiwo, lãmetutudɔ, azɔlizɔzɔ sesẽ, kple ɖeɖiteameŋu.
• Woateŋu aɖu dɔlélea dzi to ekpɔkpɔ kaba kple atikewɔwɔ abe `DMT` ene me.
• Ðewohĩ ɖevia ahiã kpekpeɖeŋu bubu le suku kple gbesiagbegbenɔnɔ me, gake ɖevi akpa gãtɔ ate ŋu anɔ agbe si sɔ.
• Ne dzesi aɖewo siwo mebɔ o le viwòa ŋu la, di atikewɔlawo ƒe aɖaŋuɖoɖo enumake. Mègatsi dzodzodzoe o, ne èxɔ nyatakaka kple kpekpeɖeŋu nyuitɔ la, àte ŋu anɔ te ɖe nɔnɔme sia nu.

`Ðevimenɔɣi ƒe MS, Multiple Sclerosis, Lãmetsiŋusẽ, Myelin, Dɔlélenutsiŋutete, Dzesiwo, Atikewɔwɔ