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Nukae nye (Pineoblastoma) sia? Kpuie ko la,...
Kpuie ko la, (Pineoblastoma) nye kansa (míeyɔnae be (malignant)) dɔdzẽ si dona le (pineal gland) me le míaƒe ahɔhɔ̃ me. Kansa sia ƒomevi tsina kabakaba ŋutɔ eye ate ŋu akaka ɖe lãmeka siwo ƒo xlãe kple tsi si ƒo xlã ahɔhɔ̃a me. Esia nye nɔnɔme si nu sẽ vie.Lala vie, nukae nye pineal gland sia?
Enyo, mina míasrɔ̃ nu vi aɖe tso (Pineal Gland) sia ŋu gbã. Esia nye lãkusi sue aɖe ŋutɔ, si ƒe nɔnɔme le abe kɔnu ene, si ɖi aŋɔ si woyɔna be cashew nut. Enɔa míaƒe ahɔhɔ̃a titina. Lãmetsi sia ɖea lãmetsi aɖe si woyɔna be (Melatonin) doa goe. Ànya se (Melatonin) ŋu nya. Esiae kpena ɖe mía ŋu míeɖua míaƒe ŋutilã ƒe gbesiagbe dɔwɔna ƒe ɖoɖo dzi, si nye (circadian rhythm). Kpuie ko la, esia le abe míaƒe ŋutilã ƒe dzɔdzɔme gaƒoɖokui si kpena ɖe mía ŋu míenɔa ŋudzɔ le ŋkeke me eye míedɔa alɔ̃ le zã me ene.Kansa ƒomevi kae nye (Pineoblastoma)?
(Pineoblastoma) sia nye ahɔhɔ̃ me dɔdzẽ si le tsitsim kabakaba . Ðɔktawo ateŋu ayɔe hã be (grade 4 intracranial brain tumor). Azɔ hã, esia nye (malignant tumor), si fia be enye kansa ƒe dɔdzẽ. Esia fia be egblẽa nu le míaƒe ŋutilã ŋu eye ate ŋu akaka.Aleke gbegbee dɔléle sia si woyɔna be Pineoblastoma'' bɔe?
Le nyateƒe me la, pineoblastoma nye dɔléle si mebɔ kura o . Le United States la, wokpɔa ahɔhɔ̃meka siwo mede 0.2% o be wonye pineal gland tumors. Wokpɔa kansa sia ƒomevi zi geɖe le ɖevi suewo alo amesiwo mexɔ ƒe 20 haɖe o ŋu. Gake ele vevie be míaɖo ŋku edzi be ate ŋu adze ame sia ame si xɔ ƒe ɖesiaɖe dzi.
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Check Availability →Nukae nye dɔléle sia ƒe dzesiwo (Pineoblastoma)?
Enyo, azɔ mina míakpɔ dzesi ka ƒomevie míekpɔna ne (Pineoblastoma) sia do mo ɖa.- Àte ŋu axɔ taɖuame sesẽ aɖe . Menye taɖuame si sɔ koe esia nye o, ke boŋ enye esi nu sẽ vie.
- Ðeɖiteameŋu ƒe seselelãme ɣesiaɣi (( Ðeɖiteameŋu )) . Ðewohĩ ɖeɖi te ŋuwò ale gbegbe be màte ŋu awɔ naneke o.
- Wò ŋkuwo ʋuʋu sesẽ . Ate ŋu asesẽ gɔ̃ hã be woalé ŋku ɖe teƒe ɖeka ŋu.
- Kuxi siwo le dadasɔ kple nuwɔwɔ aduadu meEle abe màte ŋu ada asɔ ne èle zɔzɔm o, alo nuwo léle sesẽ na wò ene.
- Tɔtrɔ siwo vaa nuwɔna me . Nuwo abe dzikudodo, dzitsitsi, alo ɖoɖoezizi wu tsã ene.
- Aɖuɖɔtoe kple ʋuʋudedi .
Tsɔe be ɖevi sue aɖe le asiwò si toa nyatoƒoe le taɖuame ŋu ɣesiaɣi, mefena abe tsã ene o, eye wòdzena abe ɖe wòdoa dziku vie ene. Ðewohĩ dzilawo abui be esia sɔ. Gake ne dzesi siawo gakpɔtɔ li la, ele vevie ŋutɔ be woayi ɖɔkta gbɔ.
Nukae nye nusiwo hea (Pineoblastoma) sia vɛ?
Susu vevitɔ si tae nye be lãmenugbagbevi ƒomevi aɖe si woyɔna be pinealocyte cells'' le pineal gland si le míaƒe ahɔhɔ̃ me me tsina le mɔ si dzi womate ŋu aɖu o nu eye wògbɔa eme . Numekukuwo ɖee fia be lãmenugbagbevi siawo ateŋu adze dɔwɔwɔ gɔme le mɔ si mesɔ o nu le tɔtrɔ si va le míaƒe domenyiŋusẽfianuwo me (domenyiŋusẽfianu ƒe tɔtrɔ'') ta. Domenyiŋusẽfianu ƒe tɔtrɔ siawo ƒomevi eve li: 1. Nusiwo ƒe dome wonyi tso dzilawo gbɔ (dɔlékui ƒe tɔtrɔ'') : Esia dzɔna le fufɔɣi, si fia be ne vidadaa kple fofoa ƒe tsinyenye ƒo ƒu. 2. Wo dometɔ siwo dzɔna le vome le fufɔfɔ megbe (sporadic mutation'') : Le go sia me la, ɖewohĩ domenyiŋusẽfianu ƒe tɔtrɔ sia menɔ ƒomea me o.Amekae le afɔku gã me be wòaxɔ (Pineoblastoma)?
Ame aɖewo le afɔku me vie be woaxɔ Pineoblastoma'' sia.- Ne retinoblastoma, si nye kansa ƒomevi aɖe si dona le ŋku ƒe ŋkume ƒe ŋkume, le ŋuwò la, ke èle afɔku me be nàxɔ pineoblastoma.
- Azɔ hã, amesiwo ƒe domenyiŋusẽfianu ƒe tɔtrɔ aɖewo le (RB1) kple (DICER1) hã ate ŋu axɔ kansa sia wu . Abe alesi míegblɔe va yi ene la, woate ŋu anyi domenyiŋusẽfianu ƒe tɔtrɔ sia ƒe dome tso dzilawo gbɔ, alo ate ŋu adzɔ le vome.
Aleke wowɔna dea dzesi Pineoblastoma?
Ðɔkta dea dzesi dɔléle sia (Pineoblastoma) to wò dodokpɔ kple dodokpɔ vovovowo wɔwɔ me.- Lãmedodokpɔ : Gbã la, ɖɔktaa abia wò tso wò dzesiwo ŋu, nenye be dɔléle sia tɔgbe nɔ wò ƒomea me tɔ aɖe ŋu hã, eye wòalé ŋku ɖe alesi wò ŋkuwo ʋãnae hã ŋu.
- Dodokpɔ tɔxɛwo :
- Ahɔhɔ̃ me fotoɖeɖe (Magnetic Resonance Imaging - MRI ).
- (Computed Tomography - CT) ƒe fotoɖeɖefia aɖe.
- Ðewohĩ (Positron Emission Tomography - PET) ƒe fotoɖeɖe.
- Biopsy nye dɔdamɔnu si me woɖea lãkusi sue aɖe le dɔdzẽa me hedoa wo kpɔna. Esiae afia nenye be kansae wònye kple ƒomevi si wònye.
- Wowɔa ʋudodokpɔ kple/alo ahɔhɔ̃mekawo me tsi si ƒo xlã ahɔhɔ̃a) be woatsɔ adi dzesi ɖesiaɖe si ɖee fia be dɔdzẽ le eŋu.
Ðe woate ŋu ada (Pineoblastoma) keŋkeŋa?
Esiae nye nyabiase si le ame geɖe si. Ne míagblɔe tututu la, fifia la, atike aɖeke meli na (Pineoblastoma) o. Gake, mègatsi dzi o, atikewɔwɔmɔnu vovovowo li. Ne dɔdzẽa mekaka o la, ɖɔkta ate ŋu aɖee ɖa to amekoko me. Ke hã, (Pineoblastoma) nye kansa ƒomevi aɖe si dada sesẽ. Eyata afɔku si le kuxi siwo kansa sia me ate ŋu ado mo ɖa la lolo ŋutɔ. Dzesiawo ate ŋu agblẽ ɖe edzi le ɣeyiɣi aɖe megbe eye agbenɔƒe ate ŋu anɔ kpuie. Azɔ hã, ate ŋu adzɔ be kansa la nagatrɔ ava le atikewɔwɔ vɔ megbe.Nukae nye atikewɔwɔ na (Pineoblastoma)?
Woateŋu awɔ nusiwo gbɔna abe (Pineoblastoma) ƒe atikewɔwɔ ene:- Amekoko : Wowɔa amekoko be woaɖe dɔdzẽa ƒe akpa aɖe alo wo katã ɖa. Wò amekola aɖe nusi amekokoa ate ŋu awɔ kple afɔku siwo le eme la me na wò.
- Amekoko na Hydrocephalus : Woate ŋu ade shunt (tube sue aɖe) eme be wòaɖe ahɔhɔ̃mekawo me tsi ƒe ƒoƒo ɖe ahɔhɔ̃a ŋu dzi akpɔtɔ. Esia ɖea tsi si sɔ gbɔ ɖe eme la ɖa eye wòɖea nyaƒoɖeamenua dzi kpɔtɔna.
- Kekeli ƒe atikewɔwɔ : Esia nye atikewɔwɔ si bɔ le amekoko megbe. Kekeli ƒe atikewɔwɔ ate ŋu aɖe dɔdzẽwo dzi akpɔtɔ alo awu kansa lãmenugbagbeviwo.
- Chemotherapy : Atikewɔwɔ si wowɔna tsɔ kpe ɖe keklẽŋusẽdɔdamɔnu kple amekoko ŋu. Atikewɔwɔ ate ŋu ana dɔdzẽa naɖiɖi hafi woawɔ dɔ nɛ eye wòawu kansadɔlékui ɖesiaɖe si susɔ le amekokoa megbe.
- Atikewɔmɔnu si wozãna le agbɔsɔsɔ gã me kple autologous stem cell transplant : Le esia me la, woƒoa wò ŋutɔ wò lãmenugbagbeviwo nu ƒu hafi wowɔa atike si wozãna le agbɔsɔsɔ gã me. Emegbe le atikewɔmɔnu zazã vɔ megbe la, wogadea lãmenugbagbevi mawo wò ŋutilã me ake.
Amekawoe kpɔa gome le atikewɔwɔ siawo me?
Ne pineoblastoma le ŋuwò la, wò atikewɔlawo ate ŋu anye:- Ahɔhɔ̃ŋutinunyala ) .
- Kansaŋutinunyala (kansa ŋuti nunyala) .
- Kansaŋutinunyala si zãa keklẽŋusẽ
- Ahɔhɔ̃mekawo ƒe Dɔwɔla
Ðe atikewɔwɔa ƒe nugbegblẽ aɖewo lia?
Ẽ, atikewɔwɔ aɖewo, vevietɔ keklẽŋusẽdɔdamɔnu, ate ŋu ahe nugbegblẽ le ame ŋu vɛ. Esiawo ate ŋu akpɔ ŋusẽ ɖe wò lãmenugbagbeviwo ƒe dɔwɔwɔ dzi. Esia fia be:- Be woatsi ((Tsitsi)) .
- Ŋusẽ ƒe agbɔsɔsɔme ((Ŋusẽ ƒe agbɔsɔsɔme)) .
- Vidzidzi ((Vidzidzi)) .
Àte ŋu atsi agbe le (Pineoblastoma) mea?
Ẽ, ame aɖewo tsi agbe le Pineoblastoma me. Ƒe atɔ̃ ƒe agbetsitsi le Pineoblastoma ŋu nye 60% va ɖo 69.5% . Esia fia be amesiwo ŋu dɔlélea le ƒe 60% va ɖo 70% gakpɔtɔ le agbe le ƒe atɔ̃ megbe. Togbɔ be Pineoblastoma ate ŋu ana wò agbenɔƒe nadidi hã la, atikewɔmɔnu aɖewo li siwo ate ŋu akpe ɖe ŋuwò nànɔ lãmesẽ me eye nànɔ agbe didi wu.Nukae nye Pineoblastoma ƒe ŋgɔdonya?
Ne wokpɔ (Pineoblastoma) vɔ la, wò ɖɔkta agblɔ ŋgɔdonya na wò. Abe alesi míegblɔe va yi ene la, atike aɖeke meli na (Pineoblastoma) o, gake atikewɔmɔnu aɖewo li. Ame ƒe agbenɔƒe nɔ te ɖe nu geɖe dzi, abe wò lãmesẽ bliboa, alesi nèwɔa nu ɖe atikewɔwɔ ŋui, kple alesi dɔdzẽa le tsitsim kabakabae ene . Ne wokpɔ (Pineoblastoma) vɔ la, ahiã be nàyi ɖɔkta gbɔ edziedzi. Esia le alea elabena woalé ŋku ɖe ŋuwò be nàkpɔ nugbegblẽ le ŋuwò hã eye woawɔ nusi hiã.Ðe woate ŋu axe mɔ ɖe Pineoblastoma nua?
Nublanuitɔe la, mɔ aɖeke meli si wonya fifia si dzi woato axe mɔ ɖe Pineoblastoma nu o.Ɣekaɣie wòle be makpɔ ɖɔkta?
(Pineoblastoma) ƒe dzesiwo na wò alo viwò, siwo dometɔ aɖewoe nye:- Taɖuame
- Tɔtrɔ le nuwɔna me
- Ŋkuwo ʋuʋu sesẽ
Nya kawoe wòle be mabia nye ɖɔkta?
Ne èyi ɖɔkta gbɔ la, anyo be nàbia nya siawo tɔgbe:- Atikewɔwɔ ka ƒomevie nèkafu?
- Ðe kansa la kakaa?
- Ðe wòhiã be woawɔ dɔ nam?
- Nukawoe nye atikewɔwɔa ƒe nugbegblẽ le ame ŋu?
- Nukae nye nye agbenɔƒe alo nusi megblɔ ɖi?
Gbedasi si Wotsɔ Yi Aƒeme
- Pineoblastoma nye kansa si mebɔ o gake wòtsina kabakaba, eye wòdzɔna le ahɔhɔ̃a ƒe pineal gland me.
- Dzesiwo abe taɖuame, ŋku ƒe kuxiwo, dadasɔ ƒe anyimanɔmanɔ, kple nuwɔna ƒe tɔtrɔ ate ŋu ado mo ɖa. Esiawo ate ŋu atso tsi si woyɔna be hydrocephalus (tsi ƒe ƒuƒoƒo ɖe ahɔhɔ̃a dzi) gbɔ .
- Zi geɖe la, domenyiŋusẽfianu gbɔe nusi gbɔ wòtsona. Ame siwo ŋu (Retinoblastoma) le kple amesiwo ŋu (RB1) kple (DICER1) domenyiŋusẽfianu ƒe tɔtrɔ le la le afɔku gã aɖe me.
- Wowɔa dodokpɔwo abe MRI, CT scan, kple biopsy ene tsɔ dea dzesi dɔlélea.
- Togbɔ be womate ŋu adae bliboe o hã la, atikewɔmɔnu aɖewo li abe amekoko, keklẽŋusẽdɔdamɔnu, kple atikewɔmɔnu ene.
- Ne dzesiwo le ŋuwò la , di atikewɔlawo ƒe aɖaŋuɖoɖo enumake . Mègavɔ̃ be yeabia nya o.
- Togbɔ be nɔnɔme sesẽ aɖee nye esia hã la, dze ŋgɔ atikewɔwɔ kple mɔkpɔkpɔ kple ŋusẽ . Menye wò ɖeka koe o.
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