Ðe nèle teƒe dzĩ siwo le gota ɣeaɖewoɣi la kpɔm le wò kɔ, akɔta, akɔta, alo abɔwo ŋua? Ðe wole ƒuƒlu, ƒunukpeƒetetedɔ, kple ƒuƒuiea? Ame geɖe tsi dzi ɖe nɔnɔme sia ŋu. Enye nusi sɔ be nàbia ɖokuiwò be ɖe ŋutigbalẽ ƒe dɔléle si bɔ ko loo alo nane si nu sẽ wu hã. Egbea, míaƒo nu tso Subacute Cutaneous Lupus Erythematosus, alo SCLE kpuie, si nye lupus ƒomevi aɖe si gblẽa nu le ŋutigbalẽ ŋu ko ŋu. Ne ènya nya esia nyuie ko la, anɔ bɔbɔe na wò ŋutɔ be nàkpɔ nɔnɔme sia gbɔ.
Kpuie ko la, nukae nye SCLE?
Enyo, mina míagblɔ nya sia kpuie. SCLE nye dɔléle aɖe si le dɔlélewo ƒe hatsotso aɖe si woyɔna be lupus me, eye ŋutigbalẽa koŋue wògblẽa nu le. Lupus nye dɔléle si dzɔna le kuxi aɖe si le míaƒe ŋutilã ƒe dɔlélenutsiŋutete ŋu ta. Zi geɖe la, míaƒe dɔlélenutsiŋutete wɔa avu kple dɔlékui siwo hea dɔléle vɛ. Gake le nɔnɔme si le abe lupus ene me la, nuɖoanyi sia dzea mía ŋutɔwo ƒe lãmenugbagbevi siwo le lãmesẽ me dzi dzedze gɔme vodadatɔe.
SCLE nye lupus ƒomevi aɖe si gblẽa nu le ŋutigbalẽ ŋu. Ðɔktawo yɔe be Cutaneous Lupus Erythematosus (CLE) ƒe dɔléle. Nya "Subacute" fia dɔdzẽ ƒomevi si wokpɔna le ŋutigbalẽ ƒe lãmenugbagbeviwo ɖeɖe me, si nye ŋutigbalẽ ƒe akpa sue aɖe si woɖe hedoe kpɔ.
Vevietɔ la, lupus dɔléle si bɔ wu, si nye Systemic Lupus Erythematosus, alo SLE , hã le amesiwo ŋu SCLE le ƒe afã lɔƒo ŋu. SLE nye dɔléle si ate ŋu agblẽ menye ŋutigbalẽ ɖeɖeko o, ke ate ŋu agblẽ nu le ŋutinu ememetɔwo abe ayiku, dzi, kple ahɔhɔ̃ hã ŋu. Eyata ele vevie be nàƒo nu kple ɖɔkta ne SCLE ƒe dzesiwo le ŋuwò.
Alesi dɔléle sia gblẽa nu le amesiame ŋu ate ŋu ato vovo, eyata ate ŋu asesẽ vie be woakpɔe. Nu vevitɔe nye be nàdi ɖɔkta si aɖo to wò eye wòadi atike si sɔ na wò.
Nukawoe nye SCLE ƒomevi veviwo?
Woate ŋu akpɔ SCLE le mɔ vevi eve nu. Esiawo evea siaa ƒe dzedzeme to vovo vie. Na míakpɔ nusiwo wonye ɖa.
| SCLE ƒe ƒomevi | Dzedzeme kple nɔnɔmewo |
|---|---|
| Annular SCLE ƒe ƒuƒoƒo | Ŋutilã ƒe nɔnɔme sia ƒomevi nana be ŋutigbalẽa ƒe amadede dzĩ, ʋuʋudedi, goglo, alo asigɛ ƒe nɔnɔme (plaques) dzena le ŋutigbalẽa ŋu. Teƒe siawo dzena zi geɖe le teƒe siwo ŋdɔ ʋuna le. Ne lãgbalẽgoe siawo haya vɔ la, ŋutigbalẽ si le teƒe mawo ate ŋu azu ɣie vie. Ðɔktawo yɔa esia be amadede ƒe ɖiɖi . |
| Papulosquamous SCLE ƒe lãkusi | Ŋutilã ƒe ʋuʋudedi sia ƒomevi ƒe dzesi enye ʋuʋudedi suesuesuewo kple ʋuʋudedi ƒe dzedzeme ƒokpli. Ne èkpɔe gbã la, ate ŋu aɖi eczema alo psoriasis. Ɣe ƒe keklẽ koŋ hã nana ƒomevi sia gagblẽna ɖe edzi . |
Nukae nye SCLE ƒe dzesiwo?
SCLE ƒe dzesi vevitɔe nye ŋutigbalẽ ƒe ʋuʋu. Wokpɔa esiawo zi geɖe le wò ŋutilã ƒe akpa siwo ŋdɔ ʋuna zi geɖe, abe kɔ, akɔta, akɔta, kple abɔwo ene.
Nusiwo gblẽ sia ate ŋu anɔ abe esia ene:
- Teƒe siwo le dzo dam, siwo le abe asigɛ ene, siwo le abe dzogoe ene. Ɣeaɖewoɣi la, asigɛ siawo te ŋu doa ka kple wo nɔewo eye wodzena abe nɔnɔmetata gã aɖe ene.
- Ŋutilã dzĩ, si me ʋuʋudedi le, ƒuƒui, si me ʋuʋudedi le. Zi geɖe la, esia dzena abe psoriasis ene.
Akpa nyuitɔ kekeakee nye be, zi geɖe la, teƒe siawo meɖea ʋuʋudedi alo gblẽa abi o . Gake ŋutigbalẽ ƒe amadede ate ŋu anɔ tɔtrɔm ne teƒeawo haya.
Nukawoe nye nusiwo nana SCLE ƒe dɔlélea dzɔna?
Esesẽ be woade dzesi nu ɖeka aɖe si gbɔ SCLE tsona. Enye nya sesẽ aɖe. Numekulawo xɔe se be nu geɖewo va ƒo ƒu hea esia vɛ.
- Domenyiŋusẽfianu: Esia fia be domenyiŋusẽfianu ate ŋu anɔ ƒomedodo aɖe me. Ne lupus le wò ƒomea me tɔ aɖe ŋu la, àte ŋu aɖo afɔku me hã.
- Nusiwo le nutoa me: Esiawo dometɔ vevitɔe nye keklẽŋusẽ si woyɔna be ultraviolet radiation , si nye ɣe ƒe keklẽ. Tsɔ kpe ɖe eŋu la, woxɔe se be nusiwo le abe atamanono kple nudzodzoeviwutikewo ene hã ate ŋu akpɔ ŋusẽ ɖe amewo dzi.
- Atike aɖewo: Ame siwo ŋu SCLE le la dometɔ siwo ade akpa etɔ̃lia xɔa dɔlélea le atike aɖewo nono vɔ megbe. Woyɔa esia be "Atikewo zazã ƒe SCLE."
| Atike aɖewo siwo ate ŋu ahe SCLE vɛ |
|---|
| Atike siwo tsia fungi nu |
| Atike aɖewo siwo wozãna tsɔ tsia alɔ̃madɔmadɔ nu |
| Ʋu ƒe sisi ƒe atike aɖewo, le kpɔɖeŋu me, ACE inhibitors |
| Atike siwo wozãna tsɔ daa dɔlékuiwoe |
| Atike aɖewo siwo wozãna tsɔ daa dɔgbo ƒe dɔléle (Proton pump inhibitors - PPIs) . |
| Atike aɖewo siwo wozãna tsɔ daa dɔlélewo abe ƒunukpeƒetetedɔ (tumor necrosis factor inhibitors) . |
Amekawoe le afɔku gã me be woaxɔ SCLE?
- Edzɔna ɖe nyɔnuwo dzi wu ŋutsuwo.
- Wokpɔnɛ zi geɖe le amesiwo xɔ tso ƒe 40 va ɖo ƒe 60 ŋu .
- Togbɔ be ebɔ ɖe yevuwo me wu hã la, nɔnɔme sia ate ŋu adzɔ le ameƒomevi ɖesiaɖe me.
Dɔlélea didi kple edada
Ne dzesi siawo le ŋuwò la, nu gbãtɔ si wòle be nàwɔe nye be nàyi ɖɔkta gbɔ. Woate ŋu aɖo wò ɖe ŋutigbalẽŋutinunyala alo lãmekaŋutinunyala gbɔ.
Aleke woawɔ anya dɔlélea?
Ðɔktaa alé ŋku ɖe wò ŋutigbalẽ ŋu ahabia wò dzesiwo ŋuti nya wò. Emegbe woate ŋu awɔ dodokpɔ siwo gbɔna atsɔ aɖo kpe dɔlélea dzi:
- Ŋutilã ƒe lãmenugbagbeviwo ɖeɖe: Esia bia be woaɖe ŋutigbalẽ sue aɖe ŋutɔ tso ʋuʋudedi si le wò ŋutigbalẽ dzi me le atike si naa alɔ̃dɔdɔ ame me eye woadoe kpɔ le nusuekpɔmɔ̃ me. Esia ate ŋu akpe ɖe ame ŋu wòanya nenye be SCLE alo ŋutigbalẽ ƒe nɔnɔme bubu aɖe gbɔe ʋuʋudedia tso.
- Ʋudodokpɔ: Woate ŋu awɔ ʋudodokpɔ geɖe.
- Ʋu ƒe xexlẽme bliboa (CBC) .
- Sed rate (ESR) kple C-reactive protein (CRP) - Esiawo léa ŋku ɖe dɔdzẽ le ŋutilã me ŋu.
- Antinuclear antibody (ANA) dodokpɔ: Esia nye dodokpɔ vevi aɖe ŋutɔ le lupus didi me.
- Ayiku kple Aklã ƒe dɔwɔwɔ dodokpɔ
- Aɖuɖɔtoe me dzodzro
Aleke wowɔa atike na SCLE?
Nu vevitɔ kekeake kple xexlẽdzesi ɖeka le SCLE dada me enye ɣe ƒe ametakpɔkpɔ , elabena ɣe ƒe keklẽe nye nu vevitɔ si nana dɔléle sia gasẽna ɖe edzi.
Tsɔ kpe ɖe eŋu la, wò ɖɔkta ate ŋu aɖo aɖaŋu na wò be nàzã atike siwo nàzã ɖe lãme na ame alo atike siwo nàno le alesi wò dzesiawo nu sẽe nu.
| Atikewɔwɔ ƒe ƒomevi | Kpɔɖeŋuwo (le atikewɔlawo ƒe atikewɔmɔnu dzi ko) . |
|---|---|
| Steroid siwo wozãna ɖe lãme na ame | Hydrocortisone, Triamcinolone, Klobetasol, kple ʋumenugbagbeviɣidɔ |
| Atike bubu siwo wozãna ɖe ŋutigbalẽ ŋu (Topical calcineurin inhibitors) . | Tacrolimus, si nye Pimecrolimus, si nye atike si woyɔna be Pimecrolimus |
| Asrãtike siwo woano | Hydroxychloroquine, Kloroquine ƒe atike |
| Atike siwo wozãna tsɔ tsia dɔlélenutsiŋutete nu | Methotrexate, si nye Azathioprine ƒe atike |
| Atike ƒomevi bubuwo | Dapsone, Retinoids, Dɔlékuiwutike siwo nye Monoclonal (IVIG, Rituximab) . |
Nuxlɔ̃ame: Mègazã atike siawo dometɔ aɖeke atikewɔlawo ƒe aɖaŋuɖoɖo manɔmee o. Wò ɖɔkta koe ate ŋu anya atike nyuitɔ kekeake na wò.
Aleke woawɔ anɔ agbe kple SCLE?
SCLE nye dɔléle si nɔa ame ƒe agbemeŋkekewo katã me (si nɔa anyi didi). Esia fia be dzesiawo ate ŋu adzi ɖe edzi ɣeaɖewoɣi eye woaɖe wo dzi akpɔtɔ ɣeaɖewoɣi. Ke hã, woate ŋu aɖu edzi nyuie eye àte ŋu anɔ agbe si sɔ.
Ɣe ƒe takpɔkpɔe nye xexlẽdzesi gbãtɔ!
Esiae nye nu vevitɔ kekeake si nàte ŋu awɔ.
- Zã ɣe ƒe keklẽŋusẽtike si ƒe dɔwɔwɔ keke ta si ƒe SPF 50 alo esi wu nenema gbesiagbe ne èdo go le ŋdɔ me . Esia nye nusi wòle be woawɔ, le ŋkeke siwo dzi alilikpowo le dodom gɔ̃ hã dzi.
- Ƒo asa na ŋdɔkutsu dzatsɛ le ŋdi ga 10 kple fiẽ ga 4 dome.
- Ne èdo go le ŋdɔ me la, do awu siwo akpɔ ŋdɔkutsu ta, abe kposɔ si ƒe alɔwo keke kple awu siwo ƒe abɔwo didi ene.
- Dzudzɔ abati siwo wotsɔna ƒoa lãgbalẽe zazã keŋkeŋ.
Beléle na ɖokuiwò nyuie hã nye atike!
- Se dɔlélea gɔme: Xlẽ nu tso dɔléle sia ŋu tso teƒe siwo ŋu kakaɖedzi le eye nàfia nu ɖokuiwò. Esia ana nàse nusiwo le dzɔdzɔm le wò ŋutilã me gɔme nyuie wu.
- Di ɖɔkta si dzi nèka ɖo: Ðewohĩ ahiã be nàyi ɖɔkta gbɔ edziedzi, eyata yi edzi nàdi atike tso ɖɔkta si ɖoa to wò eye wòsea nu gɔme na wò la gbɔ.
- Tu kpekpeɖeŋunaɖoɖo aɖe ɖo: Nuƒoƒo na amesiwo le nɔnɔme ma tɔgbe me kple wò nuteƒekpɔkpɔwo gbɔgblɔ ana ŋusẽ geɖe nanɔ ŋuwò le susu me.
- Lé be na ɖokuiwò: Ƒo nu nyuie, de kame, dɔ alɔ̃ nyuie, eye nàɖu nuteɖeamedzi dzi. Nu siawo akpe ɖe ŋuwò ŋutɔ be nàɖu dɔlélea dzi.
Esi wònye be SCLE le ŋuwò eye wòhiã be nàkpɔ ɖokuiwò ta tso ŋdɔkutsu nu geɖe ta la, àte ŋu adze vitamin D ƒe agbɔsɔsɔ si mede ame dzi o gɔme . Anyo be nàƒo nu tso esia ŋu kple wò ɖɔkta eye nàno vitamin D ƒe kpeɖeŋutɔ ne ehiã.
Gbedasi si Wotsɔ Yi Aƒeme
- SCLE nye agbemedɔléle si gblẽa nu le ŋutigbalẽ ŋu le lupus me.
- Dzesi vevitɔe nye ŋutigbalẽ si le ŋdɔ me ƒe dzedzeme biã, si le abe asigɛ ene, alo ʋuʋudedi.
- Ɣe ƒe takpɔkpɔe nye afɔɖeɖe vevitɔ kekeake kple gbãtɔ si woatsɔ aɖu dɔléle sia dzi.
- Zi geɖe la, teƒe siawo meʋãna alo hea abi vɛ o, gake woate ŋu agblẽ ŋutigbalẽ ƒe amadede ɖi.
- Ne dzesi siawo le ŋuwò la, mègatsi dzodzodzoe eye nàkpɔ ɖɔkta kaba ale si nàte ŋui o. Ne wowɔ atike na wò nyuie hekpɔ egbɔ nyuie la, àte ŋu anɔ agbe si sɔ.
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