Ke hiamoe koke nei ʻoe i ke ao? Hiki paha kēia (Narcolepsy)! E kamaʻilio kākou e pili ana i kēia

Ua manaʻo paha ʻoe i ka hiamoe nui ʻole i ka wā e hana ana i ke ao a i ʻole e kamaʻilio pū ana me nā hoaaloha? Manaʻo paha ʻoe, "ʻAuē... ʻaʻole lawa kaʻu hiamoe i ka pō nei." Akā, ʻaʻole ia he hihia luhi wale nō. I kēia lā, e kamaʻilio mākou e pili ana i kahi ʻano pilikia hiamoe ʻokoʻa iki. He ʻano ia i kapa ʻia ʻo Narcolepsy . ʻOiai ʻaʻole ia he mea maʻamau, he mea ia i lohe ʻia e ka poʻe he nui ma muli o nā hōʻailona e pili ana me ia . Hiki ke mālama ʻia, akā hiki iā ia ke loaʻa ka hopena nui i kou ola, ka hana, a me nā pilina pili kanaka.

He aha ka Narcolepsy?

I ka ʻōlelo maʻalahi, ʻo Narcolepsy kahi maʻi neurological e hoʻoulu ai i ka hiamoe koke a hiki ʻole ke kāohi ʻia i ke ao. ʻO ke kikoʻī, ʻaʻole hiki i kou lolo ke hoʻoponopono pono i ka hiamoe a me ke ala ʻana. Hiki i kēia ke hoʻolilo iā ʻoe e hiamoe nui i ke ao, ʻaʻohe mea i ka nui o ka hiamoe āu e loaʻa ai i ka pō.

He aha nā hōʻailona nui o ka Narcolepsy?

ʻEhā mau hōʻailona nui o ka Narcolepsy. Akā, ʻaʻole i loaʻa i ka hapa nui o ka poʻe nā ʻehā i ka manawa hoʻokahi. Loaʻa paha i kekahi poʻe hoʻokahi a ʻelua paha. E nānā kākou i kēia mau hōʻailona.

• Ka Hiamoe Nui i ke Ao : He hōʻailona maʻamau kēia o ka Narcolepsy. Ua like ia me ka loaʻa ʻana o kahi "hoʻouka hiamoe" kahi e hiamoe koke ai ʻoe. ʻAʻohe mea āu e hana nei, manaʻo ʻoe e kū a hiamoe.
• Cataplexy: He nalowale koke kēia o ke kaohi ʻana o nā ʻiʻo . I kekahi manawa hiki ke maʻalahi, e like me ka ʻūlū ʻana o nā ʻiʻo ma kekahi ʻaoʻao o ka maka a i ʻole ka ʻāʻī. Inā koʻikoʻi, hiki iā ʻoe ke hāʻule koke i ka honua. E kamaʻilio kākou e pili ana i kēia me nā kikoʻī hou aku.
• Nā hallucinations pili i ka hiamoe : ʻO kēia nā hallucinations e kū mai ana i ka wā e hiamoe ana ʻoe a i ʻole ʻoe e ala ana, a hiki iā lākou ke hoʻoweliweli loa.
• ʻO ka maʻi hiamoe : Ua lohe paha ʻoe i kēia me he "makaʻu i loko o ka moeʻuhane a hiki ʻole ke neʻe" a i ʻole e like me ka ʻōlelo a kekahi, "manaʻo e like me ka piʻi ʻana o kahi daimonio." ʻO kēia ka wā hiki ʻole iā ʻoe ke hoʻoneʻe i kou kino ʻoiai ke ala ʻoe, a i ʻole ʻaʻole paha i ala piha. E nānā hou aku kākou i kēia.

He mea hou aku e pili ana i (Cataplexy)

Ua ʻōlelo mua mākou ʻo ka cataplexy ka nalowale koke ʻana o ka ikaika o nā ʻiʻo. Ua māhele ʻia ka Narcolepsy i ʻelua ʻano nui ma muli o ka loaʻa ʻana o kēia hōʻailona cataplexy:

• (ʻAno Narcolepsy 1) : Loaʻa i kēia ʻano ka hōʻailona o (Cataplexy) . Ma kahi o 20% o nā maʻi (Narcolepsy) no kēia ʻano.
• (Narcolepsy ʻAno 2) : ʻAʻohe hōʻailona o kēia ʻano (Cataplexy) . ʻO ka hapa nui, ʻo ia hoʻi, ma kahi o 80%, e hāʻule ana i loko o kēia ʻano.

ʻO ka maʻamau, ke hiamoe kākou, hoʻōki nui ko kākou lolo i ka kaohi ʻana i ko kākou mau ʻiʻo i ʻole kākou e hana ma muli o kā kākou mau moeʻuhane. Loaʻa i ka poʻe me ka cataplexy ka nalowale koke o nā ʻiʻo, e like me ka mea i ʻike ʻia i ka wā hiamoe REM, ʻoiai ke ala lākou.

I nā hihia palupalu, hiki i ka cataplexy ke hoʻopilikia wale i nā ʻiʻo o ka maka a me ka ʻāʻī - no ka laʻana, hiki ke kūlou ka ʻāwae. A i ʻole e hoʻopilikia paha i hoʻokahi ʻaoʻao o ke kino. I nā hihia koʻikoʻi, hiki i ka cataplexy ke hoʻoulu i ka hiolo koke ʻana, hiki ke make. ʻO ka maʻamau, he mau minuke kēia mau hanana, akā ʻaʻole paha ʻoe e hiki ke ʻōlelo a neʻe paha i kēia manawa.

ʻO kekahi mea kūikawā e pili ana i ka cataplexy, hiki ke hoʻāla ʻia e kekahi mau manaʻo . Hiki ke hana kūikawā ʻia i ka wā e hauʻoli ai ʻoe, e ʻakaʻaka ana, a e hoʻohenehene ana paha. Hiki nō hoʻi ke hana ʻia i ka wā e kahaha ai, makaʻu, a huhū paha ʻoe, akā ʻaʻole ia he mea maʻamau.

Hiki ke ʻano ʻokoʻa iki ka Cataplexy i nā keiki a me ka poʻe i piha i ʻeono mahina ke ʻike mua ʻia nā hōʻailona. Hiki iā lākou ke ʻū koke, e kīkoʻo i ko lākou alelo, a i ʻole e ʻike i ka nāwaliwali o nā ʻiʻo i pili ʻole i ka manaʻo.

He mea hou aʻe e pili ana i ka maʻi hiamoe

Ke hiamoe kākou, e pau ka lolo i ka hoʻomalu ʻana i ko kākou mau ʻiʻo i ʻole lākou e hana ma muli o nā mea a kākou e ʻike ai i loko o kā kākou mau moeʻuhane. Akā, ke ala kākou, pono e hana pono hou kēia kaohi. Akā, inā loaʻa iā ʻoe ka maʻi hiamoe, ʻaʻole e loaʻa hou i kou kino kēlā kaohi ʻana i kou mau ʻiʻo. Hiki iā ʻoe ke hanu a hoʻoneʻe i kou mau maka, akā, ʻaʻole hiki iā ʻoe ke kamaʻilio a hoʻoneʻe paha i nā ʻāpana ʻē aʻe o kou kino.

He mea maʻamau loa nā hallucinations i ka wā hiamoe maʻi. Hiki iā lākou ke ʻike maopopo ʻia, i kekahi manawa he mea weliweli loa ia. ʻO ka mea pōmaikaʻi, ʻo ka hiamoe maʻamau ka lōʻihi no kekahi mau minuke (ʻoiai hiki ke manaʻo ʻia he lōʻihi ka manawa i ka mea e ʻike nei).

Aia kekahi mau hōʻailona ʻē aʻe?

Ma waho aʻe o nā hōʻailona nui ʻehā, hiki i ka poʻe me ka narcolepsy ke ʻike i kekahi mau hōʻailona a me nā ʻano hana ʻē aʻe. ʻO kekahi o lākou:

• Nā Neʻe ʻAkomi : Hiki i ka poʻe me ka narcolepsy ke hoʻomau i ka hoʻoneʻe ʻana i nā ʻāpana kino, e like me ko lākou mau lima, ʻoiai ke hiamoe lākou.
• Amnesia a i ʻole Poina : He mea maʻamau i kēia poʻe ke poina i kā lākou hana ma mua o ka hiamoe ʻana.
• Nā pahū koke/ʻōlelo i ka wā hiamoe : Hiki i ke kanaka me ka narcolepsy ke ʻōlelo koke i kahi mea (pinepine he mea lapuwale a pili ʻole paha i ka manawa). Ke hana ʻia kēia, hiki iā lākou ke ala hou. Akā, ʻaʻole pinepine lākou e hoʻomanaʻo.

ʻO wai ka mea i loaʻa i ka narcolepsy? Pehea ka maʻamau?

ʻO ka maʻamau, ʻike nā kauka i ka narcolepsy i nā poʻe ma waena o 5 a me 50 mau makahiki. Eia nō naʻe, ʻoi aku ka maʻamau i ka wā ʻōpio , ma waena o 18 a me 25 mau makahiki. ʻOi aku ka nui o ka loaʻa ʻana o ke kūlana i nā kāne.

ʻAʻole ʻo ka Narcolepsy kahi maʻi maʻamau.Ua hōʻike ʻia ma waena o 25 a me 50 no 100,000 poʻe o ka honua holoʻokoʻa i loaʻa iā ia. Eia nō naʻe, no ka mea he mau makahiki e ʻike ai i ka maʻi, he paʻakikī ke ʻōlelo pololei i ka nui o ka poʻe i loaʻa maoli iā ia.

Pehea ka hopena o ka Narcolepsy i koʻu kino?

I mea e maopopo ai i ka narcolepsy, he mea kōkua ke ʻike iki e pili ana i ke ʻano o ka hana ʻana o kā mākou hiamoe. Aia kekahi mau pae nui o kā mākou hiamoe:

• Pae 1: Hiamoe Māmā . He pae pōkole kēia. Hoʻomaka ia i ka wā e hiamoe ai ʻoe. He 5% ia o kāu hiamoe holoʻokoʻa.
• Pae 2: Hiamoe Hohonu . He hohonu iki kēia. He 45%-50% ia o ka hiamoe holoʻokoʻa (e piʻi ana kēia nui i ko kākou ʻelemakule ʻana).
• Pae 3: Hiamoe Nalu Lohi . Ma kahi o 25% o ka hiamoe holoʻokoʻa (e emi ana kēia me ka ʻelemakule). He mea paʻakikī loa ke hoʻāla i kekahi i kēia pae. Inā ʻoe e hoʻāla koke iā lākou, e komo lākou i loko o kahi kūlana o ka noe noʻonoʻo i kapa ʻia ʻo "sleep inertia". ʻO ka hiamoe hele wāwae a me ke kamaʻilio hiamoe e hana pū ʻia i kēia pae.
• Hiamoe (REM) : ʻO (REM) ke kū nei no (Rapid Eye Movement) , ʻo ia hoʻi ke neʻe wikiwiki nei nā maka. I loko o kēia pae a mākou e moeʻuhane ai. Ke hiamoe nei ke kanaka (REM), hiki iā ʻoe ke ʻike i nā maka e neʻe ana ma lalo o nā lihilihi maka.

Inā ʻaʻohe ou narcolepsy, ke hiamoe ʻoe, hoʻomaka ʻoe ma ke kahua 1, a laila hele i nā kahua 2 a me 3. Hoʻololi ʻoe ma waena o kēia mau kahua, a laila komo i ka hiamoe REM, kahi e hoʻomaka ai ʻoe e moeʻuhane. Ma hope o ke kaʻina REM mua, hoʻomaka ʻoe i kahi kaʻina hou a hoʻi i ke kahua 1 a i ʻole 2. ʻO ka maʻamau, hoʻokahi kaʻina ma kahi o 90 mau minuke. Hele ka hapa nui o ka poʻe ma kahi o ʻehā a ʻelima mau kaʻina i kēlā me kēia pō (inā hiamoe lākou no 8 mau hola).

Akā inā loaʻa iā ʻoe ka narcolepsy, ʻaʻole like kēlā me kāu pōʻaiapuni hiamoe. Akā, hele ʻoe i ka hiamoe REM kokoke i kou hiamoe ʻana . I ka pō holoʻokoʻa, hiamoe ʻoe i nā manawa pōkole, pinepine me ka hoʻopau ʻole ʻana i ke kaʻina hiamoe maʻamau.

I loko o ka narcolepsy, ʻaʻohe mea pehea kou hiamoe maikaʻi i ka pō, manaʻo ʻoe i ka hiamoe nui i ke ao. He mea paʻakikī loa ke hoʻōki i ka hiamoe ʻana. Akā, he pōkole nō hoʻi kēia hiamoe e hiki mai ana i ke ao (ma kahi o 15-30 mau minuke). Ke ala ʻoe, manaʻo ʻoe ua hou a mākaukau e hana hou i kāu mea i hana ai ma mua. Eia naʻe, no ka mea, hana pinepine kēia i ka lā, lilo ka narcolepsy i mea hoʻopilikia i kou ola.

He aha nā kumu o ka narcolepsy?

ʻOkoʻa nā kumu o ka narcolepsy ma muli o ke ʻano o ka narcolepsy āu e loaʻa ai, akā pili lākou āpau i kahi wahi kūikawā o kou lolo i kapa ʻia ʻo ka hypothalamus , ka mea e kaohi ana i ka hiamoe a me ke ala ʻana.

Nā kumu o (ʻAno 1 Narcolepsy)

I ka makahiki 1998, ua ʻike nā kānaka noiʻi i kahi kemika i kapa ʻia ʻo orexins (i kekahi manawa i kapa ʻia ʻo hypocretins) . Hoʻohana ʻia kēia mau mea e kekahi mau neurons (nā pūnaewele lolo) e hoʻouna i nā leka. Aia nā neurons e hoʻohana ana i nā orexins ma kahi ʻāpana o ka lolo i kapa ʻia ʻo hypothalamus. ʻO kēia mau neurons nā mea e kōkua nui iā mākou e ala.

ʻIke pinepine ʻia nā pae Orexin i loko o ka wai cerebrospinal (CSF) - ka papa lahilahi o ka wai e hoʻopuni ana i ka lolo a me ke kaula spinal. Eia nō naʻe, i ka poʻe me ka narcolepsy, haʻahaʻa loa a ʻike ʻole ʻia paha nā pae orexin i loko o ka CSF. ʻO ke ʻano kēia ua pau ka hana ʻana o nā cell e hana ana i ka orexin a ua luku ʻia paha e kekahi mea.

Hōʻike kekahi mau noiʻi ʻē aʻe ʻo ke kumu o ka hana ʻole ʻana o kēia mau neurons he pilikia autoimmune paha. ʻO ke ʻano kēia, hoʻouka ka ʻōnaehana pale ponoʻī o kou kino i nā neurons e hana a hoʻohana i ka orexin, a i ʻole ka orexin ponoʻī, a i ʻole nā ​​​​mea ʻelua.

Ma kahi o 90%-95% o ka poʻe me ka Type 1 Narcolepsy he ʻano hoʻololi genetic kikoʻī e hoʻopilikia ai i kā lākou ʻōnaehana pale (i ʻike ʻia ʻo HLA-DQB1 * 06:02 ). Eia nō naʻe, ma kahi o 25% o ka heluna kanaka maʻamau i loaʻa kēia ʻano hoʻololi akā ʻaʻohe o lākou Narcolepsy. No laila, ʻaʻole hoʻāʻo nā loea no kēia ʻano hoʻololi, a ʻaʻole maopopo iā lākou ke kuleana e pāʻani ai. Aia kekahi mau hōʻike e hiki ke holo ke ʻano i loko o nā ʻohana. Inā loaʻa i kahi hoahānau mua (makua, kaikaina, keiki) ka Narcolepsy, ua piʻi aʻe kou pilikia o ka loaʻa ʻana iā ia.

Eia nō naʻe, hiki i ka Type 1 Narcolepsy ke ulu ma hope o kekahi mau maʻi viral a me bacteria, ʻoiai nā virus influenza e like me ka H1N1 influenza a me nā bacteria e hoʻoulu ai i ka strep throat. Manaʻo nā loea he kumu paha kēia no ka mea hiki i nā maʻi ke hoʻololi a hana hewa i ka ʻōnaehana pale.

Nā kumu o (ʻAno 2 Narcolepsy)

ʻOiai ua nui ka ʻike e pili ana i nā kumu o ka Type 1 Narcolepsy, ʻaʻole nui ka ʻike e pili ana i ka Type 2 Narcolepsy. ʻAʻole maopopo loa i nā loea ke kumu o ka ulu ʻana o ka Type 2 Narcolepsy. Akā manaʻo lākou he mau kumu like paha. No ka laʻana, hiki ke ma muli o ka hōʻino iki ʻole i nā neurons e hoʻohana ana i ka orexin, a i ʻole kahi pilikia me ke ʻano o ka hele ʻana o ka orexin i loko o ka lolo.

Narcolepsy Lua

I nā hihia kakaikahi, hiki ke hana ʻia ka narcolepsy e ka hōʻino ʻana i kou hypothalamus. Hiki ke hana ʻia kēia hōʻino e nā mea e like me nā ʻeha poʻo (concussions), nā ʻeha lolo traumatic (nā ʻeha lolo traumatic), nā hahau, a me nā puʻupuʻu lolo.

Hiki i ka Narcolepsy ke lilo i hōʻailona o nā kūlana ʻē aʻe i pili ʻole i loaʻa paha iā ʻoe.

• (ʻO Autosomal Dominant Cerebellar Ataxia, Narcolepsy a me ke kuli (ADCADN))
• (Autosomal Dominant Narcolepsy, Type 2 Diabetes a me ka momona)

He maʻi laha anei ka Narcolepsy?

ʻAʻole, ʻaʻole he maʻi lele ka Narcolepsy. ʻAʻole hiki iā ʻoe ke loaʻa mai kekahi mea ʻē aʻe, ʻaʻole hiki i kekahi ke loaʻa mai iā ʻoe.

Pehea e ʻike ai i ka narcolepsy?

Hiki i kāu mau hōʻailona ke alakaʻi i ke kauka e kānalua he narcolepsy kou. Eia nō naʻe, ua like nā hōʻailona o ka narcolepsy me nā maʻi lolo a me ka hiamoe ʻē aʻe. No laila, he mea nui e ʻike inā he narcolepsy kou.Hiki ke hana ʻia kahi maʻi ʻike maopopo ma o nā hoʻokolohua diagnostic kikoʻī wale nō.

Ma mua o ka hana ʻana i nā hoʻokolohua nui no ka narcolepsy, e nānā mua ke kauka e ʻike inā lawa kou hiamoe. Hana pinepine ʻia kēia me ka hoʻohana ʻana i nā ʻano maʻalahi e nānā i kāu mau ʻano hiamoe-ala. ʻO kahi laʻana, ʻo ia ka actigraphy . Pili kēia i ka hoʻohana ʻana i kahi mea hana, e like me ka uaki lima, e nānā i kāu mau ʻano neʻe (e like me kou wā hiamoe a me kou wā ala a neʻe).

He aha nā hoʻokolohua i hoʻohana ʻia e ʻike ai i ka narcolepsy?

Aia kekahi mau hoʻokolohua e hiki ke hana ʻia e ʻike ai i ka narcolepsy:

• Haʻawina Hiamoe ((Haʻawina Hiamoe - Polysomnogram)) : Hoʻohana kēia hoʻāʻo i nā ʻike like ʻole e nānā i ke ʻano o kou hiamoe ʻana. ʻO ka mea nui i loko o kahi haʻawina hiamoe piha, ʻo ia hoʻi, he polysomnogram ((Polysomnogram)) ʻo ia ka hoʻohana ʻana i nā mea ʻike (EEG) . Nānā kēia mau mea ʻike i kou mau nalu lolo ((Nā Nalu Lolo)). Hiki i kēia i nā kauka ke ʻike i ke kahua o ka hiamoe āu i loko o kēlā me kēia minuke. ʻO ka poʻe me (Narcolepsy) e hāʻule i loko o ka hiamoe (REM) ʻoi aku ka wikiwiki ma mua o ka poʻe maʻamau, no laila hiki i kēia hoʻāʻo ke ʻike. Hoʻopaʻa pū ia i nā manawa e ala ai lākou i waenakonu o kā lākou hiamoe. ʻO kekahi kumu he mea nui kēia hoʻāʻo, ʻo ka hiamoe nui i ke ao hiki ke lilo i hōʻailona o kahi maʻi i kapa ʻia ʻo ka apnea hiamoe ((Sleep Apnea)) . Hiki i kahi haʻawina hiamoe ke hōʻoia ʻaʻole ʻoe i loaʻa ka apnea hiamoe.
• Hoʻāʻo Lā Hoʻomaha Nui (MSLT) : Ana kēia hoʻāʻo i ka maʻalahi o kou hiamoe ʻana i ke ao. Pili ia i ka lawe ʻana i kekahi mau hiamoe i loko o kahi manawa kikoʻī. Hiki iā ia ke hoʻoholo inā he nui kou hiamoe i ke ao. He hōʻailona maʻamau kēia o ka narcolepsy. Hana pinepine ʻia i ka lā ma hope o kahi noiʻi hiamoe i ka pō.
• Hoʻāʻo Mālama ʻana i ke Ala ʻAla : Ke ana kēia hoʻāʻo i ka maikaʻi o kou hiki ke ala i ke ao, ʻoiai ke hiamoe maʻalahi nei ʻoe. ʻAʻole hoʻohana pinepine ʻia e nānā i ka narcolepsy, akā hiki iā ia ke kōkua i ka hoʻopau ʻana i nā pilikia ʻē aʻe. He mea pono nō hoʻi ke ʻike inā e hana ana nā lāʻau hoʻoulu.
• ʻO Spinal Tap (Lumbar Puncture) : Hiki i kēia hoʻāʻo ke ʻike i nā pae haʻahaʻa o ka orexin i loko o kāu wai cerebrospinal (CSF). He ala koʻikoʻi kēia e ʻike ai i ka Type 1 Narcolepsy. Hiki i nā pae orexin haʻahaʻa ke hōʻailona ʻaʻole i loaʻa i kekahi me Narcolepsy ka cataplexy, akā he hōʻailona paha e hoʻomohala ana lākou i ka cataplexy i ka wā e hiki mai ana. Eia nō naʻe, ʻoiai ʻaʻole loli nā pae orexin i nā poʻe me Type 2 Narcolepsy, ʻaʻole kēia he hoʻāʻo diagnostic mau.

Nā hoʻokolohua ʻē aʻe

Hiki i nā poʻe me ka narcolepsy ke loaʻa nā hoʻokolohua ʻē aʻe he nui. No ka laʻana, inā loaʻa iā ʻoe ka cataplexy, hiki ke like me nā hōʻailona e pili ana i ka neʻe ʻana o nā maʻi lolo ʻē aʻe, e like me nā hopu ʻana. No laila, hiki i nā kauka ke hoʻāʻo mua no nā kūlana koʻikoʻi, e like me ka epilepsy. No laila, hiki ke lōʻihi ka manawa e ʻike ai i ka narcolepsy. ʻO kāu kauka ke kanaka maikaʻi loa e wehewehe i nā hoʻokolohua āu e pono ai a me ke kumu e hana ʻia ai.

Pehea e mālama ʻia ai ka narcolepsy? Hiki ke ho'ōla ʻia?

Hiki ke mālama ʻia ka Narcolepsy, akā ʻaʻole hiki ke ho'ōla ʻia . Hoʻomaka ka lāʻau lapaʻau me ka lāʻau lapaʻau. Akā hiki nō hoʻi ke kōkua i ka hoʻololi ʻana i kāu hana maʻamau a me kou nohona. Hoʻoponopono maikaʻi ka Narcolepsy i ka lāʻau lapaʻau. Hiki i kēia ke kōkua i ka palena ʻana i ka hoʻopilikia ʻia e nā hōʻailona.

E hoʻomanaʻo, he maʻi ola ka narcolepsy, akā, ʻaʻole ia e lilo i mea ʻino i ka hala ʻana o ka manawa.

He aha nā lāʻau lapaʻau no ka narcolepsy?

ʻO ka lāʻau lapaʻau ka lāʻau lapaʻau nui no ka narcolepsy. Hoʻopili ka hapa nui o nā lāʻau lapaʻau i ka hiamoe nui i ke ao. Eia nō naʻe, hoʻopilikia kekahi mau lāʻau lapaʻau i nā hōʻailona ʻē aʻe. Eia kekahi mau ʻano lāʻau lapaʻau e hiki ke hāʻawi ʻia no kēia maʻi:

• Nā Lāʻau Lapaʻau Ala : ʻO kēia nā lāʻau lapaʻau mua. ʻO nā laʻana e komo pū me Modafinil lāua ʻo Armodafinil . Hoʻoulu kēia mau lāʻau lapaʻau i kāu ʻōnaehana nerve. Hiki i kēia ke kōkua i ka hōʻemi ʻana i ka ikaika a me ka pinepine o ka hiamoe i ke ao.
• ʻO nā Amphetamines a me nā Amphetamine-like Stimulants : Nā lāʻau lapaʻau e like me ka methylphenidate (i ʻike ʻia ma lalo o nā inoa inoa ʻo Ritalin®, Concerta®, Qullivant®) a me nā hui amphetamine/dextroamphetamine (i ʻike ʻia ma lalo o ka inoa inoa ʻo Adderall®).
• Nā Lāʻau Hoʻēmi i ke Kaumaha : Hiki i kēia ke komo pū me nā Serotonin-Norepinephrine Reuptake Inhibitors (SNRIs) (e.g. Venlafaxine - i ʻike ʻia ʻo Effexor®), Selective Serotonin Reuptake Inhibitors (SSRIs) (e.g. Fluoxetine - i ʻike ʻia ʻo Prozac®), a i ʻole Tricyclic Antidepressants (e.g. Clomipramine a i ʻole Protriptyline - ʻaʻole i hoʻohana nui ʻia kēia mau mea i kēia manawa).
• (Sodium Oxybate) : Kōkua kēia lāʻau lapaʻau iā ʻoe e hiamoe maikaʻi a hōʻemi pū i ke alapine (Cataplexy). Ma muli o nā hopena o kēia lāʻau lapaʻau, ua kāohi pono ʻia ma nā ʻāina he nui. Eia nō naʻe, hoʻohana pinepine ʻia e mālama i ka (Type 1 Narcolepsy).
• Nā lāʻau lapaʻau e hoʻopilikia ana i ka histamine : ʻO kahi laʻana o ia ʻano lāʻau ʻo Pitolisant.He mea hoʻopilikia i ka histamine receptor kēia. ʻO nā mea hoʻopilikia i ka receptor he mau lāʻau lapaʻau e pale ai i kekahi mau kemika i loko o kou kino mai ka hoʻopili ʻana i nā cell. Hoʻēmi kēia a hoʻōki paha i nā cell mai ka hana ʻana i kekahi mau mea.

ʻOiai he nui nā koho lapaʻau no nā pākeke (narcolepsy), ua palena loa nā koho lapaʻau no nā keiki. Hiki i ke kauka pediatric a i ʻole ke loea ke haʻi maikaʻi iā ʻoe i nā koho lapaʻau i loaʻa iā ʻoe a me kā lākou e ʻōlelo nei.

Nā pilikia/nā hopena ʻaoʻao o ka lāʻau lapaʻau

He nui nā lāʻau lapaʻau i hoʻohana ʻia e mālama i ka narcolepsy a me kāna mau hōʻailona he nui ka manawa e launa pū ai me nā lāʻau lapaʻau ʻē aʻe. ʻO ke koko kiʻekiʻe a me nā ʻano puʻuwai maʻamau ʻole ʻelua wale nō o nā pilikia e hiki ke hana me kekahi ʻano lāʻau hoʻoulu. ʻO Sodium Oxybate, ma ke ʻano kūikawā, he mea weliweli loa ia i ka wā e hui pū ʻia me nā lāʻau lapaʻau ʻē aʻe e hoʻonāwaliwali i ka ʻōnaehana nerve waena. Eia kekahi, mai hoʻohana i kēia lāʻau lapaʻau me ka waiʻona .

Ma keʻano laulā, ʻo kāu kauka ke kanaka maikaʻi loa e haʻi iā ʻoe i nā hopena ʻaoʻao, nā pilikia, a me nā pilina lāʻau lapaʻau āu e makaʻala ai. Hiki iā ia ke hāʻawi i ka ʻike i hoʻopilikino ʻia i kou kūlana kikoʻī, ka mōʻaukala olakino, a me nā kūlana pilikino.

Pehea e hiki ai iaʻu ke mālama iaʻu iho a hoʻokele i kaʻu mau hōʻailona?

ʻAʻole loa ʻoe e hoʻāʻo e ʻike a mālama paha i ka narcolepsy iā ʻoe iho . ʻO kēia no ka mea he mea maʻamau nā hōʻailona o kēia ʻano i nā kūlana koʻikoʻi ʻē aʻe, e like me ka apnea hiamoe a me ka epilepsy. Eia kekahi, hiki i kēia ʻano ke hoʻolilo i kekahi mau hana, e like me ka hoʻokele kaʻa a me ka ʻauʻau ʻana, i mea weliweli. No laila, e ʻike mau i ke kauka no ka ʻike a me ka mālama ʻana .

ʻEhia ka manawa e ʻoi aku ai koʻu maikaʻi ma hope o ka lāʻau lapaʻau?

ʻO ka manawa e hoʻomaka ai ka hana ʻana o ka lāʻau lapaʻau, a i ʻole ka hopena o ka lāʻau lapaʻau e ʻike ʻia, pili ia i nā kumu he nui. ʻO kāu kauka ke kanaka maikaʻi loa e haʻi iā ʻoe i ka mea e manaʻo ai ma muli o kou kūlana, pehea ka lōʻihi o ka hana ʻana o ka lāʻau lapaʻau, a pehea ka lōʻihi e ʻike ai i kahi loli i kāu mau hōʻailona.

Hiki ke hōʻemi ʻia a pale ʻia paha ka ulu ʻana o ka narcolepsy?

I ka hapanui o nā hihia, ulu koke ka narcolepsy. No laila, ʻaʻole hiki ke hōʻemi i ka pilikia o ka ulu ʻana a i ʻole ke pale ʻana iā ia mai ka ulu ʻana.

He aha kaʻu e manaʻo ai inā loaʻa iaʻu ka Narcolepsy?

ʻAʻole ia he mea weliweli ka Narcolepsy ponoʻī. Akā, ʻo ka hiamoe koke ʻole a hiki ʻole ke kāohi ʻia hiki ke lilo i mea hoʻopilikia nui i ke ola. ʻAʻole hiki i ka poʻe me kēia maʻi ke hoʻokele (no ka manawa pōkole a mau loa paha - pili ia i ko lākou mau hōʻailona a me ke kūlana).

ʻOiai ʻaʻole ia he mea weliweli ka narcolepsy maʻamau, ma ka narcolepsy Type 1, aia kahi piʻi o ka pilikia o ka hōʻeha mai ka hāʻule ʻana i ka wā o nā hanana o ka cataplexy. Hiki i ka Narcolepsy ke hana i nā kūlana weliweli i ka wā e hoʻokele ana, e hoʻohana ana i nā mea hana mana a i ʻole nā ​​​​mīkini kaumaha, a i ʻole e ʻauʻau ana.

Ke loaʻa i nā keiki ka narcolepsy

Hoʻopilikia pinepine nā keiki me ka narcolepsy me nā hopena o ke ʻano. Hiki i ka hiamoe i ke ao ke paʻakikī i ka nānā ʻana i nā hana kula, mālama i nā pilina pilikanaka, a komo i ke kula a me nā hana extracurricular.

Eia nō naʻe, he maʻi lapaʻau ka Narcolepsy. No laila, ua kūpono nā keiki me Narcolepsy i nā palekana kānāwai. Pono nā kula e ke kānāwai e hana i nā hoʻoponopono. No ka laʻana, ka hoʻololi ʻana i nā papa hana papa, ka hoʻokaʻawale ʻana i ka manawa no ka hiamoe a i ʻole ka hoʻomaha, a me ka maʻalahi o ka lawe ʻana o nā keiki i kā lākou mau lāʻau lapaʻau ma ke kula. Hiki i ke kauka pediatric a i ʻole nā ​​​​loea ʻē aʻe ke kōkua iā ʻoe e ʻimi i nā hopena e kōkua i kāu keiki.

No nā mākua hana (Narcolepsy)

E like me ka pale ʻia ʻana o nā keiki e ke kānāwai ma nā kula, pale ʻia nā pākeke me ka narcolepsy e ke kānāwai. Ua pāpā ʻia ka hoʻokae ʻana i kekahi ma muli o kahi kūlana olakino, me ka narcolepsy (no ka laʻana, ma ʻAmelika Hui Pū ʻIa, ma lalo o ke Kānāwai ʻAmelika me nā Kino).

Ma muli o kēlā palekana kānāwai, hiki i ka poʻe me ka narcolepsy ke kamaʻilio me kā lākou mau mea hana ma kā lākou wahi hana a loaʻa nā wahi e pono ai i hiki iā lākou ke hoʻomau i ka hana ʻoiai e mālama ana i ko lākou kūlana.

Pehea e mālama ai iaʻu iho? (Nā ʻōlelo aʻoaʻo kūpono)

Inā loaʻa iā ʻoe ka narcolepsy, aia kekahi mau mea hiki iā ʻoe ke hana e mālama i kou kūlana a loaʻa ka mea nui loa mai kāu lāʻau lapaʻau. ʻO ka hapa nui o kēia mau mea e pili ana i ka mālama ʻana i nā ʻano hiamoe maikaʻi (Good Sleep Hygiene) a me ka hoʻololi ʻana i kāu papa hana a me kāu hana maʻamau.

• E mālama i kahi hana hiamoe mau : ʻO ka hoʻomaʻamaʻa ʻana i ka hele ʻana i ka hiamoe a me ke ala ʻana i ka manawa like e hiki ke hoʻomaikaʻi i ka maikaʻi o kāu hiamoe.
• E hoʻonohonoho i kahi manawa moe : E hoʻonohonoho i kahi manawa moe e hiki ai iā ʻoe ke loaʻa ka nui o ka hiamoe e kūpono i kou mau makahiki. Eia kekahi, e hoʻokaʻawale i ka manawa e hoʻomaha ai a hoʻomālielie i kou manaʻo ma mua o ka hiamoe ʻana.
• E kaupalena i ka ʻike ʻana i ka mālamalama ʻōlinolino a me nā mea uila : Hiki i ke kukui mai kēia mau mea kokoke i ka wā hiamoe ke hoʻopilikia i ke kaʻina hiamoe-ala maoli o kou kino.
• E hōʻalo i ka inu ʻona, ka caffeine, ka hoʻohana ʻana i ka paka, a me ka ʻai ʻana kokoke i ka wā hiamoe.Inā pōloli ʻoe ma mua o ka hiamoe ʻana, ʻoi aku ka maikaʻi o ka ʻai māmā. Inā ʻoe e lawe ana i kekahi mau lāʻau lapaʻau, pono ʻoe e hoʻōki loa i ka inu ʻana i ka waiʻona (e haʻi aku kāu kauka iā ʻoe inā ua kuhikuhi ʻia ʻoe i kēlā mau lāʻau lapaʻau). Paipai ikaika pū nā loea i ka hoʻōki loa ʻana i nā huahana paka (me nā cigarettes, nā cigarettes uila ((vaping)), a me ka paka uahi ʻole ((paka uahi ʻole))).
• E hana kino : ʻOiai inā he mea e like me ka hele wāwae wale nō, hiki i ka noho hana ke kōkua i ka maikaʻi o kāu hiamoe.
• E hiamoe iki : ʻOi aku ka maikaʻi o ka poʻe me ka narcolepsy ma hope o ka hiamoe ʻana. Hiki ke kōkua i ka ʻike ʻana i nā manawa o ka lā āu e hiamoe nui ai a hoʻonohonoho i kāu hiamoe a puni kēlā mau manawa.

E hōʻalo i nā hana weliweli, a i ʻole e hana i nā hana palekana.

Hiki i ka Narcolepsy ke hana i nā ulia koʻikoʻi, a hiki i ka make. No ka pale ʻana iā ʻoe iho a me ka poʻe a puni ʻoe, mai hoʻokele kaʻa ke ʻole i ʻae ʻia e ke kauka .

Inā ʻike ʻoe i nā hōʻailona o ka narcolepsy i ka wā e hoʻokele ana, e hoʻōki koke i ka hoʻokele a kāhea aku i kāu kauka. ʻOiai he mea ʻoluʻolu ʻole kēia, he mea nui ia e pale aku i kahi ulia make a hoʻololi paha i ke ola ma muli o ka hiamoe ʻana ma ka huila.

ʻO kekahi wahi kahi e hiki ai i ka narcolepsy ke lilo i mea weliweli loa i loko o ka wai . Inā loaʻa iā ʻoe ka narcolepsy, he mea nui loa ia e ʻaʻahu pono i kahi ʻaʻahu ola i kou wā e ʻauʻau ana a i ʻole ma luna o kekahi waʻa a moku paha e ʻōlelo ana i kahi mea mālama ola. Me ka ʻole o kahi mea mālama ola, hiki i ka hiamoe hiamoe i loko o ka wai ke loaʻa nā hopena make.

Āhea wau e ʻike ai i ke kauka?

Inā hiamoe koke ʻoe, me ka manaʻo ʻole ʻia, he hōʻailona ia e pono ai ʻoe e ʻike i ke kauka. ʻAʻole wale kēia he narcolepsy, akā hiki iā ia ke hōʻike i nā ʻano maʻi like ʻole. He koʻikoʻi kekahi o lākou. I nā hihia he nui, ʻo ka lōʻihi o kou hoʻopaneʻe ʻana i ka ʻike a me ka mālama ʻana, ʻoi aku ka nui o ka pilikia o nā pilikia a i ʻole ka liʻiliʻi o ka hopena o ka mālama ʻana.

Āhea wau e hele ai i kahi Emergency Treatment Unit (ETU) ?

Inā hiolo koke ʻoe a nalowale paha ka ʻike, e ʻimi koke i ke kōkua lapaʻau ma ka haukapila a i ʻole ke keʻena pilikia. He hōʻailona nui kēia o nā maʻi he nui, me nā hōʻeha puʻuwai, nā hahau, a me nā ʻano puʻuwai kūpono ʻole. He mau pilikia olakino kēia mau maʻi a pono e mālama koke ʻia.

ʻO nā ʻeha e pili ana i ka hāʻule ʻana, ʻo ia nā ʻeha e kū mai ana ke hāʻule ʻoe me ka manaʻo ʻole ʻia, e like me ka huki ʻia ʻana a i ʻole ka nalowale ʻana o ka ʻike.Aia kahi pilikia o ka ʻeha. E ʻimi mau i ke kōkua lapaʻau inā manaʻo ʻoe ua loaʻa iā ʻoe kahi ʻeha i kou poʻo, ʻāʻī, a i ʻole kekahi ʻāpana o kou kua. Hiki i nā haki a me nā ʻeha i ke kaula kuamoʻo ke hana i ka hōʻeha mau loa, ka maʻi lolo, a me ka make.

Inā hāʻule ʻoe, a ke lawe nei ʻoe i kekahi ʻano lāʻau hoʻokahe koko , ʻoiai inā paʻi ʻoe i kou poʻo, pono ʻoe e ʻimi koke i ke kōkua lapaʻau. Hiki i ka hāʻule ʻana a me nā ʻeha ke hoʻoulu i ke kahe koko kūloko weliweli. Pono ʻoe i ke kōkua lapaʻau e hōʻoia ʻaʻole ʻoe i loaʻa i kekahi ʻeha e hiki ai ke alakaʻi i nā pilikia e hoʻoweliweli ai i ke ola.

Nā mea nui e pono ai ʻoe e hoʻomanaʻo (Leka Lawe-Home)

No laila, ke lana nei koʻu manaʻo ua hiki iā ʻoe ke hoʻomanaʻo i kekahi o nā mea nui loa mai nā mea a mākou i kamaʻilio ai (Narcolepsy).

• ʻAʻole wale ka Narcolepsy i ka hiamoe i hoʻokumu ʻia e ka luhi. He pilikia ia me ka hiki o ka lolo ke hoʻoponopono i ka hiamoe a me ke ala ʻana.
• E makaʻala i nā hōʻailona nui o ka hiamoe nui i ke ao, cataplexy (nāwaliwali koke o nā ʻiʻo), nā hallucinations pili i ka hiamoe, a me ka maʻi hiamoe . ʻAʻole ʻike ʻia kēia mau hōʻailona a pau i nā kānaka a pau.
• ʻO ke kumu o kēia kūlana he emi pinepine ia o ka orexin kemika i loko o ka lolo, a i ʻole nā ​​​​pilikia autoimmune.
• Pono ka Narcolepsy i nā hoʻokolohua lapaʻau kūikawā e ʻike ai. No laila, mai lele i nā hopena ma kāu iho.
• ʻOiai ʻaʻole hiki ke ho'ōla loa ʻia kēia, he kūlana ia e hiki ke kāohi nui ʻia me nā lāʻau lapaʻau a me nā loli o ke ʻano o ka nohona .
• E noʻonoʻo pono e pili ana i ka palekana. E akahele loa i ka wā e hoʻokele ana, e ʻauʻau ana, a e hana ana ma nā wahi kiʻekiʻe. E hahai i nā ʻōlelo aʻoaʻo a ke kauka.
• Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​mai makaʻu e ʻike i ke kauka. ʻAʻole ʻoe hoʻokahi. Loaʻa ke kōkua.

Manaʻolana wau he kōkua kēia ʻike iā ʻoe. Inā ʻoe a i ʻole kekahi āu i ʻike ai e ʻike nei i kēia ʻano pilikia, ʻoi aku ka maikaʻi o ka ʻimi ʻana i ke kōkua lapaʻau i ka hikiwawe loa.

ʻO ka Narcolepsy, ka hiamoe nui i ke ao, cataplexy, apnea hiamoe, nā hallucinations hiamoe, orexin, nā maʻi lolo