Aia kekahi puʻupuʻu ʻeha ʻole ma kou kino? Hiki paha iā ia ke lilo i Synovial Sarcoma?

Ua ʻike anei ʻoe i kahi puʻupuʻu liʻiliʻi ma kekahi wahi o kou kino, ma kou wāwae a lima paha? I ka wā mua, ua manaʻo paha ʻoe, "ʻAuē, he pehu liʻiliʻi wale nō kēia." ʻOiai ʻaʻohe ʻeha, ʻaʻole paha ʻoe i nānā nui iā ia. Akā inā ʻaʻole ia e nalowale ma hope o kekahi mau lā, he mea maʻamau ke hopohopo iki. ʻO ia ke kumu ʻaʻole maikaʻi ka nānā ʻole ʻana i kēlā me kēia puʻupuʻu e kū mai ana ma kou kino. I kēia lā, e kamaʻilio mākou e pili ana i kahi maʻi ʻaʻai laha ʻole e hoʻomaka pinepine me he puʻupuʻu ʻeha ʻole. ʻO ia ka Synovial Sarcoma.

I ka ʻōlelo maʻalahi, he aha ka Synovial Sarcoma?

He ʻano maʻi kanesa kakaikahi ka Synovial Sarcoma e hoʻopilikia ana i nā ʻiʻo palupalu o ko mākou kino, e like me nā ʻiʻo a i ʻole nā ​​ligaments . Loaʻa iā ia kona inoa no ka mea ua like ke ʻano o nā hunaola kanesa me nā hunaola synovial i loko o ko mākou mau hono. E like me nā hunaola i loko o ko mākou mau hono e like me ko mākou mau kuʻekuʻe lima, nā pūhaka, a me nā poʻohiwi.

ʻO kekahi o nā ʻano o kēia maʻi kanesa, ʻo ia ka ulu lohi loa . ʻO ia ke kumu ʻaʻole paha ʻoe e ʻike i kekahi ʻeha i nā pae mua. No nā poʻe he nui, hoʻomaka nā hōʻailona e ʻike ʻia ma hope o ka ulu ʻana o ka puʻupuʻu i lawa ka nui e ʻike ʻia a i ʻole e hoʻopā ʻia. I kekahi manawa, inā e kaomi ʻia kahi aʻalolo kokoke i ka ulu ʻana o ka puʻupuʻu, hiki iā ia ke hōʻeha a i ʻole ka mae ʻana ma ia wahi.

He mea maʻamau i kekahi ke manaʻo e like me ka huli koke ʻana o ko lākou honua holoʻokoʻa i ka wā e ʻike ai lākou he maʻi kanesa ko lākou. "He aha ke ʻano o kēia noʻu?", "Pehea lā koʻu ola mai kēia manawa aku?" Nui paha nā nīnau e holo ana i loko o kou manaʻo. ʻAʻole ʻoe hoʻokahi, a he mea maʻamau kēia mau manaʻo. Aia kāu kauka a me kāu hui lapaʻau me ʻoe i kēlā me kēia ʻanuʻu o ke ala.

Ma nā ʻāpana hea o ke kino e hiki ai ke ulu kēia maʻi kanesa?

Hiki i kēia ʻano maʻi kanesa ke loaʻa ma nā ʻāpana like ʻole o ke kino. ʻO nā mea maʻamau:

• ʻōpū
• Nā lima
• Nā wāwae
• Nā wāwae
• Nā māmā

Eia kekahi, hiki i kēia maʻi ʻaʻai ke hana pū i loko o ko kākou mau hono. Eia kekahi laʻana:

• Nā kuʻekuʻe wāwae
• Nā kuʻekuʻe lima
• Nā ʻūhā
• Nā poʻohiwi
• Nā pulima lima

ʻAʻole pinepine loa, hiki ke loaʻa ka sarcoma synovial ma ka umauma, ke poʻo, a i ʻole ka ʻāʻī.

Pehea ka maʻamau o kēia ʻano?

E like me nā sarcoma palupalu ʻē aʻe, he maʻi ʻaʻai laha ʻole ka sarcoma synovial. ʻOiai hiki ke loaʻa i kēlā me kēia makahiki, ʻoi aku ka maʻamau i nā kāne ma lalo o 30 mau makahiki .

He aha nā hōʻailona nui o kēia maʻi kanesa?

He kanesa lohi loa ka ulu ʻana o ka Synovial Sarcoma. I kekahi manawa, hiki i ka puʻupuʻu ke moe i loko o ke kino a hiki i ʻelua mau makahiki me ka ʻole o ka hōʻike ʻana i nā hōʻailona. Ke ʻike ʻia nā hōʻailona, ​​​​e ʻike paha ʻoe:

Hiki i kēia mau hōʻailona ke like me nā hōʻailona o nā kūlana ʻē aʻe i ʻoi aku ka koʻikoʻi, e like me ka arthritis a i ʻole bursitis, hiki ke hoʻopaneʻe i ka hōʻoia ʻana i kekahi manawa.

No ke aha e ulu ai kēia maʻi kanesa? He aha ke kumu?

ʻAʻole i loaʻa i nā kānaka noiʻi kahi kumu kikoʻī no kēia, akā ua ʻike lākou ua hoʻokumu ʻia ia e kekahi mau loli (mutations) i loko o kā mākou chromosomes.

E noʻonoʻo wale i kēia ʻano. Ua like ko kākou mau chromosome me kahi puke nui. ʻO nā genes nā huaʻōlelo i kākau ʻia ma kēlā puke. Aia wale nō ke hoʻonohonoho pono ʻia kēia mau huaʻōlelo hiki i nā cell i loko o ko kākou kino ke hana pono. Ke ulu ka synovial sarcoma, haki kēia mau chromosome a i ka wā e hoʻihoʻi ʻia ai, paʻa kekahi mau genes ma nā wahi kūpono ʻole. ʻO ke kikoʻī, ua hui pū ʻia kahi gene i kapa ʻia ʻo `SYT` me nā genes ʻē aʻe i kūlike ʻole me ia. Ma muli o kēia kuhihewa ʻana, ua hewa ka leka i loaʻa i nā cell. A laila hoʻomaka nā cell e māhele me ka ʻole o ka hoʻomalu ʻia, e hana ana i kahi puʻupuʻu kanesa.

Pehea e ʻike ai ke kauka i kēia maʻi?

Ke hele ʻoe e ʻike i ke kauka, e hana mua ʻo ia i kahi hoʻokolokolo kino, e nīnau e pili ana i kāu mau hōʻailona a me ka mōʻaukala olakino. Inā he kānalua kāna, e kuhikuhi ʻo ia iā ʻoe i kahi kauka maʻi kanesa.

E hana ke kauka loea i kekahi mau hoʻokolohua like ʻole e hoʻoholo ai i ka nui a me ka wahi o ka puʻupuʻu.

Ma hope o kēia mau hoʻokolohua, ʻo ka hoʻokolohua koʻikoʻi loa e 100% hōʻoia i ka maʻi he biopsy.ʻO ka mea i hana ʻia ma ʻaneʻi, ʻo ia ke lawe ʻana i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka puʻupuʻu a hoʻouna aku i kahi keʻena hoʻokolohua. Ma laila, nānā kahi pathologist i nā ʻāpana ma lalo o kahi microscope e hōʻoia pono inā he maʻi kanesa ia, a inā pēlā, he aha ke ʻano o ke kanesa.

He aha nā lāʻau lapaʻau no kēia?

ʻO ke ʻoki kino ka lāʻau lapaʻau nui a maʻamau no ka sarcoma synovial . ʻO ka pahuhopu ka wehe loa ʻana i ka puʻupuʻu kanesa. Wehe ʻia ka puʻupuʻu me kahi liʻiliʻi o nā ʻiʻo olakino a puni ia e hoʻopau i nā hunaola kanesa i koe. I kekahi mau hihia, ma muli o ka mamao o ka laha ʻana o ke kanesa, pono paha e wehe ʻia kahi ʻiʻo holoʻokoʻa a i ʻole kahi hui o nā ʻiʻo. E wehewehe kāu kauka i kēia iā ʻoe ma muli o kou kūlana.

Hiki ke hana ʻia ke ʻoki kino ma ke ʻano he lāʻau hoʻokahi a i ʻole me ka hui pū ʻana me nā lāʻau ʻē aʻe. ʻO kēia mau lāʻau:

• Chemotherapy: Ke hāʻawi ʻana i nā lāʻau lapaʻau e pepehi i nā hunaola kanesa.
• Lapaʻau Radiation: Ke luku ʻana i nā hunaola kanesa me ka hoʻohana ʻana i nā kukuna ikehu kiʻekiʻe.
• Immunotherapy: Hoʻoulu i ka ʻōnaehana pale o ko mākou kino ponoʻī e hakakā i nā hunaola kanesa.
• Lapaʻau i hoʻolālā ʻia: Ke lawelawe ʻana i nā lāʻau lapaʻau e hoʻolālā ana i nā molekala kikoʻī e hoʻopilikia ai i ka ulu ʻana o nā hunaola kanesa.
• Nā lāʻau anti-angiogenesis: Hana kēia ma ke kāohi ʻana i ke kūkulu ʻia ʻana o nā kīʻaha koko hou e hoʻolako i nā hunaola kanesa me ke koko. A laila hoʻonele kēia i nā hunaola kanesa i nā meaʻai a make lākou.

ʻO ka lāʻau lapaʻau maikaʻi loa iā ʻoe e pili ana i nā kumu he nui, me ka nui o ka puʻupuʻu, kona wahi, pehea ka lōʻihi o kou loaʻa ʻana, a inā ua pālahalaha ke kanesa i nā wahi ʻē aʻe (metastasized).

He aha kāu e manaʻo ai ma hope o ka lāʻau lapaʻau?

Me ka holomua o ka ʻepekema lapaʻau, ua nui nā holomua i ka mālama ʻana i ka Synovial Sarcoma. Eia nō naʻe, aia kahi pilikia o ka hoʻi hou ʻana o ke kanesa ma hope o ka mālama ʻana, i kekahi manawa ma hope o nā makahiki. No laila, e nānā mau kāu kauka iā ʻoe no nā nānā ʻana no kekahi mau makahiki ma hope o ka mālama ʻana.

I ka wā e pili ana i nā helu ola o ka maʻi kanesa, ʻo ka helu ola o 5 makahiki ma kahi o 50% - 60%. ʻO ke ʻano kēia he 5 a i ʻole 6 o 10 mau kānaka i ʻike ʻia me ka maʻi e ola mau ana ma hope o 5 mau makahiki. He mea nui loa e nīnau i kāu kauka pehea e pili ai kēia mau helu iā ʻoe a me kou kūlana.

Aia kekahi ala e pale aku ai i kēia mai ka hana ʻana?

ʻO ka mea pōʻino, ʻaʻole hiki ke pale ʻia kēia no ka mea ua hana ʻia e nā loli i nā chromosomes hiki ʻole iā mākou ke kaohi.

Akā, ʻo ka mea maikaʻi loa hiki iā mākou ke hana, ʻo ia ke pale aku i ka laha ʻana o ke kanesa i nā ʻāpana ʻē aʻe o ke kino (metastasis) . ʻO ke ala wale nō e hana ai i kēlā, ʻo ia ke ʻike mua i ka maʻi a hoʻomaka i ka lāʻau lapaʻau i ka wā hikiwawe loa . No laila, e makaʻala mau i nā loli i kou kino. Inā ʻike ʻoe i kahi puʻupuʻu hou ʻaʻole e nalowale i loko o kekahi mau pule, e hōʻike pono i ke kauka.